thyroid misery

Brera · 22-06-2021 11:20pm

snor wrote: »

Hi there. Can anyone please recommend a good endocrinologist in S. Dublin. Can go private. Hashinotos. Many thanks.

Dr Margaret Griffin in the Beacon is very good. She also has clinics in the Bons in Glasnevin and in Clane.

I had my thyroid removed due to cancer four years ago and was sent to the endo in Vincent’s private who was useless.

She at least listens and is willing to prescribe T3 and NDT and go with what works for me.

snor · 23-06-2021 2:15pm

Dempo1 wrote: »

Hi there, hopefully someone might come back with some recommendations for you. I just wondered have you not been reffered or are you looking for new endocrinologist? Can your GP Help etc? My own is in Laois but I was reffered and thankfully he and his team excellent.

Many thanks. It’s actually for my daughter who was under the care of a paediatrician and now referred to adult services. It was the nurse who rang me to refer on and said she was unfamiliar with adult endocrinologists. I rang My daughters/my GP for a recommendation last week and he has not called me back. Anxious to get thd ball rolling.

snor · 23-06-2021 2:17pm

Brera wrote: »

Dr Margaret Griffin in the Beacon is very good. She also has clinics in the Bons in Glasnevin and in Clane.

I had my thyroid removed due to cancer four years ago and was sent to the endo in Vincent’s private who was useless.

She at least listens and is willing to prescribe T3 and NDT and go with what works for me.

Many thanks Brera. Sounds good and will check her out. The beacon is handy for me. Thank you.

snor · 23-06-2021 2:18pm

Dempo1 wrote: »

Hi there, hopefully someone might come back with some recommendations for you. I just wondered have you not been reffered or are you looking for new endocrinologist? Can your GP Help etc? My own is in Laois but I was reffered and thankfully he and his team excellent.

Many thanks. It’s actually for my daughter who was under the care of a paediatrician and now referred to adult services. It was the nurse who rang me to refer on and said she was unfamiliar with adult endocrinologists. I rang My daughters/my GP for a recommendation last and he has not called me back. Anxious to get thd ball rolling.

Brera · 23-06-2021 2:29pm

snor wrote: »

Many thanks Brera. Sounds good and will check her out. The beacon is handy for me. Thank you.

Hopefully it works out for your daughter.

Everyone will have different experiences with endos but having one that will listen and work with you is half the battle.

Dempo1 · 23-06-2021 3:04pm

snor wrote: »

Many thanks. It’s actually for my daughter who was under the care of a paediatrician and now referred to adult services. It was the nurse who rang me to refer on and said she was unfamiliar with adult endocrinologists. I rang My daughters/my GP for a recommendation last and he has not called me back. Anxious to get thd ball rolling.

Best wishes for your daughter

Hannibal_Smith · 23-06-2021 4:16pm

What does it take to be referred to an endocrinologist?

I'm not looking to be referred to one, just curious. My GP just told me I'll be going to him every 4 months for bloods. No mention of referring me anywhere.

Dempo1 · 23-06-2021 4:40pm

Hannibal_Smith wrote: »

What does it take to be referred to an endocrinologist?

I'm not looking to be referred to one, just curious. My GP just told me I'll be going to him every 4 months for bloods. No mention of referring me anywhere.

Hi there, just from my own experience, my GP did blood tests based on some symptoms I was having, she suspected a Thyroid issue. When bloods came back she requested an ultrasound and refferal to the endocrinologist clinic which luckily was near enough to me in the Midlands. Ultrasound showed enlarged Thyroid and the Journey began almost 4 years ago. I'm a public patient so the process might be different for private refferal. My journey started relatively quickly and ultimately diagnosed with Graves Disease, unfortunately I've additional complications as a result, high blood pressure, cholesterol levels (I'm actually quite thin with good diet) and increased heart rate. Once correct medications figured out, this takes a while, symptoms manageable but of course good an bad days.

Once referred, the endo clinic takes over, 3/6 monthly consultations but my GP does bloods in advance and checks blood pressure etc in advance of endo consult, these have been telephone ones during covid.

Hope this helps

Has your doctor actually determined a diagnosis? My own situation may have been deemed serious due to blood results and enlarged Thyroid, hence refferal

Hannibal_Smith · 23-06-2021 5:34pm

Thanks for that Dempo1. I hope it's settled a bit for you now and doesn't impact you too much.

I went to the GP with a range of different symptoms and the GP just did bloods to find out what was wrong. He came back to me to say it was an overactive thyroid and to go on medication straight away. Bloods were 2 weekly initially, then monthly and now 4 monthly. Meds were always increased until the last bloods showed it had become underactive, so they've halved now.

Maybe because its reacting to the Meds, there's no need for any further investigation or treatment? Although it's never just right

Dempo1 · 23-06-2021 5:44pm

Hannibal_Smith wrote: »

Thanks for that Dempo1. I hope it's settled a bit for you now and doesn't impact you too much.

I went to the GP with a range of different symptoms and the GP just did bloods to find out what was wrong. He came back to me to say it was an overactive thyroid and to go on medication straight away. Bloods were 2 weekly initially, then monthly and now 4 monthly. Meds were always increased until the last bloods showed it had become underactive, so they've halved now.

Maybe because its reacting to the Meds, there's no need for any further investigation or treatment? Although it's never just right

No problem, it could be that the GP felt he could manage your symptoms, I'm guessing in my own case it was the enlarged Thyroid that raised alarm bells as such. It does seem from this thread referral not automatic as such, one thing I didn't mention was all my meds are managed by my endocrinologist not my GP.

My biggest challenge is chronic fatigue and insomnia but in one sense you become almost accustomed to it. Annoyingly though I had an MRI a month ago for persistent knee pains, I put it down to graves but to my shock, Arthritis, its not determined if it's related to Graves so, it's never a dull day.

This thread has been very very helpful, so follow it, theirs some excellent people on here alot more knowledgeable than I so never be afraid to ask a question etc.

Good luck in the mean time, appreciate your comments also

snor · 23-06-2021 9:12pm

Hannibal_Smith wrote: »

What does it take to be referred to an endocrinologist?

I'm not looking to be referred to one, just curious. My GP just told me I'll be going to him every 4 months for bloods. No mention of referring me anywhere.

I have an Under active thyroid for years and have never been referred to an endocrinologist- just bloods now every 6 months and meds altered by my GP accordingly. My daughter was referred straight away as her thyroid is enlarged and her thyroid antibodies very elevated so indicative of autoimmune condition. She is very young also, whereas I was in my 40s when I presented so this may also have been a reason for my GP to manage.

jellybear · 23-06-2021 9:15pm

snor wrote: »

Hi there. Can anyone please recommend a good endocrinologist in S. Dublin. Can go private. Hashinotos. Many thanks.

Just another recommendation for you, although area might not suit, but I can highly recommend John McDermott in the Hermitage.

Dempo1 · 23-06-2021 9:37pm

snor wrote: »

I have an Under active thyroid for years and have never been referred to an endocrinologist- just bloods now every 6 months and meds altered by my GP accordingly. My daughter was referred straight away as her thyroid is enlarged and her thyroid antibodies very elevated so indicative of autoimmune condition. She is very young also, whereas I was in my 40s when I presented so this may also have been a reason for my GP to manage.

It's interesting your experience and that of your daughter, I was actually 49 when problems surfaced and yes similar to my enlarged Thyroid, referral was probably necessary but to her credit, it was my GP who picked up possible issue's. I note also the familial aspect in both your cases, I heard it can run through families, hereditary etc , my own challenge was not having any contact with family despite having 13 brothers and sisters (a story for another day

) so I went into this blind and have to be honest knew nothing of Thyroid illnesses prior to diagnosis.

There was a brief mention on Thyroid illnesses on the Claire Byrne show today, it was a little rushed but interesting, there's a podcast of it if interested.

New Home · 10-08-2021 11:24pm

I've just come across this scientific paper, https://pubmed.ncbi.nlm.nih.gov/28724185/, it seems very interesting:

"Myo-inositol plus selenium supplementation restores euthyroid state in Hashimoto's patients with subclinical hypothyroidism"

Dempo1 · 15-09-2021 11:11am

Morning all, its been a while, hope your all well.

Just an update on my Graves Disease.

So I'm not sure if it's positive news but had bloods done in advance of next endo telephone consult end of this week. Also had eye consult yesterday.

My GP has said bloods looking normal, high blood pressure now normal (had 24 hr monitor test), cholesterol levels have reduced and Eye consultant happy, there are no affects on my eyes from my Graves Disease.

I continue to have chronic Insomnia and fatigue, hardto get a definitive answer if these are related to graves.

My GP feels whilst all positive, I'm likely to remain on Meds. Hopefully my Endo will be happy enough, I just wish I had a sense of long term prognosis.

Thanks

floraldrapes1 · 29-09-2021 5:05pm

Hi all! Hope you're all feeling well

I have recently been diagnosed with under active thyroid and been on 100mcg of Eltroxin for about three months. My results are coming back good and looks like the thyroid is levelling out, but my anxiety is the through the roof. I would have general anxiety disorder usually but this is another level coupled with panic attacks, which I never got before. My GP says they likely aren't related but I really doubt that. I am really in a state and have anxiety from the moment I wake up. Doc suggested anti depressants..

Has anyone any advice on what to do here, see a specialist, take a supplement, or stop taking the pills altogether? I'm 33 and otherwise healthy. Would love some advice if anyone has a moment.

Thank you.

Dempo1 · 29-09-2021 9:45pm

https://www.boards.ie/discussion/comment/117955131#Comment_117955131

You seem to be saying you've generally had a history of anxiety and I presume you mean you had this prior to your Thyroid diagnosis/ Issues. I'm guessing your GP is aware of your general medical history and tend to agree based on your history the two issues may not be related, particularly given results from Thyroid looking good.

Anxiety is a known possible side effect of Thyroid Diseases but not everyone experiences this. I certainly would not be a considering stopping any prescribed medications.

My own Thyroid issue (Graves) is the opposite of what you have ,I can not say I've anxiety but certainly have chronic insomnia and fatigue.

I would strongly recommend you talk again with your GP .

RentDayBlues · 01-10-2021 7:24am

https://www.boards.ie/discussion/comment/117955131#Comment_117955131

I’ve been there. A few years back went to see a consultant who spent 5 mins examining me and then suggested anti depressants. I felt sad about my situation, my weight, my lack of energy but for me it wasn’t depression. He didn’t know me and made a comment about how all women in south Dublin love his prescriptions

If your gp knows you well and feels the meds would help, then listen. If not, then get another opinion - feel better soon

shel1234 · 06-01-2022 9:14pm

Hi there, I was wondering if anyone ever took LDN to treat hashimotos?? Also anyone have any experience taking this and Thybon and Eltroxin? Female in my mid 30's.

thecamcam · 04-02-2022 1:15am

just some advice for any one suffering thyroid issues ( as i have been thru them all in the last 5 years )

mainly Hashimotos or low thyroid issues with tsh 7 or less and normal t4 etc

1/ mental anxiety / dark thoughts/ impatience / callousness/ not caring / slightly suicidal / dont want to get out of bed / worry after worry ' jekyll and hyde personality

yes its your thyroid balance. so dont think you are going crazy.

i had a conversation with a psych doc once who said the first thing they would test for in mental issues is thyroid problems .

2/ symptoms of diabetes such as burning thirst / frequent urination - but your blood sugar is ok or your H1C is ok

and also extreme tiredness / cramping / tendon pain / hamstring tightness / finger and wrist tightness/ chest - rib pain

fungal infections on feet toenails or in ears / nose etc

its your thyroid balance.

3/ for males - alternating high to low libido - lack of semen / no energy no endurance / 20 mins gardening kills you

its your thyroid balance

4/ anyone who has used or is using nicotine gum / tablets or spray to give up smoking and then became dependent on this , and have quit the nicotine see the issues above - this is how it started for me - somedays i feel like going back to nicotine or even smoking to stop the issues

smoking nicotine is ok, but eating nicotine saturates your body so much that your body seems to require it just to function hormonally - this seems to be how i got where i am .

what has helped

1/ moved to Armour or NP tablets ( either are dessicated )

2/ drinking 400 mls of blended vegetables ( apples pear celery lettuce bell pepper beetroot blueberries carrot ) every day

and a probiotic tablet / capsule

50 mls of dilute fresh lemon juice mixed with organic cider vinegar then rinse mouth every day

3/ specific yoga exercises for thyroid and specific prana breathing for thyroid ( these helped alot ) find them on you tube

what has not helped in any way

GP

consultants

eltroxin tablets

t3 tablets

slowly getting on top of it , so good luck - i feel your pain and hope this helps.

Dempo1 · 26-03-2022 6:04pm

It's been quite on the thread but hope everyone keeping well.

I got some news on Thursday re my Graves Disease. Based on recent blood tests my Endocrinologist is "Hopeful " my Graves might be in remission, he's explained its not unusual and will take time to fully assess.

I have some additional complications related to Greaves, namely very high cholesterol, high blood pressure and Insomnia which in turn has led to serious fatigue.

So he's asked me to stop taking Neomercazole and Cholesterol medication completely and over a few weeks assess the situation with a face to face in 2 months (it's been via Telephone for 2 years re covid).

I wasn't aware Cholesterol medication can impact on sleep. My GP has yet to be advised officially but I spoke to her briefly and she's a little concerned about stopping cholesterol medication completely, I should emphasis I'm not in anyway over weight and eat carefully.

I believe Remission of Graves is not unusual but equally believe it can re surface.

So for the coming weeks, I'll continue on blood pressure and Sleep medication (I use sparingly) and fingers crossed the prognosis will be positive. The hardest challenges have been fatigue and lack of sleep.

So, just wanted to share this bit of news, I was diagnosed with Graves over 4 years ago and had accepted it was a life long diagnosis.

Alfredo D Neely · 05-04-2022 7:54pm

Hey, I got diagnosed with thyroid disease in the last year. During that time, I became fatigued, angry at everything around me, and my weight increased, all while my doctor prescribed a thyroid test and diagnosed me with hypothyroidism. On my physician's advice, I started to take eltroxin and started some exercises. After 3 months, I checked my thyroid and saw a reasonable change in it. Still, I am continuing eltroxin and my exercise routine as per the suggestion of my physician.

minibear · 25-05-2022 1:10pm

Hi, I'm just wondering if anyone who has had thyroid surgery has any tips or suggestions for preparing for and the surgery? It's happening soon and i feel ill prepared for it and quite anxious. I've only ever been in hospital for the births of my children. I will only be in for two nights apparently. (One before and one after the surgery.) I have a result of Thy3F on quite a large mass on my parathyroid. Thanks for any help. 🙂

edited to add.. Thyroid levels are all normal.

Dempo1 · 25-05-2022 1:15pm

https://www.boards.ie/discussion/comment/119111816#Comment_119111816

I've not had surgery but in remission (apparently) for Greaves, hopefully someone will come back to you whose had experience of surgery, just wanted to wish you well and try not worry to much

Dempo1 · 19-09-2022 10:36am

I'm not on Boards much anymore more but just thought I'd let folks know there was a discussion on The Ryan Turbidy show with Author, Alison Ryan who's mum had Graves Disease. A sad story in many respects but uplifting too.

https://www.rte.ie/radio/radio1/ryan-tubridy/programmes/2022/0919/1324181-the-ryan-tubridy-show-monday-19-september-2022//

thyroid misery

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