MS in all its glory

my leg cramps and restlessness legs has certainly eased with the cooler temps.

My brain fog and focus is becoming a bigger issue, especially with work. I’m managing at the moment but thinking longer term, I thankfully have good income protection thru work. Have others been able to reduce hours and get some payment thru income protection? Or is it a case of all or nothing? I don’t want to completely stop working but feeling the added stress isn’t helping my over all health.

Recently had a brain MRI and no change to any lesions, thankfully 🤞. Long may it continue.

Hopefully everyone is ok and surviving out there :)

Hi everyone, I'm wondering does anyone here have experience with managing ms during pregnancy? This is part question, part whinge....tl:dr anyone with experience of treatment during pregnancy I would be so grateful if you could tell me what you were on and all ok.

Was anyone allowed to go on interferon/copaxone while trying to conceive? Or were you on tysabri or ocrevus and how was it? I was happy out on fingolimod for years but came off over a year ago to try to conceive (clearly it's not going well but that's another story). At the time I had asked about switching to interferon or copaxone as I was afraid of a rebound with coming off gilenya, but I was told I couldn't go on those. I don't remember at the time, I may have been offered tysabri instead, I'm not sure, but either way I ended up on nothing.

I had an MRI in August last year which showed new activity and I had realised when they told me about it at my appointment in February that it was possible that some numbness I had to put down to a leg injury may have been a symptom. When discussing options with me they suggested tysabri or ocrevus. I'm aware these are brilliant, safe, effective medications.

However, I had hoped this wouldn't be long term and that I could go back to fingolimod after all this and I'm afraid if I go onto one of those I won't be able to. I'm also worried about going on something that should ideally be for a short time until I'm pregnant (and so would not offer much benefit to me) that would not be ideal for pregnancy, given ms activity is reduced during pregnancy anyway. I'd be so much happier with something that's been around a long time (without wanting to resort to cider vinegar!). The reality is because of my age I really only have a little over a year to try anyway before I have to accept it's not happening. In the longer term I'm sure I'll be delighted to have those treatments available to me.

Hi, I did try famprya a few years ago but it did nothing for me then. I was alot better then I am now though. Lots of people say great things about it. Only thing is the not eating 1 hour before and after taking it,no real side effects. I'm sure there is people here who might give you better answers. A group on Facebook may help you.

I went ahead and started taking Fampyra last Thursday. I was worried about some of the side effects that I had been warned about but nothing so far. Hopefully I will see some improvement in my walking

was at my neurologist today, I’m really battling with fatigue. She has prescribed Provigal. Does anyone have any experience with effectiveness and side effects? Thanks

Warm weather is back early this year. Much too hot for me, my limited walking is alot worse. Few months of this will be tough. Legs feel like concrete blocks on them

how did you get on? I had a lumbar puncture yesterday I have symptoms ever since the v too

Good to know it's working for you and has improved the fatigue. It's something I may have a look at getting prescribed from neuro.

Hope everyone is as well and strong as can be. Happy (? Probably the wrong word but ) happy world ms day 💪

I've been on gilynea last few years with no issues thankfully - however its patent expired and my pharmacist has advised that I will now be getting the generic as original - anyone any issues if they have moved already. I know they the same etc but you know way the mind plays tricks !!