Liveline Thread 17/10/2015 to 21/12/2015

snubbleste

He sounds most narky.

somesoldiers

I thought Joe cured CF in 2008/2009

somesoldiers

so , am sorry for your boy but we cant just keep paying for the best treatment for everyone

Harry Angstrom

There's money available to provide the "unwell" with places to shoot up, but there's no money available to pay for a new CF treatment.

Roger_007

I wonder who's paying for all the treatment he's already having?

snubbleste

There's a value for money/quality of life equation for healthcare treatments.

snubbleste

Roger_007 wrote: »

I wonder who's paying for all the treatment he's already having?

Stop wondering!

A Shaved Duck?

Finn going ape in the background..

Dan Jaman

It would be interesting to know if CF had shown in her or her husband's family.

SEPT 23 1989

when you think of all the fcuking waste in the health system and that kid needs 150k to stay alive:mad:

Atlantic Dawn

Whoy does Ireland have the highest rate of CF in the world?

Roger_007

somesoldiers wrote: »

I thought Joe cured CF in 2008/2009

I thought that some miracle drug was provided a couple of years back at an eye-watering cost. What happened to that?

Roger_007

Atlantic Dawn wrote: »

Whoy does Ireland have the highest rate of CF in the world?

Inbreeding?

Mike Guide 69

Atlantic Dawn wrote: »

Whoy does Ireland have the highest rate of CF in the world?

Early inbreeding through the early Celts period........thats what I heard!!!

snubbleste

De farm a eck o nomics

somesoldiers

they don't haggle- they say ok we will pay that, please don't move your factory to eastern europe

Roger_007

This wan is very fond of metaphors...........not always appropriate!

SEPT 23 1989

somesoldiers wrote: »

they don't haggle- they say ok we will pay that, please don't move your factory to eastern europe

If they paid their fair share of tax we could afford to buy their tablets

The barber of chewbacca

Roger_007 wrote: »

I thought that some miracle drug was provided a couple of years back at an eye-watering cost. What happened to that?

Kalydeco only worked with those with the "Celtic Gene", which only affects about 10% of CFs.

This new drug, Orkambi, treats the majority of Cfs because of the variation of CF that they have

At the moment Orkambi will treat about 600 Cfs and they have to be 12yrs old or over.

snubbleste

I'm dithering whether or not to switch off

BarryD

It's tough but everyone has to have a budget; families, businesses and governments. You can't just have any drug you want at any cost. Life don't work that way.

mrsdewinter

Harry Angstrom wrote: »

There's money available to provide the "unwell" with places to shoot up, but there's no money available to pay for a new CF treatment.

Right. Because that would totally cover the cost of madly expensive drug treatment. Good one.

Dan Jaman

Atlantic Dawn wrote: »

Whoy does Ireland have the highest rate of CF in the world?

Similarly, I noticed a decade ago that Thurles seems to have an abnormally high % of cross-eyed folk. Then I realised that most of the ones I was noticing were people in their 40s and 50s - at the time when childhood squints were being corrected in the NHS, the Public Health System here probably didn't have the resources to do that in the 1950s and 60s.
Maybe Thurles does have more genetically-caused squinters, but maybe it's just lack of correction.

sudzs

How much money is put into genetic screening and/or counselling I wonder?

BarryD

Where has the money gone that goes into the HSE? Rising expectations all round, that's where it goes - nurses want more pay, consultants want more pay, people want more expensive operations, treatments and drugs. It just seems to keep ramping up all the time.

SEPT 23 1989

Says you to I so to speak

snubbleste

Random distraction

The barber of chewbacca

Atlantic Dawn wrote: »

Whoy does Ireland have the highest rate of CF in the world?

"It is unclear why cystic fibrosis rates are so different across the globe, but one theory is that a high incidence of typhoid in Ireland during the Great Famine (1845-1852) meant that CF carriers were more likely to survive, leading to the high carrier rate seen in Ireland today." (http://www.javacr.com/cystic-fibrosis/)

White Horse

BarryD wrote: »

Where has the money gone that goes into the HSE?

Lots of snouts.

Roger_007

Dan Jaman wrote: »

Similarly, I noticed a decade ago that Thurles seems to have an abnormally high % of cross-eyed folk. Then I realised that most of the ones I was noticing were people in their 40s and 50s - at the time when childhood squints were being corrected in the NHS, the Public Health System here probably didn't have the resources to do that in the 1950s and 60s.
Maybe Thurles does have more genetically-caused squinters, but maybe it's just lack of correction.

Maybe it's just the way that they narrow their eyes when they look at you!