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[Diabetes] General Chat and Support Thread

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Comments

  • Moderators, Science, Health & Environment Moderators, Sports Moderators Posts: 24,118 Mod ✭✭✭✭robinph


    banjobongo wrote: »
    hi guys
    quick question - re the libre sensor, somebody posted on this thread a few weeks ago a product on Amazon, a protective band for the sensor when doing activity sports, it looked good but when I clicked on it the message was that they did not deliver to Ireland....anybody know where I can find and order such a product that can be delivered in IReland?

    It's only very rarely that I've felt the need to fix the Libre in place a bit more securely, usually during extreme distance events or when it's very, very warm so lots of additional sweating and pouring water over yourself to keep cool.

    I would tend to use KT tape to hold it in those situations though, rip a bit of the paper from the Libre instruction page to the size of the Libre (as you don't want the KT tape actually sticking to the Libre directly as that would just create more chance of it getting pulled out) and then stick the bits of tape over the top as needed. The sticky of the Libre itself always seems to restick after having got hot/ sweaty/ wet so it's only really needed for the taping to keep it in position during the event and to stop you pulling it out when it's wet.


  • Registered Users, Registered Users 2 Posts: 7,598 ✭✭✭Meauldsegosha


    frosty123 wrote: »
    He had me on the 24 monitor, and he found my average reading to be high and hence he put me on medication..but did have to mention that?
    Could he not have said above average blood pressure?

    Probably wouldn't get the job now

    Do you really think the medical officer in An Post would not see straight through “above average blood pressure”. You GP did nothing wrong.


  • Registered Users Posts: 565 ✭✭✭frosty123


    So realistically? does that mean no job?


  • Registered Users, Registered Users 2 Posts: 16,935 ✭✭✭✭banie01


    frosty123 wrote: »
    So realistically? does that mean no job?

    Realistically, that's a question for An Post to answer.
    Is your BP diabetes related?


  • Moderators, Sports Moderators Posts: 25,172 Mod ✭✭✭✭CramCycle


    Have to agree with everyone, I thought it was a single measurement. Hypertension brings up less questions than above average BP. As for the job, as above, it might mean nothing, it might mean certain things aren't covered under their insurance plan, the only groups who will know are An Post, or other postie's. Not sure if there is a forum here with that demographic.


  • Registered Users, Registered Users 2 Posts: 746 ✭✭✭calfmuscle


    banie01 wrote: »
    Realistically, that's a question for An Post to answer.
    Is your BP diabetes related?

    No, you'll be fine.


  • Moderators, Sports Moderators Posts: 25,172 Mod ✭✭✭✭CramCycle


    robinph wrote: »
    It's only very rarely that I've felt the need to fix the Libre in place a bit more securely, usually during extreme distance events or when it's very, very warm so lots of additional sweating and pouring water over yourself to keep cool.

    I used Gorilla tape when my dexcom came use recently after a race (solo TT, Covid compliant). It was loose but somehow hadn't pulled the actual plastic insert out. Only 2 days in I stuck Gorilla tape on it. Held for the rest of the week, but it smelled bad when removed, the gluey substance must promote it. Didn't smell until I removed it, wore it through several showers and commutes on a bike without issue or smell, the smell appeared on removal, it was fragrant to say the least.


  • Registered Users Posts: 128 ✭✭Taeholic


    I found a really good free app I thought I'd share. For anyone interested or relatively new to insulin like myself I'll take all the help I can get :)


    https://www.hedia.co/


  • Registered Users, Registered Users 2 Posts: 40,515 ✭✭✭✭ohnonotgmail


    had my annual checkup yesterday. All good in the hood.


  • Registered Users Posts: 379 ✭✭Johann.


    Second vaccine next friday, which is nice.

    Have discovered my glucose monitor has NFC - so have been using the app 'Social Diabetes' to sync it and keep track, keeps a record and gives estimated Hba1C etc. Worth a look for anybody in need.


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  • Registered Users, Registered Users 2 Posts: 77 ✭✭CalisGirl


    I've recently found out that Lyft and Dextrose are available on the LTI scheme if they are included on a prescription. Same with batteries for an insulin pump. Are there any other non-medication items available under the LTI for diabetics?


  • Registered Users Posts: 320 ✭✭Donutz


    Has anybody in Limerick gotten an appointment for their second dose?

    I'm due a second dose of AZ next Friday but some of my work colleagues have been given appointments in Nenagh for next week.


  • Registered Users Posts: 129 ✭✭tadgho


    Probably been discussed or mentioned before so apologies. Can anyone give me a rough idea of the cost of Life Assurance on their mortgage as Type 1 diabetic? Single applicant, aged 30, mortgage amount around 190k. Hba1c in normal range usually and generally well controlled. Thanks!


  • Registered Users, Registered Users 2 Posts: 16,935 ✭✭✭✭banie01


    Donutz wrote: »
    Has anybody in Limerick gotten an appointment for their second dose?

    I'm due a second dose of AZ next Friday but some of my work colleagues have been given appointments in Nenagh for next week.

    I'm in at the racecourse on Wednesday for 2nd AZ.


  • Registered Users, Registered Users 2 Posts: 77 ✭✭CalisGirl


    tadgho wrote: »
    Probably been discussed or mentioned before so apologies. Can anyone give me a rough idea of the cost of Life Assurance on their mortgage as Type 1 diabetic? Single applicant, aged 30, mortgage amount around 190k. Hba1c in normal range usually and generally well controlled. Thanks!

    My mortgage and personal details are roughly the same and I'm paying €25/month. I'd recommend contacting Diabetes Ireland for their recommendations on life assurance (and insurance in general). They can recommend brokers who specialise in Diabetes for Life assurance and for Insurance, have special deals with specific Insurance Companies.


  • Registered Users, Registered Users 2 Posts: 16,935 ✭✭✭✭banie01


    2nd dose of AZ later today, a week earlier than 12, so it does seem the work on shortening the interval is starting to pay off too.

    Also for those of us with Neuropathy.
    I took delivery of a cold therapy laser yesterday that I am hoping will help with some central Neuropathy issues I'm having.
    I'll keep the thread updated with news on how it works (or doesn't).


  • Registered Users, Registered Users 2 Posts: 5,175 ✭✭✭angeldelight


    CalisGirl wrote: »
    I've recently found out that Lyft and Dextrose are available on the LTI scheme if they are included on a prescription. Same with batteries for an insulin pump. Are there any other non-medication items available under the LTI for diabetics?

    https://www2.hse.ie/file-library/long-term-illness/long-term-illness-scheme-list-f.pdf


  • Registered Users, Registered Users 2 Posts: 16,935 ✭✭✭✭banie01


    banie01 wrote: »

    Also for those of us with Neuropathy.
    I took delivery of a cold therapy laser yesterday that I am hoping will help with some central Neuropathy issues I'm having.
    I'll keep the thread updated with news on how it works (or doesn't).

    I've been using the device now for about 2 weeks.
    This coincides with my last nerve ablation wearing off and my current pain level being quite high.

    My use is also coincidental with my needing to ramp up analgesic meds, so my current judgement is clouded by those factors.

    All that said, and caveated by the fact that on "bad" days that in addition to neuropathic meds I take opioids too.
    I do think there is some little bit of benefit, but that may be placebo or wishful thinking on my part.
    I find that using the laser is better than icing and far more comfortable.
    Icing also carries the risk of injury if carried on too long.
    The level of relief is not immediate and is not on a par with my usual routine of an ice bag on the affected areas.

    I'm booked in with my PMS in a few weeks for another round of nerve ablation and will continue treating the areas but I may chat to my PMS about trying a tens machine too.
    Anything to lessen the pain, without needing more meds.


  • Registered Users, Registered Users 2 Posts: 16,935 ✭✭✭✭banie01


    Just an update on the Cold Therapy Laser.

    I've been using it for a month or so now and I have some completely unscientific thoughts. Part of the theory behind the concept is that they encourage internal tissues to grow and repair tissue via a photochemical reaction triggered by the wavelengths used.

    In my case, I think this may have actually worsened my issue. I have regular nerve ablation which temporarily destroys the sheath of a nerve and interrupts the transmission of pain signals. Usually last about 12 or so weeks before the pain starts ramping again.

    Anyway I have been using the laser a month or so and my pain in certain areas has worsened significantly. Then it dawned on me that the laser is working directly at odds with the nerve ablation. Causing (in theory at least) faster repair of the nerve and better pain transmission.

    So for its initial use in my case, not much help and probably worsened my condition overall.

    Now that said it has provided what I feel has been an improvement to my dodgy arthritic shoulder.


    TLDR: Don't use on areas that are reliant on nerve ablation as it shortens duration of action.

    Do use on injured, inflamed or arthritis for "some" improvement that may well be a placebo but I'll keep updating.



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  • Registered Users, Registered Users 2 Posts: 2,051 ✭✭✭gooner99


    Hi.

    An elderly relative was diagnosed with type 2 a few weeks back. Level has since dropped back to 6.6. Doctor said they can continue to control it with diet, which we are happy with since they are intolerant to lots of medicines. I believe they will get a blood test every 3 months.

    Should we get a little meter to test it more regular with a finger prick?

    If so which one?



  • Registered Users, Registered Users 2 Posts: 267 ✭✭baby fish


    Will the HSE cover the cost of DEXCOM for all Type 1 diabetics ?



  • Registered Users, Registered Users 2 Posts: 40,515 ✭✭✭✭ohnonotgmail


    Quick question on retina screening. they give you those eye drops that dilate your pupils before taking the images. As part of a normal eye test they take similar pictures of the back of the eye but they don't use the drops. how much of a difference is there between the images taken by the retina screening and the images taken as part of an eye test?



  • Registered Users, Registered Users 2 Posts: 16,935 ✭✭✭✭banie01


    AFAIK the dilation is used to ensure the entirety of the vascular retina is photographed. Its also why there are photos taken in different positions. The dilatated pupils are a diagnostic aid to ensure that the maximum area possible is assessed and any retinopathy is caught before it becomes a problem and that intervention can be made as early as possible.

    The digital retina photography offered by your friendly local optician is not a diagnostic or screening tool. It is useful only in if there is an immediately apparent problem or bleed. The screening programme will alert to incipient retinopathy and forward any for review and if needed additional screening, the optician based one will tell perhaps to see your GP if they spot something.

    As an aside, I have incipient retinopathy in both eyes. DRS picked it up and referred my to local opthamology clinic who assessed me, monitored it for 18months and confirmed no progression. In the time I was 1st flagged and eventually discharged back to DRS? I had 3 eye tests with the photography none of those photos flagged an issue.

    I would not rely upon an Optician to manage or assess my retinopathy risk.



  • Registered Users, Registered Users 2 Posts: 40,515 ✭✭✭✭ohnonotgmail


    I would never rely on the opticians to manage my retinopathy risk. I don't see them often enough for a start. Thank you for the explanation. I received the date for my next screening this morning so I was just curious.



  • Registered Users, Registered Users 2 Posts: 16,935 ✭✭✭✭banie01


    Glad it helped. The drops can mean a half a day wasted but worth it for the chance of heading off something worse and far longer lasting. Good luck at your screening!



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  • Registered Users, Registered Users 2 Posts: 2,598 ✭✭✭Saint_Mel


    Monster thread so probably missed posts but I've just been diagnosed with type2 (mid 40's male)

    GP put me on Metformin and looking to send me for scans on pancreas as I don't fit the profile seemingly! (no symptoms of pancreatitis either)

    They said I should start feeling better soon when the medicine kicks in, but to be honest I've been feeling fine all the time so not sure what change I should be expecting!

    Anyone else in the same boat? Any advice or tips

    Had some conflicting advice from GP saying no sugar in tea/coffee and definitely no artificial sweetener... then gave me a booklet and said to stick to it rigidly ... but that states that artificial sweetener is fine as a sugar replacement!



  • Moderators, Business & Finance Moderators, Sports Moderators Posts: 15,013 Mod ✭✭✭✭whiterebel


    Diagnosed 2 years ago with Type 2. Struggling to lose weight for a few years despite cutting everything back. Went a nutritionist, no change. When the Type 2 was diagnosed GP referred me to an endocrinologist. Started on Metformin, then Synjardy as nothing was bring down the blood glucose level. All his usual advise was wasted on me - I already walk 20-30km a week, play tennis 2/3 times per week. Relatively healthy eating, very little salt, low fat milk ,butter, etc. Hardly drink any more.

    I seemed to tick a lot of boxes for Cushing's disease/Syndrome, but the HbA1c level wasn't high enough for it. 2 biggest problems I have are irritability and fatigue.

    The fatigue is brutal, scary how fast I can just run out of energy, I have woken up at times over my lunch.........Stress is the big problem, it drains the energy levels like crazy. I've started meditation and yoga to try and relax more. Also, a good night's sleep is critical, broken sleep plays havoc with everything for days. Absolutely cannot build stamina no matter what I do.

    Endo put me onto the Ozempic pen once weekly early this year, with Janumet and I have lost about 5/6 kilos since. I have to go back to him in a couple of weeks and we'll see what's next.

    Join up at Diabetes.ie and start organising appointments for retinal myopathy and have your limbs checked for lack of feeling. I've lost all feeling in my right leg for the last 12 months and its not pleasant. You have to be very careful not to get scratched or cut in case they get infected.


    I felt fine too, I was shown to be pre-diabetic in routine blood tests. I tried to bring it down without tablets first, and probably wasted time that way, as there was nothing really to change.



  • Registered Users, Registered Users 2 Posts: 2,598 ✭✭✭Saint_Mel


    My HbA1c was through the roof when tested but similar to yourself, since the pandemic hit I've been exercising more than ever so in reasonable good health.

    Tired a lot but always put that down to working long hours in a stressful job and having very active kids. Not to the point of dozing off though. Wife says I'm grouchy all the time so at least now I might try to blame that on the diabetes ;-)

    Apart from that everything else felt fine so be interesting to see how this tables improve things!



  • Registered Users, Registered Users 2 Posts: 788 ✭✭✭markmoto


    Diabetes general who is going to read 155 pages long thread?



  • Registered Users, Registered Users 2 Posts: 788 ✭✭✭markmoto


    Research into ketogenic diet and IF thats only think will help in a long run.



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  • Registered Users, Registered Users 2 Posts: 788 ✭✭✭markmoto


    That is fine just bear in mind that test carry red label warning. So you know.



  • Registered Users, Registered Users 2 Posts: 40,515 ✭✭✭✭ohnonotgmail




  • Registered Users, Registered Users 2 Posts: 788 ✭✭✭markmoto


    Red label warning on medications serious safety risks. Very small percentage of people could end up in the hospital, encounter disability or die.

    Before the procedure they will ask you to sign documents make sure you read and understand the consequences.



  • Registered Users, Registered Users 2 Posts: 40,515 ✭✭✭✭ohnonotgmail


    they take a picture of the back of your eye. My optician does them now as part of a regular eye exam. I'm happy to live with whatever risks that brings. Certainly a lot less risk than not getting checked and losing my eyesight.



  • Registered Users, Registered Users 2 Posts: 788 ✭✭✭markmoto


    When you go to retinology centre for retina exam you will be given injection that have red label warning. Your regular optician won't have any of that.

    This is nothing to do with regular eye exams at the local optician.



  • Registered Users, Registered Users 2 Posts: 16,935 ✭✭✭✭banie01


    There is no injection, there are eyedrops to dilate the pupil.

    There is a warning and advice sheet linked below.


    Post edited by banie01 on


  • Registered Users, Registered Users 2 Posts: 40,515 ✭✭✭✭ohnonotgmail


    there is no injection prior to a retinopathy exam. There are eye drops to dilate the pupils but that is it. I'm struggling to think what they might need to inject you with.



  • Moderators, Science, Health & Environment Moderators, Sports Moderators Posts: 24,118 Mod ✭✭✭✭robinph


    For the photos of the back of your eye? Never been asked to sign anything before that test or before they put the drops in your eyes.

    Where is the risk of death from the test, other than maybe getting run over by a bus on the way back home because your eyes are dilated and it's a sunny day so your are walking along with your eyes closed as it's way too bright out.



  • Registered Users, Registered Users 2 Posts: 40,515 ✭✭✭✭ohnonotgmail


    there is a small questionnaire beforehand but that is it. I always being sunglasses with me so I have some vision on the way home



  • Registered Users, Registered Users 2 Posts: 788 ✭✭✭markmoto


    Well next time you go to retinopathy exam read paperwork before signing up.

    I am not allow to share that online but I am sure you will find sentences where it says about.



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  • Registered Users, Registered Users 2 Posts: 16,935 ✭✭✭✭banie01


    The paperwork is linked in my post.

    You've gone from there being an injection, (there isn't) to not being allowed to share something online?

    What are you not allowed share? You have enough posts for linking privileges? You can post whatever link you'd like



  • Moderators, Science, Health & Environment Moderators, Sports Moderators Posts: 24,118 Mod ✭✭✭✭robinph


    In the UK they don't give me any paperwork, just ask my name and date of birth, ask if allergic to anything, ask how you are getting home to make sure you are not driving, get you to read a couple of lines of a letter chart with each eye, pop drops in the eyes, leave you sat in waiting area for a bit, flash a bright light at your eyes and send you on your way.


    Don't recall it being vastly different sequence of events when in Ireland or having any paperwork to fill in but that could just be my poor memory, although they sometimes offered some drops afterwards that were meant to counteract the first drops but they never seemed to actually work.



  • Registered Users, Registered Users 2 Posts: 40,515 ✭✭✭✭ohnonotgmail


    you're talking nonsense and hiding behind some sort of privacy when called out. you should be threadbanned for spreading misinformation.



  • Registered Users, Registered Users 2 Posts: 40,515 ✭✭✭✭ohnonotgmail


    the same procedure in Ireland. Never been offered the drops afterwards mind.



  • Registered Users, Registered Users 2 Posts: 788 ✭✭✭markmoto


    Well I am not argue all I said check paperwork, questionary or whatever you are signing for retinopathy test. Make sure you understand what it says in a small or large print. Anyway good luck.



  • Registered Users, Registered Users 2 Posts: 40,515 ✭✭✭✭ohnonotgmail


    you mentioned there was an injection beforehand. this is a lie.



  • Registered Users, Registered Users 2 Posts: 16,935 ✭✭✭✭banie01


    But that's not all you said. You waded in to a thread, threw out utter bullshit as a contribution and then rather than back up said bullshit? Make the above mealy mouthed post? Any more input on those injections? Or the things you aren't left share online?

    People who find this thread are often a little shook after a diagnosis and are looking for help, advice and reassurance. Not utter scutter that is designed to frighten them, or poorly informed BS with no actual basis in reality of treatment.

    Yet you spout off and then decide to leave it at "make sure you understand what it says in a small or large print"?



  • Registered Users, Registered Users 2 Posts: 788 ✭✭✭markmoto


    Usually I ignore this kind of posts. next time you go to your retina test take pictures of the "questionnaire" you signing and read at home if you shy reading beforehand.

    And yes all I said is that what you get in retinology center have red label warning its clearly mentioning in the so called "questionnaire".

    I am not here to prove or disprove anything all I am saying read before you sign !

    P.S. Some people get drops some injections.



  • Registered Users, Registered Users 2 Posts: 40,515 ✭✭✭✭ohnonotgmail


    there is no injection. unless you can post proof to the contrary you are lying.



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  • Registered Users, Registered Users 2 Posts: 40,515 ✭✭✭✭ohnonotgmail


    This is an NHS video on what is involved in Retina Screening. The process in ireland is identical. Note carefully the complete lack of injections at any stage.




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