Tinnitus relief

Treppen

So ads have been cropping up because I've been searching.
Seems like a lot of money (I'm not too bothered by the tinnitus yet).
Anyone any testimonials, although I presume if it worked for you , you wouldn't be in this thread.

Mod: the ads mentioned are for Lenire

AndrewJRenko

Also interested in this

PukkaStukka

Am giving this thread a bump in case anyone has or is trying Lenire. Am plagued by constant tinnitus for 7 months now and nothing has tamed it. Am trying acupuncture at the moment but anyone who claims its worked for them all say it takes quite a while.:(

Meeoow

PukkaStukka wrote: »

Am giving this thread a bump in case anyone has or is trying Lenire. Am plagued by constant tinnitus for 7 months now and nothing has tamed it. Am trying acupuncture at the moment but anyone who claims its worked for them all say it takes quite a while.:(

There is a Facebook group, 1st lenire group/tinnitus. A few people on there testing it. Jury still out for me. It seems to come back to some. I don't think it's as good as first made out.

CJmasgrande

I researched it a few months ago and decided against it. The general consensus was it's expected and not much good.

My tinnitus is in one ear and is horrendous.

Treppen

Meeoow wrote: »

There is a Facebook group, 1st lenire group/tinnitus. A few people on there testing it. Jury still out for me. It seems to come back to some. I don't think it's as good as first made out.

It appears to me to be a CBT service to retain your brain to ignore the sound (like white noise solutions).

Had anyone found certain foods trigger their tinnitus or make it worse?

I've heard of the B12 or magnesium supplements alright but reluctant to go that route.

Maybe this is worthy of a new thread.

Meeoow

Treppen wrote: »

It appears to me to be a CBT service to retain your brain to ignore the sound (like white noise solutions).

Had anyone found certain foods trigger their tinnitus or make it worse?

I've heard of the B12 or magnesium supplements alright but reluctant to go that route.

Maybe this is worthy of a new thread.

I tried magnesium, and it spiked mine. But there are several different magnesium supplements so it might be trial and error. My tinnitus was caused by ototoxic drugs.
Salt, sugar, aspartame, msg, stress, alcohol, dehydration spikes mine. I have been good the last few days, and it is lowish. Never goes away though. I find waking up in the morning, and eee is the worst for me.
I've tried CBD oil, no effect.

Treppen

Meeoow wrote: »

I tried magnesium, and it spiked mine. But there are several different magnesium supplements so it might be trial and error. My tinnitus was caused by ototoxic drugs.
Salt, sugar, aspartame, msg, stress, alcohol, dehydration spikes mine. I have been good the last few days, and it is lowish. Never goes away though. I find waking up in the morning, and eee is the worst for me.
I've tried CBD oil, no effect.

Interesting, I've been taking omeprazole(for acid reflux) for the last 3 years before tinnitus/deafness took hold.

But yes I've found too much of the following:
caffeine, salt , sugar, mature cheeses, whiskeys/spirits, IPAs all make it go crazy loud.

I don't know if it's connected but a good few years ago (bout 20) I was starting to get wooly in the same ear, went traveling which involved a lot of sea swimming and a week long diving course. It cleared right up and I thought nothing more of it until it came back about 7 years later. Mainly due to working a few jobs and stress etc. Went away again once I got a handle on my job and cut down on coffee.
But back again with a vengeance 2 years ago.


If only I could lounge around Thailand Island hopping and diving for another year again I'm sure I could cure it!

Anyone ever tried hyperbaric chamber, think there's one in Dublin?

Shtanto

I've been working on Lenire for a while now, trying to get them to be covered by Laya. Haven't had much luck myself. As CJmasgrande points out, it is expensive. You're looking at about €2,000. The rub for laya is that this is an appliance.


Characters in my story:
Thomas Daly - Laya customer service, very helpful
Lorraine Harte - Lenire customer service, also very helpful
Dr. Brendan Conlon - ENT in the Hermitage and James's who was part of the team who came up with Neuromod.

Laya review new treatments and appliances every few months to see if there's anything new coming up. Lenire published this: https://stm.sciencemag.org/content/12/564/eabb2830.full?ijkey=husCUTOHbbe0I&keytype=ref&siteid=scitransmed
This is their published research. Laya use an old form with a filename from the days of Bupa Ireland (remember them?) called the "new benefit recognition form". It's about as lumpy and cumbersome as forms can get. 18 sections, 7 pages long. I think Lenire who give out could be forgiven for baulking at the prospect of trying to go near it. I gave it a go, but I'll be a while waiting yet to get Dr. Conlon to sign off on it. Something tells me he might not be too keen.

Doctor Brendan Conlon (mentioned at the top of that research paper there) is a consultant ENT in the hermitage where he runs a company called audico who do hearing assessments. My own plan is to go see him privately in August. Got the GP bit done, appointment booked for the end of August. The hope is that if he prescribes it, Laya will cover it. Audico runs out of suite 24 in the Hermitage. Lenire Neuromod is suite 36, so just upstairs really.

The goal here is to get this covered under private health insurance and then recognised by the HSE. I know, I can half hear you laughing, but when you've been fighting MS for 11 years and more, this is the type of thing you do to keep well.


In terms of immediate relief and short term alleviation, the first thing I usually try is this: https://www.youtube.com/watch?v=2yDCox-qKbk
Beyond that, I've got a good orthopath. The nutritional angle is a good shout, but what you're more likely looking at is something in your ethmoid bone or your TMJ.

I've read a few paragraphs of the research paper so I'd know how it works. It's pretty clever really, though it has to be surmised that there must be a larger variety of tinnitus types and pathologies than previously thought. PM me as needed, I'd be happy to help

Treppen

What is Lenire specifically though.
Is it a CBT to retrain your brain to ignore the tinnitus?

PukkaStukka

The Lenire product "seems" to be tuned audio into the ear(s) and some kind of electro-stimulant applied somewhere around the tongue.

If anyone knows I'm wrong with this, please correct me.

Meeoow

There was a webinar by lenire a few months ago. They emailed it to me afterwards. If you contact them, they will mail it to you. Bernard Conlon and the others explain how it works.

Shtanto

Treppen wrote: »

What is Lenire specifically though.
Is it a CBT to retrain your brain to ignore the tinnitus?

Specifically, Lenire is a company that made a gadget they call the Neuromod. The Neuromod is a pair of bluetooth headphones for your ears and a trigeminal nerve stimulator that goes in your mouth. The combination of the two is supposed to help modulate you away from the tinnitus.

IrishHomer

Shtanto,

Any updates please?

I'm sending you a pm

Living Off The Splash

Have a look at the Tinnitus section on the website "Stuff that Works". Lots of people posting about symptoms, medications, diet and other stuff that impacts on their tinnitus.

Treppen

https://www.boards.ie/discussion/comment/118812575#Comment_118812575

I regularly check in on the posts there, nothing really substantive works, diet and lifestyle changes sure do seem to alleviate it.

The electric pulse thing isn't really a cure , it just retrains your brain to ignore the sound so it's not as loud, similar to any CBT ... and it's dam expensive.

Others mention ototoxicity after taking other medication as a cause.

I suppose everyone's condition is unique to them.

Living Off The Splash

I think it is about alleviating the symptoms. A low noise day is heaven compared to a high or even medium noise day. Today for me a medium noise day.....yesterday a low noise day....

Treppen

Have you identified any triggers?

PukkaStukka

I have managed to improve my own situation to a fair degree, even if there's no complete cure.

First of all all, there's a guy called Dr Ben Thompson on YouTube who is an American audiologist and tinnitus sufferer. He discusses various things to manage and reduce tinnitus that I also found very helpful. There's also a number of YouTube channels that have various prerecordings for tinnitus sufferers and I have found listening to "Art of Zen" in the headphones to be excellent at taking tinnitus spikes down.

Without a doubt, the single best thing I did was double the amount of water I drink and reduce salt intake as much as possible. Within a few days the tinnitus difference was very noticeable and sustained to moderate degree, and is now nowhere near as bad since.

Perhaps the biggest nugget to crack is the impact of stress on tinnitus. Most people I spoke to with it say their jobs or lives are stressful, and t there is little they can do to reduce that. But they do notice a clear correlation between being under pressure and the intensity of tinnitus. I'd be curious to see if others here are in the same situation?

Treppen

I notice the stuffthatworks have published the insights from data received yesterday.

https://www.stuffthatworks.health/tinnitus/insights%20%20%20%20.

Seems like stress/high blood pressure are factors alright.

I'm surprised they didn't show which ear people find most effected.

Some of the 'relatively' best treatments people have found are through medication . But the drug listed was a treatment for anxiety which maybe reduced stress.... or made you care less about the noise🤣.

AndrewJRenko

Has anyone tried this?

https://twitter.com/otologiecare/status/1481257356860272642?s=21

Quitelife

I got very severe tinnitus as a result of an incident with an alarm about 15 years ago- for the first year i nearly mad with it before i ended up buying 2 hearing aid type pieces that i slot in my ears that play white noise . i wore them for about 6 months and it brought my tinnitus from a 9/10 problem to a 2 or 3/10.

I occasionally pop them in for a few days here and there to suppress the tinnitus if ever i get a flare up, they weren't cheap ie 3K but they've brought my life back to normal and its great to have them mentally if ever the tinnitus starts to become an issue.

I gave up smoking which also was a big help, anxiety is the other thing i try to avoid in so far as possible which makes it worse.

Treppen

Stress, coffee, sugar, alcohol, cheese, nuts for me. It's only in one ear though.

looksee

I normally have loud tinnitus, in spite of hearing aids. I just noticed when I saw this thread that it is very quiet today. I wonder what the difference is?

Headshot

My poor old father is a big sufferer of Tinnitus

Has it for around 10 years at this point

I'm currently looking at going down the Lenire route with him, has anyone tried it?

Alot of money but if it helps him it'd be a small price to pay

Living Off The Splash

https://www.boards.ie/discussion/comment/118829681#Comment_118829681

The left side of my head has the hiss. This can be low, medium or high. On the right side it is more in my ear....sound like a jar full of bees. This is always at the same pitch.

Dingaan

https://www.boards.ie/discussion/comment/118829402#Comment_118829402

Did you go to an audiologist specialising in tinnitus for the hearing aid?

I have tinnitus about a year now. It's mild. I'm still very cautious around loud noises. I'm getting fitted with custom ear plugs next week. Some bars, and restaurants blast music to an uncomfortable level.

Do you guys take the precautions around noise?

looksee

Seeing this thread again I have just realised my tinnitus has gone - for the moment. I didn't notice when it happened as I can ignore it a lot of the time, then I realise it is loud again. Always previously if it is mentioned I am aware that it is there, but not at the moment. I haven't made any recent lifestyle changes, though I have not had caffeine in over 6 months.

Treppen

Restaurants and gatherings are hell for me. I work in a school too so both staff room , corridors, assemblies and classrooms can be unbearable at times.

I don't really take any precautions, just try and avoid conversations or say "what?" a lot 😭

Dingaan

Any idea what caused yours?

I'm sure mine was caused by headphone use.

For relief, I play some nature sounds while sleeping. Mine is easy to ignore if I'm in a room with background noise. I also keep hydrated and try to eat reasonably well.

Treppen

https://www.boards.ie/discussion/comment/118966995#Comment_118966995

I think it was a combination of many things and tied up with hearing loss. Its weird though as about 20 years ago my hearing was going in the same ear after a cold, I did a week long diving course and a lot of swimming whilst traveling around beaches abroad. Cleared up completely and I forgot all about it until about 10 years ago it returned and gradually got worse.

I probably had excellent diet and exercise during traveling too.

TL;Dr I need at least 6 months in Thailand swimming and diving every day.

Read somewhere also that it can be a side effect of some medications, I'm on omeprazole so I wonder has that caused it (or aggregated it).

Has anyone ever tried hyperbaric chambers?

Quitelife

https://www.boards.ie/discussion/comment/118965851#Comment_118965851

What i ended up with getting was noise masking devices for my ears which make white sound. Brought the Tnnitus from a 9 out of ten issue to 3 out of ten, only use them now when it flares up.

Certain noises aggravate me like plates banging or a referees whistle ..would kick it off, thinking should i wear ear plus going to matchs.

I found tinnitus has made be quite anti social as i avoid pubs , loud venues over it.

Treppen

https://www.boards.ie/discussion/comment/118967742#Comment_118967742

Ya there was a dementia doctor on radio a while back saying that lack of social simulation and brain stimulation from deafness and tinnitus accelerated dementia.

Does anyone here have deafness with tinnitus?

For me I sometimes wear a hearing aid but high frequencies are crazy (birds singing is noisy). Must get it calibrated.

Quitelife

Yea I’m as good as deaf in the ear with tinnitus. I had an incident with an alarm about 20 years ago . The other ear is fine but it does the hearing for two ears and is probably over sensitive to certain sounds as a result which is a different issue .

don’t like the story about dementia been more common for people with deafness or tinnitus issues !

Dingaan

https://www.boards.ie/discussion/comment/118969198#Comment_118969198

Because people with tinnitus are more likely to isolate socially than the general population?

I get the occasional bout of fleeting tinnitus too. It seems to be pretty common but it's pretty scary when it happens. I hate it!

sweetie

https://www.boards.ie/discussion/comment/118966995#Comment_118966995

I've had a good few years now in my right ear. Took a while to get my head around it but it's not too bad now. I went to a lot of gigs and djed for years and despite wearing ear protection (cheap) it must have caused it. About 7 years ago I got custom made ear protection (-30db) and I can still go out and enjoy live music thankfully. I've noticed my hearing has degraded also though. Following a conversation in a busy area like a pub is difficult. That's getting old I guess although I'm only 45 next month. I find it worse when I'm tired or when there's been a trigger like loud music etc. Can't always remember to bring the ear plugs everywhere. I've cut down alcohol a lot since the pandemic started and that maybe a factor in my improvement? I reckon I'm currently about 2/10 and long may it continue. Wishing ye all the best in your treatment.

Treppen

https://www.boards.ie/discussion/comment/118972890#Comment_118972890

I think she said it was the lack of brain stimulation from sound in one ear which had adverse effects overall. Basically wear a hearing aid if you have one.

Treppen

https://www.boards.ie/discussion/comment/118975101#Comment_118975101

Never tried the white noise . I gave up on white noise after someone telling me it would help my kids sleep when they were babies (it didn't)

Quitelife

https://www.boards.ie/discussion/comment/118975101#Comment_118975101

I wore white noise device like hearing aid in my ear for 6 months and now wear occasionally when it flares up.

It does help greatly.

Treppen

https://www.boards.ie/discussion/comment/118979921#Comment_118979921

Yup have tinnitus in one ear. Not as emotionally bothered as other people , but he'll when it comes to working with musicians (Im a musician on occasion).

looksee

I am breaking the rules a little bit here as I have posted this link in the sleep apnoea thread also. However it may be of interest

https://www.dpag.ox.ac.uk/news/a-role-of-sleep-in-tinnitus-identified-for-the-first-time

I do get the impression that the title should be 'role of tinnitus in sleep' rather than the other way round. Its a bit too technical for me to give a precis of it but its relevance to tinnitus makes it worth at least a look.

nickkohl

I learnt to live with my tinnitus

phelixoflaherty

Came across this on Twitter

https://twitter.com/tainkirrahe/status/1565376431709880322?t=0dUWqkVxL1Tg4KD2Q3NOzg&s=19

Treppen

Ya this is an old one. I think it just distracts your brain like. CBT , but hey if it works , fair enough. Didn't work for me though.

Nigzcurran

I just tried it and no joy either unfortunately! Had a ct scan last week on the very small chance they can spot something that’s causing mine, will report back once I get the results

Frankie1048576

Hi folks,

I have approx 90% deafness in both ear. I don't hear high pitch noises and low pitch drowns out speech. Subtitles needed to watch tv, etc.

I have the opportunity to get cochlear implants but, after reading about them on a few medical sites, I have a couple of concerns.

1. I may lose any residual hearing that I have and will therefore become totally reliant on the implants.
2. The distortion of the implants may mean that I won't be able to hear music correctly any more. This would be a major issue for me!
3. They won't help with my tinnitus.

I would like to hear from anyone who may have already gone through the procedure and how it affected you. It's one thing to hear the medical advice from specialists but it would be better to hear from people with actual knowledge and experience of the procedure.

I thank you in advance for your help.