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MS in all its glory

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Comments

  • #3202
    tohaltuwi
    Registered Users, Registered Users 2 Posts: 2,493 ✭✭✭tohaltuwi


    https://www.boards.ie/discussion/comment/122436313#Comment_122436313
    https://www.boards.ie/discussion/comment/122436313#Comment_122436313

    I’m on Gapentin specifically for the Restless Limb Syndrome which was intense and keeping me awake night after night, I take it in evening ahead of bed, it works very well, 300mg. I take Baclofen for the widespread muscle spasms, but of course chemist has run out, I’m supposed to be on 3 a day but 2 really did the job most of the time. I’m just having to do with less as supplies remain short.

    My biggest concern these times especially is the recurrent pneumonia.



  • #3203
    tohaltuwi
    Registered Users, Registered Users 2 Posts: 2,493 ✭✭✭tohaltuwi


    Had an interesting meeting with consultant, who couldn’t have been more empathetic. Hasn’t altogether ruled out treatment but explained very well why for the present he is holding it off. As things stand presently I would succumb to cancer or sepsis for a very toxic drug that has marginal efficacy in Progressive MS. Be put it way more nicely that that. However there’s the respiratory consult to see, also back to the surgeon.



  • #3204
    gamerguy1
    Registered Users Posts: 90 ✭✭gamerguy1


    Foot cramp and spasm for the last few months, baclofen doesn't do anything for it. A good massage on it with tennis ball is helping more. This humid warm weather is the cause of it I think.



  • #3205
    cj maxx
    Registered Users, Registered Users 2 Posts: 14,717 ✭✭✭✭cj maxx


    https://www.boards.ie/discussion/comment/122470491#Comment_122470491

    I had that a month ago. Baclofen helped with leg cramps but not with the foot ones . It seems to be heat/ humidity related



  • #3206
    cj maxx
    Registered Users, Registered Users 2 Posts: 14,717 ✭✭✭✭cj maxx


    Finally relaxing after a fall . 2 seconds to fall over and 10 minutes to get back up .



  • #3207
    cj maxx
    Registered Users, Registered Users 2 Posts: 14,717 ✭✭✭✭cj maxx


    Back in my chair . 15 minutes trying to get on my feet after a fall



  • #3208
    gamerguy1
    Registered Users Posts: 90 ✭✭gamerguy1


    It does take ages to get back up for me too if you have a fall. Totally takes all your energy struggling to get back on a chair. I just make sure I don't fall.



  • #3209
    cj maxx
    Registered Users, Registered Users 2 Posts: 14,717 ✭✭✭✭cj maxx


    https://www.boards.ie/discussion/comment/122569716#Comment_122569716

    Thing is whatever about tripping when I walk , I find myself having to grab doors /walls or anything just standing still .



  • #3210
    gamerguy1
    Registered Users Posts: 90 ✭✭gamerguy1


    Furniture walking I call it, it's something ive been done for 10 years no matter whose house I'm in. I use rollator now and don't have to worry about that. Should get yourself to a physio and get that falling sorted before something is broken.



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  • #3211
    cj maxx
    Registered Users, Registered Users 2 Posts: 14,717 ✭✭✭✭cj maxx


    Has anyone here got the shingles vaccine . I rang my GP practice yesterday and they were supposed to ring me back to see if I qualified by being immuno suppressed .



  • #3212
    cj maxx
    Registered Users, Registered Users 2 Posts: 14,717 ✭✭✭✭cj maxx


    Not fit to do anything today .



  • #3213
    gamerguy1
    Registered Users Posts: 90 ✭✭gamerguy1


    Same as you. This warm weather is lovely but my legs hate it. Not able to do anything



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