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Sleep Apnoea and CPAP

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  • Registered Users Posts: 156 ✭✭Sleephead


    So has anyone had any update regarding Air Liquide and the Phillips dreamstation recall?


    I find their customer service to be really poor I’m constantly fibbed off on the phone



  • Registered Users Posts: 19,306 ✭✭✭✭Drumpot


    Has anybody been diagnosed with moderate to severe sleep apnea only for it to be re diagnosed as minor (6 an hour or less) ?

    I was using machine briefly but was taken off it and then in private consultation had a lower apnea count. Told to use Mouthguard but it hurt my mouth and I gave up. That was a year ago.

    I don’t snore but never wake up rested. I get migraines and not sure if they are affecting my sleep or the apneas (and then lack of quality sleep giving me other issues like migraines), either way I’m chronically tired (months).

    My reluctance to go back to sleep clinic was because it’s expensive so I’m sort of in limbo.



  • Registered Users Posts: 1,228 ✭✭✭The Mighty Quinn


    I was diagnosed with 14 an hour and told it was mild enough. But my snoring would wake the dead. I don't feel rested wearing the machine, or not wearing it, but my snoring is far far reduced/eliminated (so i'm told...) so I must persist and wear the shaggin thing. I hate it. Wearing it 5 years now. Often times it has the adverse affect of waking me during the night as when I move the tube can pull and slip the mask a little, creating a hissing etc.



  • Registered Users Posts: 914 ✭✭✭JPup


    How long did you use the mouthguard for before you gave up on it? The advice I got was to use it for 10 full nights in a row. For most people it feels uncomfortable for the first week but then you get used to it. If it was still hurting your mouth after 10 days I'd go back to whoever fitted it for you and ask them to make some adjustments.



  • Registered Users Posts: 19,306 ✭✭✭✭Drumpot


    I tried it for maybe a month. Would wake up thinking my teeth were gonna snap (I must grind my teeth in sleep). Also gums were sore.


    Yeh, I’ve put off going back to the dentist cause I expected him to tell me to keep at it. I’ve actually now got jaw issues , not sure the Mouthguard helped or helped bring on the issue. I think you are right though, should go back to the dentist who originally fitted it,



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  • Registered Users Posts: 914 ✭✭✭JPup


    I don’t think the dentist would fob you off to be honest. If it’s still not settling after a month then they should be looking to make changes to the mouthguard or order a new one. It certainly shouldn’t be a source of pain! Minor discomfort maybe

    Id start with the dentist anyway before thinking of going back to the sleep clinic.



  • Registered Users Posts: 5 Hitchhiker85


    Giving Away AirFit N20 Headgear (Small)

    I was sent the wrong size replacement headgear for my Resmed AirSense.

    ResMed AirFit N20 nasal CPAP headgear - Size: SMALL.

    I tried it on once and discovered it wouldn't fit. Because all the other parts were fine (small nasal cushion, frame, short tube) they told me to keep it all and they'll send me just the new headgear later on.

    So I have a spare headgear (see picture below) that I would like to give to the first person that privately messages me and who lives on the island of Ireland. I will pay for postage. Please note a few things:

    1. It's size SMALL. On your current headgear, you may see the size printed in white text (S) on the blue strip on the very top. As I understand, if the size is not printed there, it's a medium. But I am open to correction on this.
    2. I (impetuously) disposed of the packaging before noticing the size issue so it won't be in its original packaging when I send it.
    3. I am only offering the neoprene headgear with the two magnetic clasps; no mask cushion, no frame that the cushion clips onto, and no small tube.

    This is only my second time posting on Boards.ie so if I am breaking a rule, please let me know.

    I presume people will be able to private message me. If not, reply to my post I guess.




  • Registered Users Posts: 28,291 ✭✭✭✭looksee


    Having read this article it seems it should be titled 'role of tinnitus in sleep' rather than the other way round. Anyway it is interesting, its really too technical for me to chance giving a precis of it. I do have both sleep apnoea and tinnitus.



  • Registered Users Posts: 28,291 ✭✭✭✭looksee


    There is a severe lack of knowledge or consistency of opinion in sleep apnoea consultants as far as I can see. I have been to, I think, a total of 5 with experiences ranging from good (sadly now retired) to poor, including (in one case) blatant money-grubbing.

    However going back to Drumpot's post, 6 is low, at 6 I think it would be unusual for a machine to be even recommended, under 5 is considered 'not sleep apnoea'. I had an initial diagnosis of 29 (after being assured that I did not have sleep apnoea as I 'didn't look as though I did'. That was the consultant, the nurse independently said the same thing 'I can recognise people with sleep apnoea'. I was put on a machine but that was before internet linked machines and there really was not a lot of support or information, and I gave up on it. I started the process again more or less by chance some 10 years later (about 3 years ago) to be told that I had a reading of 47.

    In the meantime (over the 10 years) I had issues with atrial fibrillation which intensified until I had an urgent cardiac procedure and since then it has been mostly ok. It is recognised that there is a connection between A.fib and sleep apnoea, but no-one has shown any interest in joining the dots on this.

    The sleep apnoea is still a significant issue though, generally I am keeping them to between 3 and 15, averaging about 8. I have realised that the most important contribution to reducing the readings is lying on my side, if I turn onto my back the numbers go up very significantly. I am more comfortable on my back but I have mostly trained myself to lie on my side.

    I wish I could find a consultant who actually has some in-depth knowledge on the topic and is willing to do more than talk platitudes, propose irrelevant and unnecessary (but remunerative) procedures, and take my money.



  • Registered Users Posts: 571 ✭✭✭FaganJr


    Interesting to see if there is a link, I also have tinnitus.

    Went to see a specialist, spent €300 for him to tell me to listen to a radio going to sleep.



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  • Registered Users Posts: 19,306 ✭✭✭✭Drumpot


    I have chronic Tinnitus, weather can really affect it but I find it hard to sleep in silence. Usually use air filter machine or white noise.



  • Registered Users Posts: 571 ✭✭✭FaganJr


    What is the difference between mild & chronic?? How can anyone know?

    I hear a constant almost like a puncture / hiss from a tyre sound, all the time.

    It's a constant level, no matter what other noise I'm listening to?

    Anything like that?



  • Registered Users Posts: 19,306 ✭✭✭✭Drumpot


    A lot of the time I pretty much have a low muffling noise that just louder when there is complete silence.

    Not sure if it’s a hangover from covid (as I don’t think it was as bad for this long before) but I pretty much notice it most days.



  • Registered Users Posts: 28,291 ✭✭✭✭looksee




  • Registered Users Posts: 9 Louise A. Garcia


    I had actually known I had sleep apnea for a number of years; I just didn’t do anything about it. My wife would tell me that I stopped breathing during the night and that she would lie awake counting the seconds until I started to breathe again. I thought I was sleeping through the night, so I never really gave it a lot of thought. But it badly affected my health, and as a result, I got diabetes and hypertension. A year ago, I went for a routine physical, and my doctor diagnosed me with sleep apnea and suggested using a Respironics dreamstation while sleeping. From that day until today, I have slept with a CPAP machine, and it really helped me reduce my breathing problem. It helped me a lot. At first, I felt a little uncomfortable with it. But after 2 to 3 days, I felt ok with it. Now I can’t sleep without a CPAP machine.



  • Registered Users Posts: 146 ✭✭porker36


    Hi All

    also diagnosed with sleep apnea, reading of 32, my consultant organised a cpap machine through resmed, ive been back to my consultant since using the machine and he had my data from the machine, do most people keep renting the machine or just buy one, does the consultant need to keep seeing the data? the cpap machine is doing the job and im happy with it but renting every month going forward is going to be expensive



  • Registered Users Posts: 1,228 ✭✭✭The Mighty Quinn


    I think I rented mine (something like 110/mo) for over a year, and asked them about buying it and got it for 800eur or so.

    It was with BOC gas (I was surprised too!)



  • Registered Users Posts: 407 ✭✭redunited



    I'm in a similar situation, only just recently diagnosed with sleep apnoea, developed hypertension, and then diabetes over 1 year ago. Went to the Doctor to say how tired in the daytime and they sent me for a sleep test which I had a month ago, which came back with a reading of 46 events on average.

    Now on a Cpac machine for 4 weeks, averaging 11 events per hour. Still feel tired throughout the day though.


    Can I ask, did hypertension and diabetes go away, or do you still suffer?



  • Registered Users Posts: 9 Louise A. Garcia


    Hi, Sorry to hear this; I got a better experience after using a CPAP machine. By using this, I improved my sleep and reduced hypertension and diabetes. This CPAP machine help me to cure my respiratory issues(https://www.cpapoutlet.ca/product/respironics-dreamstation-auto-with-humidifier-heated-tubing-and-cellular-modem-cax500t12c/3190), and I'm happy now.



  • Registered Users Posts: 1 DavyDogg


    Hi,

    Does anyone know if the purchase of a powerbank to power a cpap machine ( in case of power outage! ) can be claimed as medical expense ?

    Thanks in advance



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  • Registered Users Posts: 3,978 ✭✭✭3DataModem




  • Registered Users Posts: 594 ✭✭✭TheWonderLlama


    Off to the Galway sleep clinic this week, wish me luck!

    Will be interesting to do a compare and contrast with the one in Dublin and hopefully, i can get back on track again.



  • Registered Users Posts: 594 ✭✭✭TheWonderLlama


    well, that was not fun.

    score of 38, but the really worrying part was oxygen sats down to 72% during the night. Doc said I absolutely had to go on cpap immediately.

    Looks like some fun and games coming.




  • Registered Users Posts: 3,476 ✭✭✭Masala


    hey..... don't feel bad.!!!! Its actually not too bad.... it becomes a habit using it and then its second nature!


    To be honest.... u will feel the benefits of it long term!



  • Registered Users Posts: 1,228 ✭✭✭The Mighty Quinn


    I've been wearing my machine for 6 years almost. Do I feel better? No. Honest answer, no. I only went to a doc about it because my then girlfriend, now wife, was driven demented by my snoring and didn't like listening to me choking and not breathing in my sleep. So I wear it because it stops the insane snoring. But honestly I don't feel more rested, but I'd like to think I'm less likely to die of a heart attack! Whenever my wife is away for the night I don't wear it, the freedom of not having a hose off your face is great!



  • Registered Users Posts: 6,625 ✭✭✭Glebee


    Sort of in the same boat. Using it for a few years now and have gotten used to it. If I fall asleep at night with out putting it on I definitely do not feel as rested come the morning. At the start I was saying to myself I don't need this I be ok, but I definitely feel the benefits of using it. Id be kidding myself If I said other wise.



  • Registered Users Posts: 28,291 ✭✭✭✭looksee


    Totally agree, I wake up exhausted. However I already have the associated heart issues so I know I need to wear it, I do know that it helps prevent the events and if I don't wear it my blood goes down significantly - as the other poster says, into the 70s (I have an oximeter that I have worn a couple of times without the machine, and its scary).



  • Registered Users Posts: 3,135 ✭✭✭fifth


    Hi boards,

    I'm an Airsense 10 CPAP user currently renting from Resmed for 96euro a month (for the past 12 months). Has anyone bought out their machine from the rental agreement before? Did you find the cost reasonable and was there any discount for having rented? Would another option be to return the machine and purchase from another store? I quite like being able to see my sleep score each morning via the app but don't fancy paying this fee perpetually either.

    Waiting for Resmed to get back to me but wanted some opinions from anyone who may have been in this situation in the past.



  • Registered Users Posts: 3,135 ✭✭✭fifth


    I also find that it did not give me the rested sleep or energy levels I was hoping for. I do feel slightly worse and more groggy in the mornings when I don't wear the mask, so it is having some mild benefit. But I wonder sometimes if there is more than just my sleep apnea going on.



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  • Registered Users Posts: 28,291 ✭✭✭✭looksee


    I was recently in hospital for a few nights and was fortunate to have a bed that was both very comfortable and could slope up at the top end. I left the top sloping up a bit with my pillows on it and had the best night's sleep I had had in a long time. So now at home I have 3 pillows with a folded blanket in front of them making a similar wedge shape, while I try to organise a wedge pillow (which is easier said than done). I sleep on my side. I feel I have been sleeping better like this. Its not just a matter of having a pile of pillows, you need to lift your ribcage a bit.

    This might not work for anyone else but I feel it has helped me.



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