Psoriasis

skerry

eeloe wrote: »

Just make sure you get referred to him privately, i think i was waiting about 6 weeks to see him, maybe 8 from my initial referral.

I was referred in 2014 to a dermatology department in WRH in 2014, my appointment isn't actually until 2020....so 6 years total waiting to be seen in my local hospital publicly!

Gonna get on this tomorrow so. Feel sorry for anyone waiting on public appointments. My little one was referred to a dietician for suspected cows protein intolerance when she was born. Had a call last week about the appointment, she'll be 3 years old soon. Had completely forgotten we were even referred by the time we got called, absolute joke.

eeloe

skerry wrote: »

Gonna get on this tomorrow so. Feel sorry for anyone waiting on public appointments. My little one was referred to a dietician for suspected cows protein intolerance when she was born. Had a call last week about the appointment, she'll be 3 years old soon. Had completely forgotten we were even referred by the time we got called, absolute joke.

I got a letter 3-4 weeks ago for an ultrasound on my abdomen, i thought it might have been from Kirby looking to see if the Stelara was doing anything funny.

Said i'd ring the radiology department to make sure who i call for the results.

They said "oh yes, it was your GP that referred you for this in November 2015, do you still have the pain in your stomach, love?"

I should bloody well hope not.

Gael23

skerry wrote: »

Perfect, thanks. I'll ask GP for referral to him so. I might ring his office in the meantime. I had a google there and didn't see any specialists in Clare region anyway.

Thanks for the info, really appreciate it.

I have heard good things about dr Ramsey in UHL. Might be easier for you? That said I go to Prif Kirby and he’s one of tre best out there. Where ever you go, if there any way you can ,go private.

eeloe

Currently sat in a rheumatologist office in Waterford.

Let’s find out if my aches and pains are PsA or overtraining.

eeloe

Turns out it's not PsA, or at least he doesn't think so.

Just have to stretch more, and swim twice and week to see if it loosens me up.

got a steroid injection in to my back which appears to have helped a little.

Still waters

no sleep tonight with this ****in affliction, I'm tormented with this dirty horrible **** of a thing, it's like a sentence for some past wrongs that I dont know about, literally on the verge of tears and my skin covered in tiny little cracks, at least the ****in thing will die with me the day I go, sorry for bad language but I needed to vent

Call Me Jimmy

Still waters wrote: »

no sleep tonight with this ****in affliction, I'm tormented with this dirty horrible **** of a thing, it's like a sentence for some past wrongs that I dont know about, literally on the verge of tears and my skin covered in tiny little cracks, at least the ****in thing will die with me the day I go, sorry for bad language but I needed to vent

Feel your pain, hate to even reply because I know how frustrating it is words don't do much, and quite frankly im worn down by it too so can't give encouragement. I'm just trying to endure it, sometimes it's so relentless that it actually makes me pull back to a different level of acceptance but a lot of times it just sucks

Gael23

Still waters wrote: »

no sleep tonight with this ****in affliction, I'm tormented with this dirty horrible **** of a thing, it's like a sentence for some past wrongs that I dont know about, literally on the verge of tears and my skin covered in tiny little cracks, at least the ****in thing will die with me the day I go, sorry for bad language but I needed to vent

Call Me Jimmy wrote: »

Feel your pain, hate to even reply because I know how frustrating it is words don't do much, and quite frankly im worn down by it too so can't give encouragement. I'm just trying to endure it, sometimes it's so relentless that it actually makes me pull back to a different level of acceptance but a lot of times it just sucks

I’ve been where both of you are on a number of occasions over the years.

The first step you need to take is see your GP, they will give you a cream and something to calm the itch. Ideally you also want to get a referral to a dermatologist because steroid creams are a short term fix.

Neither of you need to suffer what you have described. There is help available, you just need to take that first step by making an appointment with your GP.

eeloe

As what Gael has said above....get in touch with your GP and get referred to a dermatologist, GO PRIVATE if at all possible, it will literally change your life, TRUST ME.

I don't know where the both of you are currently having the issue, but what i was told to use while i was waiting for results of bloods before i could start on stelara, was to have a bath with Oilatum and Epsom Salts....every two days, it really helps to moisturise the skin and and keeps it from cracking.

brevity

Yea, going to the doctor is the only thing that helps. I’ve had it for 15 years and all the off the shelve lotions and potions are useless. Even the over the counter stuff has a short lifespan. Biologics seem to be the only thing that work permanently and even they can be temperamental....

Go to the GP and then a Dermatologist. It’s the only thing that helps.

In the short term, I’d recommend antihistamines at nighttime. Sometimes thick moisturiser and wrapping with cling film can help. No more sugar.

eeloe

brevity wrote: »

Yea, going to the doctor is the only thing that helps. I’ve had it for 15 years and all the off the shelve lotions and potions are useless. Even the over the counter stuff has a short lifespan. Biologics seem to be the only thing that work permanently and even they can be temperamental....

Go to the GP and then a Dermatologist. It’s the only thing that helps.

In the short term, I’d recommend antihistamines at nighttime. Sometimes thick moisturiser and wrapping with cling film can help. No more sugar.

how are you getting on yourself lately buddy? Stelara still working?

brevity

eeloe wrote: »

how are you getting on yourself lately buddy? Stelara still working?

Eh. It’s going ok. I was every 12 weeks but going 8 weeks now. I must pick it up actually!

eeloe

brevity wrote: »

Eh. It’s going ok. I was every 12 weeks but going 8 weeks now. I must pick it up actually!

once you find a system that works man, hopefully you get fully clear soon!

skerry

brevity wrote: »

Yea, going to the doctor is the only thing that helps. I’ve had it for 15 years and all the off the shelve lotions and potions are useless. Even the over the counter stuff has a short lifespan. Biologics seem to be the only thing that work permanently and even they can be temperamental....

Go to the GP and then a Dermatologist. It’s the only thing that helps.

In the short term, I’d recommend antihistamines at nighttime. Sometimes thick moisturiser and wrapping with cling film can help. No more sugar.

Is sugar something that can aggravate it? I get flare ups from time to time but never considered sugar as a trigger, must keep an eye if I can see any link between intake and flare ups.

eeloe

skerry wrote: »

Is sugar something that can aggravate it? I get flare ups from time to time but never considered sugar as a trigger, must keep an eye if I can see any link between intake and flare ups.

Anything that causes inflammation in the gut can trigger it IMO.

Sugar, alcohol....

skerry

eeloe wrote: »

Anything that causes inflammation in the gut can trigger it IMO.

Sugar, alcohol....

Thanks, don't drink so good on that front but must cut down sugar and see if there is any effect.

brevity

skerry wrote: »

Thanks, don't drink so good on that front but must cut down sugar and see if there is any effect.

If you do down this route beware things can get worse before it gets better but it does get better. At least in my experience.

skerry

brevity wrote: »

If you do down this route beware things can get worse before it gets better but it does get better. At least in my experience.

Hi, are you Saying if I cut down on sugar intake things can get worse? Wouldn't be very bad on sugar but I have been more disciplined in the past.

Have a patch on my temple that's been fine for the last week and flared up again yesterday. Had a stressful day in work Thursday and was thinking about it in the lead up so I'm wondering if that causing some sort of flare up

Gael23

skerry wrote: »

Hi, are you Saying if I cut down on sugar intake things can get worse? Wouldn't be very bad on sugar but I have been more disciplined in the past.

Have a patch on my temple that's been fine for the last week and flared up again yesterday. Had a stressful day in work Thursday and was thinking about it in the lead up so I'm wondering if that causing some sort of flare up

Stress is my No.1 trigger. I do have a bit of a weakness for sugar myself but I'm on biologics now anyway.

eeloe

Stress is a big one for me too, but what stressed me out the most was my skin, so it was a vicious circle...

rizzee

All my upper arm and shoulder have been flaking like mad the last few days... Approx 20 days since a tattoo session on it. Layered some daktacort on it last night. Silky smooth this morning! Long may it last.

I think the body gets used to the same creams and moisturisers after a while and become ineffective.

The change in weather doesn't help either!

eeloe

rizzee wrote: »

All my upper arm and shoulder have been flaking like mad the last few days... Approx 20 days since a tattoo session on it. Layered some daktacort on it last night. Silky smooth this morning! Long may it last.

I think the body gets used to the same creams and moisturisers after a while and become ineffective.

The change in weather doesn't help either!

is it the tattoo itself thats flaking?

inside of my upper arm, got it tattooed last may, and it just never ever healed....peeled constantly until September/October when the stelara kicked in.

rizzee

eeloe wrote: »

is it the tattoo itself thats flaking?

inside of my upper arm, got it tattooed last may, and it just never ever healed....peeled constantly until September/October when the stelara kicked in.

The tattoo itself healed after about a week so it's all good

adocholiday

Possibly a slightly OT question here but does anyone here know how Psoriasis is seen by private health insurance providers? I have psoriasis for the past few years, primarily on my scalp thankfully although noticing a small patch develop near my elbow too. Aside from a GP once taking a brief look and saying "yeah that's psoriasis" I've never been formally diagnosed or treated for it. I'm considering getting private health insurance now and I was just wondering what people's experience is with declaring psoriasis as a pre-existing condition and has it ever been an issue getting treatment or referrals etc. for it through the insurance? Thanks!

brevity

adocholiday wrote: »

Possibly a slightly OT question here but does anyone here know how Psoriasis is seen by private health insurance providers? I have psoriasis for the past few years, primarily on my scalp thankfully although noticing a small patch develop near my elbow too. Aside from a GP once taking a brief look and saying "yeah that's psoriasis" I've never been formally diagnosed or treated for it. I'm considering getting private health insurance now and I was just wondering what people's experience is with declaring psoriasis as a pre-existing condition and has it ever been an issue getting treatment or referrals etc. for it through the insurance? Thanks!

I have private health insurance and I get some money back from visits to the consultant dermatologist. The pre-existing condition was never an issue, they don’t consider it a huge thing I would imagine.

eeloe

adocholiday wrote: »

Possibly a slightly OT question here but does anyone here know how Psoriasis is seen by private health insurance providers? I have psoriasis for the past few years, primarily on my scalp thankfully although noticing a small patch develop near my elbow too. Aside from a GP once taking a brief look and saying "yeah that's psoriasis" I've never been formally diagnosed or treated for it. I'm considering getting private health insurance now and I was just wondering what people's experience is with declaring psoriasis as a pre-existing condition and has it ever been an issue getting treatment or referrals etc. for it through the insurance? Thanks!

I'm with Laya, and no issues with it being a pre existing illness.

Gael23

adocholiday wrote: »

Possibly a slightly OT question here but does anyone here know how Psoriasis is seen by private health insurance providers? I have psoriasis for the past few years, primarily on my scalp thankfully although noticing a small patch develop near my elbow too. Aside from a GP once taking a brief look and saying "yeah that's psoriasis" I've never been formally diagnosed or treated for it. I'm considering getting private health insurance now and I was just wondering what people's experience is with declaring psoriasis as a pre-existing condition and has it ever been an issue getting treatment or referrals etc. for it through the insurance? Thanks!

Where I go it’s all public so would be no issue. That said you don’t have a formal diagnosis so I think you will be fine.

BohsCeltic

eeloe wrote: »

Stress is a big one for me too, but what stressed me out the most was my skin, so it was a vicious circle...

Yep that's what my Doctor told me plus too much alcohol. I had only one patch on my leg about a year ago now its spread nearly everywhere but dotted around.
It's so annoying and itchy and a pain in the ar** having to put creams on.

When i shower i used salicylic acid facewash on one of those body scrub sponges and it seems to help a bit.

eeloe

BohsCeltic wrote: »

Yep that's what my Doctor told me plus too much alcohol. I had only one patch on my leg about a year ago now its spread nearly everywhere but dotted around.
It's so annoying and itchy and a pain in the ar** having to put creams on.

When i shower i used salicylic acid facewash on one of those body scrub sponges and it seems to help a bit.

Is that all you're doing? no other ointments or anything?

I'd suggest getting your GP referring you to a dermatologist, it'll make a HUGE difference.

BohsCeltic

eeloe wrote: »

Is that all you're doing? no other ointments or anything?

I'd suggest getting your GP referring you to a dermatologist, it'll make a HUGE difference.

No, I have Dovobet cream too which was prescribed by my GP.
I also use small amounts of hydrocortisone for seborrheic dermatitis.