[Diabetes] General Chat and Support Thread

Xofpod · 12-04-2021 5:06pm

CramCycle wrote: »

Anyone here from James get called in yet?

Nope

CramCycle · 13-04-2021 9:17am

kippy wrote: »

I'd expect we'd be given a second dose as was the original plan - otherwise it's a disaster and a half.

The impression I got this morning from the talks from NIAC and NPHET were that the 2nd dose would be administered but there would be a longer wait time between doses than expected. Not sure if there is data there to back up this stance, but I presume there is (or at least hope). The risk is still very low of having issues, at this point I would take it in the morning but I am no longer a spring chicken sadly.

Donutz · 13-04-2021 9:26am

CramCycle wrote:

The impression I got this morning from the talks from NIAC and NPHET were that the 2nd dose would be administered but there would be a longer wait time between doses than expected.

That's what I took from it except that we would still be given the 2nd dose at 12 weeks rather than 16 weeks.

People who have already received a first dose and who do not have a long term illness would be pushed back to 16 weeks.

Not sure if there is data there to back up this stance, but I presume there is (or at least hope). The risk is still very low of having issues, at this point I would take it in the morning but I am no longer a spring chicken sadly.

According to Dr Glynn last night you have a 1 in 100000 chance of developing rare blood clot and a 1 in 10000000 chance of dying. At least that's what I think he said.
That's extremely low and I'm a but surprised that they are making a big deal out of it if that is the case.

ohnonotgmail · 13-04-2021 9:33am

this is what RTE have to say on a second dose for those who have already received the first dose of AZ

https://twitter.com/RTENewsPaulC/status/1381677273678503937
https://twitter.com/RTENewsPaulC/status/1381677421062189069
https://twitter.com/RTENewsPaulC/status/1381677503681531906

CramCycle · 13-04-2021 1:14pm

Donutz wrote: »

According to Dr Glynn last night you have a 1 in 100000 chance of developing rare blood clot and a 1 in 10000000 chance of dying. At least that's what I think he said.
That's extremely low and I'm a but surprised that they are making a big deal out of it if that is the case.

I think its more the media attention that this is getting, these things come up all the time in Phase IV trials but they are usually over a prolonged period of time, it gets listed as an ultra rare complication to look out for but unless there is an identifying feature, it doesn't stop a treatment. It also is the case that unlike other drug trials, they have to way up the risk of Covid vs the drug. In this case, numbers are dropping and as such, the risk of actually catching it is as well, which tilts the balance in favour of being uber precautionary. If the numbers were higher and growing, they wouldn't be as precautionary.

This said, I heard the head of the national blood clotting treatment hospital (I cannot remember the name or Anagram, apologies). Her view was that its not related to typical clotting issues and is an immune response, so having clotting issues before does not appear to be related to likelihood of the issue developing. Also that if you have had the first does without issue, the second dose is unlikely to spark it.

Snake Plisken · 13-04-2021 4:22pm

Feck it! I'd take the second dose in 4 week if offered, although I have had flu like symptoms for well over a week (aches and pains in back tenderness around kidney area and chesty cough) it hasn't killed be so roll on 2nd dose!

Harry Palmr · 13-04-2021 4:26pm

I listened to that interview on Morning Ireland with Butler of NIAC, total disaster really. She ended up undermining her own argument for the ban. How the feck can a 1/1,000,000 shot be considered worth even a days pause or a change in cohort? If only one person dies due to the roll-out being delayed it'll be one too many and NIAC will shrug

An abundance of caution is now a screen for hiding behind.

Taeholic · 14-04-2021 12:15pm

Just sharing an interesting website I found which might help someone else learn more about their diabetes or have better control

https://dtc.ucsf.edu/

imfml · 14-04-2021 1:22pm

I was due to get AZ in the Aviva today but this was canceled due to the AZ decision. When anyone who had an appointment canceled hears anything about a new appointment let us know! I'm thinking it could be a couple of months though

kippy · 14-04-2021 1:26pm

imfml wrote: »

I was due to get AZ in the Aviva today but this was canceled due to the AZ decision. When anyone who had an appointment canceled hears anything about a new appointment let us know! I'm thinking it could be a couple of months though

It won't be a couple of months.

uli84 · 14-04-2021 4:25pm

I’m with Mater Hosp and haven’t heard anything, in fairness though type 1/2 diabetes is scheduled for May

Harry Palmr · 16-04-2021 3:19pm

Harry Palmr wrote: »

Jab done now waiting the for the side effects beyond a sore upper arm, also just got my retinopathy done so I've just about had enough of being a diabetic for the time being!

Got the results back - no change in my "slight background retinopathy" thought it would be nice to have known if I was slightly more or less slight.

banjobongo · 16-04-2021 3:42pm

hi all
I have been lucky enough to get the Freestlye Libre and its certainly a game changer so far!
I have a very active lifestyle, I exercise every day, lots of different activities....
To anybody in martial arts, can you train with others in a dojo, including sparring, with a sensor on your arm?
Same query for wearing a wetsuit (for triathlons or surfing)?
(I know, totally academic at the moment but at some stage all activities will resume in the future....)

Pickboosgo · 17-04-2021 9:48am

banjobongo wrote: »

hi all
I have been lucky enough to get the Freestlye Libre and its certainly a game changer so far!
I have a very active lifestyle, I exercise every day, lots of different activities....
To anybody in martial arts, can you train with others in a dojo, including sparring, with a sensor on your arm?
Same query for wearing a wetsuit (for triathlons or surfing)?
(I know, totally academic at the moment but at some stage all activities will resume in the future....)

I don't do any of them sports so I don't know for sure, but I think a wetsuit could possible cause compression lows so your reading might be off while wearing it but work again after.
I would say you would be best getting tapes and maybe even a strap like thishttps://www.amazon.co.uk/dp/B084FK2QPM/ref=cm_sw_r_cp_apa_glt_fabc_S1GVAQ2QC3JJ6WCDE6F0?_encoding=UTF8&psc=1 to lessen the odds of it getting knocked off

CramCycle · 17-04-2021 9:57am

I know from my time with the Libre that it held up well with sweating in bike races and it took a fair amount of force to get it off, almost to be leveraged so I wouldn't be overly concerned. Maybe an arm warmer or similar over it to reduce the risk of someone accidentally grabbing it in a throw.

Chris_Heilong · 20-04-2021 1:17am

CramCycle wrote: »

I know from my time with the Libre that it held up well with sweating in bike races and it took a fair amount of force to get it off, almost to be leveraged so I wouldn't be overly concerned. Maybe an arm warmer or similar over it to reduce the risk of someone accidentally grabbing it in a throw.

I have lost maybe 7 or 8 sensors over the years to simple things like removing jumpers and it has pulled on the sensor and they are expensive to replace. I would let people know if I was going to try a combat sport with the sensor on.

CramCycle · 20-04-2021 8:13am

Chris_Heilong wrote: »

I have lost maybe 7 or 8 sensors over the years to simple things like removing jumpers and it has pulled on the sensor and they are expensive to replace. I would let people know if I was going to try a combat sport with the sensor on.

Sorry, when i think about it, mine came off in the oddest of circumstances, so it would stay on sweating buckets, in showers, direct blows but if I skimmed a door frame or like you, taking of a fitted jumper/long sleeved t shirt it would peel off with ease. I had completely forgotten that happened.

AhHaor · 22-04-2021 2:15pm

Xofpod wrote: »

Nope

Nope

Mumser · 22-04-2021 2:59pm

Has anyone had an experience of not being able to attend their allotted vaccination appointment? Were you able to reschedule?

I got my first shot of Az a couple of weeks ago. I’ve no idea if I’ll be getting a second shot of it or if I’ll get a Pfizer jab. So I am unsure when I’ll get my second appointment. It is looking like we may have inter county travel in June and I am chomping at the bit to get away from Dublin for a break. Looking on Airbnb July and August appear booked out and June is very limited. So I want to book a week in June now. If my appointment arrives for sometime that week I’m nervous about the consequences. June 3rd would be 12 weeks since my first jab. Were they keeping to 12 weeks exactly? I know Pfizer was 4 weeks to the day.

Any ideas are welcome.

Xofpod · 22-04-2021 5:48pm

AhHaor wrote: »

Nope

And still nope here re vaccine appointment out of the James service.

Harry Palmr · 22-04-2021 6:01pm

If you got AZ then you'll be called on schedule which is 12 weeks after the first jab. You won't get a different one.

Donutz · 22-04-2021 6:03pm

Mumser wrote: »

Has anyone had an experience of not being able to attend their allotted vaccination appointment? Were you able to reschedule?

I got my first shot of Az a couple of weeks ago. I’ve no idea if I’ll be getting a second shot of it or if I’ll get a Pfizer jab. So I am unsure when I’ll get my second appointment. It is looking like we may have inter county travel in June and I am chomping at the bit to get away from Dublin for a break. Looking on Airbnb July and August appear booked out and June is very limited. So I want to book a week in June now. If my appointment arrives for sometime that week I’m nervous about the consequences. June 3rd would be 12 weeks since my first jab. Were they keeping to 12 weeks exactly? I know Pfizer was 4 weeks to the day.

Any ideas are welcome.

You'll definitely be getting the second dose of AZ if you recieved a first dose of it.

As for the 12 weeks, the guy that gave me my jab told my that it would be 12 weeks to the day but I haven't heard of anybody who have recieved a 2nd dose of AZ yet so we'll have to wait and see.

CramCycle · 22-04-2021 9:15pm

Boom, getting it this Sunday, I am ecstatic. St. James vaccination center, which as far as I can tell is just on the main concourse of the hospital. Hopefully that means anyone else from here from St. James is soon to get the call.

ohnonotgmail · 22-04-2021 9:17pm

Donutz wrote: »

You'll definitely be getting the second dose of AZ if you recieved a first dose of it.

As for the 12 weeks, the guy that gave me my jab told my that it would be 12 weeks to the day but I haven't heard of anybody who have recieved a 2nd dose of AZ yet so we'll have to wait and see.

did you get your first dose before or after they stopped giving it to the under 60s?

Taeholic · 22-04-2021 9:22pm

Mumser wrote: »

Has anyone had an experience of not being able to attend their allotted vaccination appointment? Were you able to reschedule?

I got my first shot of Az a couple of weeks ago. I’ve no idea if I’ll be getting a second shot of it or if I’ll get a Pfizer jab. So I am unsure when I’ll get my second appointment. It is looking like we may have inter county travel in June and I am chomping at the bit to get away from Dublin for a break. Looking on Airbnb July and August appear booked out and June is very limited. So I want to book a week in June now. If my appointment arrives for sometime that week I’m nervous about the consequences. June 3rd would be 12 weeks since my first jab. Were they keeping to 12 weeks exactly? I know Pfizer was 4 weeks to the day.

Any ideas are welcome.

I was told mine would be 12 weeks to the day. I'm not sure if you can reschedule sorry

Taeholic · 22-04-2021 9:23pm

CramCycle wrote: »

Boom, getting it this Sunday, I am ecstatic. St. James vaccination center, which as far as I can tell is just on the main concourse of the hospital. Hopefully that means anyone else from here from St. James is soon to get the call.

Delighted for you CramCycle

wiz569 · 22-04-2021 11:03pm

My wife is getting hers tomorrow, referred from Tallaght hospital clinic.

calfmuscle · 23-04-2021 8:24am

I was called by my gp for vaccination on Wed as I'm type 1. I'm already fully vaccinated because of my work. But they must be flying through the vulnerable category now.

Mumser · 23-04-2021 9:01am

I was also called by my GP practice yesterday too but I got my first shot of Az through my diabetes centre nearly two weeks ago. It was two days prior to the halt on Az for under 60s.

Good news, bad news who knows. Was glad to get called but now I won’t be fully vaccinated until sometime in July and with a lower efficacy than friends and family who are not high risk. It is all relative though! My heart goes out to those suffering in India. Very scary and sad reading of the awful situation there.

Johann. · 23-04-2021 9:03am

Still waiting for a call, having been put forward by Beaumount. Delighted for all who have been called

CramCycle · 23-04-2021 10:13am

Mumser wrote: »

I was also called by my GP practice yesterday too but I got my first shot of Az through my diabetes centre nearly two weeks ago. It was two days prior to the halt on Az for under 60s.

Good news, bad news who knows. Was glad to get called but now I won’t be fully vaccinated until sometime in July and with a lower efficacy than friends and family who are not high risk. It is all relative though! My heart goes out to those suffering in India. Very scary and sad reading of the awful situation there.

I would still see it as good news, the lower efficacy is still substantially better than many common vaccines and provides what appears to be good protection for almost everyone against the most serious of side effects of Covid 19. I am not a gambling man but the odds are in your favour in comparison to a) not getting one and b) negligible difference to getting a different one or being fully protected.

uli84 · 23-04-2021 10:15am

Heard nothing from nowhere regarding the vaccine, i am with Mater

Bikerman2019 · 23-04-2021 10:20am

T2 Diabetic.
On tuesday got a text. Vax appointment organised by clinic in Tallaght hospital, for today in Citywest. In at 8.15am, out the door on way home at 9.15am Moderna vaccine.
Didnt feel a thing. Happy days.

robinph · 23-04-2021 10:31am

The reports from family and friends on Moderna have been just dodgy arms the next day, one friend being a vet in the middle of an operation when their arm went a bit weird. But more symptoms from the second dose, which sounded similar to what I had from Astra Zeneca from my first dose.

lucernarian · 23-04-2021 10:34am

CramCycle wrote: »

Boom, getting it this Sunday, I am ecstatic. St. James vaccination center, which as far as I can tell is just on the main concourse of the hospital. Hopefully that means anyone else from here from St. James is soon to get the call.

How were you notified?

Congrats btw!

Mumser · 23-04-2021 10:38am

CramCycle wrote: »

I would still see it as good news, the lower efficacy is still substantially better than many common vaccines and provides what appears to be good protection for almost everyone against the most serious of side effects of Covid 19. I am not a gambling man but the odds are in your favour in comparison to a) not getting one and b) negligible difference to getting a different one or being fully protected.

Thanks CramCycle. Good to have realistic and fairly accurate perspectives on this.

Keeping fingers crossed for anyone waiting to get an appointment. It will happen soon, as someone said above the vaccination rollout seems to be picking up momentum.

AhHaor · 23-04-2021 10:52am

Phonecall last night vaccine for sunday at James. Delighted

CramCycle · 23-04-2021 11:11am

lucernarian wrote: »

How were you notified?

Congrats btw!

Phone call, I thought it was my bike shop, rang me at 9pm. Rang back, first time someone actually understood GDPR regs on the phone, gave a list of queries, have you symptoms, covid, have you ever had it, have you been on any "tropical" holidays, (to which I burst into laughter). Said I would receive 2 texts detailing date, time and other stuff.

banie01 · 23-04-2021 2:09pm

I had my 1st dose of AZ via a vaccination centre on the 25/3.
Info was forwarded to them via my Diabetes Clinic.

There is a gap in the system however.
I had a call from my GP this morning offering me a vaccine via the GP led programme.

That, and another issue with blood test results earlier today have me fairly convinced that a move towards a fully integrated electronic health record system is not only sorely needed but, that it could easily save vast amounts of duplication.

The example I'd offer is this.
I had blood tests carried out in the Diabetes Clinic on the 25/3.
Some of those tests were pertinent to ongoing symptoms.

I visited my GP regarding the symptoms and he was ordering the same panel of blood tests.
Told him that I've just had those done.
He answered, no good to him as whilst he can see the results for tests he had ordered via the I-Lab system.
He has no visibility of any hospital ordered tests or records on I-Lab.

So I rang the Diabetes team, who claimed that of course the GP can see the results, he just needs to input my hospital chart number.
I was sitting with him when he tried that, it didn't work.
The practice nurse rang the phlebotomy lab, and managed to get the results that way.

Now from a purely workflow and time and management view?
This is a massively wasteful use of resources.
An e-health record with a single patient identifier carried across the system would quickly make all results, reports, prescriptions and notes available at all treatment points.
This is surely a no-brainer in this day and age?
It also goes a long way towards ensuring patient safety, preventing prescription surfing and duplication of tests.

Martina1991 · 23-04-2021 2:44pm

banie01 wrote: »

That, and another issue with blood test results earlier today have me fairly convinced that a move towards a fully integrated electronic health record system is not only sorely needed but, that it could easily save vast amounts of duplication.

The example I'd offer is this.
I had blood tests carried out in the Diabetes Clinic on the 25/3.
Some of those tests were pertinent to ongoing symptoms.

I visited my GP regarding the symptoms and he was ordering the same panel of blood tests.
Told him that I've just had those done.
He answered, no good to him as whilst he can see the results for tests he had ordered via the I-Lab system.
He has no visibility of any hospital ordered tests or records on I-Lab.

So I rang the Diabetes team, who claimed that of course the GP can see the results, he just needs to input my hospital chart number.
I was sitting with him when he tried that, it didn't work.
The practice nurse rang the phlebotomy lab, and managed to get the results that way.

Now from a purely workflow and time and management view?
This is a massively wasteful use of resources.
An e-health record with a single patient identifier carried across the system would quickly make all results, reports, prescriptions and notes available at all treatment points.
This is surely a no-brainer in this day and age?
It also goes a long way towards ensuring patient safety, preventing prescription surfing and duplication of tests.

The way it works is, laboratory results go back to the requesting consultant or GP that is on the request form.

Staff in the hospital can look up a patients inpatient, outpatient or GP blood test results, but GPs can only see the results of patients that were entered under their name and practice.

There is a laboratory information system called MedLis in development where everyone would have one unique identification number so their GP, local hospital and other consultants they may be under can all access their results and prevent duplications. It has been talked about for years but is nowhere near deployment.

https://www.ehealthireland.ie/strategic-programmes/national-medical-laboratory-information-system-medlis-/

Harry Palmr · 23-04-2021 2:44pm

Vast duplication in the HSE? Never!

They have the IT of the IT Crowd series one.

banie01 · 23-04-2021 2:57pm

Martina1991 wrote: »

The way it works is, laboratory results go back to the requesting consultant or GP that is on the request form.

Staff in the hospital can look up a patients inpatient, outpatient or GP blood test results, but GPs can only see the results of patients that were entered under their name and practice.

Thanks Martina, always nice to get a pro's input

I was aware of the above, that my GP could only see his orders, but the hospital would see all via their lab.

The Diabetes team in the hospital were adamant the GP had visibility of the hospital ordered tests too via I-Lab.
They don't, the system is as you've described.

Luckily we managed to work around it without me needing to get pricked again

But I can't help wonder how someone who didn't know the system, or wasn't quite as comfortable with their GP would react to being told by the hospital that the GP has the results, but the GP saying (Rightly too) nope, they're wrong I can't see them.
Then redoing the same tests?

It's almost designed to infuriate

CramCycle · 23-04-2021 3:09pm

Harry Palmr wrote: »

Vast duplication in the HSE? Never!

They have the IT of the IT Crowd series one.

I think you are insulting the characters in the IT crowd to be honest.

iamwhoiam · 23-04-2021 4:19pm

wiz569 wrote: »

My wife is getting hers tomorrow, referred from Tallaght hospital clinic.

Do you mind me asking where she was referred to from Tallaght hospital clinic
Is it to her GP or to a centre ? And is she group 4 or Group 7 ?

Donutz · 23-04-2021 5:26pm

ohnonotgmail wrote: »

did you get your first dose before or after they stopped giving it to the under 60s?

I got it before the stopped giving it to under 60s. I'm only 40 myself.
From what I gather, as long as you haven't recieved any adverse reaction to the first dose, you're good to go with the 2nd no matter what age you are.

Harry Palmr · 23-04-2021 5:58pm

CramCycle wrote: »

I think you are insulting the characters in the IT crowd to be honest.

Well maybe not

IT-Crowd-The-Internet-Is-Coming.jpg?

wiz569 · 23-04-2021 6:15pm

iamwhoiam wrote: »

Do you mind me asking where she was referred to from Tallaght hospital clinic
Is it to her GP or to a centre ? And is she group 4 or Group 7 ?

She was referred to the Citywest Hotel vaccination centre, she would be group 4.

iamwhoiam · 23-04-2021 6:18pm

wiz569 wrote: »

She was referred to the Citywest Hotel vaccination centre, she would be group 4.

Thank you . Glad she is getting it sorted . A family member attends there but is in Group 7

CramCycle · 23-04-2021 6:35pm

Harry Palmr wrote: »

Well maybe not

I stand over my opinion

ohnonotgmail · 23-04-2021 6:59pm

Harry Palmr wrote: »

Well maybe not

jen was an IT manager. they are well known to be idiots. the guys themselves knew what they were doing.

[Diabetes] General Chat and Support Thread

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