Psoriasis

eeloe

BohsCeltic wrote: »

No, I have Dovobet cream too which was prescribed by my GP.
I also use small amounts of hydrocortisone for seborrheic dermatitis.

I'd highly suggest getting to a dermatologist.

The nightly routine of applying steroids is no fun, and you won't know yourself once you don't have to do it!

It's pretty amazing.

BohsCeltic

eeloe wrote: »

I'd highly suggest getting to a dermatologist.

The nightly routine of applying steroids is no fun, and you won't know yourself once you don't have to do it!

It's pretty amazing.

Oh it's such a pain. I need a sun holiday but then lies the other issue, people seeing the red patches on your body.

rizzee

BohsCeltic wrote: »

Oh it's such a pain. I need a sun holiday but then lies the other issue, people seeing the red patches on your body.

My attitude is fuck them, no one is perfect I can't wait to get out in the sun.

BohsCeltic

rizzee wrote: »

My attitude is fuck them, no one is perfect I can't wait to get out in the sun.

That's a good positive attitude. I am hoping to be in the sun soon as i know that really helps.
Have an appointment with my Doctor tomorrow so will see if i can get referred to a Dermatologist.

I suffered from cystic acne for years(luckily no scars) and my dermatitis is under control.
Just seems to be one problem after the other.

eeloe

BohsCeltic wrote: »

That's a good positive attitude. I am hoping to be in the sun soon as i know that really helps.
Have an appointment with my Doctor tomorrow so will see if i can get referred to a Dermatologist.

I suffered from cystic acne for years(luckily no scars) and my dermatitis is under control.
Just seems to be one problem after the other.

Yeah it's generally one thing after another, no rest for the wicked.

Where abouts in the country are you based? If you can at all afford it, go privately to the dermatologist, you'll be seen in a matter of weeks..

Still waters

BohsCeltic wrote: »

Oh it's such a pain. I need a sun holiday but then lies the other issue, people seeing the red patches on your body.

sun holiday booked here, counting down the days

BohsCeltic

eeloe wrote: »

Yeah it's generally one thing after another, no rest for the wicked.

Where abouts in the country are you based? If you can at all afford it, go privately to the dermatologist, you'll be seen in a matter of weeks..

Dublin, can't afford to go private yet as i am on illness benefit for anxiety and depression, that's obviously not helping the problem either.

Still waters wrote: »

sun holiday booked here, counting down the days

Good stuff, i'm waiting for money to be paid from my insurance so will be booking as soon as i get it.

Gael23

You’ll be waiting a year to see a dermatologist going public.
Sunshine helps like nothing else I have ever tried.

eeloe

BohsCeltic wrote: »

Dublin, can't afford to go private yet as i am on illness benefit for anxiety and depression, that's obviously not helping the problem either.

Sorry to hear that. Probably best to make sure they refer you ASAP, public waiting lists are no joke.

Littleone2

I recently jad a baby and my psoriasis has flared up to the worst it has ever been. Due to feeding I am extremly limited in treatments. I have been given Dovobet but it hasn't made a dent. I moisturize about 15 times a day but there is no controlling it amd seems to be geyting more inflaned and more lesions daily. I have an extrenly healthy vegetarian diet and jave tried everything from anti inflammatory foods to probiotic foods and still no improvement. I also exercise regularly. My GP asked me to find a dermatologist in one of the hospitals and she would refer me but I don't know where to start. How much is it to see dermatologist privatley and also for light therapy such as UVB or PUVA as this is what my GP hopes will be given to me? Also has anyone ever tried an at home lightbox?
I have a holiday booked and hope this will jelp somewhat as it normally does but it os so extensive i can't see it completely clearing with holiday.

Gael23

Littleone2 wrote: »

I recently jad a baby and my psoriasis has flared up to the worst it has ever been. Due to feeding I am extremly limited in treatments. I have been given Dovobet but it hasn't made a dent. I moisturize about 15 times a day but there is no controlling it amd seems to be geyting more inflaned and more lesions daily. I have an extrenly healthy vegetarian diet and jave tried everything from anti inflammatory foods to probiotic foods and still no improvement. I also exercise regularly. My GP asked me to find a dermatologist in one of the hospitals and she would refer me but I don't know where to start. How much is it to see dermatologist privatley and also for light therapy such as UVB or PUVA as this is what my GP hopes will be given to me? Also has anyone ever tried an at home lightbox?
I have a holiday booked and hope this will jelp somewhat as it normally does but it os so extensive i can't see it completely clearing with holiday.

Where are you living? That would help narrow it down. As a guide you are looking at €200 for the first visit and half that for a follow up. Some more some less. Light therapy is free, it didn’t work for me but everyone takes it differently.

eeloe

Littleone2 wrote: »

I recently jad a baby and my psoriasis has flared up to the worst it has ever been. Due to feeding I am extremly limited in treatments. I have been given Dovobet but it hasn't made a dent. I moisturize about 15 times a day but there is no controlling it amd seems to be geyting more inflaned and more lesions daily. I have an extrenly healthy vegetarian diet and jave tried everything from anti inflammatory foods to probiotic foods and still no improvement. I also exercise regularly. My GP asked me to find a dermatologist in one of the hospitals and she would refer me but I don't know where to start. How much is it to see dermatologist privatley and also for light therapy such as UVB or PUVA as this is what my GP hopes will be given to me? Also has anyone ever tried an at home lightbox?
I have a holiday booked and hope this will jelp somewhat as it normally does but it os so extensive i can't see it completely clearing with holiday.

As Gael said, some information about your location would help a lot and we would be able to suggest someone for you.

rizzee

4 hour tattoo session on Tuesday, he had to stop, Psoriasis in some areas on arm was bleeding out... Have to let it heal and come back to get less than an hour work done effort! Using an all natural balm and pure coconut oil in the healing process

Littleone2

Gael23 wrote: »

Where are you living? That would help narrow it down. As a guide you are looking at €200 for the first visit and half that for a follow up. Some more some less. Light therapy is free, it didn’t work for me but everyone takes it differently.

Sorry I am based in North Co. Dublin so cpuld travel Dublin, meath areas

Gael23

Littleone2 wrote: »

Sorry I am based in North Co. Dublin so cpuld travel Dublin, meath areas

I go to Brian Kirby in Vincent’s. He’s €250 for the first appointment then €100 after but you get transferred to the public system for Uv treatment even though it takes a few weeks. There’s also someone in Tallaght that’s supposed to be good. I think it’s Ann Marie Tobin but I’m not sure, I’ll fins out.

Budawanny

Littleone2 wrote: »

I recently jad a baby and my psoriasis has flared up to the worst it has ever been. Due to feeding I am extremly limited in treatments. I have been given Dovobet but it hasn't made a dent. I moisturize about 15 times a day but there is no controlling it amd seems to be geyting more inflaned and more lesions daily. I have an extrenly healthy vegetarian diet and jave tried everything from anti inflammatory foods to probiotic foods and still no improvement. I also exercise regularly. My GP asked me to find a dermatologist in one of the hospitals and she would refer me but I don't know where to start. How much is it to see dermatologist privatley and also for light therapy such as UVB or PUVA as this is what my GP hopes will be given to me? Also has anyone ever tried an at home lightbox?
I have a holiday booked and hope this will jelp somewhat as it normally does but it os so extensive i can't see it completely clearing with holiday.

About 200 for the consult. if you have VHI you will get some of that back.
UVB worked for me. had clearance for about a year, and improvement after that for another 2 years. I was with Dr Rupert Barry in James's,. it only takes a few minutes per time in the hospital.. and its 3 days a week for 6-7 weeks (usually)

eeloe

rizzee wrote: »

4 hour tattoo session on Tuesday, he had to stop, Psoriasis in some areas on arm was bleeding out... Have to let it heal and come back to get less than an hour work done effort! Using an all natural balm and pure coconut oil in the healing process

Hope it goes well healing!

I have a tattoo voucher to use up, but petrified!

rizzee

eeloe wrote: »

Hope it goes well healing!

I have a tattoo voucher to use up, but petrified!

Thanks, fingers crossed!!

I can understand the worry. I couldn't go around with half a sleeve so don't really have a choice but to finish Always good to talk to artists about Psoriasis too, there are a lot more healing creams available in e last few years,also I've heard from 2 artists to not to use Bepanthan anymore because of new ingredients

eeloe

Yeah bepanthen and bepanthaseptic are supposed to be completely changed?

Still waters

Maybe it's been mentioned here before, has anyone tried an ultra violet light for home treatment, any good results, and if so how much and where did you buy, many thanks

rubadub

Still waters wrote: »

Maybe it's been mentioned here before, has anyone tried an ultra violet light for home treatment, any good results, and if so how much and where did you buy, many thanks

yes, I had a light fitting and ballast and made my own, buying the philips bulb from the UK for about €50.

There are places selling the philips bulb in an office lamp fixture.
https://www.amazon.co.uk/Derma-UVB-V2-Narrowband-311nm/dp/B07MHWSWGX/ref=sr_1_2?keywords=uvb&qid=1553692593&s=gateway&sr=8-2

The ones made by medical companies use the same bulb but are usually handheld and can have transparent combs so the light can travel down then into long hair and to the scalp. I have short hair so did not need this. It worked really well for me on my scalp.

I am surprised I do not hear of doctors loaning/renting people the lights to do a trial on a spot to see if they will respond well to it. Rather than sending them to hospital for treatments only to find it does not work.

If you use the "search this thread" feature do a search for dermalight and you will find several posts. That is the brand name of a popular one.

eeloe

Been struck down with a bit of a sinus/ear infection, on antibiotics for a few days, due to take me Stelara on Thursday, but looks like i'm gonna have to give it a skip for a week.

Hopefully i don't have any issue and the psoriasis makes a return after giving it a skip.....damn it!

BohsCeltic

Yesterday was really bad for me. Itchy all over . It's just seems to be getting worse. Mostly my legs. I experimented using nizarol when washing. That might not have helped but I think it was due to me scratching so much that made it so red.
Put dovobet on to but that doesn't seem to help much. I tried 2 other creams that were prescribed before but I had to use them simultaneously which was a pain and much effort.

Some places like elbows are healing great but then it just appears in new places. My hands have it now too and are very red.

I just don't understand how one small little patch last year has been taking over my whole body.

Budawanny

Still waters wrote: »

Maybe it's been mentioned here before, has anyone tried an ultra violet light for home treatment, any good results, and if so how much and where did you buy, many thanks

Need to be careful how much it is used and what sort of UV it is.
UVA on its own doesn't work for psoriasis very well. it needs to be taken with a drug called psoralen to make it work.
UVB works on its own. and works well for a lot of people , me included. However
if you burn yourself, it reduces the efficacy of the treatment. this is why treatment time starts low and increases. and is monitored by the derm and nurses.

Its very safe if taken properly and in a controlled fashion, however If you use more than 250 exposures in your life you are seriously increasing your risk of skin cancer, particularly melanoma which is incredibly deadly.
Ive suffered badly both psychologically and physically with Psoriasis since I got it first as a child. but after seeing a friend dying of Melanoma , I would rather have the Psoriasis than the melanoma

eeloe

BohsCeltic wrote: »

Yesterday was really bad for me. Itchy all over . It's just seems to be getting worse. Mostly my legs. I experimented using nizarol when washing. That might not have helped but I think it was due to me scratching so much that made it so red.
Put dovobet on to but that doesn't seem to help much. I tried 2 other creams that were prescribed before but I had to use them simultaneously which was a pain and much effort.

Some places like elbows are healing great but then it just appears in new places. My hands have it now too and are very red.

I just don't understand how one small little patch last year has been taking over my whole body.

Yep, it can spread quite quickly, as a few of us learned the hard way!

have you been referred to a dermatologist yet?

BohsCeltic

eeloe wrote: »

Yep, it can spread quite quickly, as a few of us learned the hard way!

have you been referred to a dermatologist yet?

No not yet, When my Doc opens after lunch i am going to make an appointment. Can't afford to go private at the moment and i know the waiting lists are huge. I've battled acne and dermatitis in the past and my skin was looking good, now this springs up.

I am due some money soon (small amount) but enough to cover going private and going on a sun holiday.

eeloe

BohsCeltic wrote: »

No not yet, When my Doc opens after lunch i am going to make an appointment. Can't afford to go private at the moment and i know the waiting lists are huge. I've battled acne and dermatitis in the past and my skin was looking good, now this springs up.

I am due some money soon (small amount) but enough to cover going private and going on a sun holiday.

The public lists are insane, I'm still on the public waiting list since 2014....

If you can borrow the money from someone to go private, do, you'll be waiting a few weeks, maybe a month at most to be seen and you'll be on the route to getting sorted.

Gael23

I was waiting 4 months to be seen private back in 2014 but I know there are new dermatologists on the scene since so that time might be reduced.

On the antibiotics you can take your injection 25 hours after the antibiotic ends so it’s not too long of a delay. And Stelara is every 12 weeks so a few days late shouldn’t make a huge difference

eeloe

Gael23 wrote: »

On the antibiotics you can take your injection 25 hours after the antibiotic ends so it’s not too long of a delay. And Stelara is every 12 weeks so a few days late shouldn’t make a huge difference

25 hours? wow...i might just inject myself on Sunday at home.



who am i kidding, i'll shake like a leaf! haha

BohsCeltic

eeloe wrote: »

The public lists are insane, I'm still on the public waiting list since 2014....

If you can borrow the money from someone to go private, do, you'll be waiting a few weeks, maybe a month at most to be seen and you'll be on the route to getting sorted.

That is insane. I can't borrow anymore money, tired of doing that after the whole illness benefit fiasco. When i get my money i am going to go to Thailand. Maybe get looked at over there. Their healthcare system is a million times better than here. You wouldn't think but it really is.