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thyroid misery

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Comments

  • #2


    zippy,

    That's very strange that you went from 50mcg to 100mcg. They should have brought you up to 75mcg for a couple of months at the very least, in order to lower the risk of you becoming hyperthyroid.

    Think you are mistaking my post with cltt97's. They didn't put me on 50mcg at all. My first dose has started at 100mcg.


  • #2


    Hi Zippy. My male cousin who is an accountant got diagnosed underactive thyroid in his mid 30s. He got so exhausted and fuzzy headed before diagnosis that he had to put post its with 'concentrate' when he was in meetings or on laptop. He is on 150 eltroxin a day. Its unusual to hear of males with thyroid probs or maybe they dont talk about it. Is there anyone else in your family with thyroid disease

    I am now within regular range but still dont feel great -my antibodies are very high at 652

    Have they got yours within normal range now. I think with hashi we can go over and under active. I am going to get bloods done every 6 weeks.


  • #2


    tigerb wrote: »
    Is there anyone else in your family with thyroid disease

    Just found out yesterday an aunt of mine has thyroid problems. That's all I know of.
    tigerb wrote: »
    Have they got yours within normal range now.

    I've just started my 1st dose the other day so we'll see!


  • #2


    zippy,

    Sorry, that post was meant for cltt97.

    tigerb,

    I'm in my mid 30s, male was diagnosed 18 months ago having similar symptoms to your cousin. Its becoming more and more common for young men.

    I think fluoride in tap water might have something to do with it, along with a genetic profile which makes certain people vulnerable.


  • #2


    zippy,


    I'm in my mid 30s, male was diagnosed 18 months ago having similar symptoms to your cousin. Its becoming more and more common for young men.

    I think fluoride in tap water might have something to do with it, along with a genetic profile which makes certain people vulnerable.

    that is so interesting. Looking at your posts you lead a very healthy lifestyle to minimise thyroid symptoms. I wish I was stricter with my foods though have reduced my alcohol significantly.


  • #2


    Yes, they should not have put me from 50 to 100 immediately, I did go hyper and it was unpleasant. I generally have problems tolerating thyroid meds. I had to come off them altogether after about 1.5 years, as got really bad side effects (but never went hyper). I've switched to natural type meds and took me almost a year to increase to a half decent dose, still not optimal and still struggling. Thyroid disease is by far not as easy to manage as people want to believe. Same with all hormones really, not fun messing with them! I think we will see more and more endocrine disruption, it's just too much life in the convenient fast lane.


  • #2


    tigerb,

    I jog 10km every second day now, usually complete it in just over 1hr. I usually swim or cycle anyday I don't jog. I'm 86.8KG now, many are remarking on how well I look, but I need to get down to 80KG since I'm 5'8". Its bloody hard work most of the time, but I actually enjoy jogging when its sunny. Felt really hungry this evening, would have raided the fridge in the past, but ate fresh pineapple and tinned prunes and some pistachio nuts instead. Its important to keep many healthy nibbles in the house, otherwise you start making sandwiches and toast and anything you can get your hands on.

    Its all about sacrifices, it has to be done if you want to get the better of hypothyroidism. Hypothyroidism has robbed me of the best of the years, I've been overweight since I turned 30, peaking at 102KG when I turned 36, and I've felt like a 50something in these years, so I feel cheated because I didn't neglect myself, it was my thyroid that let me down through no fault of my own. But no point feeling sorry for myself, need to make the best of the situation, and I hope that I'll live a fulfilling life in the years to come.


  • #2


    Has anyone tried natural supplements/remedies or find that these help at all? Some of the things I've been reading; kelp, bladderwrack, walnuts, ginseng, green oats, coconut oil, protein drinks, multivitimin tabs all help. Have people tried any of these alongside eltroxin, say? Or noticed any help?

    I've also read that onion and garlic should be avoided as they supress the thyroid function.. damn it I eat this all the time. Water containing fluoride, and dairys should be avoided? :mad: Alcohol consumption kept moderate :mad: Is this stuff all important or just is it that it might be accumulatively helpful in a small way? As I've said I don't really show many symptoms bar lack of focus or concentration, fuzzy head and irritability (actually mania tbh) when hungry...I could take someones head off!
    I'm also reading that pretty much white bread, wheat, pasta and rice should be kept down, how the feck do I get carbs? Or is this more in mind with the fact that hashimoto's may cause weight gain- because that's not something I have to worry about (I'm like a rake). This is the website: http://www-thyroid.com/html_hypothyroidreport_v2.htm#bladder


  • #2


    Hey I believe I've been suffering from Thyroid problems as well. I had a blood test done with my doctor and was told that they're normal. I'm pretty certain that I've had these problems since I was 17. I've been suffering hair loss, heat intolerance, fatigue, IBS etc..

    Here are my results -

    Thyroid Screen:
    Free T4 = 18.1 pmol/L (10.5-22.0)
    TSH = 0.75 mIU/L (0.27-4.20)

    I've learned that these tests are not very accurate in gauging thyroid health, I plan on going back and getting a more comprehensive test to see if I have hashimotos or graves. I took Iodine for a week during the Summer and my hair loss and other symptoms stopped within 4 days, but then I had heart palpitations etc. and had to stop.

    What do you guys think of the above results?. Are they at a good range?.


  • #2


    Hey

    I was diogonised with under active thyroid christams 2010. All i was told is that it is at a level of concern and giving 50mg Eltorxin, which i have been on since. At first i felt excellent lost some of the weigth i had put on and everything, my mood had lifted and had some get up and go. Before i was put on treatment i felt like i didn;t care less about the mess of the house and only did the very very basics (normally a clean freak like monica from freinds) I had bloods done at the End of Jan 2011 came back as been regulated by the meds. Had bloods done again In Arp and said they were also fine so kept taking the meds.

    Due to get bloods done next week but feeling really crappy at the min. And i wonder has anyone had the the symptoms i have been having. For the few weeks 10 hours a sleep a nite is not good enough, need cat nap when driving home from work, memory is gone so back, I have what i would call body tremors or feeling like my body is shaking the whole time. My poor b.friend has put up with my mood swings, weigh has pilled on agian and nails/hair are so bad. Generally feeling really depressed:(

    I have only ever spoken to the nurse in my doctors about this as she does my bloods, When i mentioned the weight gain at the start she said am i eating to much and should i cut down on my diet. I have always been a 8/10 now am a 12.

    sorry guys wrote more then i had expcted to. But any suggestions or advice. :rolleyes:

    Thanks for you time, found your advice very good when digonised at first:o


  • #2


    Blahh89 wrote: »
    Hey I believe I've been suffering from Thyroid problems as well. I had a blood test done with my doctor and was told that they're normal. I'm pretty certain that I've had these problems since I was 17. I've been suffering hair loss, heat intolerance, fatigue, IBS etc..

    Here are my results -

    Thyroid Screen:
    Free T4 = 18.1 pmol/L (10.5-22.0)
    TSH = 0.75 mIU/L (0.27-4.20)

    I've learned that these tests are not very accurate in gauging thyroid health, I plan on going back and getting a more comprehensive test to see if I have hashimotos or graves. I took Iodine for a week during the Summer and my hair loss and other symptoms stopped within 4 days, but then I had heart palpitations etc. and had to stop.

    What do you guys think of the above results?. Are they at a good range?.

    I would not be have as much knowledge as the others on this forum but would you get your antibodies and T3 checked as well. I know my TSH was in normal range for years (( I now get copies of all my blood tests)and I was consistantly told it was not the thyroid even though I felt so unwell and anxious


  • #2


    Blahh89 wrote: »
    What do you guys think of the above results?. Are they at a good range?.

    Well, TSH and T4 look normal, but as suggested, get tested for anti-TPO and free T3. also get tested for iron and B12 and for coeliac antibodies (think it's anti TgA, can't really remember). if you have a reasonably flexible GP try also for morning blood cortisol test.


    Shellieh, what were your latest results? Many people experience real improvement at the beginning and then it flattens out, suggests you may need to increase, but needs to be checked via blood test. 50 seems a low enough dose, most people are on around 100, but depends on the state of your gland.

    And if any of you are in Dublin - not all hospitals do free T3, so make sure to ask about this, total T3 doesn't tell you anything. For example James' hospital only do total T3, but Tallaght do free T3.


  • #2


    cltt97 wrote: »
    Well, TSH and T4 look normal, but as suggested, get tested for anti-TPO and free T3. also get tested for iron and B12 and for coeliac antibodies (think it's anti TgA, can't really remember). if you have a reasonably flexible GP try also for morning blood cortisol test.


    Shellieh, what were your latest results? Many people experience real improvement at the beginning and then it flattens out, suggests you may need to increase, but needs to be checked via blood test. 50 seems a low enough dose, most people are on around 100, but depends on the state of your gland.

    And if any of you are in Dublin - not all hospitals do free T3, so make sure to ask about this, total T3 doesn't tell you anything. For example James' hospital only do total T3, but Tallaght do free T3.

    I have the bllod test on Tues Morning as i work a hour and half from my home so its hard to get time in the morning.

    I have never actually been to my results in the form of T3 etc. Just always they are fine you don;t need to be worried and ur dose is staying the same. I have made my appoint with the doc as i want some good feedback.

    Has any one experienced swelling of the glad??? as at the moment my neck seems swollen and puffy:cool:


  • #2


    yes, mine was quite swollen when I was first diagnosed, and again when I went off the meds for a (good) while. Another sign that you're probably underdosed. You need to ask for a copy/print-out of your lab results to be able to see exactly what they tested and what it says. GPs can be kind of strange in what they consider normal. If my GP in 2005 had actually told me that my TSH was 5, i.e. above normal (I didn't even know she had tested thyroid function), I would not have ended up in a serious state in2007 with a TSH of >100! With this condition, you totally need to take control. Lots of people do fine on Eltroxin if they're well dosed, others, like me and many other on this forum, have no such luck, but in either case, it's always the patient that has to fight to feel good and take control of his/her treatment, as hypothyroidism is soo under/mis-treated in this country.


  • #2


    Shellieh wrote: »
    Hey
    Due to get bloods done next week but feeling really crappy at the min. And i wonder has anyone had the the symptoms i have been having. For the few weeks 10 hours a sleep a nite is not good enough, need cat nap when driving home from work, memory is gone so back, I have what i would call body tremors or feeling like my body is shaking the whole time. My poor b.friend has put up with my mood swings, weigh has pilled on agian and nails/hair are so bad. Generally feeling really depressed:(

    For me the body tremors were always a sign that I had gone hyper. Hopefully your next set of bloods will give some answers to your changes in symptoms.
    Shellieh wrote: »
    I have only ever spoken to the nurse in my doctors about this as she does my bloods, When i mentioned the weight gain at the start she said am i eating to much and should i cut down on my diet. I have always been a 8/10 now am a 12.

    I'm assuming you DO mention these things to your GP too?
    I can't speak for the nurse in your local surgery, but the one here with my GP is so full of tosh, I just try and avoid her as best I can...
    Shellieh wrote: »
    I have never actually been to my results in the form of T3 etc. Just always they are fine you don;t need to be worried and ur dose is staying the same. I have made my appoint with the doc as i want some good feedback.

    From now on, get printed copies of all your blood test results. They are your tests and you're entitled to them. Also, if they'll give them to you (again, no reason why they shouldn't) get back copies of the previous tests. Then get on and learn how to read and interpet them for yourself ;)

    Often, if the TSH/FT4 is ok or normal enough, the labs won't test for FT3/T3...so don't necessarily blame the GP for not testing. I know my own GP has had many a row with the testing lab because she has specifically asked for T3/FT3 etc, and they repeatedly send back the results without them. The GP will send off bloods asking for a full thyroid panel, and the lab just sends back what they chose to test.

    Shellieh wrote: »
    Has any one experienced swelling of the glad??? as at the moment my neck seems swollen and puffy:cool:

    Possibly the start of a goitre...but equally possibly not. Either way definitely mention it to the GP when you go for your bloods. It may just be a fluctuation from your thyroid gland, until they get your dose sorted and everything settles down again.

    I had a large, toxic, multi-nodular goitre...the left side was always biggest (8-10cm), but I do recall at one point the right-handside of the goitre swelled up so much after a dose change, I looked like a lop-sided bull frog. :eek: We dropped the dose down, and the right side of the goitre went back to its regular size 5-6cm) fairly quickly. :pac:
    All gone now - I had a total thyroidectomy last year.
    Blahh89 wrote: »
    Hey I believe I've been suffering from Thyroid problems as well. I had a blood test done with my doctor and was told that they're normal.

    Here are my results -

    Thyroid Screen:
    Free T4 = 18.1 pmol/L (10.5-22.0)
    TSH = 0.75 mIU/L (0.27-4.20)

    What do you guys think of the above results?. Are they at a good range?.

    Personally, I'd be delighted with those results...for me, my TSH sweet-spot is between 075-1.0 with a corresponding FT4 sweet-spot of 21-23...but that is me, and everyone will have their own thyroid sweet-spots. Also, not forgetting, that for so many people, the numbers bear little relation to their symptoms

    So, more importantly, given those are your latest results...how do you feel?

    Just spotted your comment re; iodine...my advice, if you have a thyroid problem which isn't caused by iodine deficiency (extremely unlikely to be iodinedeficient in thispart of the world) then don't mess with iodine supplements...it can make things worse, and was possibly the cause of your palpitations.
    zippy84 wrote:
    kelp, bladderwrack, walnuts, ginseng, green oats, coconut oil, protein drinks, multivitimin tabs all help. Have people tried any of these alongside eltroxin, say? Or noticed any help?

    I've also read that onion and garlic should be avoided as they supress the thyroid function..

    The bladderwrack & kelp - presumably they are for additional iodine? - walk away and don't bother, for reasons I gave above!
    With regard to the supplements, if they claim to do anything for your metabolism (eg ginger, green tea, ginseng etc), personally I'd steer well clear. The way I look at it, our metabolisms are screwed up enough as it is, thank to our thyroids..and will not behanve in a conventional way whatever you do...so anything engineered to alter the metabolism, is more likely to screw it up even more, possibly irreversibly. Just my views, YMMV

    Can't imagine the multi-vits can hurt, but do double check with your gp, and the patients notes on your medication, including over-the-counter stuff...if you never bothered reading those in the past (I know I never used to), I recommend you do start now.

    Onion & garlic are considered goitrogens - for more info go HERE
    But to be honest, if I cut out everything in that list, I'd have a pretty awful & boring diet. So I personally fully subscribe to the "everything in moderation" school of thought. I don't go all out to avoid goitrogenic foods, but I make a conscious effort not to go mad on them either. I'd literally die without garlic, soy sauce, peanuts etc...well, ok, I wouldn't die...but I sure do love a lot of those foods :pac:




    Sorry folks, that initially started out as a short post <blush>


  • #2


    Just spotted your comment re; iodine...my advice, if you have a thyroid problem which isn't caused by iodine deficiency (extremely unlikely to be iodinedeficient in thispart of the world) then don't mess with iodine supplements...it can make things worse, and was possibly the cause of your palpitations.

    +1. Yes, totally agree, definitely do not experiment with iodine, or seaweed/kelp and the likes if you have thyroid problems (would also go as far and say everyone should avoid messing!). Can totally backfire - google the "Wolff-Chaikoff effect" - it's basically when too much iodine effectively brings on hypothyroidism in some sort of a protective reaction to exessive iodine exposure.


  • #2


    hi there. recently been reading up on thyroid issues and i firmly believe i do have something up with mine. i am gluten intolerant and read that these 2 go hand in hand a lot of the time. just curious to see the best way to go about getting tested for it. i am in co. galway. is there a good specialist in the area to see? or do you just see your GP and get blood tests done and go from there? really lost as where to even begin. thanks for your help


  • #2


    do you just see your GP and get blood tests done and go from there? thanks for your help

    That is as good a place to start as any! Make sure to get copies of your blood results from your GP.

    Best of luck ;)


  • #2


    Ask for a thyroid function test (usually TSH and T4 - best to specify free T4, otherwise they might test total T4) including test for antibodies (anti-TPO). The latter is usually only tested if the function test comes back out of range, but try and get your GP to request is straight away, especially given the fact that you're gluten intolerant - and if you haven't been tested for coeliac disease yet, then get him to add the gluten antibody test also (anti t-TG)


  • #2


    thanks guys. im sure i will run into issues. ive heard horror stories about trying to get properly diagnosed for this. my gp tried to put me on prozac back in the winter because i was having ashtma issues, so i really don't trust him. thinking i need to locate a specialist. sad how he barely knows me, yet says i am depressed, lol


  • #2


    I know there is one other member here from Galway, haven't seen her around for a while, but I'll see can I contact her via pm and find out who she goes to.


  • #2


    cltt97 wrote: »
    I know there is one other member here from Galway, haven't seen her around for a while, but I'll see can I contact her via pm and find out who she goes to.

    thanks. i appreciate it. :D


  • #2


    Thanks for all the info.
    Had my bloods done and the doc thinks that i could need my dosage upped as i my day has changed quite a bit (up at 5.30am home @ 6.30 with up to 2.5hrs travel in that day) so she thinks my body isn;t keeping up with the changes. She said the tremors could be due to the fact that i am feeling a little depressed.:o

    does anyone know of any good books with info on Underactive Thyroid???


  • #2


    Shellieh wrote: »
    Thanks for all the info.
    my day has changed quite a bit (up at 5.30am home @ 6.30 with up to 2.5hrs travel in that day) so she thinks my body isn;t keeping up with the changes.

    I'm in college but I work in a bar at the weekends and may sometimes only end up getting 5 hours kip. Then I'm lying in on monday close to lunch to try and get sleep back. It takes me to Wednesday nearly to get sleep pattern back to normal. It's an absolute killer but need the money for college during the week.


  • #2


    do any of you get problems with heart palpitations? i noticed that when i don't get enough sleep (under 6-5 hours) i wake up with palpitations and they last all day. i also noticed that when i drink too much, i get palpitations the following day. this is why i gave up drinking. just curious to see if anyone else gets them. i read this could be down to a thyroid issue


  • #2


    zippy84 wrote: »
    I'm in college but I work in a bar at the weekends and may sometimes only end up getting 5 hours kip. Then I'm lying in on monday close to lunch to try and get sleep back. It takes me to Wednesday nearly to get sleep pattern back to normal. It's an absolute killer but need the money for college during the week.

    Oh you poor thing. I know the feeling about the lack of sleep. If i don;t get around eight hours a night you can for get it. I'm in bed at half 9 every night so life at the min is sleep work and sleep.

    The best thing i find is not to sleep in late the following day if you can as it will totally knock you pattern out of sync. I find even i on day of i try and get outta bed by 9. I know on the first day you will be very tried but that night you will sleep great and b easier the next day, Give it a go and see;)


  • #2


    Well, I've got about ten books on underactive thyroid, and by far my most favourite is this one. can be ordered via amazon, I think easons might have it, too.

    And palpitations - I used to get them quite badly, together with shortness of breath and rapid pulse,now I get a lot of head-pressure and dizzy spells. Oftentimes it's not only the thyroid gland, but also the adrenals that are affected, and this can play absolute havoc with the system. it's a very fine balancing act and requires a lot of research. Many people do fine on T4 only, others need to add T3, others do best only on T3 and others feel they do best on desiccated natural thyroid. Some feel great improvement on gluten free or dairy free (or both) diets, others really benefit from vitamin/mineral supplementation, some drink salt water or isotonic solutions - it's very different for each person. Most of us have to turn into labrats for a while and experiment to see what works for us! One thing is for sure, if you're tired, wrecked, depressed, indifferent, have no zest, feel bloated, brainfogged and fatigued and just exist - it's not good enough, even if your blood test suggests you're perfectly fine!


  • #2


    yea, i really need to get to a doctor, lol. too bad i don't trust many of them. fingers crossed i get a good recommendation.


  • #2


    http://www.youtube.com/watch?v=4Nn92rFtW9k&feature=related

    Do this 1 hour before you go to bed, and do about 6 sets. It helps with overcoming insomnia and helps with thyroid also.


  • #2


    http://www.youtube.com/watch?v=4Nn92rFtW9k&feature=related

    Do this 1 hour before you go to bed, and do about 6 sets. It helps with overcoming insomnia and helps with thyroid also.

    Hi Limerick Bishop - tried it and it worked.

    Has anyone taken anything to improve adrenal function. Constantly starving with knawing hunger.
    My doc rang to say TSH at 1.5 so they didnt do T3 and T4 (you would think if you pay for blood tests they would provide results for ALL those I request. She is going back to ask for antibodies cos I said I need to see trend with hashis) How can they say you are normal if the antibodies are at 600 +. I was told not to worry about the number but if this high surely there must be damage being done. Very frustrating


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