Tinnitus relief

Am giving this thread a bump in case anyone has or is trying Lenire. Am plagued by constant tinnitus for 7 months now and nothing has tamed it. Am trying acupuncture at the moment but anyone who claims its worked for them all say it takes quite a while.:(

I researched it a few months ago and decided against it. The general consensus was it's expected and not much good.

My tinnitus is in one ear and is horrendous.

Treppen wrote: »

It appears to me to be a CBT service to retain your brain to ignore the sound (like white noise solutions).

Had anyone found certain foods trigger their tinnitus or make it worse?

I've heard of the B12 or magnesium supplements alright but reluctant to go that route.

Maybe this is worthy of a new thread.

I tried magnesium, and it spiked mine. But there are several different magnesium supplements so it might be trial and error. My tinnitus was caused by ototoxic drugs.
Salt, sugar, aspartame, msg, stress, alcohol, dehydration spikes mine. I have been good the last few days, and it is lowish. Never goes away though. I find waking up in the morning, and eee is the worst for me.
I've tried CBD oil, no effect.

I've been working on Lenire for a while now, trying to get them to be covered by Laya. Haven't had much luck myself. As CJmasgrande points out, it is expensive. You're looking at about €2,000. The rub for laya is that this is an appliance.


Characters in my story:
Thomas Daly - Laya customer service, very helpful
Lorraine Harte - Lenire customer service, also very helpful
Dr. Brendan Conlon - ENT in the Hermitage and James's who was part of the team who came up with Neuromod.

Laya review new treatments and appliances every few months to see if there's anything new coming up. Lenire published this: https://stm.sciencemag.org/content/12/564/eabb2830.full?ijkey=husCUTOHbbe0I&keytype=ref&siteid=scitransmed
This is their published research. Laya use an old form with a filename from the days of Bupa Ireland (remember them?) called the "new benefit recognition form". It's about as lumpy and cumbersome as forms can get. 18 sections, 7 pages long. I think Lenire who give out could be forgiven for baulking at the prospect of trying to go near it. I gave it a go, but I'll be a while waiting yet to get Dr. Conlon to sign off on it. Something tells me he might not be too keen.

Doctor Brendan Conlon (mentioned at the top of that research paper there) is a consultant ENT in the hermitage where he runs a company called audico who do hearing assessments. My own plan is to go see him privately in August. Got the GP bit done, appointment booked for the end of August. The hope is that if he prescribes it, Laya will cover it. Audico runs out of suite 24 in the Hermitage. Lenire Neuromod is suite 36, so just upstairs really.

The goal here is to get this covered under private health insurance and then recognised by the HSE. I know, I can half hear you laughing, but when you've been fighting MS for 11 years and more, this is the type of thing you do to keep well.


In terms of immediate relief and short term alleviation, the first thing I usually try is this: https://www.youtube.com/watch?v=2yDCox-qKbk
Beyond that, I've got a good orthopath. The nutritional angle is a good shout, but what you're more likely looking at is something in your ethmoid bone or your TMJ.

I've read a few paragraphs of the research paper so I'd know how it works. It's pretty clever really, though it has to be surmised that there must be a larger variety of tinnitus types and pathologies than previously thought. PM me as needed, I'd be happy to help

The Lenire product "seems" to be tuned audio into the ear(s) and some kind of electro-stimulant applied somewhere around the tongue.

If anyone knows I'm wrong with this, please correct me.

Treppen wrote: »

What is Lenire specifically though.
Is it a CBT to retrain your brain to ignore the tinnitus?

Specifically, Lenire is a company that made a gadget they call the Neuromod. The Neuromod is a pair of bluetooth headphones for your ears and a trigeminal nerve stimulator that goes in your mouth. The combination of the two is supposed to help modulate you away from the tinnitus.

Have a look at the Tinnitus section on the website "Stuff that Works". Lots of people posting about symptoms, medications, diet and other stuff that impacts on their tinnitus.

I think it is about alleviating the symptoms. A low noise day is heaven compared to a high or even medium noise day. Today for me a medium noise day.....yesterday a low noise day....

I have managed to improve my own situation to a fair degree, even if there's no complete cure.

First of all all, there's a guy called Dr Ben Thompson on YouTube who is an American audiologist and tinnitus sufferer. He discusses various things to manage and reduce tinnitus that I also found very helpful. There's also a number of YouTube channels that have various prerecordings for tinnitus sufferers and I have found listening to "Art of Zen" in the headphones to be excellent at taking tinnitus spikes down.

Without a doubt, the single best thing I did was double the amount of water I drink and reduce salt intake as much as possible. Within a few days the tinnitus difference was very noticeable and sustained to moderate degree, and is now nowhere near as bad since.

Perhaps the biggest nugget to crack is the impact of stress on tinnitus. Most people I spoke to with it say their jobs or lives are stressful, and t there is little they can do to reduce that. But they do notice a clear correlation between being under pressure and the intensity of tinnitus. I'd be curious to see if others here are in the same situation?

Has anyone tried this?

My poor old father is a big sufferer of Tinnitus

Has it for around 10 years at this point

I'm currently looking at going down the Lenire route with him, has anyone tried it?

Alot of money but if it helps him it'd be a small price to pay

Did you go to an audiologist specialising in tinnitus for the hearing aid?

I have tinnitus about a year now. It's mild. I'm still very cautious around loud noises. I'm getting fitted with custom ear plugs next week. Some bars, and restaurants blast music to an uncomfortable level.

Do you guys take the precautions around noise?