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Tinnitus relief

Treppen

So ads have been cropping up because I've been searching.
Seems like a lot of money (I'm not too bothered by the tinnitus yet).
Anyone any testimonials, although I presume if it worked for you , you wouldn't be in this thread.

Mod: the ads mentioned are for Lenire

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Treppen

https://www.boards.ie/discussion/comment/118812575#Comment_118812575

I regularly check in on the posts there, nothing really substantive works, diet and lifestyle changes sure do seem to alleviate it.

The electric pulse thing isn't really a cure , it just retrains your brain to ignore the sound so it's not as loud, similar to any CBT ... and it's dam expensive.

Others mention ototoxicity after taking other medication as a cause.

I suppose everyone's condition is unique to them.

Living Off The Splash

Have a look at the Tinnitus section on the website "Stuff that Works". Lots of people posting about symptoms, medications, diet and other stuff that impacts on their tinnitus.

IrishHomer

Shtanto,

Any updates please?

I'm sending you a pm

Shtanto

Treppen wrote: »

What is Lenire specifically though.
Is it a CBT to retrain your brain to ignore the tinnitus?

Specifically, Lenire is a company that made a gadget they call the Neuromod. The Neuromod is a pair of bluetooth headphones for your ears and a trigeminal nerve stimulator that goes in your mouth. The combination of the two is supposed to help modulate you away from the tinnitus.

Meeoow

There was a webinar by lenire a few months ago. They emailed it to me afterwards. If you contact them, they will mail it to you. Bernard Conlon and the others explain how it works.

PukkaStukka

The Lenire product "seems" to be tuned audio into the ear(s) and some kind of electro-stimulant applied somewhere around the tongue.

If anyone knows I'm wrong with this, please correct me.

Treppen

What is Lenire specifically though.
Is it a CBT to retrain your brain to ignore the tinnitus?

Shtanto

I've been working on Lenire for a while now, trying to get them to be covered by Laya. Haven't had much luck myself. As CJmasgrande points out, it is expensive. You're looking at about €2,000. The rub for laya is that this is an appliance.

Characters in my story:
Thomas Daly - Laya customer service, very helpful
Lorraine Harte - Lenire customer service, also very helpful
Dr. Brendan Conlon - ENT in the Hermitage and James's who was part of the team who came up with Neuromod.

Laya review new treatments and appliances every few months to see if there's anything new coming up. Lenire published this: https://stm.sciencemag.org/content/12/564/eabb2830.full?ijkey=husCUTOHbbe0I&keytype=ref&siteid=scitransmed
This is their published research. Laya use an old form with a filename from the days of Bupa Ireland (remember them?) called the "new benefit recognition form". It's about as lumpy and cumbersome as forms can get. 18 sections, 7 pages long. I think Lenire who give out could be forgiven for baulking at the prospect of trying to go near it. I gave it a go, but I'll be a while waiting yet to get Dr. Conlon to sign off on it. Something tells me he might not be too keen.

Doctor Brendan Conlon (mentioned at the top of that research paper there) is a consultant ENT in the hermitage where he runs a company called audico who do hearing assessments. My own plan is to go see him privately in August. Got the GP bit done, appointment booked for the end of August. The hope is that if he prescribes it, Laya will cover it. Audico runs out of suite 24 in the Hermitage. Lenire Neuromod is suite 36, so just upstairs really.

The goal here is to get this covered under private health insurance and then recognised by the HSE. I know, I can half hear you laughing, but when you've been fighting MS for 11 years and more, this is the type of thing you do to keep well.

In terms of immediate relief and short term alleviation, the first thing I usually try is this: https://www.youtube.com/watch?v=2yDCox-qKbk
Beyond that, I've got a good orthopath. The nutritional angle is a good shout, but what you're more likely looking at is something in your ethmoid bone or your TMJ.

I've read a few paragraphs of the research paper so I'd know how it works. It's pretty clever really, though it has to be surmised that there must be a larger variety of tinnitus types and pathologies than previously thought. PM me as needed, I'd be happy to help

Treppen

Meeoow wrote: »

I tried magnesium, and it spiked mine. But there are several different magnesium supplements so it might be trial and error. My tinnitus was caused by ototoxic drugs.
Salt, sugar, aspartame, msg, stress, alcohol, dehydration spikes mine. I have been good the last few days, and it is lowish. Never goes away though. I find waking up in the morning, and eee is the worst for me.
I've tried CBD oil, no effect.

Interesting, I've been taking omeprazole(for acid reflux) for the last 3 years before tinnitus/deafness took hold.

But yes I've found too much of the following:
caffeine, salt , sugar, mature cheeses, whiskeys/spirits, IPAs all make it go crazy loud.

I don't know if it's connected but a good few years ago (bout 20) I was starting to get wooly in the same ear, went traveling which involved a lot of sea swimming and a week long diving course. It cleared right up and I thought nothing more of it until it came back about 7 years later. Mainly due to working a few jobs and stress etc. Went away again once I got a handle on my job and cut down on coffee.
But back again with a vengeance 2 years ago.

If only I could lounge around Thailand Island hopping and diving for another year again I'm sure I could cure it!

Anyone ever tried hyperbaric chamber, think there's one in Dublin?

Meeoow

Treppen wrote: »

It appears to me to be a CBT service to retain your brain to ignore the sound (like white noise solutions).

Had anyone found certain foods trigger their tinnitus or make it worse?

I've heard of the B12 or magnesium supplements alright but reluctant to go that route.

Maybe this is worthy of a new thread.

I tried magnesium, and it spiked mine. But there are several different magnesium supplements so it might be trial and error. My tinnitus was caused by ototoxic drugs.
Salt, sugar, aspartame, msg, stress, alcohol, dehydration spikes mine. I have been good the last few days, and it is lowish. Never goes away though. I find waking up in the morning, and eee is the worst for me.
I've tried CBD oil, no effect.

Treppen

Meeoow wrote: »

There is a Facebook group, 1st lenire group/tinnitus. A few people on there testing it. Jury still out for me. It seems to come back to some. I don't think it's as good as first made out.

It appears to me to be a CBT service to retain your brain to ignore the sound (like white noise solutions).

Had anyone found certain foods trigger their tinnitus or make it worse?

I've heard of the B12 or magnesium supplements alright but reluctant to go that route.

Maybe this is worthy of a new thread.

CJmasgrande

I researched it a few months ago and decided against it. The general consensus was it's expected and not much good.

My tinnitus is in one ear and is horrendous.

Meeoow

PukkaStukka wrote: »

Am giving this thread a bump in case anyone has or is trying Lenire. Am plagued by constant tinnitus for 7 months now and nothing has tamed it. Am trying acupuncture at the moment but anyone who claims its worked for them all say it takes quite a while.:(

There is a Facebook group, 1st lenire group/tinnitus. A few people on there testing it. Jury still out for me. It seems to come back to some. I don't think it's as good as first made out.

PukkaStukka

Am giving this thread a bump in case anyone has or is trying Lenire. Am plagued by constant tinnitus for 7 months now and nothing has tamed it. Am trying acupuncture at the moment but anyone who claims its worked for them all say it takes quite a while.:(

[Deleted User]

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