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Pcos

  • 23-02-2008 1:45am
    #1
    Registered Users, Registered Users 2 Posts: 1,867 ✭✭✭lorweld


    Hi all I was searching for a thread on PCOS but i can't seem to find one. Well I suffer with this illness and am interested in other womens experience in coping wit PCOS. I myself worry about infertility and would be interested in other womens experiences. I find the clinic i attend in my local hospital are very blase about my worries. I suffer with facial hair and am overweight and find it very hard to lose any. So please any other sufferers of PCOS please share your experiences worries etc.


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Comments

  • Posts: 0 [Deleted User]


    Maybe it is a good idea to post one of these in the Ladies lounge.


  • Closed Accounts Posts: 15,914 ✭✭✭✭tbh


    Op, I can move the thread if you like, just let me know. I'll say this, tho, frequently threads like this don't get replies for a while, and then seem to take off at random. Moonbaby is right tho, you may get a more immediate response in TLL, mind you the mods there might just move the thread back here. Let me know :)


  • Closed Accounts Posts: 10 LIZCFY


    Hi to all the woman out there i just wanted to find anyone who may also have pcos. I have just been told i have it and that if i dont loose 2 stone before the age of 30 (3yrs away), that i will have Diabetes. Now because of my hugh fear of needles i have stopped eating all things bad for me and started on the lipotrim diet. I'm on week three and have lost a stone. My queestion is, will the pcos go away once the weight is gone and will it ever go away? Any help will be gratfully received.
    thanks Liz
    :D


  • Closed Accounts Posts: 351 ✭✭declanoneill


    Congrats on losing the stone, keep up the good work :)

    Weight isn't the be all and end all of PCOS. Losing the weight won't change that, I assume you either are being treated or will be treated in some other way (perhaps once the weight has come down)?

    Your doctor would be better able to advice you then anyone here though.


  • Hosted Moderators Posts: 16,186 ✭✭✭✭Maple


    LIZCFY wrote: »
    Hi to all the woman out there i just wanted to find anyone who may also have pcos. I have just been told i have it and that if i dont loose 2 stone before the age of 30 (3yrs away), that i will have Diabetes. Now because of my hugh fear of needles i have stopped eating all things bad for me and started on the lipotrim diet. I'm on week three and have lost a stone. My queestion is, will the pcos go away once the weight is gone and will it ever go away? Any help will be gratfully received.
    thanks Liz
    :D

    Hi there, do doctors know anything about this condition??? :rolleyes: tossers.

    who recommended the lipotrim diet to you? you need to be on a LowGi diet for PCOS. Lipotrim diet will get rid of the weight initially but once you stop it, if you're not eating the correct foods the weight will come back and you'll be at a risk of developing diabetes.

    PCOS & weight gain comes about as a result of your hormone levels being bonkers. The weight comes about because you can't absorb sugar properly as your insulin levels are buggered and the sugar just turns to fat.

    Get yourself to your doctor and ask them to put you on Glucophage. (my doctor did this for me) It will help regulate your sugar levels. You then need to go on a lowGi diet. Get yourself to a dietician too. Supermarkets advertise foods as lowGi but often they're not. Bread is high GI, as are potatoes, breakfast cereals and other foods. You'll need to cut all these out.

    If you're on a LowGi diet, it will help regulate your hormones and you'll lose weight and start ovulating properly again. Your skin will also clear up.

    I'm in Dublin and have info on Docs/Dieticians so PM me if you need anything.

    Oh yeah, it will take a while for the weight loss to kick in on the lowGi diet but once its off it will stay off so try not to get disheartened.


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  • Closed Accounts Posts: 10 LIZCFY


    maple wrote: »
    Hi there, do doctors know anything about this condition??? :rolleyes: tossers.

    who recommended the lipotrim diet to you? you need to be on a LowGi diet for PCOS. Lipotrim diet will get rid of the weight initially but once you stop it, if you're not eating the correct foods the weight will come back and you'll be at a risk of developing diabetes.

    PCOS & weight gain comes about as a result of your hormone levels being bonkers. The weight comes about because you can't absorb sugar properly as your insulin levels are buggered and the sugar just turns to fat.

    Get yourself to your doctor and ask them to put you on Glucophage. (my doctor did this for me) It will help regulate your sugar levels. You then need to go on a lowGi diet. Get yourself to a dietician too. Supermarkets advertise foods as lowGi but often they're not. Bread is high GI, as are potatoes, breakfast cereals and other foods. You'll need to cut all these out.

    If you're on a LowGi diet, it will help regulate your hormones and you'll lose weight and start ovulating properly again. Your skin will also clear up.

    I'm in Dublin and have info on Docs/Dieticians so PM me if you need anything.

    Oh yeah, it will take a while for the weight loss to kick in on the lowGi diet but once its off it will stay off so try not to get disheartened.
    Hi Maple,
    Dont mean to sound silly but what is a lowGi diet?

    I know i will have to work hard to keep the weight off once it is gone but i think i can do it! Im doing more exersice now than ever before and will keep it up. Have made the decision to stay away from chocs, crisps and chips from here on in>

    Do you know apart from weight loss what might help in my long term efferts to avoid getting diabetes and indeed if there is any chance of me ever getting pregnant?

    I went to see a specialist in the Rotunda which is where i got told i had pcos and they said to go back once i had the weight lost.

    I'm still somewhat confused!

    Liz


  • Hosted Moderators Posts: 16,186 ✭✭✭✭Maple


    LIZCFY wrote: »
    Hi Maple,
    Dont mean to sound silly but what is a lowGi diet?

    I know i will have to work hard to keep the weight off once it is gone but i think i can do it! Im doing more exersice now than ever before and will keep it up. Have made the decision to stay away from chocs, crisps and chips from here on in>

    Do you know apart from weight loss what might help in my long term efferts to avoid getting diabetes and indeed if there is any chance of me ever getting pregnant?

    I went to see a specialist in the Rotunda which is where i got told i had pcos and they said to go back once i had the weight lost.

    I'm still somewhat confused!

    Liz
    A food is lowGi or highGi depending on how quickly they release energy from food. You need to eat low GI foods to keep your blood sugars level. You keep your blood sugar levels level and your insulin levels even out, your hormone levels even out and you lose weight and you ovulate properly.
    If you eat HighGi foods, foods which release energy quickly, your sugar levels go up, your insulin levels are affected as are your hormone levels and you gain weight and don't ovulate properly, if at all.

    And if you're not eating a Low Gi diet once you're off the Lipotrim diet, it won't really matter how much exercise you do. It might help a bit but if you're on a LowGi diet and exercising like a mad thing, you'll really notice the difference.

    In order to avoid diabetes you need to regulate your sugar levels. Cut out the sweets,chocolates, fizzy drinks, and eat a lowGi diet.

    With regard to getting pregnant, missus it varies case to case BUT i've been told by my doctor & dietician that if you follow a LowGi diet it will help to regulate your hormones and you'll ovulate properly again and fingers crossed it will work.


  • Closed Accounts Posts: 10 LIZCFY


    maple wrote: »
    A food is lowGi or highGi depending on how quickly they release energy from food. You need to eat low GI foods to keep your blood sugars level. You keep your blood sugar levels level and your insulin levels even out, your hormone levels even out and you lose weight and you ovulate properly.
    If you eat HighGi foods, foods which release energy quickly, your sugar levels go up, your insulin levels are affected as are your hormone levels and you gain weight and don't ovulate properly, if at all.

    And if you're not eating a Low Gi diet once you're off the Lipotrim diet, it won't really matter how much exercise you do. It might help a bit but if you're on a LowGi diet and exercising like a mad thing, you'll really notice the difference.

    In order to avoid diabetes you need to regulate your sugar levels. Cut out the sweets,chocolates, fizzy drinks, and eat a lowGi diet.

    With regard to getting pregnant, missus it varies case to case BUT i've been told by my doctor & dietician that if you follow a LowGi diet it will help to regulate your hormones and you'll ovulate properly again and fingers crossed it will work.
    Thanks a mill i will look into the LowGi diet and hopefully all will work out for the best.


  • Closed Accounts Posts: 5,288 ✭✭✭pow wow


    The symptoms will/may improve with weight loss (generally it's taken that they do, but occasionally they don't). There are some excellent books (and a diet book in particular) that tell you in a user-friendly way what the deal is. I was diagnosed about 6 years ago and was on glucophage for a while but it didn't help me in any way so I was taken off it. Gradually my symptoms have lessened pretty much on their own, though the fertility question is always on my mind.

    I wouldn't read too much info on the internet, I scared myself with the stuff I came up with when I was diagnosed.


  • Hosted Moderators Posts: 16,186 ✭✭✭✭Maple


    ellscurr wrote: »
    I wouldn't read too much info on the internet, I scared myself with the stuff I came up with when I was diagnosed.

    +1

    You can seriously freak yourself out by some stuff on the net.


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  • Registered Users, Registered Users 2 Posts: 1,867 ✭✭✭lorweld


    tbh yeah please do! thanks a million


  • Registered Users, Registered Users 2 Posts: 6,756 ✭✭✭Jules


    Liz,

    All i will say is listen to Maple, she gives great advice and support on this subject.

    Thanks Maple x


  • Registered Users, Registered Users 2 Posts: 180 ✭✭MLE


    My SIL has pcos and used to have a good bit of weight on her years ago ( before I knew her) she lost the excess weight and even though she still has pcos she got pregnant naturally and very quickly and is expecting in August so its not all doom and gloom.


  • Hosted Moderators Posts: 16,186 ✭✭✭✭Maple


    Jules wrote: »
    Liz,

    All i will say is listen to Maple, she gives great advice and support on this subject.

    Thanks Maple x
    Thanks Jules. :)
    MLE wrote: »
    My SIL has pcos and used to have a good bit of weight on her years ago ( before I knew her) she lost the excess weight and even though she still has pcos she got pregnant naturally and very quickly and is expecting in August so its not all doom and gloom.

    Hurrah! Thats great news.


  • Closed Accounts Posts: 15,914 ✭✭✭✭tbh


    moved from LTI. We hope you enjoyed your stay :)


  • Moderators, Society & Culture Moderators Posts: 16,698 Mod ✭✭✭✭Silverfish


    Threads merged.


  • Registered Users, Registered Users 2 Posts: 773 ✭✭✭echosound


    There's a great book on PCOS and how to help the symptoms by Collette Harris, google it and it should throw the exact title back at you (my doc thought I might have had it, but after investigations turns out I don't) - When I was researching PCOS myself, I found that book to be great in explaining it all clearly and giving very good step by step guides on what to do/what to avoid etc.


  • Closed Accounts Posts: 16 Brid2000


    Hi everyone. I was diagnosed with PCOS when I was 17. I'm 26 now. The only real symptom that I had was that I was losing my hair. My doctor did a blood test for hormone levels and a scan and she said that I had PCOS as there was an imbalance in my hormone levels. The only treatment offered was to go on Dianette. I would be interested in anyone's stories because as I said the only real symptom that I had was losing my hair. I have absolutely no problem with weight-I can eat as much as I want and don't put on any weight and I have often wondered if I was mis-diagnosed.


  • Registered Users, Registered Users 2 Posts: 382 ✭✭seaner


    +1 on the low GI Diet.
    Also you might want to look into foods that help regulate your hormones. Things like tofu, sea vegetables (seaweed) are great for regulating hormones.
    ALso i know its harder to shift weight with PCOS especially around the midriff so green tea might help you out there.
    It can help increase exercise endurance and inhibits the action of enzymes that help turn food into fat.

    Also if you're going to start on a low GI diet, make sure you get plenty of foods with the essential fatty acids in them EG avocado is great for this.
    Primrose oil can also help!
    Good luck with your endeavor anyhow.


  • Registered Users, Registered Users 2 Posts: 5 keimear


    Hi,
    I was also diagnosed with pcos nearly a year ago. TBH I think it's a lot more common than we realise. I don't have any real problems with weight but one thing I would recommend is acupuncture!!! Seriously, I was all over the place when I was first diagnosed, with bad skin on my back and eextreme moodiness. Now I have much more stable moods and my skin has cleared up really really well.
    Another thing I didn't realise is that pcos can come and go at times in your life, that's what I was told. I can't advise you about the pregnancy issue as I haven't tried for children myself but there are plenty of positive examples out there. Good luck :)


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  • Closed Accounts Posts: 16 Marbles


    Hi everyone,just new to this.. after stumbling across the discussion. i myself have pcos,was diagnosed when 18,am 20 now,was put on glucophage,unfortunately it didnt work for me, and infact my symptoms have got worse- i.e. facial hair and have piled on the pounds, or should i say stones!. i'm also finding that my skin which once was 'spot/pimpleless' has got bad.. it lll combined together get me really down, i have alot of crap days, but then again who doesnt. i feel it has really put a damper on my confidence in the last 2 yrs. :(

    are there any good docs/dietiticans out there that people have attended?? apparently there are other tablets that are supposed to be brilliant? ?


  • Registered Users, Registered Users 2 Posts: 6,649 ✭✭✭Catari Jaguar




  • Moderators Posts: 24,367 ✭✭✭✭ChewChew


    I was diagnosed with PCOS 3 months ago and started on Glucophage but I could only manage it for 6 weeks. I was soooo sick on them for the full 6 weeks. Vomitting and complete loss of appetite. Am back in the hospital on 12th May but I wont be going back onto the treatment again.

    I also have an under active thyroid so the weight issue is my biggest problem and worry. The infertility is not something that I am worrying about at the minute as I'm only 24 and not thinking down that line.

    Can anyone recommend a good dietician?? I was told to keep the carbs intake up, but I've read here a lower GI diet is better. Hmmm. Any advice???

    EDIT: also, I was wondering if you can be on the pill even though you have PCOS?? My doctor took me off it, but I never thought to ask if I could go back on!!!


  • Registered Users, Registered Users 2 Posts: 843 ✭✭✭PrettyInPunk


    Brid2000 wrote: »
    Hi everyone. I was diagnosed with PCOS when I was 17. I'm 26 now. The only real symptom that I had was that I was losing my hair. My doctor did a blood test for hormone levels and a scan and she said that I had PCOS as there was an imbalance in my hormone levels. The only treatment offered was to go on Dianette. I would be interested in anyone's stories because as I said the only real symptom that I had was losing my hair. I have absolutely no problem with weight-I can eat as much as I want and don't put on any weight and I have often wondered if I was mis-diagnosed.

    I also have been diagnosed with PCOS, was on dianette for about 8 to 10 moinths recently just came off it, going to get a second opinion on tues with a referel to go get a camera up there to have a look around to make sure i have it

    I am not overweight, went on Dianette and gained some weight but was told by my doctor that it was just overeating that Dianette should actually aid in my weight loss.

    Being on PCOS you need to try to exercise and eat healthy to keep the testosterone levels as low as possible afaik


  • Hosted Moderators Posts: 16,186 ✭✭✭✭Maple


    Lil Kitten wrote: »

    No info on lowGi diet so is basically rubbish. Advises women who don't want to get pregnant to go on the pill and even states that once you come off the pill symptoms will most likely reoccur. :rolleyes:

    Not having a go at Lil Kitten for posting the link but it just boggles the mind that so little is known about something that affects so many women.


  • Registered Users, Registered Users 2 Posts: 1,867 ✭✭✭lorweld


    Yeah Maple I agree 100%. I'm sick of the lack of information available and what is available contradicts each other. Even doctors puzzle me. Past experiences for me are unreal. On one occasion at an appointment, the consultant asked me why I was there, I replied because "I've pcos" "so you're trying to get pregnant is it" asked the doc. "no, not yet I'm here to see what treatments are available" to which he replied and I'm not joking "shur loads of women have pcos you can live with it" :confused::confused::confused: I then asked about treatments for facial hair as it was really something that was causing me alot of distress he replied "shur shave it or get it waxed":(

    Has anyone had any good experiences with their clinic?


  • Registered Users, Registered Users 2 Posts: 1,867 ✭✭✭lorweld


    ChewChew wrote: »

    EDIT: also, I was wondering if you can be on the pill even though you have PCOS?? My doctor took me off it, but I never thought to ask if I could go back on!!!

    Hi chewchew afaik yes you can go back on the pill, perhaps your gp thought you were trying to conceive. Dianette is usually prescribed for women with Pcos.


  • Hosted Moderators Posts: 16,186 ✭✭✭✭Maple


    lorweld wrote: »
    Yeah Maple I agree 100%. I'm sick of the lack of information available and what is available contradicts each other. Even doctors puzzle me. Past experiences for me are unreal. On one occasion at an appointment, the consultant asked me why I was there, I replied because "I've pcos" "so you're trying to get pregnant is it" asked the doc. "no, not yet I'm here to see what treatments are available" to which he replied and I'm not joking "shur loads of women have pcos you can live with it" :confused::confused::confused: I then asked about treatments for facial hair as it was really something that was causing me alot of distress he replied "shur shave it or get it waxed":(

    Has anyone had any good experiences with their clinic?
    :eek::eek::eek: You are kidding me?! Although the first doc I went to informed me that it was physically impossible to eat so little and exercise so much and still gain weight. Tosser thought I was a closet chomper. The second one informed me that the reason I hadn't had a period in 6 months was because my body was still regulating itself having come off the pill.

    To be honest my sister who is a midwife diagnosed me, I then went to my GP and asked to be tested for PCOS. They put me back on the pill and recommended my dietician who is superb. Any other information i've gleaned from the net.


  • Registered Users, Registered Users 2 Posts: 1,867 ✭✭✭lorweld


    No I swear! I actually kinda diagnosed myself a cousin of mine was diagnosed and it got me thinking that I probably have the same. So I went to my gp and asked for tests to be done. I honestly believe that if I hadnt done that I still wouldn't be diagnosed.

    Maple have you any good links to sites about low GI diets. I'm willing to try anything now. I've tried diets upon diets, slimming tablets, exercise and nothing in fact my weight is going up all the time. I'm very overweight now and would like to try conceive soon but I know i'll have to lose weight first. It's like a vicious circle. My dietician was of no use.


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  • Hosted Moderators Posts: 16,186 ✭✭✭✭Maple


    lorweld wrote: »
    No I swear! I actually kinda diagnosed myself a cousin of mine was diagnosed and it got me thinking that I probably have the same. So I went to my gp and asked for tests to be done. I honestly believe that if I hadnt done that I still wouldn't be diagnosed.

    Maple have you any good links to sites about low GI diets. I'm willing to try anything now. I've tried diets upon diets, slimming tablets, exercise and nothing in fact my weight is going up all the time. I'm very overweight now and would like to try conceive soon but I know i'll have to lose weight first. It's like a vicious circle. My dietician was of no use.

    I don't have any links, I've just gone to my dietician (pm'd you her details). maybe try the guys in the Nutrition & Diet forum? I've heard that G'em is great for info. I keep meaning to go in there myself.


  • Closed Accounts Posts: 16 Marbles


    o my god Iorweld thats horrible.. doctors can be so rude and usless too. .my doc told me i was "still going through puberty" (bare in mind i was 17-18, and had hit puberty at a young age anyways).. and so went to a gynachologist, but didnt feel any different ater attending her on several occasions. she took me off the pill, and then i stopped getting periods full stop. i get them ocassionally, every 6months or that..oh maple, youll be glad to know, i booked an appt with that dietician. im in the exact same boat -theres not enough info on pcos at all.. i feel i cant really talk about it to anyone, i honestly dont think my friends would understand it to the full extent... i find it embarassing to talk about also 'hi hun, do you lik my facial hair?' *sarcasm*


  • Closed Accounts Posts: 95 ✭✭Rej


    I got diagnosed with PCOS recently too. I am about 1 stone over weight, but it fluctuates by as much as 5lbs from one day to the next.
    I have joined a gym and i go about 3 times per week. But I am finding it very difficult to maintain weight loss. I have a regular gym program, with cardio, weights etc..

    Should I concentrate more on cardio to burn fat, or weights to maintain muscle?


  • Hosted Moderators Posts: 16,186 ✭✭✭✭Maple


    Rej wrote: »
    I got diagnosed with PCOS recently too. I am about 1 stone over weight, but it fluctuates by as much as 5lbs from one day to the next.
    I have joined a gym and i go about 3 times per week. But I am finding it very difficult to maintain weight loss. I have a regular gym program, with cardio, weights etc..

    Should I concentrate more on cardio to burn fat, or weights to maintain muscle?

    You need to follow a LowGi diet firstly, unless you're eating properly it will be a long hard slog with little result.

    My dietician recommended cardio.


  • Closed Accounts Posts: 1 hot_lady


    Hi Ladies, I’ve just come across this forum. I’ve was diagnosed with PCOS about 10 years ago. My periods stopped completely and my doctor at the time said that there was no need to worry that they might come back!! After about 15 months with no period I went to see a Gynaecologist, I got all the tests and PCOS was confirmed. I have suffered with pretty bad side effects over the years, hairy face, tummy, boobs, fingers , toes, ..EVERYWHERE! Severe craps, constant battle with my weight, food cravings, acne, mood swings, depression, etc. I was put on the pill (dianette) however I was taken off it a couple of years ago (after 8 years) and went back to having no periods. My doctor basically just said I’d have to deal with the consequences.

    Well after another year of no period, and generally feeling unwell, I went to a new gyne clinic in dun laoire last year, its like a women’s heath clinic that you can see a specialist without a referral. Fantastic service, there should be more of those clinics around. The doctor there is REALLY nice, very understanding, and also very knowledgeable about the condition.

    She explained to me hoe women need to have a period to keep themselve’s healthy. I was put on a short dose of hormone treatment to induce a period and then started back on the dianette. Dianette regulates a lot of the hormone problems caused by PCOS and is one of the best treatments available. I was also told that weight can be a major factor in controlling the condition, and even though PCOS suffers have weight issues if you can get it under control the severity of the condition can improve significantly.

    I would advice anyone out there too keep looking until they find a doctor that understands their condition and helps them manage it. Each person is different, but I would definitely recommend seeing a specialist if you are having difficulty getting adequate treatment from you regular GP.

    There is a website called www.soulcysters.com that’s quite informative on all side effects and treatments. They have a forum too - just beware as some of the people on there are a bit OTT with the tales of suffering.


  • Registered Users, Registered Users 2 Posts: 141 ✭✭Libby029


    Some years ago my periods stopped, and I was getting them on average about once every three-four months. I went to a very ignorant doctor who took blood tests to check for PCOS but I never returned to him as he made me extremely uncomfortable.

    Over the years my periods settled down but I have been on the pill for the last 4 years. But reading things about PCOS I do think I have it. I am extremely obese, have suffered with abnormal hair growth, and have a lot of skin tags (which I have heard can be one of the symptoms). God I sound like a monster!! But I find extremely hard to loose weight, I get the most awful cravings which makes me like a lunatic, and lately I have been suffering with PMS which I never really suffered with before. I get very emotional and angry over the smallest of things.

    What I want to know is do I need to come off the pill to be tested for PCOS, if diagnosed what steps do I have to take. ??

    Any advise would be greatly appreciated.

    Thanks


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  • Registered Users, Registered Users 2 Posts: 39 MayaMaya


    Hi ladies,

    Another new poster here.

    I was diagnosed with PCOS and an underactive thyroid 2 years ago. I did my best to lose weight and managed to shift 1 and half stone. I still need to lose another stone. I have been given no treatment whatsoever. I echo the sentiments of a Low GI diet. It's very good for controlling cravings. I am a carb MONSTER!! If I have a binge on carbs my appetite goes wild and I could literally eat and eat for hours.

    When I move back to Ireland during the summer I'd really like to try one of the treatments that you guys have tried. Does anyone have a list of the options?


  • Closed Accounts Posts: 196 ✭✭Clink


    MayaMaya wrote: »
    Hi ladies,

    Another new poster here.

    I was diagnosed with PCOS and an underactive thyroid 2 years ago. I did my best to lose weight and managed to shift 1 and half stone. I still need to lose another stone. I have been given no treatment whatsoever. I echo the sentiments of a Low GI diet. It's very good for controlling cravings. I am a carb MONSTER!! If I have a binge on carbs my appetite goes wild and I could literally eat and eat for hours.

    When I move back to Ireland during the summer I'd really like to try one of the treatments that you guys have tried. Does anyone have a list of the options?

    Edited to say that my sex drive is also zero. Poor husband. I'm only 28 and would certainly like to get that side of things awakened! Any advice? Anyone else find this with PCOS?

    x

    I would have hoped that you'd be given medication for an underactive thyroid? I've always assumed that I just had PCOS too however after I put on literally a stone in a month despite doing gym three times a week and barely smelling food let alone eating it, my sister insisted I go get tests done. I was hoping that it would come back as underactive thyroid and i'd be given a pill and all my problems would go away?!!


  • Registered Users, Registered Users 2 Posts: 39 MayaMaya


    Sorry, my bad. I should have been clearer.

    I was given medication for the underactive thyroid. Nothing for the PCOS though. I was told to come back if I was trying to conceive. Is that a common attitude from doctors? Is that how it is for PCOS sufferers, apart from a Low GI diet, nothing can be done?


  • Closed Accounts Posts: 196 ✭✭Clink


    MayaMaya wrote: »
    Sorry, my bad. I should have been clearer.

    I was given medication for the underactive thyroid. Nothing for the PCOS though. I was told to come back if I was trying to conceive. Is that a common attitude from doctors? Is that how it is for PCOS sufferers, apart from a Low GI diet, nothing can be done?

    Thanks for that MayaMaya, phew! I though that maybe they take the same attitude as with PCOS. I also think the attituce towards it is terrible, I was told by doc "ah sure you probably have it, we won't bother doing tests and sure all we can do anyway is put you on the pill". I never went back there needless to say as she seemed so dimissive.


  • Moderators Posts: 24,367 ✭✭✭✭ChewChew


    Hi ladies.. .

    I too have an under active thyroid. I was diagnosed over 3 years ago and I am on medication for this. fortunately is has the thyroid function leveled out but unfortunatley it hasnt helped the metabolism. so I also got tested for PCOS cause my periods are non existant but thats my only symthom. I dont have the hair growth etc etc. but I am now on treatment for the pcos but I only started it on monday, so I hope its going to work!!!!


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  • Registered Users, Registered Users 2 Posts: 39 MayaMaya


    Hi ChewChew,

    Happy to hear that you are being treated finally.

    What treatment did they give you for PCOS? Metformin?


  • Moderators Posts: 24,367 ✭✭✭✭ChewChew


    MayaMaya wrote: »
    Hi ChewChew,

    Happy to hear that you are being treated finally.

    What treatment did they give you for PCOS? Metformin?

    Thanx maya,

    I was on metformin for a trial of 3 months, but could only handle it for 6 weeks. completely lost my appetite and i wasvery ill from it. couldnt keep any food down. so am now on a new one.


  • Registered Users, Registered Users 2 Posts: 39 MayaMaya


    Keep us updated on how the new medication works out for you.
    I'm looking forward to my move home to Ireland and maybe finally getting some treatment

    I'm wishing you well ;)


  • Registered Users, Registered Users 2 Posts: 386 ✭✭Irishshin


    Just came across this thread now.
    I never ever ever had a regular period but it took me until 2003 to actually go and check it out (fear of needles) My regular doctor sent me for an ultrasound, they found nothing my regular doc told me I should lose some weight and go back to him.

    I was not happy with that, went and found me a female doctor who was very nice, took the dreaded bloods and found my testosterone was high so she sent me to an Endo.

    Had to spend 4 days in hospital (loads of bloods, urine collection (they thought I had something else that I cannot remember the name of & vaginal ultrasound). Finally diagnosed in 2004. My endo wanted to put me on the pill but I had done so much PCOS research I knew this is not what I wanted. I suggested Metformin and he put me on that.

    Best thing ever. I started in May 04 and had my first period in July and they were regular for a year before I decided I wanted to go on the pill.
    Chose Yasmin, then moved to Nuvaring.

    Came off Metformin in 06 and Nuvaring in 07 (personnal choice for both) and my periods became irregular yet again. Since then I haven't had a regular one.

    I went back on the Metformin in 07 as I wasn't happy but my periods still arent regular. Stopped Metformin again a few weeks ago but tomorrow I am starting it again. I think Metformin is the right thing for me. The reason I stopped both times was because of food. I had the side effect where it would turn me off certain things and make me feel sick. It was getting so bad I just stopped the Met. I am going back on it though, cos I think it is the best thing for me.


    I am going back to my Endo at the end of the month. I know she wants me to start Dianette. But I don't want to go on the pill. I want to have my periods back again without the pill. My gp said the pill the period it produces isn't a real one.



    I have the excess hair, I hate it so much. I have laser treatment on my face for it. Which is working thankfully. I've tried them all, bleaching, waxing & electrolysis. The laser works but is so expensive!

    My weight, I have been trying so hard for years and years. It is very very frustrating but I keep trying.

    Anyways sorry for the book!


  • Registered Users, Registered Users 2 Posts: 1,859 ✭✭✭m'lady


    Jumping in after reading all the thread, can I ask is the a link between pcos and an underactive thyroid? just seems to be a good few in here saying they have both? or is it coincidence?


  • Registered Users, Subscribers, Registered Users 2 Posts: 47,352 ✭✭✭✭Zaph


    **** Public Service Announcement ***

    Remember folks that this is not a medical thread and no medical advice can be given. If you're worried about something in particular you should consult your GP.

    Please carry on...


  • Closed Accounts Posts: 10 bondgirl


    Hi, I just came across this thread and thought I would join in. I have PCOS diagnosed 8 years ago and was put on dianette. Came off it a year and a half ago as was having problems with it. Was sent to see endocroligist who put me on metformin. I am on a low gi diet and have lost weight. My hormone levels have come down and I have regular 28/29 day cycles. Best thing ever was being put on metformin


  • Closed Accounts Posts: 95 ✭✭Rej


    Hi all,

    I joined this list earlier on this year after being diagnosed with PCOS, for health reasons I came off the pill after taking it for about 8 years and I wanted to give my body a break. After coming off the pill I didnt have a period for almost 6 months so my doctor at the time sent me to see an endocrinologist who confirmed the diagnosis. As I wasnt looking to have a baby at the time I was put back on the pill and all was grand.

    However, due to my job, I have spent a lot of time travelling in the later part of this year, and my pill ran out in while I was away. I wasnt too worried about it because I was convinced that I had a pretty bad case of PCOS.

    I have been feeling a bit out of sorts the last week or so, and I went to my family GP (different one that the one that diagnosed me), and found out that Im pregnant!! He reckons im about 6 weeks pregnant.

    So that dates back to a couple of weeks after I ran out of my pill at the end of october. My husband and I had thought that we would have difficulty getting pregnant, so are shocked but over the moon!!

    The only things that have changed since my original diagnosis, is I lost about half a stone and as I had been so busy, I stopped worrying about it.

    Anyway, the reason im posting this here on this thread is to give some of you who have recently been diagnosed with PCOS some hope...


  • Registered Users, Registered Users 2 Posts: 1,867 ✭✭✭lorweld


    Rej wrote: »
    Hi all,

    I joined this list earlier on this year after being diagnosed with PCOS, for health reasons I came off the pill after taking it for about 8 years and I wanted to give my body a break. After coming off the pill I didnt have a period for almost 6 months so my doctor at the time sent me to see an endocrinologist who confirmed the diagnosis. As I wasnt looking to have a baby at the time I was put back on the pill and all was grand.

    However, due to my job, I have spent a lot of time travelling in the later part of this year, and my pill ran out in while I was away. I wasnt too worried about it because I was convinced that I had a pretty bad case of PCOS.

    I have been feeling a bit out of sorts the last week or so, and I went to my family GP (different one that the one that diagnosed me), and found out that Im pregnant!! He reckons im about 6 weeks pregnant.

    So that dates back to a couple of weeks after I ran out of my pill at the end of october. My husband and I had thought that we would have difficulty getting pregnant, so are shocked but over the moon!!

    The only things that have changed since my original diagnosis, is I lost about half a stone and as I had been so busy, I stopped worrying about it.

    Anyway, the reason im posting this here on this thread is to give some of you who have recently been diagnosed with PCOS some hope...

    Oh thats brill news congrats!!!!!!!:) Best of luck!


  • Registered Users, Registered Users 2 Posts: 386 ✭✭Irishshin


    That is excellent news :)
    Congratulations!


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