Advertisement
If you have a new account but are having problems posting or verifying your account, please email us on hello@boards.ie for help. Thanks :)
Hello all! Please ensure that you are posting a new thread or question in the appropriate forum. The Feedback forum is overwhelmed with questions that are having to be moved elsewhere. If you need help to verify your account contact hello@boards.ie

[Diabetes] General Chat and Support Thread

Options
1153154156158159171

Comments

  • Registered Users Posts: 16,570 ✭✭✭✭banie01


    Mark, you are wrong.

    There is no injection for Retinopathy screening, none nor is there an alternative screening test where some might get injected.

    Retinopathy once diagnosed, is initially treated with injections and they do carry risk.

    However, noone attended a retinopathy screening clinic in Ireland is injected as part of the screening.

    Your contribution to this thread, has been to spout BS, you've added nothing accurate or helpful and to those newly diagnosed, letting your utter nonsense stand unchallenged would cause already stressed and worried people more stress and worry.

    As for your usually ignoring posts of my type? Feel free, I get the impression it's not the 1st time someone has called out bullshít you've posted and it certainly won't be the last.



  • Moderators, Business & Finance Moderators, Sports Moderators Posts: 14,863 Mod ✭✭✭✭whiterebel


    It does no-one any good spreading mis-information like this. I wouldn't have gone for screening if anyone had mentioned the merest possibility of injections



  • Registered Users Posts: 40,281 ✭✭✭✭ohnonotgmail


    I had my retina screening today and I can confirm that no injections were involved.



  • Moderators, Science, Health & Environment Moderators, Social & Fun Moderators, Regional West Moderators Posts: 59,867 Mod ✭✭✭✭Gremlinertia


    @markmoto Please take a break from the Long Term Illness forum for a while. Many posts unhelpful but downright misinformation cannot be tolerated as there are many worried readers and posters seeking reassurance here.. If you wish to talk further PM me

    Gremlinertia



  • Registered Users Posts: 40,281 ✭✭✭✭ohnonotgmail


    A question for those of you on insulin. I'm T2 but not on insulin so no real idea of how that works. My brother recently had a medical issue that resulted in damage to his pancreas. He is now on insulin because of this. we were together at the weekend and he mentioned that he had taken 34 units of insulin that day. Would that be a lot? As I said I have no idea how that side of it works.



  • Advertisement
  • Registered Users Posts: 16,570 ✭✭✭✭banie01


    It very much depends on how he is taking it and if it's long lasting or quick acting.

    Long lasting is generally taken once per day.

    Whereas the quick acting is taken at mealtimes and the dose is based on carb counting.

    Some combine both with a long acting basal dose once a day, and additional bolus at meal times.



  • Registered Users Posts: 60 ✭✭SneakyDoyle


    I had my Retina screening last week and I have to go back for injections in my right eye every 4 weeks for the next 12 weeks.

    Was told today there's a charge of 80 quid per visit which I was surprised at as I would have assumed the LTI covers this considering it was picked up as part of the diabetic retina screening programme. Anyone else have this experience?



  • Registered Users Posts: 40,281 ✭✭✭✭ohnonotgmail


    €80 is the standard In Patient/Day service charge. The LTI scheme only covers drugs and appliances.



  • Posts: 0 [Deleted User]


    hey all,

    have a quick query. im T1 insulin dependant and have gotten to a medical for a job which would be driving buses all day,

    i am abut concerned when they see i use insulin that they may not pass me fit due to risk of hypos while at driving(i currently drive alot on my current job with no issues regarding hypos), has anyone gone through similar medical and how did it go?

    cheers



  • Registered Users Posts: 16,570 ✭✭✭✭banie01


    Assuming your license is up to date with appropriate codes and you are PSV and class 2 qualified?

    If they chose that reason to not progress your application it would be a grounds for a discrimination appeal.

    Diabetes.ie have some decent info on it.




  • Advertisement
  • Posts: 0 [Deleted User]


    so i have a D licence permit and got a medical from my own doctor to get this group 2 licence....i am just worried that the medical officer would want to see proper proof that i never had a hypo driving and i am very aware of hypos.


    i rang diabetes ireland today but i probably confused her on the phone., but she referred me to Google or their website for more info.


    was hoping someone had went through the same thing and tell me they were fine lol.



  • Registered Users Posts: 16,570 ✭✭✭✭banie01


    What proof could you present to anyone asking to prove you've never had a hypo and that you were hypo aware?

    The licensing system for the most part is built on an honour system. You are legally obliged to report an hypoglycemia as a class 2 license holder. If you don't report it, there is no record and tbh afaik that's the only means of proof available.

    I fully understand you want some reassurance re: your medical but, if you are a responsible class 2 license holder you are meeting all your legal requirements and the medical should focus on your fitness to drive. That you hold a class 2, is proof of that fitness.

    You may fail the medical? But it won't be for being diabetic. You may also pass and not be offered the position. What you need to remember though is that if they don't offer you the position and intimate it is because of your Diabetes? That's a potential discriminatory act and you should report it.

    Your continuing to hold a class 2 license, given your legal obligation to report any hypoglycemia is proof of your fitness to drive.



  • Posts: 0 [Deleted User]


    thanks for your thorough reply.

    I do understand that i may also fail the medical regardless, i am generally healthy so i was thinking ahead of the medical what could i possibly fail on and being insulin dependant they may look for proof i am in good control of it. i may just be over thinking it, the only hypos i have had in three years have been when i have been experimenting(with hospitals advice) with low carb meals and exercise/higher or lower dosages.


    I don't think they would discriminate for being on insulin at all....but my plan was to bring a letter from the hospital stating they don't think i am at high risk of having a severe hypo based on my knowledge and them viewing my glucose readings over the last year.


    thanks



  • Registered Users Posts: 16,570 ✭✭✭✭banie01


    I've been watching a lot of US TV lately and they tend to pack their as breaks with pharma ads.

    One product that really caught my eye, is an insulin delivery device called the omnipod. It looks like a 3 day insulin dosing device/pump.

    It's tiny, not a lot larger than a libre sensor and seems quite an innovative system to allow both bolus and ongoing dosing for a 72hr period.

    I'm still insulin free currently but if/when I need to go back to it? I wonder if this could be an option.




  • Registered Users Posts: 7,595 ✭✭✭Meauldsegosha


    Omnipod is not available in Ireland on the LTI. Only have three pumps available here: Medtronic, Ypsopump and Roche.



  • Registered Users Posts: 549 ✭✭✭Apothic_Red


    A word of hope to any T2s starting out on their journey.

    Recently came across a thread on Reddit with a T2 couple who are 45 years in remission between them.

    Turns out low carb is the key.

    ADA recommendations of 45-60g of carbs per meal are a joke.

    Food pyramid/Eatwell plate/Desmond/Expert Courses are malpractice imho & just perpetuate the progression to complications.



  • Registered Users Posts: 6,789 ✭✭✭ebbsy


    Regarding the injections...

    About 5 years ago I had 3 Avastatin injections in each eye, in order to reduce fluid in each eye. It dries out the eyes in effect.

    This procedure takes place in during an outpatients appointment. It most certainly does not take place during a routine check up, either before or during.



  • Registered Users Posts: 6,789 ✭✭✭ebbsy


    Now I am in Newcastle again after receiving my latest Noctura 400 mask. It lasts for the next 6 months, £500.

    This is the first time I have been here since December 2019, due to covid. The mask has been posted to me ever since.

    The scans show that things have remained stable (they compare this scan to the last one). The scar on my right eye is also unchanged. My last bleed was over 3 years ago.

    So I believe that this product is still making a big difference. I still have my yearly checkup in outpatients in Adelaide road also. They do a fantastic job there.

    I am surprised this is not available in Ireland yet, but I would still probably travel to Newcastle for it, as they are very professional and my records are here.



  • Registered Users Posts: 6,789 ✭✭✭ebbsy


    Yeah I had to pay for these as well. It is relatively cheap, believe me, and it will make a big difference.

    It is more like a flat pen going into your eye than a needle. It sounds a lot worse than it actually is.



  • Registered Users Posts: 76 ✭✭CalisGirl


    Diabetes Ireland have been having monthly zoom conferences on various Diabetes topics over the last year for both T1 and T2, with Q&A sessions at the end. I've personally found them very useful. The next one is:

    Preparing for Pregnancy Webinar for People Living with Diabetes

    Oct 27, 2021 07:00 PM

    If you're interested and don't have an invite, I'd say contact Diabetes Ireland to add you to the mailing list. They're well worth attending.



  • Advertisement
  • Moderators, Motoring & Transport Moderators Posts: 23,157 Mod ✭✭✭✭Alanstrainor


    T:Slim is coming soon, and now that Dexcom is covered under LTI it is a very appealing combo. My pump will be up for renewal in April, so I'll have to see whether the Medtronic 780G with Guardian sensor 4 is available and compare with T:Slim. Not going with Guardian sesnor 3 again, it's not the best.



  • Registered Users Posts: 16,570 ✭✭✭✭banie01


    My Hba1c has taken a bit of a battering 😣. Have had a very painful and as yet undiagnosed Urological/Neurological issue ongoing now for nearly 3yrs. In the last 6 months it has worsened considerably and hugely impacted in my activity.

    My glycemic control is usually quite good and I even managed to come off my Insulin completely @ 2yrs ago. My average Hba1c over the last 10 or so yrs apart from a period where I had a broken leg and it went up to a 52/6.9 I've always managed to keep it below 46/6.4 and my last Hba1c in March was 44/6.2.

    Anyway my most recent was received on Wednesday and it was a gut punch tbh. Came in at a 62/7.8.

    I know it's not a catastrophe, I know in the grand scheme of things it's not even that bad. But it's a loss for me and I'm already at a low ebb.

    My GP was great, suggested maybe going back onto a GLP-1, but rather than prescribe one he asked me follow up with the Diabetes team at UHL.

    Immediate response was to restart insulin 😣 I put that off a little while and I have been booked in to see the endo in December. I'm not afraid of needles, nor even of insulin. Took Victoza for quite a while and went on Insulin after that.

    What insulin did for me in regards my BG control was great, what it did to my weight and waistline? Not so much.

    That success, and by that I mean getting control of my BG rather than my weight. Really gave me a sense of agency an control over my Diabetes. Current issues have robbed me of that control, and TBH heading into my 15th year post diagnosis? I don't know that my pancreas has any kick left in it 😂

    If nothing else about diabetes, in any of its flavours! It really is a slow and grinding battle of attrition isn't it!

    Post edited by banie01 on


  • Registered Users Posts: 13,762 ✭✭✭✭dubstarr


    Anyone help m.

    Im looking to get a new dentist and all the ones beside me are not taking new patients.

    Is there a list of dentists who are taking medical cards that i can apply.



  • Registered Users Posts: 6,789 ✭✭✭ebbsy


    Best of luck with that.

    Its a real problem now I believe, hundreds have left the scheme in the last few years.

    My dentist told me the Gov cut the fees to them.



  • Posts: 0 [Deleted User]


    hey again, i was on recently about a medical for a job as a driver, anyways i had said medical a few weeks back and all seemed ok on the day and the DR said he was happy with my diabetes and what not.

    Just now i received a call from him and he told me due to diabetes he cannot class me fit to work for the company. I am obviously disappointed hearing this but it this discrimination? no history of hypos or anything. am well hypo aware, what are your thoughts on this?

    he did say i could appeal it but what could i even say to change their idea on this?



  • Registered Users Posts: 435 ✭✭GoogleBot


    Obviously Doctor rely on data e.g. blood and eye tests etc. If something that bad s/he should refer you to specialist and put you on medication. Anyway is not end of life. Research into ketogenic diet my uncle got off diabetes list after 6 month beign in ketogenic diet and IF.



  • Posts: 0 [Deleted User]


    your uncle was type 2 yes? i am type 1 so no cure.



  • Registered Users Posts: 16,570 ✭✭✭✭banie01


    I don't know if it amounts to outright discrimination tbh. Diabetes Ireland may be better placed to advise?

    If memory serves aswell as the T1, you also had an elevated BP at the medical? Apologies if I'm mistaken on that one.

    Certainly appeal it, provide a recent holter monitor report to refute their BP worries, your most recent Hba1c to confirm your control range and as I mentioned earlier, the only real counter to their hypo concern is the legal requirement on you to notify the the RSA of any. If you haven't reported one, you haven't had one unless they are presuming to imply you are breaching legal requirements.

    Now I don't know what particular scoring matrix they are using to decide on hire or pass. But if they are relying solely upon your Diabetes to discount you from consideration? It seems problematic unless they have certainty there is an issue.

    It would be far safer for DB to discount you due to better qualified or more experienced candidates who scored higher overall.

    Their relying upon diabetes to discount you when you have met your legal licensing requirements is on the face of it at least problematic and worth a review by someone with experience in the area. Be it initial advice via Diabetes Ireland or a query to the IHREC.



  • Posts: 0 [Deleted User]


    heya, they got the report on my BP showing it was normal from my gp, my HB1AC has been 52 54 and 52 last three times its been tested and they also have the records along with retina screening.

    they didn't choose anyone else over me, i didnt get passed medical stage because in his words" because of your diabetes and the chance you will have a hypo" to which i explained i am currently in a driving job and have never had a hypo driving.


    deep down i always knew that if i didnt get the job it would be down to diabetes, i do acknowledge i may not of been offered a job even if they passed me at the medical stage, but as for now they arent giving me a job based on being insulin dependant.

    i have been in touch with DI and they are looking into it, asked me usual questions if i ever had a hypo in last three years needing assistance or was hospitalised which i wasnt.


    thank you for your response, you have a better way of wording things than i do, ill wait to hear from diabetes ireland befor appealing.



  • Advertisement
  • Registered Users Posts: 16,570 ✭✭✭✭banie01


    If that's what they've done and how they phrased their decision?

    They have IMO left themselves open to action via IHREC at the very least. Yes they may have taken the decision not to hire you due to a perceived risk but, if you've already provided the evidence to discount those concerns? And yet they still made diabetes their reason? It's quite a risky play from a discrimination standpoint.

    You meet the legal requirements of a safe T1D driver with the appropriate license and reporting obligations. They can't use diabetes to discount you from the hiring process on a whim, and if that's how they framed it? I'd certainly pass it along to IHREC at that point.



Advertisement