[Diabetes] General Chat and Support Thread

MrMacPhisto · 01-12-2020 5:30pm

Just a quick question that somebody might have the answer to.

Are Dextro/Lucozade tablets covered under the LTI scheme? At my last check up, the doctor added "dextrose sweets" to my prescription book. I just don't see them listed on the HSE LTI approved medications, although the list is long and I may have missed it

Thanks!

SneakyDoyle · 01-12-2020 5:33pm

MrMacPhisto wrote: »

Just a quick question that somebody might have the answer to.

Are Dextro/Lucozade tablets covered under the LTI scheme? At my last check up, the doctor added "dextrose sweets" to my prescription book. I just don't see them listed on the HSE LTI approved medications, although the list is long and I may have missed it

Thanks!

I get these on the LTI - https://www.boots.ie/glucojuice-berry-burst-flavour-60-ml-10147065

Much easier to stomach than eating 3 or 4 of those sweets in one go, and easier to control with each one being 15ml. I find they act very fast and don't cause a massive overcorrection.

Cheers

MrMacPhisto · 01-12-2020 5:40pm

SneakyDoyle wrote: »

I get these on the LTI - https://www.boots.ie/glucojuice-berry-burst-flavour-60-ml-10147065

Much easier to stomach than eating 3 or 4 of those sweets in one go, and easier to control with each one being 15ml. I find they act very fast and don't cause a massive overcorrection.

Cheers

Thanks SD, much appreciated!

Googling the glucojuice got me the answer I was looking for on the diabetes.ie website.

"Lift formally known as Glucojuice can now be prescribed and is available for people with diabetes under the Long Term Illness Scheme. This is because similar to other products such as Dextrosol tablets it is classed as supportive requirement at a reasonable cost to manage hypos. For further information speak to your diabetes team."

Cheers

echo beach · 02-12-2020 8:53pm

MrMacPhisto wrote: »

Just a quick question that somebody might have the answer to.

Are Dextro/Lucozade tablets covered under the LTI scheme? At my last check up, the doctor added "dextrose sweets" to my prescription book. I just don't see them listed on the HSE LTI approved medications, although the list is long and I may have missed it

Thanks!

Yes, they are covered. Apparently there is another list with additional items but for some reason it isn’t shared with patients or pharmacists! There must be a secret handshake you have to know to get access 😜.

robinph · 04-12-2020 3:50pm

Just need a mini moan somewhere, and you guys are the lucky audience.

Just had a telephone consultation with the hospital, all good (well better than previously), numbers going in the right direction, they can see all my stats automatically uploaded from my pump/ phone, get a reminder about checking the dates on my backup pen insulin for if the pump breaks or I need booster shots manually in the event of getting Covid and BG numbers going nuts.

Then I go to check the dates on the backup insulin in the fridge and it goes out of date this month, go to try and order through the online repeat prescription system the GP has setup...but they have decided to cancel my insulin from my repeats.

They have done this before with both my pump insulin and my backup pens. Why do GP surgery's that have nothing to do with my diabetes treatment other than providing the prescriptions which the consultant at the hospital tells them to write think they should be making changes to what items I can request for treating diabetes without consulting me first. Grrrr.

Obviously relatively easily solved and no major problem because I spotted it, just frustrating that it keeps happening. Just now have to go back through the rigmarole of getting the items authorised on my repeats again.

CramCycle · 04-12-2020 8:09pm

robinph wrote: »

Just need a mini moan somewhere, and you guys are the lucky audience.

Just had a telephone consultation with the hospital, all good (well better than previously), numbers going in the right direction, they can see all my stats automatically uploaded from my pump/ phone, get a reminder about checking the dates on my backup pen insulin for if the pump breaks or I need booster shots manually in the event of getting Covid and BG numbers going nuts.

Then I go to check the dates on the backup insulin in the fridge and it goes out of date this month, go to try and order through the online repeat prescription system the GP has setup...but they have decided to cancel my insulin from my repeats.

They have done this before with both my pump insulin and my backup pens. Why do GP surgery's that have nothing to do with my diabetes treatment other than providing the prescriptions which the consultant at the hospital tells them to write think they should be making changes to what items I can request for treating diabetes without consulting me first. Grrrr.

Obviously relatively easily solved and no major problem because I spotted it, just frustrating that it keeps happening. Just now have to go back through the rigmarole of getting the items authorised on my repeats again.

The DSN in my clinic just posts them out to me now, I mail her everytime the pharmacist asks and it arrives a week later. It is really weird they do that to you, are they concerned a cure has been found and you don't need it anymore? :pac:

robinph · 05-12-2020 9:25am

CramCycle wrote: »

The DSN in my clinic just posts them out to me now, I mail her everytime the pharmacist asks and it arrives a week later. It is really weird they do that to you, are they concerned a cure has been found and you don't need it anymore? :pac:

I thought previously it was down to new staff turning up and then thinking they are being helpful in removing rarely requsted items to reduce costs. Seems to be happening regularly as in every year or so they cut stuff from my list.

ohnonotgmail · 05-12-2020 8:08pm

robinph wrote: »

I thought previously it was down to new staff turning up and then thinking they are being helpful in removing rarely requsted items to reduce costs. Seems to be happening regularly as in every year or so they cut stuff from my list.

The act of writing an unchanged repeat prescription seems to cause problems for a lot of doctors in my experience.

Eircom_Sucks · 11-12-2020 11:48am

lads , ladies

im type 2

and can't seem to stick to right foods

whats everybody having for food to give me some inspiration

Galbin · 11-12-2020 4:40pm

Eircom_Sucks wrote: »

lads , ladies

im type 2

and can't seem to stick to right foods

whats everybody having for food to give me some inspiration

What way do you eat now? What was your diet like before diabetes? Where specifically do you struggle? The "right food" for diabetes does vary by individual, which is why I am asking.

pew · 13-12-2020 9:53pm

Getting a hba1c done this week with my gp.

Really want to get it done because I'm convinced my glucometer has been lying me, even got a new one but still the same.

They have actually been good????

Waking up usually at around 4, max 5.

I sometimes forget to take my metaformin (dont ask me how I manage because I'm not sure) but even after I eat it my sugars are max 5.3....

Everyone let's pray my gp decides to lower my meds

gctest50 · 14-12-2020 10:12am

pew wrote: »

Getting a hba1c done this week with my gp.

Really want to get it done because I'm convinced my glucometer has been lying me, even got a new one but still the same.

They have actually been good????

Waking up usually at around 4, max 5.

I sometimes forget to take my metaformin (dont ask me how I manage because I'm not sure) but even after I eat it my sugars are max 5.3....

Everyone let's pray my gp decides to lower my meds

You might want want to head to a gp, it could be lota of things eg: an insulin-producing pancreatic tumour (usually benign though)

banie01 · 14-12-2020 10:37am

gctest50 wrote: »

You might want want to head to a gp, it could be lota of things eg: an insulin-producing pancreatic tumour (usually benign though)

Ahhhm, not often I'd seek advice on how to catch a tumor

But where might one acquire such a thing?
Asking for a banjaxed pancreas :P

pew · 14-12-2020 11:41am

gctest50 wrote: »

You might want want to head to a gp, it could be lota of things eg: an insulin-producing pancreatic tumour (usually benign though)

Theres such a thing??? I never knew.

I'm seeing him tomorrow so I'll be checking it out with him.

pew · 17-12-2020 1:37pm

pew wrote: »

Getting a hba1c done this week with my gp.

Really want to get it done because I'm convinced my glucometer has been lying me, even got a new one but still the same.

They have actually been good????

Waking up usually at around 4, max 5.

I sometimes forget to take my metaformin (dont ask me how I manage because I'm not sure) but even after I eat it my sugars are max 5.3....

Everyone let's pray my gp decides to lower my meds

Hba1c is down to 36. Start of the year it was 42.

banie01 · 17-12-2020 4:00pm

pew wrote: »

Hba1c is down to 36. Start of the year it was 42.

Well done, that's a non diabetic range!
Really good work, you should be very proud.

RandomViewer · 18-12-2020 10:17pm

Bit of annoyance more than anything bu when I lie down my feet go mad itchy, have to get up and wash them,cream them, 100% otherwise

Harry Palmr · 19-12-2020 12:39am

Do you mean itchy or tingly as in circulation?

RandomViewer · 19-12-2020 12:47am

Harry Palmr wrote: »

Do you mean itchy or tingly as in circulation?

Itchy as in scraping at them

not yet · 19-12-2020 9:31am

RandomViewer wrote: »

Itchy as in scraping at them

Athletes foot ?

RandomViewer · 19-12-2020 12:34pm

not yet wrote: »

Athletes foot ?

No, that's between the toes, there's spray for that.
this is the bottom of the feet, they look fine, no broken skin, fine all day but then go mad when I lie down,

gerrybbadd · 21-12-2020 12:03pm

RandomViewer wrote: »

No, that's between the toes, there's spray for that.
this is the bottom of the feet, they look fine, no broken skin, fine all day but then go mad when I lie down,

Hows the blood sugars and your control?

Something like this is what prompted me to go to the doctor pre diagnosis. Started off like this, before evolving into neuropathy, feet burning and tingling, constant "pin prick" like sensations, restless legs, lack of feeling in parts. I couldn't sleep with any blankets or sheets over my lower legs and feet at all.

RandomViewer · 21-12-2020 1:44pm

gerrybbadd wrote: »

Hows the blood sugars and your control?

Something like this is what prompted me to go to the doctor pre diagnosis. Started off like this, before evolving into neuropathy, feet burning and tingling, constant "pin prick" like sensations, restless legs, lack of feeling in parts. I couldn't sleep with any blankets or sheets over my lower legs and feet at all.

Kind of stay between 6 and 11, theres no tingling just itchy,

Eduard Khil · 21-12-2020 1:51pm

Paraffin creme is good for the dry skin if there's bumps or hotspots maybe call your GP or chiropodist if you have one, try not to pick at or remove the skin yourself if there is any damage it could start a cycle.

CramCycle · 21-12-2020 5:21pm

RandomViewer wrote: »

No, that's between the toes, there's spray for that.
this is the bottom of the feet, they look fine, no broken skin, fine all day but then go mad when I lie down,

Literally loads of things it could be and a lot of them not Diabetes related, worth talking to a health specialist, none that I can think of are dangerous, just annoying but most are fairly solvable.

Orion · 21-12-2020 5:29pm

Haven't really posted much but got some good news today. Diagnosed in May with a hba1c of 150+ and glucose at 28 on admission which is not great to say the least. Had my 6 month checkup 2 weeks ago and brought a printout of my fasting sugars - averaging about 5.8 over 2 months. I had forgotten to get my bloods done so got them today. Renal all within range and more importantly my hba1c is 38. Even my random glucose was 8 and that was not long after breakfast.

So very happy. Still on 1000mg of Metformin twice a day but that's because I didn't have my hba1c figures. Think they're going to reduce it now that I'm well within range. Looks like my dietary changes and exercise are doing the trick. Now I've just to keep that focus.

pew · 21-12-2020 7:59pm

Orion wrote: »

Haven't really posted much but got some good news today. Diagnosed in May with a hba1c of 150+ and glucose at 28 on admission which is not great to say the least. Had my 6 month checkup 2 weeks ago and brought a printout of my fasting sugars - averaging about 5.8 over 2 months. I had forgotten to get my bloods done so got them today. Renal all within range and more importantly my hba1c is 38. Even my random glucose was 8 and that was not long after breakfast.

So very happy. Still on 1000mg of Metformin twice a day but that's because I didn't have my hba1c figures. Think they're going to reduce it now that I'm well within range. Looks like my dietary changes and exercise are doing the trick. Now I've just to keep that focus.

Well done that's absolutely brilliant!!!

calfmuscle · 24-12-2020 9:43pm

May the insulin be with us over the next couple of days type ones!! Eat, drink, be high (not in the fun way) and inject ALL the insulin.

Merriest of Christmases to you all

CramCycle · 24-12-2020 10:27pm

Whatever type of Diabetic you are, be you a fitness freak, bun in the oven, pill junkie, needle sticker, or you don't know yet, have a good one.

Rickwatt1 · 28-12-2020 11:30am

I have also suffering from diabetes.

CryanGame · 03-01-2021 7:15pm

Hi all. Sorry if this is the wrong place to post but ye may be able to help. Where is the cheapest place to get Accu-Chek Aviva diabetic test strips.

locum-motion · 03-01-2021 7:51pm

CryanGame wrote: »

Hi all. Sorry if this is the wrong place to post but ye may be able to help. Where is the cheapest place to get Accu-Chek Aviva diabetic test strips.

They're free under the Long Term Illness scheme in absolutely every pharmacy in Ireland.

ohnonotgmail · 03-01-2021 8:05pm

CryanGame wrote: »

Hi all. Sorry if this is the wrong place to post but ye may be able to help. Where is the cheapest place to get Accu-Chek Aviva diabetic test strips.

why are you paying for them? you can get them for free on the LTI scheme.

CryanGame · 03-01-2021 8:21pm

ohnonotgmail wrote: »

why are you paying for them? you can get them for free on the LTI scheme.

Sorry meant to say it is Gestational diabetes. Was told it wasn't covered under LTI scheme.

Roberto_gas · 03-01-2021 8:55pm

Anyone know best way to get freestyle libre ? Know its not easily prescribed but any other schemes under which it can be availed off ?

ohnonotgmail · 03-01-2021 9:01pm

CryanGame wrote: »

Sorry meant to say it is Gestational diabetes. Was told it wasn't covered under LTI scheme.

they seem to run from about €28 upwards. the cost should count towards your DPS total for the month.

Fade Into You · 03-01-2021 9:07pm

I am currently on a low risk lifestyle, I have no problem with eating less than 5%. I have been eating more and less, I will be eating less again. I will continue to eat less, and I will still be eating more. I have a low blood pressure and am taking medication to help me. I am not sure how much of a risk I am taking with less than 3%. I am also using a low dose of medication, I am using medication that is not taking part in my diet. I think I have more problems with eating more than 3. I'm not sure if I am doing it wrong or not. I was just wondering if there is a reason for this.

calfmuscle · 03-01-2021 9:32pm

Roberto_gas wrote: »

Anyone know best way to get freestyle libre ? Know its not easily prescribed but any other schemes under which it can be availed off ?

What's your diagnosis and hba1c

Roberto_gas · 03-01-2021 10:08pm

calfmuscle wrote: »

What's your diagnosis and hba1c

Asking for a mate..i think he is 6.5 something..he got a trial recently and loved it and said its very costly but very effective..hence checking if any drug scheme can be availed to get it

calfmuscle · 03-01-2021 11:31pm

Roberto_gas wrote: »

Asking for a mate..i think he is 6.5 something..he got a trial recently and loved it and said its very costly but very effective..hence checking if any drug scheme can be availed to get it

Is he type 1?

Roberto_gas · 04-01-2021 9:13am

calfmuscle wrote: »

Is he type 1?

Type-2.... thanks here is a drug scheme which is there in ireland so was wondering if he can get the libre under that ?

CramCycle · 04-01-2021 10:25am

Roberto_gas wrote: »

Type-2.... thanks here is a drug scheme which is there in ireland so was wondering if he can get the libre under that ?

I don't think the Libre is covered for Type 2s, not sure its even covered for type 1s who didn't already have it anymore. You can use the cost of it towards the DPS, which means if you buy alot of meds, it might max out do you aren't spending too much but someone else will have to clarify that.

Meauldsegosha · 04-01-2021 3:32pm

The Libre is only available to T1s under 21 on the LTI. Your diabetic team can make an application to get over 21s approved for it. A few have been successful in being approved but I understand the criteria is quite strict. As far as I know it’s not covered by the DPS but you can claim the VAT back on it via Revenue.ie.

Xofpod · 08-01-2021 1:26pm

This T1 webinar organised by Diabetes Ireland seems pretty good. Can be watched back on:

https://twitter.com/Diabetes_ie/status/1347513726648406017?s=20

davork · 16-01-2021 1:11pm

So folks.. has anyone had continual crazy high results on a OneTouch Verio Reflect? I was given the Verio by the practice nurse at Beaumont

What I'm seeing is the OneTouch Verio Reflect reporting ~2 mmol/L above freestyle libra (when I pony up the 70 yoyos to see how I am doing) or a Relion Premiere Blu (which I purchased while I was waiting for my appointment) - on *every* reading. Obviously I've used new test strips, but something feels off!

has anyone experienced this with i) their testing units or ii) OneTouch Verio Reflect

Thanks

Donutz · 16-01-2021 1:27pm

davork wrote:

What I'm seeing is the OneTouch Verio Reflect reporting ~2 mmol/L above freestyle libra (when I pony up the 70 yoyos to see how I am doing) or a Relion Premiere Blu (which I purchased while I was waiting for my appointment) - on *every* reading. Obviously I've used new test strips, but something feels off!

I use a contour next as well as a freestyle libre and the libre usually reads a bit above the contour next.

Because the libre measures intertestial fluid and the finger prick measures blood, I'd always trust the finger prick to be more accurate than the libre.

CramCycle · 17-01-2021 10:46am

davork wrote: »

ii) OneTouch Verio Reflect

I have seen reports, I think here, and on twitter, that the OneTouch simply is always off higher than every other reader going. I haven't had one in years and so can't comment but you would appear not to be the only one having this issue. Maybe ask your clinic can you get a Contour Next or similar.

not yet · 17-01-2021 11:48am

Hi folks, Posted here over the past year or so, basically pre diabetic, fasting bloods around 7. Low carb diet seems to flatten it out a little, have been on Berberine and chromium the past week, seen what looks to be very small drop to around 6.6. Anyone here tried these.

Taeholic · 18-01-2021 3:17pm

not yet wrote: »

Hi folks, Posted here over the past year or so, basically pre diabetic, fasting bloods around 7. Low carb diet seems to flatten it out a little, have been on Berberine and chromium the past week, seen what looks to be very small drop to around 6.6. Anyone here tried these.

Hi, I've tried both simultaneously and separately with very little impact. Although I should say I was just over the benchmark of being diabetic. At the time I was managing my diabetes through diet and exercise. I'm now on insulin, honeymoon is over but exercise and water intake are crucial for me managing my sugars. Good luck ðŸ‘

Galbin · 18-01-2021 5:53pm

Donutz wrote: »

I use a contour next as well as a freestyle libre and the libre usually reads a bit above the contour next.

Because the libre measures intertestial fluid and the finger prick measures blood, I'd always trust the finger prick to be more accurate than the libre.

Yep. One Touch Verio always reads insanely higher. Anything from 1 to 3 points higher, in fact. I had to get rid of it, and found lots of similar complaints online.

[Diabetes] General Chat and Support Thread

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