Advertisement
If you have a new account but are having problems posting or verifying your account, please email us on hello@boards.ie for help. Thanks :)
Hello all! Please ensure that you are posting a new thread or question in the appropriate forum. The Feedback forum is overwhelmed with questions that are having to be moved elsewhere. If you need help to verify your account contact hello@boards.ie

Having ibs is ruining my life :(

Options
14567810»

Comments

  • Registered Users Posts: 7,534 ✭✭✭KKkitty


    Thanks sham. Haven't felt like this in a while.


  • Closed Accounts Posts: 8,073 ✭✭✭sam34


    mikom, thanks for reporting the spam. but for future ref, please dont quote spam posts as that just means mods have more posts to edit/delete

    cheers.


  • Registered Users Posts: 7,534 ✭✭✭KKkitty


    sam34 wrote: »
    mikom, thanks for reporting the spam. but for future ref, please dont quote spam posts as that just means mods have more posts to edit/delete

    cheers.
    As the OP thanks for cleaning up the spam.


  • Closed Accounts Posts: 16,391 ✭✭✭✭mikom


    sam34 wrote: »
    mikom, thanks for reporting the spam. but for future ref, please dont quote spam posts as that just means mods have more posts to edit/delete

    cheers.

    No bother.
    F'ers making money off others suffering.


  • Registered Users Posts: 7,534 ✭✭✭KKkitty


    mikom wrote: »
    sam34 wrote: »
    mikom, thanks for reporting the spam. but for future ref, please dont quote spam posts as that just means mods have more posts to edit/delete

    cheers.

    No bother.
    F'ers making money off others suffering.
    Thanks for reporting it mikom. You were very quick off the mark :)


  • Advertisement
  • Registered Users Posts: 6 sinc


    kkkitty - I hope your test happens soon. If you suspect candida albicans you can eradicate that from your system by taking a fluconazole tablet, you can get it over the counter in the uk or ni, a 'canestan oral' is the same. I buy a generic version from amazon for 3 pound or so. You would be able to rule out candida with that - thats how I found out I had it, and I get it on and off now.
    KKkitty wrote: »
    You're more than welcome sham. I started this thread to understand ibs myself and so we could all help each other with it. Since it's not a life threatening condition it's almost swept under the carpet in my estimation.
    Bearcat wrote: »
    Sham.....your symptoms of ibs maybe very much related to your nasal drip as in infected sinuses. That gunge going from top to tail can really react with the system.

    a colonoscopy is imperative, blood check is ticking all the boxes.

    me thinks you should be seeing an ent specialist....you may need serious antibotics or surgery if your sinus cavities are shot.....day job and G/A.

    btw the colonscopy is a piece of cake.....you wont feel a thing or know a thing....day before prep yourself well as per the instructions which means an easier inspection. A lot of folk arriving for these jobs not cleaned out fully which means an unsuccessful scope.

    besta luck.....

    Looking for advice, anything really,
    I've been through this for years and its ruining my life,
    I've been told, what you have points to IBS, so I haven't even been told I have IBS, just that it is the best idea of what it is.
    I've had colonoscopies, endoscopies, biopsies, blood tests, breath tests.
    I was previously tested and told I didnt have H pylori bacteria, but now have been told I have ulcers and am taking some tablets for it, I hope it will help, but I dont know, it has been years and no success, and its all very slow in public healthcare,I think this is my life now.
    I've kept trying to put on a brave face but, it has gotten me down for a long time, almost since it started , mostly as I realise it is not going away and I have from the start seen people turn away from me. Im only really in contact with 1 or 2 people these days, I cant go anywhere, either from bloating, pain and discomfort which distracts and concerns me. I dont feel able to go anywhere, where I would be confined, like a plane or even the cinema. I feel food affects it and I feel I can eat only when I know how food has been cooked or with what.

    It started one day I thought, with terrible pains in my gut, but when I look back on it, there were odd incidents in the year previous of what I thought was indigestion, and prior to that I had some surgery for a muscular injury. I often wondered was that the start of my problem really, going to surgery, but it was unavoidable.
    But from that day when I had terrible pain 7 years ago, it has been almost continuous daily. Its made me unable to carry out a job, I was forced to leave another job because of it, people were very unsympathetic, I understand where they are coming from, the symptoms aren't really that nice, plus me having at times to disappear to the toilet, people dont understand. As a guy people expect you can take everything but they dont realise everyone has their limits, I have been told by one doctor to just get on with my life, but my life is on hold. People dont even want to know me, they are unhappy you have something, they are offended if they are affected and if you do try to explain I feel shunned as they really just dont want to know.

    I have wondered if I could have had candida albicans in the past, I didnt know there were tablets available for it "flucanazole" , Candida hasnt been suggested by the doctors I see nor a treatment. I dont want to take anything while I am currently taking something anyway, not sure how much or for how long or what potential side effects might be?. I read there is some anti biotic used for eliminating parasites that helps with IBS used in the US but I dont recal what it is right now. I also wonder maybe what I have precipitated by food poisoning, but I just dont know. I also frequently have a sore throat that i have to clear, nasal drip? as mentioned here.
    I am going to see if the current tablets work, but I have all but lost hope, there are still some good things left but I am concerned they wont last. I want my old life back, dont think its going to happen.


  • Closed Accounts Posts: 7,484 ✭✭✭username123


    Hiya sinc,
    Just wanted to respond to you and say - there is hope!!!

    On the candida albicans - its very common. Its basically a yeast overgrowth in the gut where you have lost all of your good bacterias through antibiotics, the pill in women, stress, illness, etc... When this happens the normal yeast that lives in the gut can go bananas and way overgrow and cause a lot of problems with symptoms like heartburn, bloating, cramping, etc.... The flucanozole kills off any yeast in the body (same yeast that causes thrush). Its a one dose tablet, you take it and over the next 48-72 hours it kills the yeasts in the body. In a very serious case like your you would be well advised to then replace the good bacterias in the gut - any health food shop will have live tablets or powders or yoghurts to help you do this. The point on the flucanozole is this - if you get relief from it, you know candida was at least part of the problem.

    On the rest of it. Do you take regular exercise? Is there a constant source of stress in your life? Do you keep a clean diet? Have you ever tried an exclusion diet where you cut almost everything out then slowly reintroduce things and in that way discover specific intolerances? Have you kept a diary of your experiences, not just the food you eat but the things that happen to you and things you do in daily life plus notes of symptoms and episodes and tried to see a pattern? Have you been tested for coeliac disease?

    You have to be willing to believe and understand that sometimes our own head is the problem - not that there isnt a physical issue going on, but that we overthink it and get too stressed out and we make it worse on ourselves by stressing and tightening the gut and interfering with peristalisis. Its almost as though you have to submit to the knowledge that something is not right and accept that there will be times when you cant do much, but there will also be times when you can.


  • Registered Users Posts: 2,988 ✭✭✭dirtyghettokid


    just saw this thread now... read about half the pages.
    i've had IBS since beginning of 2005. i went through a very stressful time in my life where i was bullied in my job, i had to quit -- then i had a UTI, a really bad flu, and then a viral bug. my then-boyfriend dumped me at this time too. i noticed IBS symptoms after that, but it took me about two years to figure out the trigger foods. it was an awful time. i am not a big drinker, but i don't drink at all now, since 2006. my triggers ended up being spinach, grapes, raisins, dark chocolate, caffeine, salmon, spicy sausage like chorizo. all stuff i liked! i have tried to eat these things since cutting them out, and i can't do it. they will always give me an attack.
    i have the alternating kind. constipation nearly all the time... but if i eat something that triggers it, then i get stabbing pains, followed by diarrhea. the pains go after i go to the loo, but i am left exhausted and feeling pretty crappy for a while afterwards. i end up starving myself because i feel so crap and don't want to eat. takes me a day or two to recover.
    i had it more or less under control, but this year, it has got worse. i'm going through a bout of it now.. over the last month say. feel like crap. it doesn't help that i suffer from depression and anxiety. feels like everything i eat causes diarrhea these days. woke up this morning with gurgling gut and wind. have gone to the loo, but i just feel weak and yucky. i know that my anxiety makes it worse. i get all worried when i am sick with it often. makes me think that something else is wrong, when there probably isn't.
    i'm thinking of trying to get some hypnotherapy for IBS. i've read really good things about it. my mother in law is a hypnotherapist, but unfortunately, she doesn't know enough about IBS to help, so i'm going to go to someone who is specialised in it. has anyone here gone for hypnotherapy?


  • Registered Users Posts: 6 sinc


    Hiya sinc,
    Just wanted to respond to you and say - there is hope!!!

    On the candida albicans - its very common. Its basically a yeast overgrowth in the gut where you have lost all of your good bacterias through antibiotics, the pill in women, stress, illness, etc... When this happens the normal yeast that lives in the gut can go bananas and way overgrow and cause a lot of problems with symptoms like heartburn, bloating, cramping, etc.... The flucanozole kills off any yeast in the body (same yeast that causes thrush). Its a one dose tablet, you take it and over the next 48-72 hours it kills the yeasts in the body. In a very serious case like your you would be well advised to then replace the good bacterias in the gut - any health food shop will have live tablets or powders or yoghurts to help you do this. The point on the flucanozole is this - if you get relief from it, you know candida was at least part of the problem.

    On the rest of it. Do you take regular exercise? Is there a constant source of stress in your life? Do you keep a clean diet? Have you ever tried an exclusion diet where you cut almost everything out then slowly reintroduce things and in that way discover specific intolerances? Have you kept a diary of your experiences, not just the food you eat but the things that happen to you and things you do in daily life plus notes of symptoms and episodes and tried to see a pattern? Have you been tested for coeliac disease?

    You have to be willing to believe and understand that sometimes our own head is the problem - not that there isnt a physical issue going on, but that we overthink it and get too stressed out and we make it worse on ourselves by stressing and tightening the gut and interfering with peristalisis. Its almost as though you have to submit to the knowledge that something is not right and accept that there will be times when you cant do much, but there will also be times when you can.

    I have always been reasonably active, I dont participate in regular sports, I usually walk the dog and it helped me lose a little bit of weight, but I was not overweight before, just trimmed down.

    Where is the flucanozale available and what is the doseage in mg? would it be in a health shop in the UK or Boots over there?

    I used to keep a record but I wasn't great at keeping it going, and it was hard to see how it helped me convey that message to doctors as i didnt feel it was really heard when i brought it up, but more due to me losing faith.

    I forgot to say I was tested for coeliac, but I then read long afterwards that its possible to have it and pass the test for some reason. I had blood tests for that I believe. I also had stool samples taken.I was nearly glad when I was told I had a herniated diaphram and then ulcers as I felt I was believed because they could see these things, before that it felt like I wouldnt be believed until something was found


    I dont know how it all started but I find food worsens things, I avoid a lot of foods (sweet stuff, drinks) for another medical condition.
    I've taken into account, stress could be a trigger but its like a catch 22, bowel problem makes me stressed, I've tried to ignore it, thats why I have effectively excluded myself from social situations as people get so bothered over even little things.
    The thing is, when my gut is not giving me a problem (rare) and I can usually tell it will not flare up in those circumstances, then I am delighted, I feel like a huge weight is lifted. Sometimes when it all flares up, it can last for a while before it settles down, days to weeks.

    I get an alternating toilet, mostly loose, which can cause a lot of pain and discomfort, its rarer that I get constipated but I have had toilet that is both almost at the same time, if i say that to a doctor I think they will tell me thats not possible but it has happened to my suprise on a few occasions, I dont know what this means or why it happens. I tried to account for any of this by drinking filtered tap water.

    I tried an exclusion diet, I excluded a lot, eliminated milk as I thought I might be lactose intolerant but brought back lactose free milk, then ordinary milk as It didnt seem to affect me, I'm thinking of re doing the whole exclusion thing. I cannot eat sweet things, the less processing the better it seems. Basically I try have an unvaried, plain diet.
    Porridge for brekkie, I found eliminating lunch helped and have a plain dinner, maybe some herbal tea. Ive gone back to normal tea but Im going to get back through my herbal stuff.
    If I fall off the wagon and give up hope for a while I could munch through a packet of biscuits or maltesers or something like that but it ends up make me feel worse.
    I hardly drink anymore, beers or larger are out, but its not a bother for me.
    Maybe a red wine but its rare.

    I could do with a bit of help relaxing but I feel mostly it is my bowel that creates stress for me, not that I am a particularily chilled person, I dont get bothered about a lot of things I used to before. I actually dont care about a lot of things, just my bowel,If that would resolve,Id be happy.
    I am glad of some of the doctors I have come across, but others have just taken notes, no advice or nothing. I know its difficult to pin down and compared to medical problems that can be seen/are publicly aware.

    I lose hope every now and again as I feel at times Im not making any progress and am nearly resigned to it now. But I keep coming back for more and i wonder should I just give up trying.
    I keep my appointments with the hospital, but there are big gaps between them.
    I am going to take the tablets I have been put on and see how it goes, after that Im going to try the tablet mentioned above, flucanozale.
    I dont know why candida isnt checked.


  • Registered Users Posts: 6 sinc


    just saw this thread now... read about half the pages.
    i've had IBS since beginning of 2005. i went through a very stressful time in my life where i was bullied in my job, i had to quit -- then i had a UTI, a really bad flu, and then a viral bug. my then-boyfriend dumped me at this time too. i noticed IBS symptoms after that, but it took me about two years to figure out the trigger foods. it was an awful time. i am not a big drinker, but i don't drink at all now, since 2006. my triggers ended up being spinach, grapes, raisins, dark chocolate, caffeine, salmon, spicy sausage like chorizo. all stuff i liked! i have tried to eat these things since cutting them out, and i can't do it. they will always give me an attack.
    i have the alternating kind. constipation nearly all the time... but if i eat something that triggers it, then i get stabbing pains, followed by diarrhea. the pains go after i go to the loo, but i am left exhausted and feeling pretty crappy for a while afterwards. i end up starving myself because i feel so crap and don't want to eat. takes me a day or two to recover.
    i had it more or less under control, but this year, it has got worse. i'm going through a bout of it now.. over the last month say. feel like crap. it doesn't help that i suffer from depression and anxiety. feels like everything i eat causes diarrhea these days. woke up this morning with gurgling gut and wind. have gone to the loo, but i just feel weak and yucky. i know that my anxiety makes it worse. i get all worried when i am sick with it often. makes me think that something else is wrong, when there probably isn't.
    i'm thinking of trying to get some hypnotherapy for IBS. i've read really good things about it. my mother in law is a hypnotherapist, but unfortunately, she doesn't know enough about IBS to help, so i'm going to go to someone who is specialised in it. has anyone here gone for hypnotherapy?

    Its strange, this is very similar timeframe and some events to me.
    I have considered hypnotherapy but Im not sure who to go to, Im just not sure how to tell if someone will be good or not, money would be a concern for me to spend if I wasnt certain it might be useful.


  • Advertisement
  • Registered Users Posts: 2,988 ✭✭✭dirtyghettokid


    sinc wrote: »
    Its strange, this is very similar timeframe and some events to me.
    I have considered hypnotherapy but Im not sure who to go to, Im just not sure how to tell if someone will be good or not, money would be a concern for me to spend if I wasnt certain it might be useful.

    well i asked for a quotation today, and it came back €75 for consultation and €100 per visit. i'm kind of gutted because i am unemployed and not in receipt of social welfare. i literally have zero income and i can't ask my husband for that kind of money. i know we can't afford that much anyway! i wish there were some other way... all i can say is.. this sucks big time!


  • Registered Users Posts: 6 sinc


    well i asked for a quotation today, and it came back €75 for consultation and €100 per visit. i'm kind of gutted because i am unemployed and not in receipt of social welfare. i literally have zero income and i can't ask my husband for that kind of money. i know we can't afford that much anyway! i wish there were some other way... all i can say is.. this sucks big time!

    That would be a lot for me too, Im unemployed also, but because I live with my girlfriend I get nothing from the social welfare either, Im wary of trying it even though I would like to. I just spent €60 on my current medecine that I was prescribed. I'm concerned that it would come to nothing.


  • Registered Users Posts: 2,988 ✭✭✭dirtyghettokid


    sinc wrote: »
    That would be a lot for me too, Im unemployed also, but because I live with my girlfriend I get nothing from the social welfare either, Im wary of trying it even though I would like to. I just spent $60 on my current medecine that I was prescribed. I'm concerned that it would come to nothing.

    i know how you feel! it's a lot of money to invest if nothing turns up. i have tennis elbow and i went to blackrock clinic (back in 08) and through loads of different treatments. spent the guts of a grand over the course of 3 months, and it did nothing at all to help... so very wary! but €100 a session is a joke! way to make treatment unattainable for those down on their luck :(


  • Registered Users Posts: 6 sinc


    Hiya sinc,
    Just wanted to respond to you and say - there is hope!!!

    On the candida albicans - its very common. Its basically a yeast overgrowth in the gut where you have lost all of your good bacterias through antibiotics, the pill in women, stress, illness, etc... When this happens the normal yeast that lives in the gut can go bananas and way overgrow and cause a lot of problems with symptoms like heartburn, bloating, cramping, etc.... The flucanozole kills off any yeast in the body (same yeast that causes thrush). Its a one dose tablet, you take it and over the next 48-72 hours it kills the yeasts in the body. In a very serious case like your you would be well advised to then replace the good bacterias in the gut - any health food shop will have live tablets or powders or yoghurts to help you do this. The point on the flucanozole is this - if you get relief from it, you know candida was at least part of the problem.


    Are you aware of a recommended/suggested amount people take of Flucanozole?, I am thinking of bringing it up with the "team" I see, which means whatever Doctor is available.
    Is it called Flucanozole in the UK where it is available over the counter?


    After a recent bad bout, I am getting sick and tired of it again and I want to try resolve it by any means. Mostly im tired of being fobbed off and waiting on answers from the hospital I visit, it can be 6 months between visits.


  • Closed Accounts Posts: 7,484 ✭✭✭username123


    sinc wrote: »
    Are you aware of a recommended/suggested amount people take of Flucanozole?, I am thinking of bringing it up with the "team" I see, which means whatever Doctor is available.
    Is it called Flucanozole in the UK where it is available over the counter?


    After a recent bad bout, I am getting sick and tired of it again and I want to try resolve it by any means. Mostly im tired of being fobbed off and waiting on answers from the hospital I visit, it can be 6 months between visits.

    It comes in a one tablet dose of 150mg. Its called Flucanozole in unbranded UK versions, there are branded versions as well, Canestan Oral, and in Ireland it is called Diflucan and available on prescription.

    I can tell you now, if you bring it up with the doc it will be pooh poohed - western medicine does not recognise intestinal candida as a medical problem. I just buy it in the UK or off amazon and take a one dose tablet maybe 3 times in a year and it keeps me sorted, I have recently had a medication change of my contraceptive pill which might have been the culprit on changing the flora of my digestive system allowing the candida to take hold though, so I may not need to keep taking it.

    Another thing to investigate is a yeast cleanse - there are tablets available for this as well, and presumably you could google a suitable diet to go along with it? Although thats just taking longer to resolve something that could be sorted in a couple of days with the flucanozole.

    I actually just took a flucanozole recently, I had been on an antibiotic for a kidney infection and I began to notice the tell tale signs of build up in the gut again of candida, heartburn, acid indigestion, a few drinks leaving me crippled with stomach acid for days, loose stools, bloating. After 2 days I was right as rain again and have been since.


  • Registered Users Posts: 7,534 ✭✭✭KKkitty


    I'm having a flare up again. I've lost another baby and the stress is overwhelming me at times.


  • Closed Accounts Posts: 7,484 ✭✭✭username123


    KKkitty wrote: »
    I'm having a flare up again. I've lost another baby and the stress is overwhelming me at times.

    KKkitty, I am really sorry to hear that. Do you have someone you can talk to openly about how you are feeling? Stress is no good to you and after a trauma like that you need to be looked after and supported.


  • Registered Users Posts: 7,534 ✭✭✭KKkitty



    KKkitty, I am really sorry to hear that. Do you have someone you can talk to openly about how you are feeling? Stress is no good to you and after a trauma like that you need to be looked after and supported.
    I'm all over the place with it. I don't honestly know how I'm feeling. I haven't opened up really to anyone and feel so down over it.


  • Closed Accounts Posts: 7,484 ✭✭✭username123


    KKkitty wrote: »
    I'm all over the place with it. I don't honestly know how I'm feeling. I haven't opened up really to anyone and feel so down over it.

    I really think you should talk to someone. I know its very hard for you to even think of that right now but you need to for your own sake. You poor thing, you must be feeling terrible. Have you been to your GP? Can you talk to someone in your family or a close friend?


  • Registered Users Posts: 7,534 ✭✭✭KKkitty



    I really think you should talk to someone. I know its very hard for you to even think of that right now but you need to for your own sake. You poor thing, you must be feeling terrible. Have you been to your GP? Can you talk to someone in your family or a close friend?
    With the time of year that's in it I really don't want to bother anyone with my problems. I've had bad nervous indigestion and alternating constipation and loose bowel movements. I had a d and c to remove anything to do with the pregnancy at the start of the week and coupled with the ectopic pregnancy during the year I've been feeling low.


  • Advertisement
  • Closed Accounts Posts: 7,484 ✭✭✭username123


    KKkitty wrote: »
    With the time of year that's in it I really don't want to bother anyone with my problems. I've had bad nervous indigestion and alternating constipation and loose bowel movements. I had a d and c to remove anything to do with the pregnancy at the start of the week and coupled with the ectopic pregnancy during the year I've been feeling low.

    You wouldnt be bothering anyone, wouldnt you be there for a friend of family member if they needed you no matter what the time of year?

    The best practical advice I can give you besides talking to someone is to keep your diet as clean and simple as you can and not to eat large amounts but to keep small portions coming through the day to encourage peristalisis to continue uninterrupted. Maybe a bit of a walk outside to blow the cobwebs as well?

    Youve had a very difficult year and its no wonder the stress is taking a physical toll on you. The only way to look at it is to look forward to better times, and they will come. I am thinking of you.


  • Closed Accounts Posts: 7,484 ✭✭✭username123


    KKkitty - I just wanted to wish you a Happy Christmas and I hope you have a peaceful and relaxing day. Best wishes.


  • Registered Users Posts: 7,534 ✭✭✭KKkitty


    KKkitty - I just wanted to wish you a Happy Christmas and I hope you have a peaceful and relaxing day. Best wishes.
    Thank you so much and the same to you :)


  • Registered Users Posts: 6 sinc


    It comes in a one tablet dose of 150mg. Its called Flucanozole in unbranded UK versions, there are branded versions as well, Canestan Oral, and in Ireland it is called Diflucan and available on prescription.

    I can tell you now, if you bring it up with the doc it will be pooh poohed - western medicine does not recognise intestinal candida as a medical problem. I just buy it in the UK or off amazon and take a one dose tablet maybe 3 times in a year and it keeps me sorted, I have recently had a medication change of my contraceptive pill which might have been the culprit on changing the flora of my digestive system allowing the candida to take hold though, so I may not need to keep taking it.

    Another thing to investigate is a yeast cleanse - there are tablets available for this as well, and presumably you could google a suitable diet to go along with it? Although thats just taking longer to resolve something that could be sorted in a couple of days with the flucanozole.

    I actually just took a flucanozole recently, I had been on an antibiotic for a kidney infection and I began to notice the tell tale signs of build up in the gut again of candida, heartburn, acid indigestion, a few drinks leaving me crippled with stomach acid for days, loose stools, bloating. After 2 days I was right as rain again and have been since.

    well I just wrote a big long reply and when I hit send it disappeared, said I needed to log in again?
    I am going to try the flucanozole 150mg in one dose after I am finished my current medication for ulcers (which I assume is working for the ulcers but is having no change on my other symptoms).

    I have read different things about the duration from, 3days, 3 weeks,to 3 months.
    I will try the one day dose of 150mg as I have read a few different and 1 scholarly article which mentions that a few times.

    I still dont know whether or not to bring this up the next time I am in for a visit to the hospital, I will see.

    Maybe if its successful, I will just tell them it worked, I hope.


  • Closed Accounts Posts: 7,484 ✭✭✭username123


    Good luck sinc, I hope it helps you.

    I have never had a bad side effect although sometimes it takes a full 48 hours to feel an improvement. Id say it will help you, try to eat plenty of raw fresh fruit/veg and probiotic yoghurt in the weeks following it to get all the good stuff back into the gut while its free of nasty stuff.


  • Registered Users Posts: 428 ✭✭ciagr297


    KKkitty - not sure if someone has already mentioned this website. It's american and has alot of useful tips - once your symtoms have calmed down, it might be something to start trying
    http://www.helpforibs.com/
    Like every other site, they do want you to buy something but I like the background ethos of it - IBS management through diet almost exclusively

    I've got IBS as I was overprescribed antibiotics throughout most of my life, so the above approach suits me perfectly


Advertisement