The Waiting Room -Off topic chat thread

Graces7

embee wrote: »

I've had some pretty severe neuropathic pain in my arms for the past few weeks, I rang the MS nurse and she got a prescription for lyrica written up for me and is posting it out..... Can ye not get specialist nurses to post you out a script from your consultant?

I get all my prescriptions by post. Send in an sae for repeat items and request others.

StripedBoxers

Hi,

I'm StripedBoxers, I suffer from general anxiety, social anxiety, depression and recently I was diagnosed with breast cancer, for which I am undergoing treatment.

I was off all my medication since summer of last year but I will be starting my meds again this week as my anxiety is up and down at the moment with everything, I have noticed my depression has started to affect me slightly again and I have noticed that my moods drop constantly and take a few days to go up again.

CathyMoran

I had the final of the 10 year anniversary's yesterday in relation to esopghageal cancer of which I am a 10 year survivor. Yesterday was 10 years since they did the total esophagectomy - I was very ill afterwards and had to be resuscitated 3 times so it was really important to celebrate it, even though it killed a very close cousin of mine last year and I have lost several friends to it.

Monday is 31 years since my Type 1 diabetes diagnosis - it got pushed to second place when I got esophageal cancer though the kidney disease is also worrying...

Gremlinertia

Frozen up with back pain, hoping to get doc to do house call.. Need to get to my phone to organise it though.. Argh..

Graces7

Gremlinertia wrote: »

Frozen up with back pain, hoping to get doc to do house call.. Need to get to my phone to organise it though.. Argh..

Good luck...

Graces7

I have one script left on the 3 month Tylex I got from my GP before I moved. Then the ordeal of finding a new GP. Given that I am totally incapable of being anywhere at any set time with the M.E and that making such arrangements reduces me to total panic.

Been so blessed with most of my GPs so hoping the same this time.

CathyMoran

Gremlinertia wrote: »

Frozen up with back pain, hoping to get doc to do house call.. Need to get to my phone to organise it though.. Argh..

Hugs.

CathyMoran

I had a mother of 4 collecting for her children's soccer team say that I should be able take them to soccer practice...I did get a bit upset. I may look 'normal' but chronic fatigue is not fun.

mickmac76

Hi, I'm Mick, 40 years old and 18 months ago I was diagnosed with motor neuron disease. I was in perfect health until then and went to the GP with a recurring but fairly trivial pain in my arm. Two weeks later and I was diagnosed. Have to say that my experience with the consultants in Tallaght hospital was excellent. They came across as knowledgeable and compassionate. Since then I have attended Beaumont hospital under Orla Hardiman, a top class Dr who do great work. In the past year I have lost almost all movement in my arms and am having difficulty walking. But the support from Beaumont, the CRC and the motor neuron disease association has been excellent. I'm also taking part in a clinical trial in Beaumont that shows some promise.

Graces7

CathyMoran wrote: »

I had a mother of 4 collecting for her children's soccer team say that I should be able take them to soccer practice...I did get a bit upset. I may look 'normal' but chronic fatigue is not fun.

((HUGS)) I stopped taking heed years ago. Now I just say nothing and do what I need to do. I now close this house at 3 pm and will be putting a notice up to that effect when the wind stops destroying such things. Phone not plugged in and rarely use the computer even then.

And at the back of beyond up here

I budget for my rare out times so I can enjoy them.. out Tuesday this week so resting today and tomorrow...I get in and crash! OUCH WHERE ARE THE TYLEX! But hey! I have lived!

No it is not fun and I realise that probably before I knew this I may have been less than tolerant of the needs of others...

Easier for me of course as I am old and on my own.. Also I have arthritis and use a walking aid..

misstearheus

Oooohh this is a wonderful idea for a Thread folks! Brill idea! I think I did try start a couple of Threads like this but they musn't have took off. For a while there I'd say I was nearing getting banned from the Trivial Threads 'cos all's I talk about at times is being sick!

Have horrendous random stabbing pains down low below my belly at the moment, well all day actually, and they are just spontaneous random throbbing! It's horrible! Am unanimously useless with Anatomy and Body-parts lol so I've no idea where in the body I'm referring to if it's Ovaries or somewhere else!! But all I know is I am in desperate pain with it!! First thought would be period-cramps, buttt I think I generally only get crampy leading up to Period, would never usually be in this much pain so far into period-time. Plus I think period-pain would be a bit higher up... Am getting slightly worried now, am actually starting to wonder would it be PCOS or Endometriosis or something but have no idea what symptoms one would experience for those types of things.... Hhmmm.... Think I might try go see Doctor 1 of the days if no improvement....

Hope everyone is feeling as good as can be possible! x

Gremlinertia

I was outside yesterday, went walking, slowly of course.. However the cabin fever is strong again now, i'm guessing it's stress..

Graces7

Gremlinertia wrote: »

I was outside yesterday, went walking, slowly of course.. However the cabin fever is strong again now, i'm guessing it's stress..

Spring is coming and the sap is rising and that includes in us So try going with that idea?

I am going out with the dog a few times a day, sitting on a rock in the fresh air while she races around. Helps the mood hugely. So probably not stress but more energy in some ways... just a little walking and a lot of air..

Did far too much yesterday myself in sheer springtime exuberance and paid for it last night in pain levels. And am drained today

Budgetting now to be out tomorrow; aiming for the Big City,,, Now THAt will be stressful but am planning an escape to a wild place on the way back....

La.de.da

My anxiety has been manic crazy this last month or so. I'm withdrawing from a lot of people. But I think that's ok I just need time to heal my poor brain. Chronic fatigue and pains ain't helping either.
My mam is fading away before our eyes (Alzheimer's is a **** worst of them all) waves of anger frustration guilt(tho I don't know why) and just sheer sadness. I miss her.

I didn't know where to put this, but thisI seems a nice place.

Graces7

La.de.da wrote: »

My anxiety has been manic crazy this last month or so. I'm withdrawing from a lot of people. But I think that's ok I just need time to heal my poor brain. Chronic fatigue and pains ain't helping either.
My mam is fading away before our eyes (Alzheimer's is a **** worst of them all) waves of anger frustration guilt(tho I don't know why) and just sheer sadness. I miss her.

I didn't know where to put this, but thisI seems a nice place.

((((HUGS)))) and Prayers

Withdrawing when you need to is healthy and sensible. You are in a deeply distressing situation and you need to cope in any way that helps..

Looking after YOU matters and is right and good and strong. Make sure you eat and get fresh air and do something YOU enjoy... And ditch the guilt.

Graces7

Graces7 wrote: »

Spring is coming and the sap is rising and that includes in us So try going with that idea?

I am going out with the dog a few times a day, sitting on a rock in the fresh air while she races around. Helps the mood hugely. So probably not stress but more energy in some ways... just a little walking and a lot of air..

Did far too much yesterday myself in sheer springtime exuberance and paid for it last night in pain levels. And am drained today

Budgetting now to be out tomorrow; aiming for the Big City,,, Now THAt will be stressful but am planning an escape to a wild place on the way back....

It is a n act? Today was off the scale activity wise and sheer pleasure.

Been home a couple of hours, taken painkillers and now the raynauds pain is establishing its usual vengeance and a long night ahead. Dreading it..

When I was finally diagnosed I joined support groups. WHen they all said rest, fine, I rested, but after a few days worked out that what seemed to be a worsening of my illness was in fact deconditioning as the body adjusts to less and less activity. the two are so alike.

So I started to make myself get out of bed every hour bathroom, drink, check my criitters ( I had a smallholding) Sometimes it was all but impossible, but I reckoned I needed to keep lungs and blood pressure near normal .

It can be hard but I think I did and do right. Folk used to get at me for budgetting for a day of eg teaching as it was then.

But morale can get so low with this kind of illness.

Did far, far too much today but LIFE!

Sometimes it seems as if we become our illness; NO WAY!

Just a balancing act and YES it was worth it...

Heart full of memories, of chatting with folk, beauty seen, the three donkeys nuzzling my hands for bread with velvet noses...

addicted to caffeine

Hello, I'm ATC, I suffer from chronic migraines and anxiety (on meds for both), which at it's worst it's a daily struggle I've recently had a bad patch with them which has hit me with a wallop. Staying at my folks house for some TLC for a few days (but normally I live independently) hope I can get back on track. It's like I have gone 2 steps forward and 5 back..

mickmac76

Went for a walk today and managed 3 miles. Knackered now but it was worth it. Lovely walking weather.

addicted to caffeine

Starting to feel more like myself after my bad patch, I'm back in my own apartment tonight (yay!) so fingers crossed I'll get back on track, hope everyone else is feeling ok x

Graces7

addicted to caffeine wrote: »

Starting to feel more like myself after my bad patch, I'm back in my own apartment tonight (yay!) so fingers crossed I'll get back on track, hope everyone else is feeling ok x

That is indeed good news..

addicted to caffeine

Graces7 wrote: »

That is indeed good news..

thanks Graces7:)

Gremlinertia

Physio today, it's sore but got through, however now have news i may have to move out in a month and I'm gone to crap with anxiety

Graces7

Gremlinertia wrote: »

Physio today, it's sore but got through, however now have news i may have to move out in a month and I'm gone to crap with anxiety

I rarely swear but that is terrible , awful news.

Start looking and start quietly packing stuff you rarely use. Spring cleaning... That will lend you some idea of being in control of the situation.

I did that last year when my ll started on about selling the house. With him it was largely talk but i needed to be in charge...

Prayers here...

Gremlinertia

Nearly back to work, not sleeping very much at all.

Graces7

COLD... please God the weather eases soon. Weary of winter. Been a horrible week and the wind is howling again.. What would i do without the cats snuggling in .. Lovely furry warm bodies!

B00!

Hope spring hits you soon Graces7.

Gremlinertia, Hope you can get through this move month the best you can. I just moved a few months back.

Graces7

B00! wrote: »

Hope spring hits you soon Graces7.

Gremlinertia, Hope you can get through this move month the best you can. I just moved a few months back.

Less than eight weeks since my sensational move... Took months getting ready but even so.. The bags and boxes are safe in the big loft alongside my landing bedroom! Just taking out what I need when I need it. Cottage is so well equipped.

Will be looking out spare knitting wool this week ... or next...for the community charity shop. When I asked hesitantly they could use it, you never saw faces light up so fast! They run craft clubs..

Back to sleep here.. bad patch. :rolleyes:

Gremlinertia

First stint back at work, horrible amounts of pain, just about keeping it together.. If i wasn't so stressed about my living situation I'd be in better shape no doubt. Stress and/or anxiety gives me major muscle tension.

Graces7

Gremlinertia wrote: »

First stint back at work, horrible amounts of pain, just about keeping it together.. If i wasn't so stressed about my living situation I'd be in better shape no doubt. Stress and/or anxiety gives me major muscle tension.

Yep that'll do it... Any good news?

At a low ebb physically here too. Limping about like an old lady... at nearly 80 I know!But it still comes as a shock..

Crossed one local GP off my list.. emailed him and got a legalistic reply.So it seems my pain relief will soon be down to what I can buy . NOT going to jump through hoops. any more.. ENough is enough... They have no idea what this illness is and are no about to learn

When I looked up HSE on M.E? It was all the psych stuff from the UK by a man who is so hated there . Simon Wellesley I think?

Ah well!.

Shannon757

Hey guys. The names Shannon757 and I have Fibromyalgia. I'll be honest I don't know much about it but I also have rheumatoid arthritis and I've had that 7 years now so it's all a cycle of pain and pills for me. Just thought I'd post here to say hello and all. I know some of you from other threads anyway so at least we're not strangers