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[Diabetes] General Chat and Support Thread

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Comments

  • Registered Users, Registered Users 2 Posts: 290 ✭✭hello2020


    Thanks but it only appears to be for medical card holders ?



  • Registered Users, Registered Users 2 Posts: 6,186 ✭✭✭jeffk


    Sorry I just assumed you'd have one with having diabetes.

    You could ask citizens information or the doctor.

    I did a Google and know you can get a long term illness booklet alright.



  • Registered Users, Registered Users 2 Posts: 20,007 ✭✭✭✭kippy


    Great to hear the Ozem is having a very positive effect on you. I was on it for a while a couple of years ago and the initial results were very good as the dosage started but as I got closer to the high and eventually dose I started to experience significant gastric issues, not pretty or comfortable. I came off it and haven't tried it again although at last appointment they had suggested starting me on the low dose again and perhaps remaining there. I am not sure whether to give that ago after last time although I was able tolerate those lower doses.

    Hope all continues to work for you and others that are on it.



  • Registered Users, Registered Users 2 Posts: 2,207 ✭✭✭leche solara




  • Registered Users, Registered Users 2 Posts: 290 ✭✭hello2020


    Thanks...sad that only option for non medical card holders is to pay 100+ euro to renew prescription:(



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  • Registered Users, Registered Users 2 Posts: 19,337 ✭✭✭✭banie01


    Thanks, TBH, I am blown away by the effect it's had for me.
    I went from needing 60iu as a basal in Feb, to not needing a basal dose at all since June 12th.

    My time in range has slipped a little bit but only because I'm lain up in recovery after spinal cord stimulator implant surgery.
    Even saying it's "slipped" feels like an exaggeration though.
    My 90 day TIR has dropped from 92% for Jun-Aug to 89% for Aug - To date.

    Increasing my basal insulin had the added effect of weight just sticking to me.
    Ozempic has brought me back down to a BMI of 23.5 too.



  • Registered Users, Registered Users 2 Posts: 19,337 ✭✭✭✭banie01


    Apply for a medical card and include your diagnosis and any other relevant info.
    The likelihood is you will be approved for at least a GP visit card.
    I know in my own experience that I was granted a full medical card despite being over income limits.



  • Registered Users, Registered Users 2 Posts: 348 ✭✭Donutz


    I was added to the waiting list for an insulin pump at UHL today. I didn't know they started doing pumps for adults there. Anybody have any idea how long I might be waiting?



  • Registered Users, Registered Users 2 Posts: 14,788 ✭✭✭✭LambshankRedemption


    Can I ask, what were people's first signs or indicators that something was wrong?



  • Registered Users, Registered Users 2 Posts: 805 ✭✭✭glen123


    My fit and healthy (or so we thought) husband who doesn’t drink or smoke got diagnosed with type 2 last December. His only sin was a pastry or a chocolate every day otherwise salads, fruit, cooking from fresh.


    It all started in the summer of 2024 with him being constantly tired in the afternoon and needing a nap at around 3-4pm. He did work a lot physically in the mornings so we thought it was warm weather and age of 54 getting to him. Also drinking loads of fluids during the day and waking up during the night 2-3 times to pass urine. Cutting down on fluids during the evening helped with his night issues but then he suddenly got a horrendous throat infection in Aug and his neck doubled in size. I have never seen anything as bad. He went to an out of hours GP, got antibiotics and it went away a week later but he was just not back to normal after that - some rash appeared on the body which was itchy…Canisten cleared it. But he was still tired ..Also some sand like sensation in his mouth….Ok in general but tired, still thirsty during cold months of November at which point I said we were going to GP for a general check up (he had not been to one in many many years as he had never needed an antibiotic ever once - so healthy he had been!)


    When GP did a test his glucose was 17! Off to the hospital but all other tests were fine. Currently on Metformin 1000mg and eating really healthy and his average is really good. GP and his consultant are very happy with him but he has been taking it really seriously. Sometimes I wonder if he is enjoying having something to work for with all his evening walks and testing himself or reading food labels :)



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  • Registered Users, Registered Users 2 Posts: 6,186 ✭✭✭jeffk


    Pins and needles in my baby toe and off i went

    Also probably didnt help my ma and most of her side had it

    Or if your a doctor its because my BMI is xyz, I should be this that other weight for my height, but then soon stop when I say about 30km cycles or hiked most of the Wicklow mountains



  • Registered Users, Registered Users 2 Posts: 1,159 ✭✭✭Rulmeq


    I started drinking a lot more during the day, got tired and took naps in the afternoon, and would wake up in the middle of the night to pee. Then driving home one day noticed that I was struggling to see the road signs (just went totally blurry). Went to the GP and she sent me to the ED. They did a blood glucose, it was 20 (HbA1C was 95 I think - but they could be using different units now).



  • Registered Users, Registered Users 2 Posts: 14,772 ✭✭✭✭TheValeyard


    Didn't know the forum existed!

    My son was diagnosed T1D early this year. Only symptoms were drinking excessive water and drenched in sweat at night.

    Got him checked out, just had a niggling feeling, so he had a great time in Crumlin since he never got sick.

    Got the Tslim couple months ago, been a game changer.

    Using the carbs n cals all to help calculate food.

    Other than that, he's been amazing about it. A young lad still hanging with his mates, playing sports and causing mischief.

    No history of T1D in either side of the family.

    Looks like I picked the wrong week to quit sniffing glue



  • Registered Users, Registered Users 2 Posts: 1,000 ✭✭✭Xofpod


    It can be a real shock when first diagnosed and different periods of adjustment are needed by everyone, but it is manageable and there are definitely worse conditions you could be diagnosed with. Sounds like your son is coping well though. If he's into sport, it's worth mentioning Jake O'Brien (Ireland/Everton footballer) to him as a positive example - young, T1 diagnosis, but able to incorporate it successfully into the lifestyle and demands of an elite-level athlete. I saw him playing in an Ireland game and had to do a double-take when I saw the CGM on his arm. Now, if only he didn't play for Everton, he'd be the perfect role model…



  • Registered Users, Registered Users 2 Posts: 1,000 ✭✭✭Xofpod


    Thirst, very frequent urination, weight loss, general weakness, irritation and rash on certain extremities. For me, it was slightly masked by another condition (acute appendicitis) but in retrospect, the signs were clear. If in any doubt, get it checked out by the GP with a simple blood sugar test.

    Also, don't put if off - you'll only get sicker and the end destination is the same anyway



  • Registered Users, Registered Users 2 Posts: 805 ✭✭✭glen123


    Zverev (tennis world no 3) is type 1. I was shocked when I found out. 5 setter especially in a warm climate is extremely draining and he is Grand Slam finalist which is even more impressive.



  • Registered Users, Registered Users 2 Posts: 488 ✭✭Romero


    Not sure if anyone on here is using the Dexcom G6 but it's stopped being manufactured July next year. I moved to the G7 a few years back no major issues.



  • Moderators, Sports Moderators Posts: 27,056 Mod ✭✭✭✭CramCycle


    Anyone have any issues with the G7 in the cold. Last two times I was out at bike races in cold weather it simply stopped working. Effectively 5 degrees weather. Might be nothing and Dexcom are replacing but just wondering does cold have an effect?



  • Registered Users, Registered Users 2 Posts: 19,337 ✭✭✭✭banie01


    I use G7 but I'm not as active as yourself and especially not in inclement or cold weather 🤔
    The last couple of months I've found the G7 to be very reliable after an awful run of failed sensors in August/Sept.



  • Moderators, Sports Moderators Posts: 27,056 Mod ✭✭✭✭CramCycle


    I returned 3 in one go. They are good at replacements but I learned to stockpile failed ones, write on top of the injector why they failed and the date and then ring in when it was going to cause me to exceed my annual prescription. While they are good 90+% of the time, 10% is still alot. A sudden bump to the arm, now the cold, all easy to do.



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  • Registered Users, Registered Users 2 Posts: 488 ✭✭Romero


    I have had about 4 G7's fail for the filament not inserting and bulging out of the hole on the top of the sensor. I had two back to back failures just before Christmas, turns out from the same batch. I did contact Dexcom and offer to return them but they said it was ok and sent me two replacements out.



  • Registered Users, Registered Users 2 Posts: 19,337 ✭✭✭✭banie01


    That was the fault mode for 4 of the 6 that failed on me in Aug/Sept.
    The ones that failed that way for me, were all from the same Lot/Batch number too.



  • Registered Users, Registered Users 2 Posts: 348 ✭✭Donutz


    Hi all. I'm finally starting on the road to getting an insulin pump. Just wondering what peoples experiences with the different pumps are as I'm not sure which pump to choose.

    At the moment I am on the list for the tslim but I'm worried about the limit of 100 units per day. At the moment I could hit 85 units some days between my basal and bolus doses. I have definately went over 100 a number of times in the last year.

    The dietitian didnt seem too concerned though as she said that insulin use goes down when you switch to a pump. Still though I'm tempted to ring and ask to switch to the ypso before its too late.

    Any opinions or advice would be greatly appreciated.



  • Moderators, Sports Moderators Posts: 27,056 Mod ✭✭✭✭CramCycle


    Our insulin usage will go down unless you are an extreme outlier. i never knew or have ever heard of a limit per day unless you set it. Are you sure it isn't that a cartridge can hold 300u and they typically last 3 days. I am sure but not 100% confident I have exceeded 100U before.

    Positives of the T slim:

    • easy to use
    • slim
    • multiple profiles if you change what you do regularly
    • Sleep control is pretty tight
    • USB rechargeable (this was actually something I never thought of and it, for me, was one of the biggest benefits)

    Negatives:

    • the CGM and regulation appears, after talking to Medtronic users, to be delayed and responds not quite as sharply as Medtronic, so you do still have to be fairly on point with control even with the closed loop (anecdoetal, and fromother people so may not be true)
    • You can only turn off delivery for an hour before it starts beeping
    • You cannot silence alarms even if you know why the alarm is going off and have dealt with it. Fine during the day but at night they need a time delay

    I don't know the YPSO as I haven't used it but a quick read up, I would pick the Medtronic or Tslim over the YPSO on the basis of not having to have a smartphone app, no issue with that but the fact that you are tied to your phone for some of the benefits seems like a negative.

    I'll probably go back to Medtronic next time but happy with the Tslim as a whole



  • Registered Users, Registered Users 2 Posts: 348 ✭✭Donutz


    Thank you so much for your reply.

    The multiple profiles is definately the selling point for me. My only major concern was the 100 unit per day limit but I assume it was just a typo in the liturature that the hospital had given me.

    They showed me the 3 pumps and the medtronic was fairly big compared to the other 2. The ypso is the smallest and a great deal smaller than the medtronic but like you said, the fact that you need a smartphone at all times is a major drawback.



  • Registered Users, Registered Users 2 Posts: 1,000 ✭✭✭Xofpod


    I saw some chat here a while back about failed G7 sensors but has anyone experienced difficulties recently with the Dexcom One+? In the last three months I've had two fail straight out of the dispenser/applicator, another one or two completely stop working during their 10 day lifespan, and numerous others with repeated (temporary) signal failure. Initially I let it go but I have zero stockpile and at one point had to revert to my old glucometer for 3 days so I finally complained to Dexcom. On-line process is fairly useless and I got an email requesting I call them to provide more detail. The phone line service is pretty good though and they're sending me out 2 replacements immediately (I only reported two as those were the only ones I had serial numbers to hand for).



  • Registered Users, Registered Users 2 Posts: 1,000 ✭✭✭Xofpod


    As it happens I was at my diabetic clinic during the week and they said that it's been a very common problem with the One+ in recent months. Apparently they changed the technology or materials in the sensor and have experienced a huge level of product failure. Their guess is that they'll revert to the original specs very soon but in the meantime, the clinic advised anyone experiencing problems to report it to Dexcom straight away and get replacements sent out. Dexcom are no longer requiring faulty products to be sent back; they seem very aware of the extent of the problem.



  • Registered Users, Registered Users 2 Posts: 1,000 ✭✭✭Xofpod


    Finally, while I'm at it, was told that my long-acting insulin Levemir is being discontinued this year. Shouldn't be too much of an issue as there are apparently several like-for-like direct swaps available, but getting them in penfills rather than disposable pens may be a problem. Just a heads-up for people who use Levemir.



  • Registered Users, Registered Users 2 Posts: 488 ✭✭Romero


    Hey I started on the Tslim last July and I'm a fairly heavy user on Insulin I would say my 300 unit cartridge I change every 2 days. So no way I'm limited to 100 units per day. I take it your probably doing the DAFNE course first for the counting carbs ? I use the carbs and cals app and the only big issue with dosing before a big meal is that you can only dose yourself 25 units at a time but just means you can add a second and third dose if you need.

    I did my own research on pumps and went with the Tslim x2 as it works well with the G7. The Medtronic uses tmits own proprietary CGM and is supposed to be very flakey but they have a new sensor coming out apparently.

    I do find i have to work out my carbs and dose myself around 45 minutes before my meal and that means you need to be very disciplined.

    The profiles are good as you can experiment with ratios to see what works best for you and plus you have the sleep and activity modes.

    Any questions you might have let us know 🙂



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  • Registered Users, Registered Users 2 Posts: 6,186 ✭✭✭jeffk


    I know first off I am lucky to get discounted medicine, but is there an guideline of what type 2 diabetics do/dont get for "free"

    I mean free as no 1.50 charge, I pay it for vitamin tablets, but this month I have gotten extra blood pressure medicine and suddenly being asked too pay another 3 on top

    Again I know im lucky to have such a small charge, but just curious and the chemist is an old fashioned small chemist and would be asking the owner so it does be akward

    Thanks



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