Psoriasis

LegacyUser

I'm desperate.

I'm just sick of battling my psoriasis. The creams and ointments are only making it worse. I haven't tried the injections or tablets, but the side effects are scary. It feels like my body is eating itself up. My skin has gotten progressively worse over the past year, and has gone rapidly downhill the last couple of months. My life seems to revolve around washing, applying creams, avoiding foods, taking supplements, choosing clothes to cover up every part of me. I hate anyone looking in my direction, I won't let anyone touch me. I'm in constant pain, and my skin is cracked and itchy and painful. It's taken over every part of my body. And ruining my life.

I saw this on the Irish Health website:

http://www.irishhealth.com/clin/psor/hospital.html

Almost all people with psoriasis can have their skin completely cleared as a hospital in-patient over an average period of three weeks. Clearing the skin may result in a long period of remission. Some people may stay clear for years, yet others may relapse immediately and it is impossible to predict which patient is likely to do which. People with extensive psoriasis and some with severe scalp psoriasis alone, who cannot manage their treatment at home, may benefit from a short stay to get the scalp under control.

There are two standard in-patient regimens employing either dithranol or tar as the active treatment.
They consist of:
• Tar bath – 10-15 minutes and UVB therapy – dosage according to skin type and increasing according to response
• Ingram's regimen – dithranol in Lassar's paste applied carefully to each plaque, sprinkled with talcum powder, then dressed with a gauze suit. This is removed in the bath the following morning. The concentration of dithranol is increased according to the response. When the psoriasis is better the skin will be temporarily stained brown.
or
• Goeckerman regimen – crude coal tar in increasing strengths, applied instead of dithranol.

It's the first line, that I have in bold there. The idea that just three weeks in hospital could give me even temporary relief. The idea of the battle being taken out of my hands, in the control of someone else, for even a few weeks.

Has anyone been hospitalised for psoriasis treatment before? I have a doctors appointment Thursday morning, and I don't know if I should ask her about it or is it something she might suggest herself.

Right now I can't imagine ever being normal again. I can't go on like this, I need a solution, something that will actually work, even if it's only temporary. I need a break from all of this, I want to stop feeling like a failure because my skin is completely out of my control. Just want someone else to take over for a little while.

Anyone have any experience of this? Does this actually happen in Ireland? Just how bad would you have to get hospitalised? Because the way my skin is now, I can't see how I wouldn't qualify.

G86

Hey guys, I just found this thread and tbh I feel terrible about complaining about my skin now because the posters here seem to have it much much worse.

I have psoriasis on both my lower legs for the past few months, but only went to the doctor 2 months ago. She gave me a steriod cream called Dermovate, as she thought it was eczema, turns out she was wrong. I kept using the cream but it didn't help and stung like HELL. My cousin has recommened Diprobase to me now so I'm going to try that, I'll just have a read through the thread here now and see if any of you have used it. I'm getting quite conscious about have bare legs now, which is really annoying for the likes of the gym etc., and esp as I'm moving to a really hot country and don't want to wear tights/leggings all the time! I actually had an old lady come up to me at a bus stop a few months ago because she was concerned I'd fallen over and hurt my legs or something....

Does anyone know of cover-up you can get for it that won't make it worse? MAC have a concealor for face and body which I'd get if I thought it wouldn't make it worse, but I'm pretty sure it would.

I'm know I'm lucky that it's only localised to one area, but it's still really annoying and I'm worried it'll never go away

G86

I just read through this whole thread - it's been so helpful!!

I saw a post from 2008 recommending Mr Foley from the pharmacy on Parnell St, I'm going to call in after work and see if he's still there. Does anyone know by any chance?

niallers1

I found Nizorol shampoo good for scalp and you can actually use it as a soap too for other parts of your body, you only need to leave it on your skin for 30 seconds or so. Good for eybrows and t area of the face.

It keeps mine under control anyway..Can't hurt to try it for a month or two.

Mismatch

I've suffered from psoriasis for the past ten years or so - bane of my life! But when I read forums such as this one I'm reminded of how lucky I am, really, and that there are others much worse off than me. Mine is very bad all over my scalp and in my ears - on the bright side at least people can't see it most of the time, but wearing black tops is impossible when it's flared up and it sometimes causes my hair to fall out and thin, which isn't nice.

Anyway, I've been using dovonex and betnovate for years with mixed results, but I have dicovered something recently which really helps. You rub TONS of olive oil into the affected parts (time consuming but worth it), put a towel or something on your pillow and leave it in for the night. Next morning, wash it out of your hair (a couple of shampoos does the trick) and continue to do this as regularly as you can manage.

Obviously it doesn't cure the psoriasis but I find it gives tremendous relief, dissolves all the scalyness and lessens the itch considerably. My psoriasis tends to get progressively worse very quickly once it 'takes hold', and I find doing this regularly prevents it from getting to that stage where it really takes hold and goes into a nasty spiral.

Hope this helps someone

Gael23

Im 20 (male) and ive suffered this condition for a god few years now. Im using many of the treatments listed here, Dovobet ointment is the only one I have used that makes any big difference, and i have tried many diffrent ointments over the years. I dont use the dovonex because when its good i tend to use nothing at all or maybe just an ordinary moisturiser.
For my scalp I find Bettamousse excellent, its easy to apply and very effective. I will then use Stieprox medicated shampoo as well.
I dont believe in using any of those special shapmpoos or bodywashes than you can buy because they are very expensive and in my experience, dont give much relief.
For me, the best treatment is sunlight. Whenever the sun is shining I try to expose the affected areas to the sun, I find this better than any ointment. I know its hard if youre self conscious but it really does help.

pkde1

I've been prescribe Bettamousse and Hydrocortisol ointment for psoriasis on my face and neck. I'm confused about a few things! First, it says in the Bettamousse instructions "massage the mousse into the affected areas of your scalp, and not your hair." But how do you get it onto just your scalp, not your hair? Also, it says on the pharmisist's sticker on the Bettamousse box, "Apply sparingly. Do not rub in." So do I or do I not rub it in, when the instructions inside say to massage it in? And finally, I have quite a few spots along my hairline at the very edge of my forehead (technically my face I guess) ... does this count as my scalp, and should I use the Bettamousse or Hydrocortisol on these? Thanks!

SunnyLucy

I've recently been prescribed two types of Dovobet by my GP; one is a gel-like substance in a large tube to be used on the body, the other is a waterier liquid in a squeezy bottle to be used on my scalp. I find the scalp one really good but the body one just makes the affected area flare up and go a really angry red colour, the flakes do disappear but I'm left with these horrible red patches that just seem to get worse and start to sting if I keep applying the gel.
I presume I'm having a negative reaction to the gel (or am I??) and so I've stopped applying it; yet I dont have any negative reaction to the scalp one which just confuses me altogether. It kills me to sit looking at this massive tube of ointment which cost me a small fortune which I now cant use.. Any ideas??

rubadub

pkde1 wrote: »

"massage the mousse into the affected areas of your scalp, and not your hair." But how do you get it onto just your scalp, not your hair?

I think they just mean do not treat it like a normal mousse and waste it by putting it in all of your hair on purpose, just try and get it mainly on the scalp. Most of these mousses and shampoos do not really hold your hair or clean it, they are topical treatments.

--LOS--

I've had this for the last 3-4 years, it is definitely stress related for me, it appears during stressful times/events. It's like a warning sign. I only really get it on my back, at the worst of times it would be widespread across my back and up around my neck and even slightly on my face. Sunshine certainly works wonders on it, I only noticed that by accident after being abroad, just a couple of days of it being exposed to the sun and it completely cleared. Ofc there is no cure as such and it's one of those things that still flares up from time to time, you just have to try to control it. When I notice it starting up again now I try to soothe it using something like aveeno shower oil. Fortunately I've never had it that terribly bad or visible.

G86

I went back to the doc yesterday and apparently it actually is eczema not psoriasis, and that it's just got infected. Mad thing is that it's not itchy or anything, just sore and looks awful! So on oral antibiotics, and a new steriod/antibiotic cream called Fucibet. She seems to think that will clear it up... Fingers crossed anyways I guess.

Gael23

I was told for years that I had exzcema and then when I went to a dermatologist 6 years ago he diagnosed me with psorasis.
In relation to appying the bettamousse, I just lightly spread it around my scalp, without vigoursly rubbing it in and kind of let it soak in.

LegacyUser

I've just started UVB therapy for widespread guttate psoriasis.

What I'm wondering is ... is there any chance of getting a tan from this? That should be the least of my concerns, I know! I'm just curious. I usually tan quite well, but haven't been out in the sunlight at all this year because of the psoriasis.

Also, how soon do people usually see an improvement? The nurse told me from two weeks onwards, would that be the usual?

jomama

Hello all.
I posted way back on March 17, 2010 ref friend who started vit b injections.
Well, she is now more about 2 years into the continued treatment, and she is free of psoriasis (all to about 5%). She is as surprised as the rest of us. It has been quite astonishing. She has continued her routine of creams and annual recommended UV dosage, but she had been doing all that for YEARS with no noticeable longterm improvement. So we are all putting it down to Vit B injections weekly.

Another astonishing effect has been with her hearing. She was almost completely deaf in one ear for 15 years, due to psoriasis and resultant infection etc. The other ear wasnt much better. However, about 2 weeks ago, OVERNIGHT, she felt a pop in both ears and has been hearing almost perfectly since. She has turned the TV volume down from 60 (max) to 24! She went to ear doc, and had whatever was left vacuumed out (apparently much more effective than flushing it out). Doc confirmed the build up was just skin etc from the psoriasis.

So she is completely won over by the Vit B injections. To anyone out there who has lost hope. Dont be put off. She suffered unbelievably for 20 years and is now almost perfect. But she has stuck with the vit b even though her doc are sceptical. It is cheap, talk to a practice nurse or GP, so why not give it a try. Apparently if you take too much, your body gets rid of it with no side effects, (although slightly flourescent yellow urine!)

Sorry for all the gorey detail, but if your case sounds anything like hers, give it a shot.
Good luck.

rubadub

I have psoriasis in my ears too. I had an ear infection a few months back and read of treating it with weak 2-3% hydrogen peroxide, I also read this is a good for cleaning ears too. Hydrogen peroxide sort of sizzles/fizzes on dead skin, it sizzles on flakes as I tried it on my scalp, and on sites talking of ear cleaning it said it would fizz in anybodys ears due to working on the wax. I put some in my ear and lie down on my side,it did fizz away for about a minute and then you hold tissue up and pour it out and out came wax and gunk. I think it is the fizzing action that loosens the wax.

My ear infection was completely gone 2 days later too. If you ear drum is torn it can be very harmful though.

Brightest Star

One of my very closest friends is pregnant (fairly unexpectedly). I was the first person she told about the pregnancy, and have met up with her a couple of times a week (as usual) ever since.

A few weeks ago, my psoriasis got really bad. I mentioned it to her. Since then, she's continuously found excuses not to meet up ... or else, just not texted me on days we've arranged to meet. Basically, she's avoiding me because of the psoriasis (there is no other possible explanation.)

I completely understand her wanting to avoid any possible source of infection, for the sake of her baby. It just really hurts, at the same time. I feel like she sees me as a leper or something.

At the same time, I'm not going to go bringing it up with her. If I did, she'd feel "shamed" into meeting up with me. And then say if, god forbid, the baby developed eczema or psorasis or another skin condition. I'd know it wasn't because of me, but she and her family would probably suspect it was.

This is more of a rant than anything, I guess. She's due in just a few weeks. I really want to be there for her and with her at this time. Feel like I'm really missing out. Not fair. :mad:

missingtime

Brightest Star wrote: »

One of my very closest friends is pregnant (fairly unexpectedly). I was the first person she told about the pregnancy, and have met up with her a couple of times a week (as usual) ever since.

A few weeks ago, my psoriasis got really bad. I mentioned it to her. Since then, she's continuously found excuses not to meet up ... or else, just not texted me on days we've arranged to meet. Basically, she's avoiding me because of the psoriasis (there is no other possible explanation.)

I completely understand her wanting to avoid any possible source of infection, for the sake of her baby. It just really hurts, at the same time. I feel like she sees me as a leper or something.

At the same time, I'm not going to go bringing it up with her. If I did, she'd feel "shamed" into meeting up with me. And then say if, god forbid, the baby developed eczema or psorasis or another skin condition. I'd know it wasn't because of me, but she and her family would probably suspect it was.

This is more of a rant than anything, I guess. She's due in just a few weeks. I really want to be there for her and with her at this time. Feel like I'm really missing out. Not fair. :mad:

I dont think that its because of the psoriasis that she cannot meet with you, I would more say its because of the pregnancy. If she's due soon then she probably has a lot on her mind - dont worry

Aside from this, has anyone here tried http://www.champori.com/psoriasis-relief.asp

Thinking about giving it a go

madma

have facial.p really only the worst place possible! have it on scalp but no as bad

really need to get something for it, i try new moisturizers all the time have used eucerin , aveeno etc all good but stopped helping it.

get a patch on forhead, around mouthetc. most of the time its not noticablr just when i get flare-up. have a flareup since friday and its sore itchy and annoying

anyone recommend anything to use for the face?

thinking f going the doc to ask for por-topic or heard silkis is good?

--LOS--

Brightest Star wrote: »

One of my very closest friends is pregnant (fairly unexpectedly). I was the first person she told about the pregnancy, and have met up with her a couple of times a week (as usual) ever since.

A few weeks ago, my psoriasis got really bad. I mentioned it to her. Since then, she's continuously found excuses not to meet up ... or else, just not texted me on days we've arranged to meet. Basically, she's avoiding me because of the psoriasis (there is no other possible explanation.)

I completely understand her wanting to avoid any possible source of infection, for the sake of her baby. It just really hurts, at the same time. I feel like she sees me as a leper or something.

At the same time, I'm not going to go bringing it up with her. If I did, she'd feel "shamed" into meeting up with me. And then say if, god forbid, the baby developed eczema or psorasis or another skin condition. I'd know it wasn't because of me, but she and her family would probably suspect it was.

This is more of a rant than anything, I guess. She's due in just a few weeks. I really want to be there for her and with her at this time. Feel like I'm really missing out. Not fair. :mad:

well that's ridiculous if that is in fact the reason she has lessened contact with you since psoriasis is non contagious!

DonFred

Just had to share this with psoriasis suffers but Kim Kardashian also suffers!!!! And also LeAnn Rimmes suffers too! It just goes to show they not perfect......

madma

DonFred wrote: »

Just had to share this with psoriasis suffers but Kim Kardashian also suffers!!!! And also LeAnn Rimmes suffers too! It just goes to show they not perfect......

yeah i seen on another forum a video smeone posted of her goin mad and balming her mam for it!

ad liam gallagher to that list.

Mountainsandh

Hey everyone, doing a course of PUVA right now, the course I had done before was the light therapy without medication (UVBs ?) so PUVA new to me.

Just wondering how rigourous were those of you who did it in wearing the sunglasses all day ?

I hate wearing sunglasses, have been wearing them most of the day, but just have to take breaks from them if I'm inside for example (I pull the curtains and no lights). Are computer screens or tellys also harmful UVA wise ? Had 3rd treatment so a good few to go, and don't want to be taking chances either, like the nurse said I'm too young to be getting cataract.

edit : apologies if I posted that in the wrong spot, thought this was a general thread on psoriasis.

twistedsoul

long time psoriasis sufferer here there is an Irish and international groups on facebook for people to chat with il add links belwow peace out :cool:

http://www.facebook.com/groups/223570877662762/ - psoriasis ireland

http://www.facebook.com/groups/2204404890/ psoriasis international

Brightest Star

I'm currently getting UVB treatment for my psoriasis, but if it doesn't work, the dermatologist wants to put me on Humira. I'm reluctant to start on this, though, because he says that even if the psoriasis clears fully, once I start taking it I'll probably have to start taking it for the rest of my life. Any experiences from anyone else who's used Humira? Particularly if you were able to go on it short-term and stop using it but still remain clear?

By the way, in earlier posts on this thread, I was trying out the Pagano diet. Just an update ... my psoriasis got much, much worse on it (but I wouldn't necessarily blame the diet - other factors such as stress were in play at the time.) At the moment, I'm following a Paleo diet rather than the Pagano one. It's definitely much easier to follow (basically high-fat low-carb rather than low-fat low-carb), and I've read a few accounts online of it helping with psoriasis. However I started the diet around the same time as I started the UVB therapy, so while my skin has improved somewhat, it's hard to say if the diet has helped at all.

twistedsoul

hey im on humira nearly 2 years only a few patches here and there its the best treatment i have ever got for p i only still get psoriasis on my face every now and again ive read if you stop taking humira psoriasis will come back gradually but you have to remember psoriasis is a condition like diabetes you have to learn to live with it so lets hope they keep coming up with new treatments :pac:

eilo1

twistedsoul wrote: »

hey im on humira nearly 2 years only a few patches here and there its the best treatment i have ever got for p i only still get psoriasis on my face every now and again ive read if you stop taking humira psoriasis will come back gradually but you have to remember psoriasis is a condition like diabetes you have to learn to live with it so lets hope they keep coming up with new treatments :pac:

Oh are you a diabetic with psoriasis?!!?

twistedsoul

no im not diabetic i was just comparing them as they are both conditions like there is no cure for them yet you can find the right treatment to manage the condition :pac:

Sykk

For anyone who hasn't successfully found something that works for them - I started using a cream called:

Dermovate Ointment 0.05%
Clobetasol Propionate

(Being specific as there's a few different ones)

My psoriasis is almost completely gone. I need to use the cream once a week but it works

-Nigel

SunnyLucy

Hi Nigel,

Is this by prescription or can it be bought over the counter? Also how much did you pay for it?

Thanks!

VW 1

lastresort wrote: »

I'm desperate.



Anyone have any experience of this? Does this actually happen in Ireland? Just how bad would you have to get hospitalised? Because the way my skin is now, I can't see how I wouldn't qualify.

Yep I have been hospitalised with psoriasis. I'm 22 now and originally got it when I was 7. It progressed to a stage where at 8 years old I couldnt move without cracking/bleeding/pain etc and was in hospital for 6 weeks. The treatment I received really helped and made things a whole lot better, but when I got out i still was on steroid creams which could only be applied to affected areas, it took almost an hour a night to apply with lollipop sticks (my mother had the patience of a saint) and then I had to put on full body bandages to stop it spreading to non-affected areas and for protection of the bedsheets! I can still smell that absolutely disgusting tar-pomade I had to sleep with in my hair every night for a year. I dont think that will ever go away!

I remained as an outpatient at Temple Street for a further 4 years after this. The thing I found most effective was UVB treatment received as an outpatient at Beaumount. I go back every 2 years, when it becomes unmanageable with creams, to the doctor to get a referral to the specialist to get reccomended for treatment with UVB light which takes around 6 months to get seen to. After that its 6 months of psoriasis free(ish) bliss until the next round of treatment.

But I would never ever want to go back through that hospitalisation again. Maybe it was so traumatic for me because I was so young but I have only horrible memories of it.

Sykk

SunnyLucy wrote: »

Hi Nigel,

Is this by prescription or can it be bought over the counter? Also how much did you pay for it?

Thanks!

It's prescription only!

I'm not sure what the price is. I get it from my mum who has a monthly prescription, she told me to try it as she has a different skin condition but it done the trick for me

Let me know if it works for you, should you decide to give it a try!

eilo1

Okay Im just gona try and find some positives about psoriasis. So I will confess that I do love picking those really big flakes that I get!

rubadub

eilo1 wrote: »

I do love picking those really big flakes that I get!

same here, I only have it on the scalp really so cannot see them and am always checking them out. Reminds me of peeling strips of sunburn off as a kid.

I have been using coconut oil as a moisturiser lately which is working OK, doesn't go as sticky as veg oil.

Dermovate Ointment 0.05%

she told me to try it as she has a different skin condition but it done the trick for m

That dermovate is very powerful stuff, you should talk to your doctor, esp. if using somebody elses prescription

http://en.wikipedia.org/wiki/Clobetasol_propionate

Clobetasol belongs to US Class I (Europe: class IV) of the corticosteroids, making it one of the most potent available. It comes in shampoo, mousse, ointment and emollient cream presentations. It has very high potency and typically should not be used with occlusive dressings, or for extended continuous use (beyond two weeks)

I think you have to be extra careful of using it on the face as I think it might permanently redden and/or thin skin. I had it for contact dermatitis on my feet, cured them almost overnight, doctor warned me to wash my hands after using it, and not touch my face.

Mountainsandh

A nugget of information I learned off the nurse yesterday at UVA treatment, it was news to me and I've had my psoriasis 20 years : smokers are more likely to get persistent psoriasis on their feet and inside the hands.
I have it on both, and was asking her about the feet since they don't get as much light during treatment, and she asked me if I was a smoker. I quit a year ago, but I guess it's just lingering.

For those thinking quitting might help though, I have to say I was fairly disappointed as regards the psoriasis, I guess I was hoping for a miracle : my hands were entirely covered the last few years, and got very sore in winter time. When I quit smoking (in summer, but hands were still covered), it did really help for 2 weeks, the inflammation went down big time, no smoke to irritate fingers I suppose. But after 2 weeks, inflammation just came and went as usual.

On feet and inside of hand I get little "bubbles" rather than flakes, and these did not receed at all when I quit. Neither did the plaques and guttate on other parts of the body.

PUVA is great though, it's a 120km return trip for me twice a week for a long time, but worth it. Fingers crossed it won't come back too quickly.

madma

anyone know if there re any prescription neeeded creams that you get over the counter in spain as going there soon?

i know stuff like inhalers can be bought but wondering about stuff like silkis, proptopic etc.. anything for the face

Lordofweld

Keep active too. I developed psoriasis on my face and scalp a few years ago and gave up the gym and football out of embarrassment really, Been using creams and shampoo,s for a while which were kinda keeping it at bay, (Remember that psoriasis can only really be controlled not cured) but since i have started back running and gyming i not only feel a lot better my psoriasis has never been as small, Sweating a bit does no harm.

cailineile

To the op re Dermovate, be very very careful, prolonged use will make your skin like paper. I've used it on and off, when my P gets very bad and it does the job for a big event, but come back 3 times as bad, but I do this knowing that will happen


Dermovate has been known to cause excessive hair growth (hypertrichosis).(like other cortisones)

I use it as I know it works but only 5 days at a time, its fairly toxic stuff( I used to actually make it).

Cailineile

eilo1

Right guys, I was back with my doctor yesterday and she prescribed dovobet and cocois. I know one of the side affects of dovobet can be blood sugar swings in diabetics.

So any other diabetics out there that have used this?!

ronan45

Mountainsandh wrote: »

A nugget of information I learned off the nurse yesterday at UVA treatment, it was news to me and I've had my psoriasis 20 years : smokers are more likely to get persistent psoriasis on their feet and inside the hands.
I have it on both, and was asking her about the feet since they don't get as much light during treatment, and she asked me if I was a smoker. I quit a year ago, but I guess it's just lingering.

For those thinking quitting might help though, I have to say I was fairly disappointed as regards the psoriasis, I guess I was hoping for a miracle : my hands were entirely covered the last few years, and got very sore in winter time. When I quit smoking (in summer, but hands were still covered), it did really help for 2 weeks, the inflammation went down big time, no smoke to irritate fingers I suppose. But after 2 weeks, inflammation just came and went as usual.

On feet and inside of hand I get little "bubbles" rather than flakes, and these did not receed at all when I quit. Neither did the plaques and guttate on other parts of the body.

PUVA is great though, it's a 120km return trip for me twice a week for a long time, but worth it. Fingers crossed it won't come back too quickly.

Hey Mountain, How are you getting on with the light treatment, Your a few weeks in now. Hoping your seeing some results now :) Keep us up to date

DonFred

Has anyone tried any new products ie shampoo, lotions etc that you think might work with psoriasis and work trying? Pass on any tips. Cheers.

Brightest Star

DonFred wrote: »

Has anyone tried any new products ie shampoo, lotions etc that you think might work with psoriasis and work trying? Pass on any tips. Cheers.

Betamousse is great for instant results with scalp psoriasis. It just melts it away immediately!

Hydrocortisol ointment does similar for small patches on your face.

Biggest improvement I've gotten was from using Ovells Emulsifying Ointment as soap substitute / moisturiser. Very cheap (otc) and a million times better than silcocks base, aqueous cream, etc. Less smelly too!

I'm currently taking vitamin d3 and milk thistle supplements, along with a multivitamin, and plenty of olive oil and flaxseed. I've also almost completely cut out nightshades, and am doing my best to avoid gluten.

Very hard to know what works, but I do know my psoriasis is better now than it has been in a long time (it was pretty horrific there for a while.) However, while its not really "active" right now, I've been left with heavy scarring/staining all over my body (recently had uvb treatment.) Looks like bruising. Anyone know if this is likely to fade?

mayobumblebee

hey all have had psoriasis from the age of three. i try not to use anything to serious. currently using eurcerin shower gel and shampoo, a bees wax cream and for the scalp i sometimes use cocois. i find its the dry heat of indoors during winter that gets me. although i get it from head to toe the knuckles is a fairly new addition and the nails also as of yet i am going through a good phase but its slowly getting worse like the weather.

anyone find a SAD light of any help. the sunbeds dont do me any favors.

Hippo

I posted on this subject on a similar thread not long ago. I had chronic psoriasis for over 30 years, every conventional treatment bounced off it; years of creams, special shampoos, steroids, all utterly useless. 2 sessions of acupuncture cured it and it has never returned. I'm no advocate of alternative therapies and I remain sceptical about acupuncture's efficacy in any other area, but it worked almost overnight. That was nearly 20 years ago, and I've still no idea how or why it worked.

brightkane

I have to ecco Hippos findings.

I have had Psoriasis and asthma since the age of 7. I am 32 now.

During my teens was covered head to tow, asthma was so bad I needed my own nebuliser.

Friends wife was doing acupuncture and needed some practice, so myself and my mate went for it. This was nealy 3 years ago.

I started off going every 2 weeks, and then going longer and longer. I havent had it in about 5 months now.

The improvement was immediate. I dont honesly know when i last put creams on and my asthma is so good now i dont even carry an inhaler with me any more.

I would say to if you havent tried it, do. It might work it might not, everyones different. I had no faith in it and went as a favour and found it to be fantastic.

Oh and I always use aloe vera on any dry skin. Even the vasaline one, and aloe vera shower gel, always found it fantastic.

fro9etb8j5qsl2

Has anyone tried using dovobet on the scalp or on the little blistery patches on the palms? I got a tube of it today to try and clear the patches under my chest and I'm tempted to try a tiny bit of it on my scalp and hands. I'm already using nizoral shampoo and its bringing some relief but not clearing the problem completely.

Also, can anybody tell me if there is a definite link between damp/mould in the environment and psoriasis? Mine used to be so light it wasn't a problem but since I moved into this damp mouldy old house, it has really flared up Moving next week thank god so hoping it might clear up quickly once I get outta here

Gael23

No I have never put dovobet on my scalp, I use bettamousse for that. It should be fine for the hands though.
I have started to get a few patches on my face and in behind my ears and started to use E45 cream on them and the results are amazing. I will be trying it on some other areas once they are less flared up. I tend to use nothing at all when its under control but im hoping by using this stuff it will be easier to keep under comtrol.

MerryLegs

Sykk wrote: »

Hey all,

So I have been to around 4 different doctors over a skin condition I've had for around a year. 2 didn't know and 2 said I have psoriasis. It's very annoying, looks bad, and has a chance of spreading...

I have it on some parts of my head and the doctor told me there is no cure for it, it's only containable.

I have done some looking up on the web about cures, and some people say it's not cureable, some say it is. I have yet to go to a dermatolisist (I've one booked) or a chinese herbalist.

Does anyone else have this skin problem? If so what are you taking for it? And does anyone know if it's actually cureable or not.

Thanks in advance.

Ive had it all my life with 90% of my body covered. Im only 18 and its so hard even when my friends are all going out I didnt want to, covering up, not being able to wear dresses etc..always long sleeves and trousers I tried every cream and herbal care in the books but nothin really worked..my doctor prescribed me steriod creams such as elecon, diprosalic, dovobet, dovonex, which are good than I moved to sunbeds which are great! Then cyclosporin tablets, which were originally used for transplant patients but they noticed patients with psoriasis were clearing up and started prescribing it. Its hard to get and your must be severe as the goverment have to approve it because its not licensed in Europe, this website http://www.dermacinz.com/page11.html is great the first special value pack is great and reviews from people on the spray are calling it a miracle. The shampoo in my opinion is fantastic! Im after finsihing my cyclosporin and I only have it now on my elbows and small spots on my lower legs, although its staring to come back. But hey I'm taking it to the grave right? Unless someone finds a cure, unlikely! But best of luck and I hope i helped

MerryLegs

DonFred wrote: »

Has anyone tried any new products ie shampoo, lotions etc that you think might work with psoriasis and work trying? Pass on any tips. Cheers.

These are fantastic! Honestly i tried EVERYTHING! These are great
http://www.dermacinz.com/page11.html

Will I Amnt

MerryLegs wrote: »

DonFred wrote: »

Has anyone tried any new products ie shampoo, lotions etc that you think might work with psoriasis and work trying? Pass on any tips. Cheers.

These are fantastic! Honestly i tried EVERYTHING! These are great
http://www.dermacinz.com/page11.html

That has got to be the worst designed website I ever had the misfortune to use

Is there any way of paying by any other means than cheque???
They state they accept credit card and paypal but there's no option at checkout.

I clicked on the pay by cheque on the off chance it led to other payment options and now it has placed an order by cheque without the usual confirmation steps most other websites have.

A total mess of a website.
I would still like to try the product but I don't use cheques at all.

LegacyUser

cambo2008 wrote: »

That has got to be the worst designed website I ever had the misfortune to use

Is there any way of paying by any other means than cheque???
They state they accept credit card and paypal but there's no option at checkout.

I clicked on the pay by cheque on the off chance it led to other payment options and now it has placed an order by cheque without the usual confirmation steps most other websites have.

A total mess of a website.
I would still like to try the product but I don't use cheques at all.

I tried Dermocinz several years ago, website was the exact same.

It had no effect whatsoever on me. And if the website has not changed at all in all these years, it really doesn't imply that business is going well ...