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Baby girl born with no face :'(

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Comments

  • Registered Users, Registered Users 2 Posts: 45,643 ✭✭✭✭Mr.Nice Guy


    nesf wrote:
    *raises an eyebrow*

    There are far worse cases, this one is getting plenty of (deserved) support because her case is "newsworthy". The vast majority of cases don't get this kind of attention.

    Spare a moment for all the parents of children born mentally or physically disabled who don't get very little support and money to help them take care of their child. Who have to try and get their child schooling even though there are only a bare handful of specialist schools in the country and a lot of these people do not live in urban areas where facilities are common and easy to reach.

    I acknowledge that there are plenty of people out there who have children with special needs. It doesn't take away from the fact that these parents are very strong people though. Clearly it is affecting them emotionally but they're staying strong despite that. They have my respect for that. It shows they have plenty of character.


  • Closed Accounts Posts: 83 ✭✭Skip


    nesf wrote:
    "Human Interest" stories make me sick sometimes. Exploiting someone's misfortune to boost ratings and entertain people under the cover of "fund raising" does not sit well with me.

    Yeah, though disgusting as it is, media attention may have some good effects on the family's budget too.

    Either way, it's horrible, and sarcasm has its limits for me.

    Btw, the flesh eating thingy may be there in you all, booo, it just doesn't eat you cause your immune system's strong enough, be proud of yerselves :D


  • Registered Users, Registered Users 2 Posts: 3,968 ✭✭✭jcoote


    the poor kid...i'm lookin at that vid in work and there is no sound on this pc...how did it happen..can she eat ..talk???


  • Closed Accounts Posts: 631 ✭✭✭Glipmac


    i am at college cannot view vid story sounds sad though i feel sorry for everyone in the family not just the parents :(


  • Registered Users, Registered Users 2 Posts: 37,310 ✭✭✭✭the_syco


    lomb wrote:
    well well agree to disagree on that one. here is someone after numerous surgeries http://www.treachercollins.org/main.html
    Looks pretty OK to me. A bit disfigured, true, but she can function normally enough. She can walk, swim, and goto school.
    I think it's cruel to let a child so unbelievably disfigured be put through the torture of dozens and dozens of operations, (I'm no surgeon but I wouldnt have thought stretching a tiny baby's jawbone over a period of months would be without á lot of pain) knowing full well that she will probably die in a few years with health problems. It's obviously a devastating situation for the parents but they should have made the tough decision and put the kid out of her misery when they had the chance.
    In Nazi Germany, anyone with a abnormal part, or gene, was sterilised. Even one of their own scientists. Everyone. It wasn't untill the 1990's that he found out that the gene he had was a "fluke" and couldn't be passed on. If you start to "pick and mix" on who lives or dies, where do you stop? The nose, the jaw, or that she'll have his eyes? And thats even before you take into account any "abnormalities".

    Sure, the girls gene was, and can be passed on through her family, but 1 in 10,000 means that quite alot of people have it as well.


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  • Closed Accounts Posts: 134 ✭✭JimboPope


    I'm going to hell, but f*ck it, I hear its more fun down there anyway.


  • Registered Users, Registered Users 2 Posts: 731 ✭✭✭dwayneburke


    This thread should be locked its a bit distastful as far as im concerned!!

    Even though i watched the vid (I seriously did think it was a joke vid for a while) tis bloody unfortunate for the kid


  • Moderators, Science, Health & Environment Moderators, Social & Fun Moderators, Society & Culture Moderators Posts: 60,119 Mod ✭✭✭✭Tar.Aldarion


    :(


  • Registered Users, Registered Users 2 Posts: 413 ✭✭Eyespy


    gazza22 wrote:
    Actually reminds me of a programme that i saw once, about a man that got one of those flesh eating virus'. His face was caving it and he was left with two choices; die or have his face taken away. So he had his whole face taken away, with a big pit there after the op. The virus didn't spread, it was only confined to the facial tissue and he went on to lead to a grand life. He got a prosthetic face...but it was mighty scary looking :eek:

    I saw a segment on Ripley's Believe it or not about a man like that. Apparently he inhaled some mould spores or something I'm not sure what but his face was destroyed and as gazza22 said it left a huge pit there. The only thing was they were able to make a prosthetic face because he was an adult and his skull was properly formed. Also the fact that he has a strong support network around him helped him make a relatively normal life for himself.

    I didn't get to see the little girl but Heaven help her and her family. What truly awful things happen to people.


  • Registered Users, Registered Users 2, Paid Member Posts: 21,377 ✭✭✭✭Stark


    The Syco wrote:
    Piste wrote:
    When they said she had to be fed through her stomach- how does that work?
    Before you were born, you were fed through there as well. Proberly the same process, with a special diet.

    Actually babies get their umbilical cord nutrients through direct blood exchange with the placenta. No foodstuffs actually pass into the stomach.

    In the child's case, they'd actually have to pump food directly into her stomach somehow. Blood exchange wouldn't work, as when blood is pumped through machinery (as goes on in open heart surgery), the blood's antibodies become activated on contact with foreign material and are then pumped straight back into the body where they attack some of the body's own cells. One of the reasons why open heart surgery is so dangerous, I've heard of doctor's choosing to slow the patient's metabolism with ice rather than use the machine.


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  • Registered Users, Registered Users 2 Posts: 11,389 ✭✭✭✭Saruman


    That sucks, the little girl seems to cope pretty well though and so far has had a loving family and a good life. Thats more than a lot of children in the world can claim. So while people should feel sympathy..just remember there are plenty more children (millions) that dont have loving families nor any form of food to speak of.

    Hopefully some day she will have a more or less decent face. Etc... it is hard to reconstruct bone structure as she is growing but when she is older, assuming she lives then it should be easier. Hope its not so traumatic a childhood in the end that she is scarred for life emotionally and not just physically


  • Closed Accounts Posts: 9,846 ✭✭✭Le Rack


    wow, scary stuff....
    The poor girl though, its so scary, anyone know if they'll ever be able to entirely reconstruct her face or even to some extent?


  • Registered Users, Registered Users 2 Posts: 5,645 ✭✭✭Shrimp


    This post has been deleted.
    oh yeah, u feel really sorry.. ;)


  • Registered Users, Registered Users 2 Posts: 7,498 ✭✭✭quarryman


    Originally Posted by Sarky
    Instead of actually looking at the picture, I'll content myself with wondering if she'll grow up to be a poker player.


    so after looking at the picture/ video i'm sure you feel like a sick fukstick now?

    a generally nasty piece of work. a lot less than sarky anyway.

    later my friend.


  • Registered Users, Registered Users 2 Posts: 4,767 ✭✭✭Infini


    Thats quite sad. At least the kid is lucky enough to be born in a time when they can actually repair her skull at least to a decent level.


  • Registered Users, Registered Users 2 Posts: 7,659 ✭✭✭Shabadu


    I think the parents should be commended for raising such a loving and funny little girl. She was only 20 mths old there and teasing the fathers friend by shaking her head no when he was nodding and saying yes. That's very developed for a young toddler. What a sweetheart. I hope her quality of life doesn't disintigrate after/if she gets older and becomes more self-aware.


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