PiP Implants support thread - Irish petition in post #1

Marguerite1 · 19-01-2012 8:16pm

Saranna wrote: »

Hi Margurite1

Thanks but,
Yes I went to <snip> on my own,hubby was working cudnt make.I fell apart <snip> has obviously been very well advised he told me the pips were perfectly save when I questioned this he told me I shouldnt be listening to Joe Duffy!!! He doesnt think there is any rupture but sending me to <snip>,he also nicely informed me that I knew and signed a disclaimer that I was opting for a foreign body to be placed inside me:(
I told him even without rupture I want them removed he said he would and if I chose not to have an new implant in he will perform an uplift instead which I am kinda thinking is a better option whos to say the next implants wont be defective aswell oh but he does want 1,800 if I am chosing this if no rupture shows.More confused and upset than ever now:(

OMG Saranna,
I see that some of our other ladies have been talking to you about your experience. I've only just logged on. I'm horrified by the way <snip> treated you. But not surprised. I went on my own and I really regret that. But still, it's only the first outing and after my scan next week I'll have to see what further action I need to take.
<snip>, yes he has an answer for everything and like you I felt totally vulnerable and it's very hard to argue when you're on their premises, 2 of them and 1 of you, you're vulnerable.. Oh I had everything in my head too and then I just seized up. WE did not sign up to be given toxic implants. How dare he.

Kiwi_Real, although this is a horrible situation for all of us, your post did bring a smile to my face. My mother is also a "tour de force". If she got one whiff of an attitude from <snip>. ...well..."off with his head".;) Pity I can't go to her. She just wouldn't approve of my operation in the first place. Then again, depending on the outcome of my MRI, I may have to rethink that.
Bring your Mum and I hope she lets loose on him.

Ellis Dee - Thanks very much for your kind words. I'm sure all the ladies here appreciate it, as do I.

Saranna · 19-01-2012 8:27pm

Have to say this forum has been my only sanity in all this,it's been like having a room full of best friends,so we can find our strength and support here with a giggle without seeing the mess in the pj's

)

Marguerite1 · 19-01-2012 8:32pm

Saranna wrote: »

Have to say this forum has been my only sanity in all this,it's been like having a room full of best friends,so we can find our strength and support here with a giggle without seeing the mess in the pj's )

I totally agree. I would have been lost the last couple of weeks only for this forum. I was feeling desperate and now I feel like I have some strong allies. Thanks everyone.

kiwi_real · 19-01-2012 8:42pm

Marguerite1 wrote: »

Kiwi_Real, although this is a horrible situation for all of us, your post did bring a smile to my face. My mother is also a "tour de force". If she got one whiff of an attitude from <snip>. ...well..."off with his head".;) Pity I can't go to her. She just wouldn't approve of my operation in the first place. Then again, depending on the outcome of my MRI, I may have to rethink that.
Bring your Mum and I hope she lets loose on him.

Now I just have to pluck up the courage to tell her! She didnt approve either but did go with me to the appointments for support. Plus no mother is ever happy when their daughter is treated badly (even though she may be thinking that if I listened to her, I wouldnt be in this mess!!)

When one goes to a doctor/surgeon, you expect and assume that you will be given the best possible care. Nobody deserves to be treated the way we have.

I think I will write down all my arguments in advance!

saulite · 19-01-2012 9:15pm

kiwi_real wrote: »

Glad for advice on <snip>, think I will take my mother with me as she can be quite the scary lady and she was with me in my initial consultation.
I complained to IMB yesterday as to the fact that I was only informed yesterday by <snip> that I have PIP implants, even though according to their website all patients affected were contacted and scanned in 2010. <snip> from IMB called me back today to tell me this is the first report she had heard about <snip> not contacting patients and she then asked me if I had my initital consultation was with them, which it was. She is now going to follow up with them. If anyone else only heard from <snip> recently and had their consultation and operation with them, they should also complain to IMB as they have blatantly lied on their website.

I love your mummy already !! I can only imagine ...:)

annk23 · 19-01-2012 9:30pm

Hi girls cud I ask where in Dublin you r having the MRI finding it hard to find somewhere that do them for this purpose, so far found <snip> & <snip> but they r so expensive

kiwi_real · 19-01-2012 10:02pm

I know <snip> are sending their patients to the <snip> for the MRI scans and I am sure <snip> may also do them. The scans may be covered by health insurance.

021tanya · 19-01-2012 10:21pm

annk23 wrote: »

Hi girls cud I ask where in Dublin you r having the MRI finding it hard to find somewhere that do them for this purpose, so far found <snip> & <snip> but they r so expensive

I think <snip> are doin them and u get a cheaper rate if u book on line!!! My doctor has advised me to go c a breast specialist and let him decide if i should have a scan and what I should do next... As far as she is concerned I should not take any advice from any cosmetic surgeon... The private breast specialist will give imparshell advice and stands to gain nothing!!!

Saranna · 19-01-2012 10:33pm

021tanya wrote: »

annk23 wrote: »

Hi girls cud I ask where in Dublin you r having the MRI finding it hard to find somewhere that do them for this purpose, so far found <snip> & <snip> but they r so expensive

I think <snip> are doin them and u get a cheaper rate if u book on line!!! My doctor has advised me to go c a breast specialist and let him decide if i should have a scan and what I should do next... As far as she is concerned I should not take any advice from any cosmetic surgeon... The private breast specialist will give imparshell advice and stands to gain nothing!!!

Finally somebody in the medical sector who's not money driven and makes complete sense.

021tanya · 19-01-2012 11:09pm

I know.. Since I spook to her today I feel more at ease and I no I will get the right advice..

kyra123 · 19-01-2012 11:27pm

Saranna wrote: »

Have to say this forum has been my only sanity in all this,it's been like having a room full of best friends,so we can find our strength and support here with a giggle without seeing the mess in the pj's )

I have to say the same Saranna, I felt so alone when I found out could not find any kind of support at all until I found here. The forum and all you girls have kept me sane so thank you all very much.

If we stick together girls we ll get some where with all this.

Saranna · 19-01-2012 11:33pm

kyra123 wrote: »

Saranna wrote: »

Have to say this forum has been my only sanity in all this,it's been like having a room full of best friends,so we can find our strength and support here with a giggle without seeing the mess in the pj's )

I have to say the same Saranna, I felt so alone when I found out could not find any kind of support at all until I found here. The forum and all you girls have kept me sane so thank you all very much. If we stick together girls we ll get some where with all this.

Yep kyra us girls can take on anything as long as we all stick with and dont cave in to the bullies that are just out to make another quick buck out of our suffering,makes me so mad that governments and health board arent supporting us in demanding we have our surgeries redone,it's obvious so many girls are really traumatised over what's been done:)

jeano8 · 20-01-2012 11:57am

kyra123 wrote: »

Saranna wrote: »

Have to say this forum has been my only sanity in all this,it's been like having a room full of best friends,so we can find our strength and support here with a giggle without seeing the mess in the pj's )

I have to say the same Saranna, I felt so alone when I found out could not find any kind of support at all until I found here. The forum and all you girls have kept me sane so thank you all very much. If we stick together girls we ll get some where with all this.

Me too girls dont know what i would have done without u all my husband has been great but some of my family areannoyed that i did an interview so feeling very down at the moment :-( but il get there just so frustrated with the whole thing bit my solitior drafted an excellent letter so gonna get that sent out thanks again for the support ladies really need it right now

applejam · 20-01-2012 12:18pm

I know I don't have the pip implants but my world is upside Down with fear, reading here is saving my sanity, I haven't really posted a lot but I'm reading , supporting each other is the one thing we can do.

Will <snip> see me, I believe they took over from <snip>?
Jesus I just want these implants out

Pixiejane · 20-01-2012 12:49pm

jeano8 wrote: »

Me too girls dont know what i would have done without u all my husband has been great but some of my family areannoyed that i did an interview so feeling very down at the moment :-( but il get there just so frustrated with the whole thing bit my solitior drafted an excellent letter so gonna get that sent out thanks again for the support ladies really need it right now

Jean take that with a grain of salt that you're family are not happy with you doing that interview. They are not you, and they don't have these implants in their body. I know they're family all the same. There are 1500 Irish women who are very thankful to you, not all of them are on this forum though. So thank you Jean for doing that interview and bringing about awareness. And stay strong, we're all in this together.

LADIES, have a read of this article below also. It will help us to see that European standards and testing on medical devices are basically not up to scratch, and that more stringent testing and procedures need to be put in place now and not later.
While the EU and U.S. require manufacturers to prove new products are safe, only the FDA in the States mandates they also show devices are effective. That means studies for European approval are typically less in-depth than those required in the U.S.

Again, don't want to sound like a broken record, but please EVERYONE who is affected by PIP implants or not, please send an email to both the IMB and the Minister for Health, Dr. James Reilly. Keep bombarding them with articles or whatever and let them know we are not going to keep quiet about this, not now, not ever. Get in touch with local TD's and see if they can help also. Or better still lets get a group appointment to see the Minister?

Girls, I've been feeling all the same emotions as yourselves since the 20th December 2011, Christmas week for God's sake. A time when we should have been enjoying time out with our families. I did put it out of my head for Christmas, well I tried my best. It was always at the back of my head. But it's only in the last week to be honest that I'm back to myself, both mentally and physically. It's all been so draining. I've found getting out in the fresh air really helps to clear the head and stay focused. But the way I'm feeling this week, and from all your posts and support, I'm ready to take on the world if need be! So stay strong, fight back the tears and stand up for yourselves.

http://www.bloomberg.com/news/2012-01-19/faulty-french-breast-implants-may-upend-u-s-device-debate.html

SHELLBABE10 · 20-01-2012 4:50pm

Any girls that got their operation done in <snip> and going for scan in <snip>, just to let you know its only an ultrasound scan we are getting and not an mri.I rang them yesterday morning and asked what type of scan i was getting and had said i was referred by <snip> and she told me its just an ultrasound scan.

Saranna · 20-01-2012 5:09pm

I'm heading for mine next week,I was talking to a lovely girl on the phone,she said there's a few ruptures showing up not an awful lot tho,<snip> told me I dont have a rupture but my gP thinks different so don't know what to think,does the ultrasound shows leaks and lumps?

evergreen girl · 20-01-2012 6:01pm

Must say this thread is great and really helping me to keep my sanity at the moment.

I finally got my medical records from <snip> (had sent them a registered letter on the 3rd Jan as got no response to my emails or phonecalls). Asked in the letter for a copy of my medical records and details of the type of implants I had received.

They sent me back a photocopy of my letter and my medical records - no cover letter about whether I had PIP implants or not. Looked through the 10-12 pages of what they sent and absolutely nowhere does it say what type of implant I have. The only info recorded is the size of implant used and how it was inserted- it doesn't even specify if they are silicon or saline

(although I'm presuming they're silicon as that's what was recommended to me by the surgeon).

Complete joke - I'm still none the wiser :mad:. Have rang <snip> and left a message for someone to ring me about it. I'm so frustrated at this stage - have been in contact with Lavelle Coleman and I think I will just let them handle it and see if they can find out if I have PIPs or not. Have an appointment with surgeon in <snip> next Thursday and waiting for MRI appointment in <snip> as I want confirmation of a rupture, if any, before I undergo surgery, although I'm going to have them removed either way. I really just want to have them out asap but assuming I don't have a rupture, it would be madness to book surgery until I know for definite the implants I have are PIPs. God I just want to hit something :mad:.

kiwi_real · 20-01-2012 6:22pm

Saranna wrote: »

I'm heading for mine next week,I was talking to a lovely girl on the phone,she said there's a few ruptures showing up not an awful lot tho <snip> told me I dont have a rupture but my gP thinks different so don't know what to think,does the ultrasound shows leaks and lumps?

Why are <snip> not sending people for MRI? An ultrasound wont show up everything, you need an MRI. I have my appointment with <snip> next week and I assumed they would then send me for an MRI. Apparently you also need a special MRI which rules out going to <snip>.

Where they nice in <snip>? I only found out on Wednesday even though I had initial consultation and op with them.

kyra123 · 20-01-2012 7:15pm

Hi Girls,
How everyone doing tonight? hope all your appointments went well today.
Here is how i got on and what i have found:

I met with Avril from Lavelle and Coleman today. She was really helpful and has made a start on getting my medical records. I high recommend her.

MRI- Try to get an MRI instead of an ultrasound if you can I know they are expensive. I got an ultra sound the other night and the women was very straight with me and told me the get a MRI to but sure there are no leaks or ruptures.

<snip>- as i found out also today can't do this type of MRI.
<snip>- it will cost €350-€417 (depending on the type of MRI, they will need a referal letter from a consultant or GP before booking you in) They could nt tell me an exact price cause I to fax in the letter from my ultrasound recommending me for MRI.

I called <snip> today to let them know the findings of my Ultrasound (rippling in the implants in both breasts) and was told <snip> would be in touch. That was at 11am this morning - still have no call back from them yet.

Going off to try to find out how we start a petition, will let you know how i get on.

SHELLBABE10 · 20-01-2012 8:03pm

Dont know why <snip> are not sending us for an mri scan, probably because its more expensive and from what i've read on other posts an ultrasound scan doesnt pick up everything and i still havnt got my copy of my records from <snip> either.Think i will have to get back on to them.Its ridiculous

Saranna · 20-01-2012 8:15pm

SHELLBABE10 wrote: »

Dont know why <snip> are not sending us for an mri scan, probably because its more expensive and from what i've read on other posts an ultrasound scan doesnt pick up everything and i still havnt got my copy of my records from <snip> either.Think i will have to get back on to them.Its ridiculous

I'm going for my ultra sound next week seems like it cud be a waste of time if they are 100% in detecting rupture,this goes from bad to worse:(

LegacyUser · 20-01-2012 8:53pm

SHELLBABE10 wrote: »

Any girls that got their operation done in <snip> and going for scan in <snip>, just to let you know its only an ultrasound scan we are getting and not an mri.I rang them yesterday morning and asked what type of scan i was getting and had said i was referred by <snip> and she told me its just an ultrasound scan.

Hi Shellbabe and all,

Had my ultrasound today. I asked the Radiologist about it versus MRI. He said the Ultrasound would show anything abnormal, that an MRI only neccessary if there was doubt,

So go with it for peace of mind....

jeano8 · 20-01-2012 9:04pm

Pixiejane wrote: »

jeano8 wrote: »

Me too girls dont know what i would have done without u all my husband has been great but some of my family areannoyed that i did an interview so feeling very down at the moment :-( but il get there just so frustrated with the whole thing bit my solitior drafted an excellent letter so gonna get that sent out thanks again for the support ladies really need it right now

Jean take that with a grain of salt that you're family are not happy with you doing that interview. They are not you, and they don't have these implants in their body. I know they're family all the same. There are 1500 Irish women who are very thankful to you, not all of them are on this forum though. So thank you Jean for doing that interview and bringing about awareness. And stay strong, we're all in this together.

LADIES, have a read of this article below also. It will help us to see that European standards and testing on medical devices are basically not up to scratch, and that more stringent testing and procedures need to be put in place now and not later.
While the EU and U.S. require manufacturers to prove new products are safe, only the FDA in the States mandates they also show devices are effective. That means studies for European approval are typically less in-depth than those required in the U.S.

Again, don't want to sound like a broken record, but please EVERYONE who is affected by PIP implants or not, please send an email to both the IMB and the Minister for Health, Dr. James Reilly. Keep bombarding them with articles or whatever and let them know we are not going to keep quiet about this, not now, not ever. Get in touch with local TD's and see if they can help also. Or better still lets get a group appointment to see the Minister?

Girls, I've been feeling all the same emotions as yourselves since the 20th December 2011, Christmas week for God's sake. A time when we should have been enjoying time out with our families. I did put it out of my head for Christmas, well I tried my best. It was always at the back of my head. But it's only in the last week to be honest that I'm back to myself, both mentally and physically. It's all been so draining. I've found getting out in the fresh air really helps to clear the head and stay focused. But the way I'm feeling this week, and from all your posts and support, I'm ready to take on the world if need be! So stay strong, fight back the tears and stand up for yourselves.

http://www.bloomberg.com/news/2012-01-19/faulty-french-breast-implants-may-upend-u-s-device-debate.html

Thanks pixie startimg to feel much better now thanks for all the kind words and information ur all hreat :-)

LegacyUser · 20-01-2012 9:09pm

Saranna wrote: »

I'm heading for mine next week,I was talking to a lovely girl on the phone,she said there's a few ruptures showing up not an awful lot tho,<snip> told me I dont have a rupture but my gP thinks different so don't know what to think,does the ultrasound shows leaks and lumps?

Hi Saranna,

Had my scan today, showed a small leak. so if theres something a miss, it WILL be picked up..
Now the real worry begins.....Although i have to say the Radiologist was fantastic. Said not to worry, it would be sorted quickly and should not be harmful..

I hope theres comfort in this message as i wasnt sure whether to post it. It is to be read in a positive way, girls....

Saranna · 20-01-2012 10:08pm

chip1234 wrote: »

Hi Saranna,

Had my scan today, showed a small leak. so if theres something a miss, it WILL be picked up..
Now the real worry begins.....Although i have to say the Radiologist was fantastic. Said not to worry, it would be sorted quickly and should not be harmful..

I hope theres comfort in this message as i wasnt sure whether to post it. It is to be read in a positive way, girls....

Oh thanks for that,bit more at ease did ur surgeon think u had a rupture b4 u went for the scan?

LegacyUser · 20-01-2012 10:16pm

Saranna wrote: »

Oh thanks for that,bit more at ease did ur surgeon think u had a rupture b4 u went for the scan?

No buti didnt have an examination...scary thing is, youd never know. i think a rupture is more obvious?

Dont worry just get it done and whatever the result, theres help x

Saranna · 20-01-2012 10:18pm

Chip,
Sorry that u got the horrible news,must have been a shock,what's ur plan now I assume u are having a replacement,is the clinic offering u this with no fee.Stay positive and calm:))) U have helped calm me this evening,thanks:))

This has been a terrible experience for all us ladies:((

kyra123 · 20-01-2012 10:23pm

chip1234 wrote: »

Hi Saranna,

Had my scan today, showed a small leak. so if theres something a miss, it WILL be picked up..
Now the real worry begins.....Although i have to say the Radiologist was fantastic. Said not to worry, it would be sorted quickly and should not be harmful..

I hope theres comfort in this message as i wasnt sure whether to post it. It is to be read in a positive way, girls....

Thanks for sharing Chip, it s good they found it. Can i ask did you have an ultrasound or MRI? And can I ask where you got your scan? I hope they get you sorted soon.

LegacyUser · 20-01-2012 10:27pm

Saranna wrote: »

Chip,
Sorry that u got the horrible news,must have been a shock,what's ur plan now I assume u are having a replacement,is the clinic offering u this with no fee.Stay positive and calm:))) U have helped calm me this evening,thanks:))

Hi,

wasnt expecting the news.. but now i have no choice but remove. I did ring <snip> after. they were very supportive and said i would be seen quickly..
I just cant beleive this is happening.
Thanks for your response too. Theres no one to talk to . Just this great ^life line .
xx

PiP Implants support thread - Irish petition in post #1

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