Psoriasis

rizzee

eeloe wrote: »

so how's everyone doing this week?

Well i hope?

Really, really good actually. Got lots of water into me, eating well and sticking to a new exercise regime.

Lots of previous red flakey patches have completely smoothened out and are a light pinkish colour the last couple of days. I don't know what happened

eeloe

That's the shot!!

The last couple of weeks i'm just absolutely exhausted, i dunno, it could be the stelara, might not be, bloods are fine, so dunno what it is.

Could be just doing too much!

siblers

Was at the doctor as I had a bad flare up, he suggested I start using fairy liquid as a shampoo. Anyone ever hear of this before?

CtrlAltDelete

siblers wrote: »

Was at the doctor as I had a bad flare up, he suggested I start using fairy liquid as a shampoo. Anyone ever hear of this before?

Never but it sounds like madness to me personally.

Living with the condition since childhood and currently on Humira since 2014

qo2cj1dsne8y4k

siblers wrote: »

Was at the doctor as I had a bad flare up, he suggested I start using fairy liquid as a shampoo. Anyone ever hear of this before?

Psoriasis is an auto immune condition where your body over produces skin cells. The fairy may strip your hair and clean your scalp but it will do nothing for the condition itself. I would use emulsifying ointment in my scalp as a treatment overnight before using fairy washing up liquid to be honest.

qo2cj1dsne8y4k

I’m not doing good on the methotrexate. I’m killed with heart burn and am nauseous a lot. I’ve had a perpetual cold since July. My breathing is crap, though they think that’s my gallbladder and I don’t know if it’s related but I keep getting infections in my wisdom teeth gums. Thinking about coming off it

Peppsi

Have a look into Polytar Shampoo. It has coal tar in it, used for psoriasis.

siblers

He gave me Stieprox which has already started to work, I find Nízoral and Capasal just completely dry my hair, I used coal tar before and it worked quite well.

Does emulsifying ointment help keep it at bay? Mine clears quite quick but always comes back very quickly once the medication stops

eeloe

CtrlAltDelete wrote: »

Never but it sounds like madness to me personally.

Living with the condition since childhood and currently on Humira since 2014

Are you completely clear on Humira?

Grace Thoughtless Mortal wrote: »

I’m not doing good on the methotrexate. I’m killed with heart burn and am nauseous a lot. I’ve had a perpetual cold since July. My breathing is crap, though they think that’s my gallbladder and I don’t know if it’s related but I keep getting infections in my wisdom teeth gums. Thinking about coming off it

There are other options, who has you on MTX, your GP, or your Derm?

I'm on Stelara since September, doing fantastically on it, getting colds and stuff, but the whole place has it aswell...so i dunno if it's related or not.

eeloe

siblers wrote: »

Was at the doctor as I had a bad flare up, he suggested I start using fairy liquid as a shampoo. Anyone ever hear of this before?

Not in a million years would i attempt it.

What kind of doctor are you going to at all?

Sunny Dayz

Hi all. First time poster on this thread. How do you go about finding out if you have psoriasis or not? Late last year I had a bit of an itchy patch on the right side of my head in the crown area. It wasn't bad, didn't think much of it bar giving it the odd scratch. However over the last couple of months it's now spread to the left side of my head. I'm not flaking like dandruff but have the urge to scratch my head often during the day. I do worry incase people think I've nits. I haven't changed my brand of shampoo, been using the same one for years, my head gets a bit itchy if I use dry shampoo and sometimes hurts in a burning way when I brush my hair to the scalp.
My elbows can sometimes be a bit itchy and it's a weird place to scratch but a bit of moisturiser usually sorts it out. It doesn't flake or anything.


Do I go to see my GP or a dermatologist?


My mum has psoriasis herself.

eeloe

You'll only be able to see a dermatologist after you've been referred by your GP.

GP would be your first port of call.

Sunny Dayz

eeloe wrote: »

You'll only be able to see a dermatologist after you've been referred by your GP.

GP would be your first port of call.

Thanks

eeloe

Sunny Dayz wrote: »

Thanks

No problem. If you have any more questions at all, don't be afraid to ask.

This thread was a wealth of information to me when i was starting my journey on getting sorted!

qo2cj1dsne8y4k

eeloe wrote: »

Are you completely clear on Humira?



There are other options, who has you on MTX, your GP, or your Derm?

I'm on Stelara since September, doing fantastically on it, getting colds and stuff, but the whole place has it aswell...so i dunno if it's related or not.

Rumathologist has me on it. It has helped somewhat with my joints but I just feel like I’ve no quality of life with it. I don’t know if it’s mind over matter but I just feel like it’s burning me from the inside. My skin is perfect.

eeloe

Grace Thoughtless Mortal wrote: »

Rumathologist has me on it. It has helped somewhat with my joints but I just feel like I’ve no quality of life with it. I don’t know if it’s mind over matter but I just feel like it’s burning me from the inside. My skin is perfect.

I have a rheumy appointment on friday, if they try to gimme this i'm refusing it!

Took it years ago for my psoriasis and it nearly destroyed me, there has to be other options.

skerry

Hi folks, just stumbled across the thread and plan to route through it when I get time as it looks like some great info on here.

I've had PS for about 10yrs now and it started on my elbows. The last 6 months or so its got quite bad on my shins but that has improved in recent weeks. Elbows go from really red and inflamed and periodically clear up for a week before going back again.

In the last few months I've noticed I'm getting a lot more dry skin on my scalp and I'm also getting a red patch developing on my temple.

I have been to the doctor and used Dovonex and Dovobet to with mixed results. I also use silcocks base after showering on any affected areas morning and night.

I was just wondering with regards daily routine and management is there anything else I can be doing to improve things? I'm sure this have been asked before so apologies if this is covering old ground. I've never been to a dermatologist, just GP.

eeloe

you're doing pretty much everything right....but i've always found the more i used the steroid creams, the more the psoriasis came back after a couple of days.

would highly suggest going to a dermatologist, or at least getting referred for an appointment, if you're going public you'll be waiting anyway, but at least you're waiting now while it's not *too* bad. You'll be proper screwed if you get a flare up, and then you end up waiting for a year or more to see a derm.

If you get referred privately, you'll be seen a LOT quicker, and it'll be the best few hundred quid you'll ever spend.

skerry

eeloe wrote: »

you're doing pretty much everything right....but i've always found the more i used the steroid creams, the more the psoriasis came back after a couple of days.

would highly suggest going to a dermatologist, or at least getting referred for an appointment, if you're going public you'll be waiting anyway, but at least you're waiting now while it's not *too* bad. You'll be proper screwed if you get a flare up, and then you end up waiting for a year or more to see a derm.

If you get referred privately, you'll be seen a LOT quicker, and it'll be the best few hundred quid you'll ever spend.

Thanks a million for reply. Its been localized to my elbows for years but its only in last 6 months that I'm getting it on legs and scalp.

Have healthcare so I think that covers 50% of consultant cost if I go private. I presume I can just ring my GP and get him to refer me to Dermatologist.

I'll keep doing what I'm doing so and will get in touch with GP tomorrow as its starting to bug me.

I definitely notice it flares up when I'm sick, stressed or generally run down.

eeloe

skerry wrote: »

Thanks a million for reply. Its been localized to my elbows for years but its only in last 6 months that I'm getting it on legs and scalp.

Have healthcare so I think that covers 50% of consultant cost if I go private. I presume I can just ring my GP and get him to refer me to Dermatologist.

I'll keep doing what I'm doing so and will get in touch with GP tomorrow as its starting to bug me.

I definitely notice it flares up when I'm sick, stressed or generally run down.

Mine was the exact same, patches on each elbow, and calf, never got better never got worse, stayed that way for years, just started flaring then.

June last year i had over 80% body coverage!

Yeah just contact your GP and ask them to refer you, i could highly suggest Prof.Brian Kirby in Vincents Private....literally changed my life.

sheroman01

I use Capasal shampoo and find it quite good. However, my scalp does tend to get very dry and flaky on certain random days. Does anyone have any recommendations for a good leave-in conditioner, oil or something similar? I think trying something like this overnight or during an evening at home might help.

skerry

eeloe wrote: »

Mine was the exact same, patches on each elbow, and calf, never got better never got worse, stayed that way for years, just started flaring then.

June last year i had over 80% body coverage!

Yeah just contact your GP and ask them to refer you, i could highly suggest Prof.Brian Kirby in Vincents Private....literally changed my life.

Thanks for that. 80% :eek: thats scary. I'll get in touch with my GP tomorrow. Its definitely popping up places it hasn't before but I'm hoping it doesn't get to that stage.

I'm in Clare so not sure what options are local but from a quick look at the thread earlier Kirby sounds like the man and might have to make the effort to see him.

eeloe

skerry wrote: »

Thanks for that. 80% :eek: thats scary. I'll get in touch with my GP tomorrow. Its definitely popping up places it hasn't before but I'm hoping it doesn't get to that stage.

I'm in Clare so not sure what options are local but from a quick look at the thread earlier Kirby sounds like the man and might have to make the effort to see him.

Treat it like a day out, get some lunch, get some shopping done, and get the skin cleared.

skerry

eeloe wrote: »

Treat it like a day out, get some lunch, get some shopping done, and get the skin cleared.

Do you mind me asking if you had to see him many times? Once or twice might be grand but regular appointments might be a tough to get time to travel up and down.

caviardreams

Hey skerry - I could have written your post. Have been getting it on my elbows for a good while and been keeping it managed with doublebase etc. But it is still very much there all the time and won't clear so I feel I should get it looked into now seriously now. Like yourself, stress definitely doesn't help flare ups. It is just so frustrating not being able to get rid of it, even though I know I'm very lucky that they are relatively small patches ( maybe 5cm long or so) on just my elbows (for now anyway!)

skerry

caviardreams wrote: »

Hey skerry - I could have written your post. Have been getting it on my elbows for a good while and been keeping it managed with doublebase etc. But it is still very much there all the time and won't clear so I feel I should get it looked into now seriously now. Like yourself, stress definitely doesn't help flare ups. It is just so frustrating not being able to get rid of it, even though I know I'm very lucky that they are relatively small patches ( maybe 5cm long or so) on just my elbows (for now anyway!)

I've been conscious about wearing t shirts for a while now with it. Up until a week ago my shins were covered in red blotches. Seems to have cleared up now again. Elbows clear up every now and then but the frustrating part is not knowing whats doing it good and whats flaring it up. There is a red path on my temple now and it flares up to the point that people are asking me if I banged my head at work. Its grand today now but again, I have no idea why.

eeloe

skerry wrote: »

Do you mind me asking if you had to see him many times? Once or twice might be grand but regular appointments might be a tough to get time to travel up and down.

I saw him once last June, initial consultation he came up with a plan of what treatments he was going to start me on. had to get some tests done then to make sure i could start(lots of bloods, and a TB test, which took some time to come back) once the tests came back clear he posted me out my script, which i collected in the local pharmacy, and started treatment, i saw him 3 months after i started treatment.

At the 3 monthly check up he said he usually sees people every 3 months, but my treatment was working so well(essentially 100% clear) i didn't need to see him for 6.

So the short answer to your question is, twice...i've seen him twice!

skerry

eeloe wrote: »

I saw him once last June, initial consultation he came up with a plan of what treatments he was going to start me on. had to get some tests done then to make sure i could start(lots of bloods, and a TB test, which took some time to come back) once the tests came back clear he posted me out my script, which i collected in the local pharmacy, and started treatment, i saw him 3 months after i started treatment.

At the 3 monthly check up he said he usually sees people every 3 months, but my treatment was working so well(essentially 100% clear) i didn't need to see him for 6.

So the short answer to your question is, twice...i've seen him twice!

Perfect, thanks. I'll ask GP for referral to him so. I might ring his office in the meantime. I had a google there and didn't see any specialists in Clare region anyway.

Thanks for the info, really appreciate it.

rubadub

Sunny Dayz wrote: »

the urge to scratch my head often during the day. I do worry incase people think I've nits.


My elbows can sometimes be a bit itchy and it's a weird place to scratch

You can get eurax cream in any chemist, works really quickly, so you only have to put it on when you feel the actual itch.

https://rocheschemist.ie/eurax-cream-100g-for-itching.html

eeloe

skerry wrote: »

Perfect, thanks. I'll ask GP for referral to him so. I might ring his office in the meantime. I had a google there and didn't see any specialists in Clare region anyway.

Thanks for the info, really appreciate it.

Just make sure you get referred to him privately, i think i was waiting about 6 weeks to see him, maybe 8 from my initial referral.

I was referred in 2014 to a dermatology department in WRH in 2014, my appointment isn't actually until 2020....so 6 years total waiting to be seen in my local hospital publicly!