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thyroid misery

13468949

Comments

  • Registered Users, Registered Users 2 Posts: 737 ✭✭✭cltt97


    This may sound a bit weird, but I would try and reduce the meds a bit if I was you. paranoia, sleeplessness and anxiety sound very much like hyper. I'd go down to 150 and give it at least 6 weeks to see if it levels out.... your levels are quite at the upper end/lower end. any weightloss as well?


  • Registered Users, Registered Users 2 Posts: 1,162 ✭✭✭Wyldwood


    Grayfox

    given that you're in Cork I'm assuming that your bloods were processed in CUH. If so your results are out of range for that lab

    TSH Range 0.4 - 3.8, yours at 0.03 is is suggesting hyper.
    Free T4 range 12 - 22, at 21.8 you're on the high end
    Free T3 range 3.9 - 6.7, at 6.9 you're high.

    You're results suggest you're hyper & I agree with cltt97 that you should talk to your doc about reducing dosage to see if symptoms improve.


  • Registered Users, Registered Users 2 Posts: 92 ✭✭Grayfox


    My weight has remained fairly much the same in the last 4 years, I have that thin gene i guess. It has dropped slighty since i was last weighed in the hospital by about 0.4kg (67kg total).

    I normally have those mental side effects to some small extend but they do seem more severe recently, so i think i will drop my meds slighty.

    What complicates things for me is that i have had cancer and need to keep my TSH suppressed. I managed to see some other results also, but it was only last september i has RAI for the second time. So seeing a TSH of over 100 for then wouldnt have been unusual since i was of my meds at that point. As you know it takes a while to kick up also, and ive been dealing with that until recently.

    I think i need to find a new doctor first Wyldwood, when i brought the Dessicated thyroid with her she became quite hostile and told me i would need to find another doctor because she refused to help me if i took natural thyroid (she actually left the room when i was talking, very rude). The only reason i actually have that Free T3 result is because i wrote it onto the forms myself.

    At the moment i am taking most of the vitamins and supplements that rOBeRt frETt recommends in one form or other.

    My main concern is whether the natural thyroid is effective in treating and suppressing someone whos had the cancer? It was one of the reasons/excuses the endo used to refuse me the dessicated stuff, along with asking for medical journals proving its effectiveness.


  • Registered Users, Registered Users 2 Posts: 737 ✭✭✭cltt97


    Well, the "natural stuff" is not some weird herbal concoction, but in fact dried desiccated thyroid gland taken from pigs. As such it is thyroid tissue and naturally contains T4, T3, but also T2 and T1, the exact function of the latter two is not really known. The proportion of T4:T3 in pigs is slightly different than in men, i.e. there is more T3 than T4, so that needs to be born in mind when dosing. Before medicine was able to produce a synthetic version of thyroxin, this is what they used, together with bovine gland - simlar to cow's insulin they used before they managed to isolate it and produce a synthetic form. So absolutely nothing weird about it, and the dosage can be easily controlled, as the stuff comes from the States and is produced to a homogenised standard. My GP also almost got a heart attack when I mentioned it to him and didn't want to know and was never ever going to prescribe such a thing.

    I am not entirely clear why you need to keep your TSH suppressed though? I know that a lot of Hashi's do that to keep the level of inflammation in check. I'm also not an expert with hyper but I thought RAI was to more or less kill the gland so it would stop overproducing? Do you have graves antibodies and/or hashimoto's?

    In any case, coming to some of the supplements - definitely avoid iodine and algal/seaweed products - the iodine is like blowing air onto fire if there is an autoimmune thing going on or you want your gland to remain inactive.


  • Registered Users, Registered Users 2 Posts: 14 penderella


    Hello All,
    Boy I'm so glad to have found this group, i have been on FB with STTM for the last month and the information has been great, but our USA cousins just seem a bit too full on for me at the minute. A bit too much information overload which a foggy brain just cannot handle. After 10 years of being on eltroxin for Hypothyroidism things have changed, so it's either my body or the way the drugs are working. I had a major Hypo crash just after Christmas 11, total fatigue to the point that i did not have the energy to shower, hair loss, brittle dry nails, so cold all the time, memory loss not able to concentrate, there has been no sex drive for years so thats not new, weight gain at the rate of 2lb per week, and that's with a very healthy balanced 1600 cal intake, just about what my BMR requires. OK so i just could not exercise.
    In addition to the results below my ferritin level is very low, 2012 =10 2011=15 2012=16.
    Cholesterol is very high 7.42 and has been for the last 4 years.

    Well my problems are just about to start; my GP who for general issues has been a great family doctor for the last 6 years, but he has said he does not know enough about thyroid issues to treat me effectively, so packed me off to the mater to see an Endo my hopes were up as i had meet this guy in the coombe during my second pregnancy, and had gone to see him in 2008, when TSH was 15.1, as you can see below things stabilised until 2010, but i did not take an active role in my health management at that time. Well Endo was useless talking at me not listening to me, then he wrote to my GP to say "i was not convinced that her symptoms related to her marginal thyroid abnormality." so don't want to waste my hard earned cash on that P***k.

    so now for the big fight back, i want a better quality of life than i currently have, that is health wise. i am not prepared to sit back and allow myself to be treated ineffectively with the never ending "wait and see" approach from the Irish health service.

    I will explore all options and at what ever financial cost to me, to get myself well. i have read in this tread about a support group, great idea, i am not much use on the computer, it has taken my one typing finger over an hour to write this, but i would be willing to do what i can, as i fear that as this condition seem to run in my family, it is just a matter if time before my kids will need help.

    sorry about the ramble.
    going to the GP this week to review the last set of results, any input from you guys would be greatly appreciated. What should i be asking him to do next.

    Ella

    lab range**** 0.2-4**** 9-12 **** 2.6-5.7***** 1.3-3.1 *****<5.6 [/B]
    date ******** TSH******Free T 4*****Free T3*****Total T3*******ATP ****
    18/08/2006**** 0.193 ****18.3**** not tested**** 1.61 **** not tested
    21/09/2007 **** 3
    15/07/2008 **** 15.1 **** 12.8
    19/09/2008 **** 0.039
    28/01/2009**** 0.515
    11/06/2009 **** 0.066 **** 21.5
    13/08/2010 **** 2.782
    27/04/2010 **** >100 **** 5.2
    20/10/2011 **** 0.148****19.4 ******** 4.7
    19/01/2012 **** 9.642****not done**** not done** not done**** 307.9


  • Registered Users, Registered Users 2 Posts: 1,162 ✭✭✭Wyldwood


    Panderella
    Welcome to the club!
    you have my sympathy for the roller coaster you're on. Take some comfort from the fact that there are other sufferers here.

    All I can suggest to you is to get recommendations from some of the other posters here who are in Dublin and can recommend a good sympathetic endo who will listen. I'm in Cork so can't help with that.
    Hang in there & be persistent, living with thyroid problems is awful & doesn't seem to be understood by many doctors.


  • Registered Users, Registered Users 2 Posts: 159 ✭✭rOBeRt frETt


    This you tube animation is well weird, but sez it all in regard to hypothyroidism.



  • Registered Users, Registered Users 2 Posts: 737 ✭✭✭cltt97


    Ella,

    What dosage of Eltroxin are you on - was this consistent over the years for which you have given results, as it seems a bit up and down. Have you changed this at all recently, since your levels from October last year have deteriorated so much to Jan 12. Do you take anything else such as vitamins/minerals or other supplements and when and how do you take your medication.
    Your iron levels are very low and you should take supplements. Have you also had B12, Folate, Vit D tested? Renal profile, bone profile, cortisol?


  • Registered Users, Registered Users 2 Posts: 193 ✭✭treecreeper


    hi both of us being referred to an endo in beaumont.
    we both have movement disorders and autoimmune disease coming out of our ears.
    twin has become very lehtargic and unresponsive to much, she has a dx of parkinsons but with hypothyroism its hard to say what is causing this.
    we just dunk our eltroxin with our morning meds after breakfast and forget about it.
    we blame our fatique on everything but hardly ever think of the thyroid.
    i am very hyper in personality but more likely find my bloods indicate underactive tyroid, whereas twin very quiet can be told she is just right or hyperthyroid, which surprises her, the juggle with meds is tough but we can google everyting but rarely the thyroid!


  • Registered Users, Registered Users 2 Posts: 14 penderella


    cltt97 wrote: »
    Ella,

    What dosage of Eltroxin are you on - was this consistent over the years for which you have given results, as it seems a bit up and down. Have you changed this at all recently, since your levels from October last year have deteriorated so much to Jan 12. Do you take anything else such as vitamins/minerals or other supplements and when and how do you take your medication.
    Your iron levels are very low and you should take supplements. Have you also had B12, Folate, Vit D tested? Renal profile, bone profile, cortisol?

    1. current dose Eltroxin 100mg 4 days, 50mg 3 days per week.
    Oct 2011 was on 100mg 5 days, 150mg 2 days, this dose had not changed since, July 2008, was on 100mg prior to that. Old Dr. lost all my records before 2006.
    2. only started taking some supplements about 2 weeks ago, floradix 20ml per day, selenium 100u per day, omega 3,6,9 1000mg per day.
    3. also went native and got some homoeopathic remedies.
    4. B12 = 484 range ( 187-833), folic acid 4.4 ( 3.1-20), Vit D not been tested, renal profile all in range, bone profile not done, cortisol not done.
    5. i moved back to bed time to take the eltroxin, so 4 hours after eating, as now taking supplements in morning & afternoon.

    thanks for any feedback.


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  • Registered Users, Registered Users 2 Posts: 14 penderella


    This you tube animation is well weird, but sez it all in regard to hypothyroidism.



    thanks that put a smile on my face. :-) :D:


  • Registered Users, Registered Users 2 Posts: 737 ✭✭✭cltt97


    current dose Eltroxin 100mg 4 days, 50mg 3 days per week.
    Oct 2011 was on 100mg 5 days, 150mg 2 days, this dose had not changed since, July 2008[/QUOTE]

    This is a bit strange - why was your dose lowered, as your levels from October 2011 were quite good? Your down by about 35mcg a day (on average) which is enough to send you hypo if the previous dose was quite good (and I'm mainly looking at the (only) FT3 value there).
    What is also puzzling me is why you suddenly had this peak of TSH >100 from 2.7 in 2010 - while on the same dosage (100/150) did anything happen around that time? Did you stop taking eltroxin or anything?

    I would suggest you get a new set of tests with FT4 and FT3 to see where exactly you are now, Cortisol and Vitamin D, and bone profile.
    I don't know where you are based, but not all hospitals can test FT3, so ring ahead and check - for example James doesn't but Tallaght does.

    I would also enquire with your GP if he would be prepared to prescribe Armour or Erfa - these are unlicensed here but can be prescribed on a per name basis (i.e. you go to your pharmacy and they order this stuff in for you specifically).
    As this contains also T3, you could push your FT3 up slightly without increasing the FT4 too much. It also contains T2 and T1 - the exact function of which are not known, but my attitude is we don't produce them for no reason, so we should have them!

    I would further try and exclude gluten and go on a low carb diet - you need to do this for several weeks though, you won't notice any difference from just doing it a few days.

    That's my two cents;)


  • Registered Users, Registered Users 2 Posts: 163 ✭✭chessguy


    penderella wrote: »
    1. current dose Eltroxin 100mg 4 days, 50mg 3 days per week.
    Oct 2011 was on 100mg 5 days, 150mg 2 days, this dose had not changed since, July 2008, was on 100mg prior to that. Old Dr. lost all my records before 2006.
    2. only started taking some supplements about 2 weeks ago, floradix 20ml per day, selenium 100u per day, omega 3,6,9 1000mg per day.
    3. also went native and got some homoeopathic remedies.
    4. B12 = 484 range ( 187-833), folic acid 4.4 ( 3.1-20), Vit D not been tested, renal profile all in range, bone profile not done, cortisol not done.
    5. i moved back to bed time to take the eltroxin, so 4 hours after eating, as now taking supplements in morning & afternoon.

    thanks for any feedback.

    Hi I see , your numbers are all over the place and a vitiman D test never done , B12 needs to be in the upper range , Vit D also needs to be in the upper range too , best taken with oil based drops sublingual , as the bioavailibility is optimal, with oil based drops.

    Important get TPO tested and FT3 with FT4 together as they reveal a lot.

    Magnesium needs to be checked ,best taken in a chelated version , see my prev posts in this thread,

    Selenium from organic Brazil nuts is important,and its the best source say 3-4 a week.They are extremely rich in selenium.Thats my dose.

    Potassium and sodium both need to be in mid range as they balance each other.
    Often they say take less salt but the reason is often not enough potassium to balance it,
    if you are short on potassium and reduce your salt intake you are in big trouble.
    some how they do not "think" of this..


    good sources of potassium Like beets apricots banna's


    Take your temps on waking up (say for a week) if they are low good idea to include 2 spoons of virgin coconut oil organic , cold pressed brands like Nutiva or Biona are good and available In Ireland,

    low temps and high cholesterol are a sure way to know the thyroid is not treated optimally,Your Endo knows this #these are absolute clear indicators of treatment which is not optimal.

    Ok cholesterol has 4 "basic units " for now.

    lets take a closer look.what is this cholesterol stuff is it really a baddy.

    Firstly they are called total cholesterol when put together.

    triglycerides basically bad we want this down.

    To lower these stop sugar ,Basically all carbs affect this, Period as sugar directly raises this,
    bread and potatoes pasta, wheat,. are sugar yes they are sugar..
    only thing they have diff. shapes .But they are bad.


    Some carbs like healthy walnuts chessnuts, and veg are great.

    All juices are bad, fruit should only be eaten whole.


    Even the" innocent" brand are gently pasteurised what a joke pasteurised
    LMAO , means it it is flash superheated and kills ALL its nutrients, period.And you are then left with sugar, in a fancy carton.Innocent my A@@X&quot;

    green veg is important for thyroid issues, only eat cooked goitrogenic foods circa 4 hours after medication.Watch out for products with soya, Avoid them.

    Hmm do your fish capsules contain soya just check..



    Hdl good cholesterol is raised with casual exercise ,Not hard exercise,
    say a 30- 40 min walk a day.

    Now LDL
    this has good and bad in it it has small fluffy cholesterol which is bad

    it also has large fluffy cholesterol which is good,and helps us.

    so a doc in Ireland see's high ldl as bad but that is incorrect as in Ireland the real cholesterol test is not readily available.They do not define the large or small.

    the small ldl cholesterol jamms in the vein walls and it stops and disrupts electrical signals basically, causing bad blockages, and ruptures.

    But why Simply because you ate too much sugar and hydrogenated fat and margarine ,

    Normal Organic butter and animal fat (unless deep fried) can never cause this affect,they actually help with good veins.

    so how do we convert the small bad LDl to friendly large fluffy balls,

    hmm fish oil , they all say..

    well lets have a closer look.

    good fish oil lowers triglycerides , but but but it also >>>it raises bad lDL cholesterol.unless taken with say crushed garlic,(bet it does not say this on the Bottle :)
    ref
    http://www.ncbi.nlm.nih.gov/pubmed/9022529

    this fish oil I take is great no waste and nitrogen flushed so it does not go bad , bad fish oil like seven seas etc, sells well but does more harm then good,

    Keep fish oil in the fridge if you absolutely must buy capsules do a bite test if it tastes fishy or rancid throw it away,
    Good fish oil never tastes fishy.

    the product content in this is ideal.I have no afiliation with this product, But compare it to the thousands of products on say iherb.com and see if you come up with the same results.

    http://www.iherb.com/Nature-s-Answer-Liquid-Omega-3-Deep-Sea-Fish-Oil-EPA-DHA-Natural-Orange-Flavor-16-fl-oz-480-ml/7908?at=0


    Aldi do good red salmon not the pink salmon thats not as good but okay too. , the salmon is tinned and is real wild salmon which is great.

    Say with a garlic dressing with corriander or parsley leaves , lots of important vitamin A in them

    Yes Important for the thyroid

    Special note on corriander it carries bad heavy toxic metals out of your body so if you have never had corriander leaves before , do not have it say more that 3 times a week, if you do you may experience tingle sensations this is the toxins leaving you body and passing through your blood,but may just feel weird,

    Its like say from eating a very bad diet and switching to an excellant diet , its a big change for you.

    remember

    vitamins A, D, E, and K are called fat-soluble vitamins best taken with some kind of fat,if you want teh benefits.
    Only buy oils in dark glass bottles more about this another day.

    virgin cold olive oil dressing ,Ideal for this .Lets say mixed with organic creme fraiche.



    Salmon or mackeral none smoked should be eaten ideally 3 times a week.

    aVoid farmed salmon even when it says ORGANIC . THEY ARE FULL OF LICE ARE FED PINK DYES, google it if you want.

    the only real wild salmon in Ireland is tinned,

    Organic just means the salmon is farmed it is fed crap on a fish farm.

    The omega 3 in free range eggs helps reduce cholesterol

    but how because eggs are high in cholesterol ?

    it is the choline effect it carries bad cholesterol away, cook them softly in organic coconut oil.Keeps yokes soft.Eggs contain good cholesterol it goes bad if you deep fry and use margarine etc..

    Try to eat free range as much as possible it is important for people with Endocrine issues.
    Its to do with the natural omega 3.

    Grass fed lambs liver is good for this too.it clears bad cholesterol
    stop all margarine, and all marg mixes.
    Twica a month would be ideal.

    Most cholesterol is made in the body very few people are affected by cholesterol in food,unless they have a a particular gene apoe 4 combination.

    mothers milk is mainly cholesterol we need cholesterol,

    Our brains are full of good cholesterol.

    see this video called food revolution
    http://www.dietdoctor.com/about


    Throw your teflon pots away this is not overkill , I am not joking ...

    yes correct scientific studies prove teflon is also implicated with the thyroid issue without doubt.
    Use stainless steel not plastic and not aluminium,

    http://www.ncbi.nlm.nih.gov/pubmed/3595413

    http://www.ewg.org/node/26650

    see about vit D here

    http://www.vitamindcouncil.org/


    Vit K" should also be taken too.

    When the above is in balance , Which is easy to do
    your Endocrine issues will be easier to manage with the help of a good Endo,

    If the above is not optimal the rules of chaos will rule, and the outcome wil constantly change.

    best of luck
    chessguy


  • Registered Users, Registered Users 2 Posts: 3,251 ✭✭✭cyning


    I think (and its my own opinion) that alot of the information on some of the websites like Stop the Thyroid Madness is not only misleading, but it can be downright dangerous IF people don't know anything else. Any website that is purporting to give people medical information whose homepage says:
    Well, here’s the skinny. Globally, informed hypothyroid patients have come to a unified conclusion that for 50+ years, they have been subjected to a thyroid treatment which didn’t work, leaving their lives compromised with lingering thyroid symptoms, besides adrenal stress and low levels of important vitamins and minerals. Could you, a friend or a loved one be a victim of this poor thyroid treatment? You betcha.
    should not be trusted. End of. It says things like one of the long and pathetic symptoms of having hypothyroidism is:
    Inability to hold children for very long
    One of the symptoms of hypothyroidism is an increased risk of miscarraige. There is a big difference between the two.

    There are far better sites out there. For the record I take levothyroxine (eltroxin which is t4) and sodium liothyronine (t3) so I don't have a straight forward problem with my thyroid. I have met unsympathetic doctors and endos: but not all are. If your not happy with either your doctor or your Endo get a new one.

    Yes my thyroid tablets have had to be adjusted lately, but only because I'm pregnant. I have normal blood test results: in all vitamins etc and yes that is really important: but not just because you have a thyroid problem, but because they should be in normal levels anyway. More importantly since I went in the sodium liothyronine I feel great.

    The best advice I can give anyone who has any problems with their thyroid (that aren't solved by eltroxin: most peoples are)

    • decent endo/gp
    • make sure your vitamin and iron levels are normal
    • be careful with what advice you take from websites or the internet
    • sometimes it just isn't your thyroid. Just because you have a long term illness does not mean everything is interconnected. It may play a part, and it might be causing it but don't always assume.


  • Registered Users, Registered Users 2 Posts: 163 ✭✭chessguy


    @cyning
    this post has almost 20. 000 views,
    it reflects concern over ones Thyroid Health concerns,

    Everything read on a website should be cross referanced with Medical published articles as I point out in my prev. posts

    Also all medical opinions should be cross referanced too , Doctors are ony human too.
    I pesonally prefer to use pubmed , for cross referance.

    Many doctors are way behind on optimal treatments for Diabetes and Endocrine issues , their principles are primative and most concerning.

    at times absolutey negligent,


    Example
    A friend of mine recently diagnosed with type 2 diabetres was advised by the diabetes clinic of a major Hospital. to eat weetabix and juice for breakfast ,here in Ireland .

    this is absolutely toxic for a diabetic,

    Now what is amazing he is not alone

    try ask any diebitic clinic today In Ireland, and they will recommend cereal and juice for breakfast, perhaps with baked beans too.

    IT will send his triglycerides sky high then he will be put on a statin for the raised cholesterol, and blood pressue,which will be caused by directly by this bad diet,
    Instead of using a diet like dr Bernsteins, the "Godfather of diabetes".

    http://www.diabetes-book.com/

    also
    http://www.dietdoctor.com/about

    the video the food revolution (on medical advice...



    NOw while one is on T4 only(Eltroxin) and may "feel well" ones health will for sure deteriorate you can check this on pubmed ,there are no exceptions unfortunately.

    These are certified published medical articles.

    as T4 is a storage conversion hormone not an active hormone like T3.

    Many people turn to forums to share experience ideas and concepts,
    and assist each other much like this forum, if a particular site has a mistake or something out of context , ideally it should be pointed out to the site owner, for rectification, this would be a posotive action.

    I can clearly see your concern with the statements on STTM, site
    such errors should be pointed out to the site Mod.

    I would also like to say if it was not for sites like this one many would not have their minerals or free T3 tested as it is not the norm.
    see previous posts some have not even had their vit D tested which is an actual hormone and crucial to Endocrine systems.

    This reflects absolute lack of clear vision on the medical staff concerned.

    So these forums can open a can of worms.

    I think its best to be in the know.
    And there will be errors but these need correcting, rather than avoiding the sites.


    good luck
    chessguy


  • Registered Users, Registered Users 2 Posts: 92 ✭✭Grayfox


    cltt97 wrote: »
    I am not entirely clear why you need to keep your TSH suppressed though? I know that a lot of Hashi's do that to keep the level of inflammation in check. I'm also not an expert with hyper but I thought RAI was to more or less kill the gland so it would stop overproducing? Do you have graves antibodies and/or hashimoto's?

    The TSH is suppressed to prevent reoccurance of cancer, If there are remnant thyroid cells in the body TSH could stimulate them and cause them to grow once again (This has happened once 3 months ago and recieved RAI for a second time). The goal for a cancer patient is TSH is <0.1 mu/L which may be lower than a sufferer of different thyroid problems. I've never had any personal experience with Graves or Hashimotos so i dont know?

    My medication and dosing has been strange for the last several months, previous to the RAI 3 months ago i was on 1500mg a week (200 everyday, 300 on friday). I was taken of my meds and placed on T3 alone running up to an uptake scan which was positive :(. After the RAI coming back up on the Eltroxin i got to 1400mg a week (200 a day) and seem to have become hyperthyroid which confuses me since i was on less eltroxin before.


  • Registered Users, Registered Users 2 Posts: 159 ✭✭rOBeRt frETt


    Hi Grayfox,

    T4 (Eltroxin) has a half life of 7 days so you could actually build up a lot in the serum, how do you measure your symptoms - i.e. what symptoms are you getting that you class as hyper symptoms? - also- how did you feel on T3 only- any difference?
    tnx


  • Registered Users, Registered Users 2 Posts: 159 ✭✭rOBeRt frETt


    cyning wrote: »
    The best advice I can give anyone who has any problems with their thyroid (that aren't solved by eltroxin: most peoples are)

    • decent endo/gp
    • make sure your vitamin and iron levels are normal
    • be careful with what advice you take from websites or the internet
    • sometimes it just isn't your thyroid. Just because you have a long term illness does not mean everything is interconnected. It may play a part, and it might be causing it but don't always assume.

    *This is good advice, I am also concerned about some of the sensationalism I read on websites- mostly all of them are trying to sell something too

    with that said, I also have little to no faith in the TSH test as the sole diagnostic when treating hypothyroid patients, the TSH is logical as a blood test but bad science as a diagnostic tool - or even a dosing measure.
    I have a brother and sister who are hypothyroid- when I started to feel unwell in 2005 they took one look at me and said - you're hypothyroid.
    my TSH did not go out of the accepted range until 2010 at which time it was 27.5 - only then was I allowed medication.

    hypothyroidism left untreated can lead to myriad of very serious neurological and physiological diseases/symptoms - left badly treated or unresolved can really effect your quality of life.

    My advice to anyone dealing with symptoms you know to be thyroid related- tell your doctor you want a full thyroid panel - you want copies of your lab results - you want all your vitamins and minerals run- you want your whole endocrine system measured - these are all simple blood tests that are absolutely routine- if Eltroxin is doing nothing for you - Tell you doctor! and insist on a different approach so you can at least try it. One size does not fit all


  • Registered Users, Registered Users 2 Posts: 14 penderella


    cltt97
    "This is a bit strange - why was your dose lowered, as your levels from October 2011 were quite good? "


    The Know it all Endo said that i was going a bit Hyper!!!!

    Good spot yes in early 2011 i just did not have the money to go to the doctor to get bloods & repeat prescription, so i was off medication for about 4 weeks. i know this was madness and have learnt my lesson.

    I'm in Meath and Drogheda Hospital is where blood tests are sent, it seems to change all the time what tests they will do.
    Not sure how the health service works, can i just get a request for bloods from my GP and go to another hospital to have them tested eg Beaumount? thanks for the feed back.
    Ella


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  • Registered Users, Registered Users 2 Posts: 737 ✭✭✭cltt97


    Grayfox wrote: »
    My medication and dosing has been strange for the last several months, previous to the RAI 3 months ago i was on 1500mg a week (200 everyday, 300 on friday). I was taken of my meds and placed on T3 alone running up to an uptake scan which was positive :(. After the RAI coming back up on the Eltroxin i got to 1400mg a week (200 a day) and seem to have become hyperthyroid which confuses me since i was on less eltroxin before.

    You did say your had symptoms such as anxiety, paranoia, etc if I remember correctly - and I'd say that could have been caused by the T3 only regime. A friend of mine went onto T3 only for a while and went totally mental on it - anxiety, paranoia, sleeplessness, panic attacks, the full works.... How long were you on the T3 only and since when are you back on Eltroxin.
    The dosing seems a bit strange allright, but in any case, your latest results do suggest you've gone hyper, so despite this dose being lower than the pre RAI dose I would suggest you lower it (slightly) and get re-tested in a few weeks. It does take some time though for the levels to come down, so don't get too worried if the "madness" doesn't stop for a while ;)


  • Registered Users, Registered Users 2 Posts: 14 penderella


    chessguy wrote: »

    Dear lord Chessguy have you never heard of brain fog??????

    Excellent post, it may take me a week to get through it, there is some sound advice in there, i just need to break it down to bite size pieces, baby steps.
    I have being coming around to the idea that a whole life style change is required, that there is no once a day magic pill to sort out my health.

    Thanks for the response.
    Ella


  • Registered Users, Registered Users 2 Posts: 737 ✭✭✭cltt97


    penderella wrote: »

    The Know it all Endo said that i was going a bit Hyper!!!!

    Not sure how the health service works, can i just get a request for bloods from my GP and go to another hospital to have them tested eg Beaumount?
    Ella

    Yeah, well your TSH was below range, but FT4 and FT3 were perfect. Time for a new endo I think....

    I don't know about the health service much either, but my GP doesn't take bloods, so he gives me a lab slip and I go to the hospital. They get served by two hospitals, Tallaght and James, so I can go to either and they have lab slips for both those hospitals. But if all your tests were done in the same hospital, then they can obviously do them. Just make sure that when you go it does not only say TFT (i.e. thyroid function test, which is TSH and T4) but FT4 and FT3 are written down specifically.


  • Moderators, Science, Health & Environment Moderators, Sports Moderators Posts: 24,146 Mod ✭✭✭✭robinph


    Now I'm going back for the results of my latest blood test in a couple of days to see how the initial dose they have put me on is working out. But... although I'm certain I'm feeling better overall since the beginning of January, I'm not quite sure what variations I'm now aware of in "general crappyness" feelings are due to the cold weather, my increase in training recently, work... or if things are actually down to the new drugs.

    How long do the thyroid drugs/ hormones work over? Such as would you get a variation in levels during the day/ hours or is it more over multiple days that they take effect.


  • Moderators Posts: 24,367 ✭✭✭✭ChewChew


    robinph wrote: »
    How long do the thyroid drugs/ hormones work over? Such as would you get a variation in levels during the day/ hours or is it more over multiple days that they take effect.
    That's the thing, I think it's very individual. In my case, my eltroxin is still not right. I've never had a steady dose or an ''oh my god I feel great'' episode. I'm on Eltroxin 7 years and the longest I went for bloods was 6 months. I'm now back to 6 weeks!! :( It really just depends on the individual.


  • Registered Users, Registered Users 2 Posts: 159 ✭✭rOBeRt frETt


    robinph wrote: »
    Now I'm going back for the results of my latest blood test in a couple of days to see how the initial dose they have put me on is working out. But... although I'm certain I'm feeling better overall since the beginning of January, I'm not quite sure what variations I'm now aware of in "general crappyness" feelings are due to the cold weather, my increase in training recently, work... or if things are actually down to the new drugs.

    How long do the thyroid drugs/ hormones work over? Such as would you get a variation in levels during the day/ hours or is it more over multiple days that they take effect.

    Once the tablets are ingested there is some debate around 'absorption' into the blood stream- i.e. take you medication on an empty stomach so the entire dose goes into the blood stream without changing it chemical effectiveness ,
    Thyroid circulates in the blood stream and is used throughout the body everywhere. It's doesn't work like caffeine or a pain killer, supplies are built up gradually in the blood stream- T4 has a half life of 7 days and you're constantly producing/consuming.
    so when you begin supplementing give at least 6 weeks (at least) before serum levels stabilize, during this time as far as symptoms are concerned - anything goes! most feel worse
    best of luck


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  • Closed Accounts Posts: 1,787 ✭✭✭edellc


    I was diagnosed with an under-active thyroid four months after my baby was born that was a year ago I am on 50mg of eltroxin but feel tired all the time. My gp says my levels are fine

    In the last month the soles of my feet have become very sore manly the heels and I find it hard to walk on the them and going up or down stairs is a nightmare. I read somewhere that this might be a symptom of a thyroid issue.

    So I suppose what Im asking is has anyone heard of this before, I want to speak to my gp about it but need a bit more info as she tends to dismiss me as my levels are stable (moving gp is not an option)

    I know she will recommend more blood tests which is fine but I just want to know if they is a side affect of thyroid issues


  • Registered Users, Registered Users 2 Posts: 159 ✭✭rOBeRt frETt


    edellc wrote: »

    I know she will recommend more blood tests which is fine but I just want to know if they is a side affect of thyroid issues

    Hi Edellc

    I feel your pain - literally!
    sore hands and feet are a common symptom of hypothyroidism
    please follow this link for more information

    http://en.allexperts.com/q/Medical-Research-Internet-1426/painful-feet.htm

    why not print it out and show your doctor as they have a great way of convincing hypothyroid patients that 'your symptoms are not thyroid related'

    best of luck!


  • Registered Users, Registered Users 2 Posts: 737 ✭✭✭cltt97


    Edellc,

    As Rob said, very common. I used to get really bad repetitive strain injury pain in my wrists, and I also got it on the inside leg part of my ankles, when I get it there it's one of my first signs to know that I'm under-dosed. That together with dry eyes!


  • Closed Accounts Posts: 1,787 ✭✭✭edellc


    Thanks for the replies and the link....I have just gotten off the phone from my gp and as I suspected she said that my levels when tested in October where that of someone with no thyroid issue. She also said that considering where my thyroid is located compared to my feet that there is no way my sore feet are connected to a thyroid issue. She suggested I look at my footware and that I come in to get my bloods checked for peace of mind but said all should be fine, and that once we check bloods we can then check my footware :confused:

    So now I go round in circles again :(


  • Registered Users, Registered Users 2 Posts: 163 ✭✭chessguy


    robinph wrote: »
    Now I'm going back for the results of my latest blood test in a couple of days to see how the initial dose they have put me on is working out. But... although I'm certain I'm feeling better overall since the beginning of January, I'm not quite sure what variations I'm now aware of in "general crappyness" feelings are due to the cold weather, my increase in training recently, work... or if things are actually down to the new drugs.

    How long do the thyroid drugs/ hormones work over? Such as would you get a variation in levels during the day/ hours or is it more over multiple days that they take effect.

    Hi there are variations during the day , the hormone T4 takes 3-4 hours for max absorbtion via a normal diet , so at tiimes it is advised not to take it a few hours before a blood test, but T4 works long term it does not have actual swings , goitrogenic food can disrupt its absorbtion soya can too.like coffe and alchol.

    The basic job of T4 is to convert to T3 which is what is actually used.

    The effects of taking T4 usually take around 2 weeks , when one stops the medication , it takes from 7 to 10 days depending on your metabolism,to clear out.

    It is best taken at night for optimal use as this is when your liver is most active too

    goodluck
    chessguy


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  • Registered Users, Registered Users 2 Posts: 163 ✭✭chessguy


    edellc wrote: »
    I was diagnosed with an under-active thyroid four months after my baby was born that was a year ago I am on 50mg of eltroxin but feel tired all the time. My gp says my levels are fine

    In the last month the soles of my feet have become very sore manly the heels and I find it hard to walk on the them and going up or down stairs is a nightmare. I read somewhere that this might be a symptom of a thyroid issue.

    So I suppose what Im asking is has anyone heard of this before, I want to speak to my gp about it but need a bit more info as she tends to dismiss me as my levels are stable (moving gp is not an option)

    I know she will recommend more blood tests which is fine but I just want to know if they is a side affect of thyroid issues


    Hi Magnesium in chelated form Albion patent is a good choice mentioned in my previous article, Magnesium does wonders for muscle aches, many published articles on this,

    Solgar do a good Albion patented Magnesium in chelated form. available in Irish Health shops,
    do not use the cheap magnesium oxide , its only good as a laxative.

    why are we almosty all short on Magnesium, well no real crop rotation , and the way foods are grown , years ago it was never needed,
    soil is depleted of its natural organic nutrients.And has no time to recover.

    regards
    chessguy


  • Registered Users, Registered Users 2 Posts: 159 ✭✭rOBeRt frETt


    edellc wrote: »
    She also said that considering where my thyroid is located compared to my feet that there is no way my sore feet are connected to a thyroid issue.
    (

    Edellc - RUN away from this doctor- I know you said that changing doctors was not an option but the above statement is laughable.

    There is more to treating hypothyroidism than reading a blood test- an at least a basic understanding of how thyroid hormone effects muscles and tissues should be assumed! - Jesus I can't believe that came out of a doctors mouth, it's absolutely incredulous


  • Closed Accounts Posts: 2,748 ✭✭✭Dermighty


    I have an overactive thyroid, diagnosed about 4 years ago, it really ****ed me up to put it mildly and it was only when i took responsibility of my diet, the amount of stimulants I took and sleep I got that it began to improve.

    I am not sure how it works for a hypoactive thyroid but I know from experience that a hyperactive is definitely affected by your lifestyle and the stricter you control your diet and exercise regime the healthier you can be.

    Hope you get better or can manage it, it's really one of the worst feelings in the world.

    Regarding taking Zinc and Magnesium I found this helped my sleeping pattern a lot, but I took it anyway, in ZMA form. Just be aware that calcium negatively affects zinc absorption so don't take your zinc tablets with a pint of milk :P


  • Moderators Posts: 24,367 ✭✭✭✭ChewChew


    cltt97 wrote: »
    Edellc,

    As Rob said, very common. I used to get really bad repetitive strain injury pain in my wrists, and I also got it on the inside leg part of my ankles, when I get it there it's one of my first signs to know that I'm under-dosed. That together with dry eyes!
    I thought this was just me!! :eek: Dry eyes and sore hands!! Ok so, that answers that for me!


  • Registered Users, Registered Users 2 Posts: 193 ✭✭treecreeper


    this is all very technical stuff.
    i went to a prof of endocrinlogy and only advice was to take eltroxine 100mcg every second day and then 150mcg on alternate days.
    same with my twin.
    she has hypo too.
    we have neurodegenerative disorders and i have other complex autoimmune diseases.
    we both are agonisingly tired all the time.
    twin sleeps a lot and just been diagnosed with breast cancer.
    she had a small spot of skin cancer years ago and that has been watched.
    we are suffering without a doubt.
    too many cooks spoil the broth syndrome, as so many consultants trying to work in isolation for our conditions.
    i have never done anything other than pop an eltroxin with my other meds at breakfast and then tried to function.
    ann


  • Moderators, Science, Health & Environment Moderators, Sports Moderators Posts: 24,146 Mod ✭✭✭✭robinph


    So my TSH is now back down to 2.1 and this resulted in the GP saying everything is fine.

    Not entirely convinced that all is well personally, but I'll stick with this a bit longer before going back again. It's still all too new.


  • Registered Users, Registered Users 2 Posts: 193 ✭✭treecreeper


    Hi, i too will have to sit down and read all the stuff put here.
    I have primary sjogrens and crohns, ceoliac, raynauds and a movement disorder.
    i am relocating away from where i once lived so all over the place.
    i get a chronic pain in my left calf muscle when very tired and my hands and skin burn like crazy.
    i am due to see a endo but missed the appointment due to upheaval.
    twin is almost asleep all the time with parkinsons but i suspect more so of thyroid.
    my neuro tells both of us that thryoid can do awful things and she referred us for consult.
    i hope i get this under control for self.
    twin is not proactive in her health care so doubt she will.
    but i do want to feel better than this.
    anyone have trouble with their eyes, as in focusing and blurriness etc.
    i do have beginning of cataracts and macular degeneration.
    xann


  • Registered Users, Registered Users 2 Posts: 163 ✭✭chessguy


    penderella wrote: »
    chessguy wrote: »

    Dear lord Chessguy have you never heard of brain fog??????

    Excellent post, it may take me a week to get through it, there is some sound advice in there, i just need to break it down to bite size pieces, baby steps.
    I have being coming around to the idea that a whole life style change is required, that there is no once a day magic pill to sort out my health.

    Thanks for the response.
    Ella

    @Penderella,absolutely there is no magic pill, it is a lifestye change ,

    following food like this

    http://www.dietdoctor.com/about

    or a paleo style diet, its quite easy.

    There are many Published articles which clearly declared a diet change and a little exercise, has massive benefits.

    But HEALTH OFFICALS , DOWNGRADED THESE RESULTS,
    they were Concerned people could not adapt to the lifestyle change , and therefore did not recommend it over medication.

    And saw it as a failed option.Which may be true (for some) but people should be advised of the options ,
    do your self a big favour and see all the video in the link the food revolution.

    so basically should not eat mass produced poor quality food.
    And a little exercise only not too much thats not good either ,

    Oh yes too much exercise causes the body stress too..
    as you burn up your reserve "nuggets" too quick.

    Especially once you have been diagnosed with a metabolic disorder.

    best of luck
    chessguy


  • Registered Users, Registered Users 2 Posts: 2,131 ✭✭✭RentDayBlues


    @robinph - as the meds are still new to you, you should be getting tested every 6 weeks until you get to a consistent level, dont let you GP fob you off on this one.

    Although the level in Ireland is 3 or 3.5 (depening on lab, some still use 5!) its how you feel that is important.

    I do best once I'm under 0.5 which would be considered hyperactive, but for me its normal

    Keep with it and trust how your body feels


  • Moderators, Science, Health & Environment Moderators, Sports Moderators Posts: 24,146 Mod ✭✭✭✭robinph


    Wasn't overly happy when the GP basically said "you're fixed now, have another blood test in a year". At least as I'm in and out for blood tests more often anyway with the diabetes I'm sure I can get the nurse to take an extra vial when needed and run a extra test for me. I do need to get used to this for a bit longer yet before I know what is going on though.

    It did seem a bit strange how little information they have given me regarding the thyroid considering it's a new lifelong condition. I definitely got more of a "induction" for diabetes, and even for the asthma which isn't even classed as lifelong they spent longer setting me up with everything and making sure it was all OK.

    Of what I've seen so far the thyroid treatment is just "pop a pill and get out of here without asking me any questions please".


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  • Registered Users, Registered Users 2 Posts: 737 ✭✭✭cltt97


    Well, so today I had my gastroscopy to see if I'm coeliac... Wasn't as bad as I had thought, but mind you I wouldn't want to have it done on a daily basis!
    I asked if there was any evidence of it and the consultant said no, so that's good news. But he took a few biopsies and I think I have to wait for confirmation, but there was also some gastroenteritis, so now I have to wait and see if something comes back on that (like Heliobacter infection).


  • Registered Users, Registered Users 2 Posts: 6 Ailie


    Hi all,

    I am new to both boards and hypothyroidism. I came across this thread in a google on hypothyroidism. I was diagnosed just 4 weeks ago and have not been back to the doc yet. I dont know what the result of my blood test was, but have been prescribed a 50mg dose of Eltroxin to be taken 3 days a week, Mon, Wed and Fri. The doctor prescribed 3 months supply. I felt a bit better after 2 weeks of the meds, at least a bit less tired and I had been snoring like an elephant, with a thickened feeling around my neck. This has improved, and my morning headaches have lessened. I still don't feel "normal". I have no sex drive and am like a crazy psycho bitch with mood swings, my boyfriend is being patient but I don't think he really understands fully or knows how to cope. I am only learning about this too so I can understand how he feels. I still feel pretty exhausted and brain foggy, and I have no appetite for life, last Friday I attempted to go out for dinner and drinks with my boyfriend but was so exhausted I ended up in tears at the local and we had to go home. To do anything after work other than potter about the house and watch TV just seems like climbing a mountain.

    I am pretty new to this and it sounds like many of you are going through a real nightmare.

    My question really is whether I should go back to the doctor sooner rather than later? How long does it take for the hormones to level off with a certain dose of Eltroxin? I don't want to unneccessarily prolong this twilight zone, it seems like I will need a higher dose. Is 6 weeks enough to wait? I feel like I am counting down the days and weeks til I feel better, but I am beginning to realise I am only at the start of a potentially very long road.

    I was initially delighted to be diagnosed as at least it meant I wasn't going mad, and there was a solution, but now I am dreading that it isn't as easily solved as I had thought. I don't want to delay!

    I really appreciate your help, this thread is fantastic, so informative, although as someone else noted, its hard to swallow with the aul brain fog!

    Thanks
    Ailie


  • Registered Users, Registered Users 2 Posts: 1,162 ✭✭✭Wyldwood


    Delighted for you Cltt that the coeliac isn't a problem, Helicobacter or gastritis are treatable. How do you feel at the moment? Was the endoscopy very painful?

    Had my appointment with Endo last week & he wants to rule out a number of things that could be causing my problems. The first one is wearing a Holter Monitor for 24 hours, which I will be doing on Thursday, in case palps & racing heart are cardiac problem. I must then have tests for coeliac & cortisol. An endoscopy was mentioned in case the bloods are inconclusive & I really don't want to have that! He was a bit puzzled by my problems as an uncontrollable recurrence of hyper after thyroidectomy is not usual apparently. 'Twould happen to me :(


  • Registered Users, Registered Users 2 Posts: 1,162 ✭✭✭Wyldwood


    Ailie

    welcome to the club!

    It takes a full 6 weeks for the Eltroxin to take effect but sometimes the dose isn't sufficient and you will need an upward adjustment to find the right level. Go back for your blood tests after 6 weeks and make sure to get copies of all the results from your doc, including the lab ranges. Then you can keep track of your progress and see where you are when you feel better.

    Hang in there as it will take a while to find your level & make the effort to get out and take a bit of exercise & eat well, it makes a difference.


  • Registered Users, Registered Users 2 Posts: 6 Ailie


    Hi Wyldwood,

    Thanks a million for your advice. Its what I was hoping! Just 2 more weeks then to wait until I can get rechecked. It will be good to know the results then I can further my research too, and see what range I'm in.

    I've been eating better since I got the diagnosis, but not much exercise, to be honest its the last thing I want to do, I was hoping that soon I would feel a bit better and then more able to exercise, but now that the evenings are brighter I might find it easier to go for walks in the evening.

    It seems like patience is the key here. Hard to be patient when I feel like taking the head off everyone for the most insignificant things. Seriously some days I think it would be better for society in general if I just locked myself in my room!
    Anyway thanks again, I'll keep reading on here and I'll let you know how I get on in a fortnight. Hopefully the more I read the more I'll take in!

    Hope you're feeling ok!?


  • Registered Users, Registered Users 2 Posts: 14 penderella


    Well hello there,

    I've not been around the last week or so, to tired to look at the computer after work.
    About 2 weeks ago i wrote to ENDO asking for his opinion following my last blood test results TSH almost 10, FT3 19.5,ATP over 300 and a lot more, when he saw me in nov he changed my Eltroxin down to 100mg 4 days & 50mg 3 days. he had expected the TSH to be <2, i like it around 0.5. Part of the problems that i encounter, even though all the thyroid function tests are requested the lab in Lourdes hospital just won't do them, and you don't know what they have done until you get the results back, and it changes all the time.
    I rang his clinic on monday to see why he had not responded to my letter, email or fax, YES i am becoming one of THOSE patients :eek: to be told that he had not received any correspondence from me :confused: so while i'm on the phone the PA checks around her vast office 2msq, oh yes we have the letter here. he will review it on Wednesday when he comes in. so today is the day i'll keep you posted. i have not intention of ever seeing this guy again just want to feel like i have got my money's worth (€200 for 12 minutes).

    So at the same time i sent a similar letter to GP practice manager, as there are several GP in the practice, all who have been great for family doctor issues. Just wanted to know which one was willing to work with me to find the best plan to restore my health & well being.
    Had a 40 minute very productive visit this morning with GP, very honest said that they have not been trained to treat Hypothyroid in any other way but to prescribe Eltroxin, based on the THS results.
    He had done some home work and said the he would refer me to a specialist (not the dope in the mater) and would be willing to follow any plan that the specialist suggested. That includes NDT or T3 treatments.

    GP has referred me to Prof. Chris Thompson Have any of you been to Prof. Chris Thompson in Beaumont, has he used NDT as part of your treatment.
    He seems very well respected in field of Pituitary medicine but cannot see any references to his Thyroid skills.
    Any feed back would be greatly appreciated.

    On a final note i have started to self medicate with NDT, only since last Saturday, so the first week i am taking 1x60mg, i plan to raise by 30mg this Saturday. so far no reactions of a bad kind, Sleep has come a bit easier & i am not as shattered in the morning. just following the protocol in www.stopthethyroidmadness.com

    sorry i rambled on a bit.

    Penderella


  • Registered Users, Registered Users 2 Posts: 159 ✭✭rOBeRt frETt


    Hi panderella

    If the professor is an endocrinologist then I would say the chances of getting switched to NDT would be slim- wont your GP prescribe it ?


  • Registered Users, Registered Users 2 Posts: 14 penderella


    Hi panderella

    If the professor is an endocrinologist then I would say the chances of getting switched to NDT would be slim- wont your GP prescribe it ?

    No GP won't prescribe, but would be happy to follow the lead if the Endo does.
    The problem is i really like the GPs in our practice, i have asked all the local pharmacists if there are any GPs prescribing NDT and so far they all have said no.


  • Registered Users, Registered Users 2 Posts: 737 ✭✭✭cltt97


    Only thing I'd like to say is to be careful with the NDT and following the STTM protocol, because I think some of the stuff she recommends is outright dangerous. If I had increased my dosage at the speed and amount as recommended in that book I would have probably collapsed. I would very much stick to an increase by no more than 30mg (half a grain) at a time, and no sooner than after 6 weeks each time. One thing to remember is that all those books written by patients are mainly based on their own experiences which doesn't mean that their protocol fits all. Although she has a lot of very useful information and it's a very useful website/book for self-education, I would caution people not to blindly follow what she recommends.


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  • Registered Users, Registered Users 2 Posts: 737 ✭✭✭cltt97


    Wyldwood wrote: »
    Delighted for you Cltt that the coeliac isn't a problem, Helicobacter or gastritis are treatable. How do you feel at the moment? Was the endoscopy very painful?

    Thanks Wyldwood! Didn't even suspect that I had gastritis or whatever it is, no symptoms really, but have to wait for the biopsies to find out. The endoscopy was actually not half as bad as I had expected. Everyone was telling me how horrible it is, and I was scared about the swallowing the tube bit as start gagging the minute the toothbrush gets even a mm too far back! But they spray something into your mouth that numbs the back of your throat and it was down so quickly and I did not gag once. I could feel it moving around a bit and there was a bit of discomfort in that, and they also blow air in to get a good look around, and that air of course comes back out! So lots of burping :D. But it was over and done with in about 7 minutes and I hopped off the bed and went straight to work.... Had a bit of a stomach ache the last two days, but then it's not everyday someone takes a couple of junks out of your stomach lining! If I had to do it again I would still not take sedation for it.
    Still think that gluten, or wheat or something in bread does not agree with me though. I've lately noticed that I'm so much stiffer and I have a lot of muscle tightness and I have no other explanation than having gone back on wheat just before X-mas, so I'm going to reduce that right back down again.

    I can also totally sympathise with you. I was quite hypothyroid and had palpitations and racing pulse, and had two ECG, which came back as normal as it gets. My theory is that this is a total adrenaline fuelled reaction - the adrenaline in response to the thyroid hormone causing the body stress, like an allergic reaction almost. My GP had never heard of any such thing and neither had my Endo, they were all puzzled. Haven't had a test in a while now, need to go again, hoping that I've gotten a bit nearer the normal range now.... It's a long hard battle this thyroid malark!


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