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thyroid misery

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Comments

  • #2


    snor wrote: »
    Hi there. Can anyone please recommend a good endocrinologist in S. Dublin. Can go private. Hashinotos. Many thanks.

    Dr Margaret Griffin in the Beacon is very good. She also has clinics in the Bons in Glasnevin and in Clane.

    I had my thyroid removed due to cancer four years ago and was sent to the endo in Vincent’s private who was useless.

    She at least listens and is willing to prescribe T3 and NDT and go with what works for me.


  • #2


    Dempo1 wrote: »
    Hi there, hopefully someone might come back with some recommendations for you. I just wondered have you not been reffered or are you looking for new endocrinologist? Can your GP Help etc? My own is in Laois but I was reffered and thankfully he and his team excellent.

    Many thanks. It’s actually for my daughter who was under the care of a paediatrician and now referred to adult services. It was the nurse who rang me to refer on and said she was unfamiliar with adult endocrinologists. I rang My daughters/my GP for a recommendation last week and he has not called me back. Anxious to get thd ball rolling.


  • #2


    Brera wrote: »
    Dr Margaret Griffin in the Beacon is very good. She also has clinics in the Bons in Glasnevin and in Clane.

    I had my thyroid removed due to cancer four years ago and was sent to the endo in Vincent’s private who was useless.

    She at least listens and is willing to prescribe T3 and NDT and go with what works for me.

    Many thanks Brera. Sounds good and will check her out. The beacon is handy for me. Thank you.


  • #2


    Dempo1 wrote: »
    Hi there, hopefully someone might come back with some recommendations for you. I just wondered have you not been reffered or are you looking for new endocrinologist? Can your GP Help etc? My own is in Laois but I was reffered and thankfully he and his team excellent.

    Many thanks. It’s actually for my daughter who was under the care of a paediatrician and now referred to adult services. It was the nurse who rang me to refer on and said she was unfamiliar with adult endocrinologists. I rang My daughters/my GP for a recommendation last and he has not called me back. Anxious to get thd ball rolling.


  • #2


    snor wrote: »
    Many thanks Brera. Sounds good and will check her out. The beacon is handy for me. Thank you.

    Hopefully it works out for your daughter.

    Everyone will have different experiences with endos but having one that will listen and work with you is half the battle.


  • #2


    snor wrote: »
    Many thanks. It’s actually for my daughter who was under the care of a paediatrician and now referred to adult services. It was the nurse who rang me to refer on and said she was unfamiliar with adult endocrinologists. I rang My daughters/my GP for a recommendation last and he has not called me back. Anxious to get thd ball rolling.

    Best wishes for your daughter :)

    Is maith an scáthán súil charad.




  • #2


    What does it take to be referred to an endocrinologist?

    I'm not looking to be referred to one, just curious. My GP just told me I'll be going to him every 4 months for bloods. No mention of referring me anywhere.


  • #2


    What does it take to be referred to an endocrinologist?

    I'm not looking to be referred to one, just curious. My GP just told me I'll be going to him every 4 months for bloods. No mention of referring me anywhere.

    Hi there, just from my own experience, my GP did blood tests based on some symptoms I was having, she suspected a Thyroid issue. When bloods came back she requested an ultrasound and refferal to the endocrinologist clinic which luckily was near enough to me in the Midlands. Ultrasound showed enlarged Thyroid and the Journey began almost 4 years ago. I'm a public patient so the process might be different for private refferal. My journey started relatively quickly and ultimately diagnosed with Graves Disease, unfortunately I've additional complications as a result, high blood pressure, cholesterol levels (I'm actually quite thin with good diet) and increased heart rate. Once correct medications figured out, this takes a while, symptoms manageable but of course good an bad days.

    Once referred, the endo clinic takes over, 3/6 monthly consultations but my GP does bloods in advance and checks blood pressure etc in advance of endo consult, these have been telephone ones during covid.

    Hope this helps

    Has your doctor actually determined a diagnosis? My own situation may have been deemed serious due to blood results and enlarged Thyroid, hence refferal

    Is maith an scáthán súil charad.




  • #2


    Thanks for that Dempo1. I hope it's settled a bit for you now and doesn't impact you too much.

    I went to the GP with a range of different symptoms and the GP just did bloods to find out what was wrong. He came back to me to say it was an overactive thyroid and to go on medication straight away. Bloods were 2 weekly initially, then monthly and now 4 monthly. Meds were always increased until the last bloods showed it had become underactive, so they've halved now.

    Maybe because its reacting to the Meds, there's no need for any further investigation or treatment? Although it's never just right :D


  • #2


    Thanks for that Dempo1. I hope it's settled a bit for you now and doesn't impact you too much.

    I went to the GP with a range of different symptoms and the GP just did bloods to find out what was wrong. He came back to me to say it was an overactive thyroid and to go on medication straight away. Bloods were 2 weekly initially, then monthly and now 4 monthly. Meds were always increased until the last bloods showed it had become underactive, so they've halved now.

    Maybe because its reacting to the Meds, there's no need for any further investigation or treatment? Although it's never just right :D

    No problem, it could be that the GP felt he could manage your symptoms, I'm guessing in my own case it was the enlarged Thyroid that raised alarm bells as such. It does seem from this thread referral not automatic as such, one thing I didn't mention was all my meds are managed by my endocrinologist not my GP.

    My biggest challenge is chronic fatigue and insomnia but in one sense you become almost accustomed to it. Annoyingly though I had an MRI a month ago for persistent knee pains, I put it down to graves but to my shock, Arthritis, its not determined if it's related to Graves so, it's never a dull day.

    This thread has been very very helpful, so follow it, theirs some excellent people on here alot more knowledgeable than I so never be afraid to ask a question etc.

    Good luck in the mean time, appreciate your comments also :)

    Is maith an scáthán súil charad.




  • #2


    What does it take to be referred to an endocrinologist?

    I'm not looking to be referred to one, just curious. My GP just told me I'll be going to him every 4 months for bloods. No mention of referring me anywhere.

    I have an Under active thyroid for years and have never been referred to an endocrinologist- just bloods now every 6 months and meds altered by my GP accordingly. My daughter was referred straight away as her thyroid is enlarged and her thyroid antibodies very elevated so indicative of autoimmune condition. She is very young also, whereas I was in my 40s when I presented so this may also have been a reason for my GP to manage.


  • #2


    snor wrote: »
    Hi there. Can anyone please recommend a good endocrinologist in S. Dublin. Can go private. Hashinotos. Many thanks.

    Just another recommendation for you, although area might not suit, but I can highly recommend John McDermott in the Hermitage.


  • #2


    snor wrote: »
    I have an Under active thyroid for years and have never been referred to an endocrinologist- just bloods now every 6 months and meds altered by my GP accordingly. My daughter was referred straight away as her thyroid is enlarged and her thyroid antibodies very elevated so indicative of autoimmune condition. She is very young also, whereas I was in my 40s when I presented so this may also have been a reason for my GP to manage.

    It's interesting your experience and that of your daughter, I was actually 49 when problems surfaced and yes similar to my enlarged Thyroid, referral was probably necessary but to her credit, it was my GP who picked up possible issue's. I note also the familial aspect in both your cases, I heard it can run through families, hereditary etc , my own challenge was not having any contact with family despite having 13 brothers and sisters (a story for another day :)) so I went into this blind and have to be honest knew nothing of Thyroid illnesses prior to diagnosis.

    There was a brief mention on Thyroid illnesses on the Claire Byrne show today, it was a little rushed but interesting, there's a podcast of it if interested.

    Is maith an scáthán súil charad.




  • #2


    I've just come across this scientific paper, https://pubmed.ncbi.nlm.nih.gov/28724185/, it seems very interesting:

    "Myo-inositol plus selenium supplementation restores euthyroid state in Hashimoto's patients with subclinical hypothyroidism"



  • #2


    Morning all, its been a while, hope your all well.

    Just an update on my Graves Disease.

    So I'm not sure if it's positive news but had bloods done in advance of next endo telephone consult end of this week. Also had eye consult yesterday.

    My GP has said bloods looking normal, high blood pressure now normal (had 24 hr monitor test), cholesterol levels have reduced and Eye consultant happy, there are no affects on my eyes from my Graves Disease.

    I continue to have chronic Insomnia and fatigue, hardto get a definitive answer if these are related to graves.

    My GP feels whilst all positive, I'm likely to remain on Meds. Hopefully my Endo will be happy enough, I just wish I had a sense of long term prognosis.

    Thanks

    Is maith an scáthán súil charad.




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