LittlemsSkelly wrote: »
Hello to the both of you,
Thank you @nedsgarden, even my neuro was a bit worried when I didn't get upset by the diagnosis, but on the scale of things, it's pretty low down. Good luck with your results whenever you get them, if you ever need a pep talk hit me up :cool: When do you expect your results? Is it looking like a positive diagnosis?
barrackali have you had any recent MRI's to check for more lesions??? I suppose you've been through the ringer with regards to all the injections / chemo etc? Christ can't even imagine. I'm grand, not a bother and I can guarantee you if I so much as picked up a golf club I would somehow smash myself in the head with it so at least you're going strong there.:D What did your neuro say when you decided to stop treatment? Did you start off as Relapse Remitting, and did you have any of the symptoms you have now originally? If I'm over stepping, please don't hesitate in telling me to shut my gob!
My mam cried (as mammy's do) when she heard about the MS and the first thing I said is 'well, at least if I end up in a wheel chair I can get a nice pink sparkly vanity plate'. Needless to say she was not amused....
I have thus far only told my parents, sisters, fiance, and best friend. I have a wonderful extended family and a fabulous group of friends. I know they would all be amazing, and incredibly supportive, but I feel sick at the thought of telling them this. How did the rest of you break the news to people? How did ye tell employers? I feel like I should be open about it all, because the secrecy is harder, but once it's out, it's out.
I definitely think that the more open about MS people are, the less terrifying it would be to be faced with it. I am not ashamed of it, and I am under enough stress as it is, without the extra tension caused by keeping secrets. I am gonna wait until my neurologist appointment next week, but after that, I think I will just be open about it.
My mammy also cried when I told her it was a possibility. And so I ended up comforting her, when it should have been the other way around. I think one of the emotions I am finding difficult is guilt. I know it is nonsensical, but I feel guilty for stressing Mammy out, guilty because this isn't what my fiance signed up for, guilty because I am going to be worrying a lot of people...
I am young, my symptoms are slight, I am reasonably healthy in every other regard, I work for a company who I know will do their best to accomodate me in the future, and as already mentioned, I am surrounded by amazing people in my life, and I am so grateful. It is not that I would wish it on anyone else, but I kinda don't get why it has to be me!
I might just need a bit of a slap, to be honest. I am making myself out to be an awful whinge on this thread, but I am really a very positive person, I swear!
gronemeyer wrote: »
I got diagnosed with ms when I was 22 now pushing 27.
Took me a while to get around this whole thing. What I find helps if i'm stiff or loosing balance is bacalfen (as it I find relaxes the muscles), it also helps stop shakes or spasims if I anybody gets either when its cold or damp.
And what I can say to anybody who has been recently diagnosed and is thinking or feeling down because of it don't/try not let it beat you. At 22 I was on a walking stick and could barley walk 20 yards without needing a break (my first attack was quite bad I let it continue for weeks before I seen a doctor and after I did sink into a pit for months as people thought I only hurt my back because I was bottling stuff up, but when I was honest about it to people who didn't know I was shocked at how much support and help I got), since then i've learnt to walk 'freestyle' if you could call it that? I've done a lot of travelling and recently i've started playing contact sport again.
I do have plenty related problems still , but I try not let them beat me or dominate how and what I want to do in life.
You will have your low moments don't get me wrong(and i've had plenty and still do), just try keep as positive as possible.
Fighting Irish wrote: »
I was diagnosed in Sep 08, at that time i had vertigo(dixxyness when i leaned my head backwards) and blurred vision in one eye, i went into hos for 5 days to get IV steroids. I have been taking copaxone ever since, my last mri showed and increase of one more white dot on my brain. I'm doing fine at the moment, my balance is a little dodge but nothing i can't handle.
Anyone have CCSVI done?
LittlemsSkelly wrote: »
I can PM you the names of the 3 neurologists I have seen ( 1 private,2 public ) and I can honestly say, the level of competency and professionalism I received from each has been outstanding.
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