Diabetes Support groups: Details and Announcements thread

graflynn

The above is holding their AGM on Thursday February 24,TF Royal Hotel Castlebar 8pm.All welcome.


The Mayo Parents Support Group for Children with Diabetes.

Our Aims:
Support each other in the care of our children.

Organise fun activities for children and their families.

Inform and support parents of newly diagnosed children.
Description The Mayo Parents Support Group for Children with Diabetes.
Next meeting in The TF Royal Hotel,Castlebar,Co Mayo at 8pm on Thursday October 21.
All parents with children/teenagers with Diabetes are welcome to attend.

Enquires to:
Caroline Davy 086-1717230
Declan Kelly 087-9790361
Neil Masterson 0872202811

Website: http://mayoparentssupportgroup.webs.com/

graflynn

Cork Type 1 Support Group are meeting this Thursday Feb 24th at 7.30pm at the Diabetes Federation office on the Grand Parade. If you would like to come along or know of someone who may benefit from coming you can email Susan on info@mydiabetes.ie

tbh

Please post all Support group info and resources in this thread

graflynn

The Type 1 Diabetes Support Group is meeting on Tuesday, the 8th of March, in the Old Ground Hotel, Ennis from 8pm to 9:30pm. Anyone interesting in learning more about Type 1 Diabetes is welcome. The meetings take place in a relaxed setting and are focused on sharing the challenges we face in living with diabetes and celebrating the triumphs.

The Support Group can be contacted on the following telephone number 087 641 5747 or by email at clarebranchdfi@gmail.com

graflynn

The Leitrim branch of the Diabetes Federation of Ireland is hosting a Diabetes information meeting and their AGM on Wednesday 9th March at 8pm in the Bush Hotel, Carrick on Shannon.

Guest speaker: Dr Maeve Durkan, Consultant Physician in Medicine, Diabetes Endocrinology & Metabolism.

Topic: Getting the most of your Diabetes Clinic appointment, followed by a question and answer session.

There will be a range of stands to visit featuring diabetes related products.

Enquires to Western Regional office 071-9146001 or email wro@diabetes.ie

central

Hi all,

The next meeting for the Type 1 Dublin Support Group is taking place on Wednesday 23rd March @ 6.30pm in the Diabetes Federation Offices on Lower Gardiner Street. All welcome.

graflynn

Insulin Pump Information Evening

The Diabetes Federation of Ireland & Medtronic are holding an Insulin Pump information evening in Limerick on 14th March.

Registration/booking is essential and can be done by contacting the Western regional office 071-9146001 between the hours of 9.30-1.30pm Mon-Fri or by emailing wro@diabetes.ie

graflynn

central wrote: »

Hi all,

The next meeting for the Type 1 Dublin Support Group is taking place on Wednesday 23rd March @ 6.30pm in the Diabetes Federation Offices on Lower Gardiner Street. All welcome.

Well done Niamh & Emma. I've attached the article that appeared in Diabetes Ireland magazine and I wish you continued success.

graflynn

Limerick city, Georges Quay - LIT Building (between the Locke bar and Barringtons Hospital) on Wednesday April 6th from 6:30pm to 7:30pm
This is a chance for people with diabetes to meet up, chat, have a laugh and maybe go for pints after!
Please send this on to anyone you know who has diabetes and might want to come along. :-)



Log onto facebook for more information http://www.facebook.com/profile.php?id=747796000&ref=name#!/event.php?eid=114027218676251

graflynn

on Sunday, April 10th at 2pm in the Radisson Blu Hotel, Athlone.


http://www.diabetesshop.ie/iopen24/events_calendar.php?eID=494
Diabetes Federation of Ireland holding its National Spring Meeting in Athlone


The Diabetes Federation of Ireland will be holding its National Spring Meeting in the Radisson Blu Hotel on Sunday April 10th at 2pm. The meeting will focus on the importance of self care with and will centre on inner motivation with a goal to getting things done.

An array of speakers will address attendees and actively provide up to date information on new developments and general lifestyle advice. Speakers on the day include Dr. Tommy Kyaw Tun, Clinical Senior Lecturer, Connolly Memorial Hospital who will discuss ‘The ABC’s of Diabetes’, which will be an educational outline on the do’s and don’ts for people with diabetes.

Dr. Ronan Canavan, Consultant Endocrinologist, Loughlinstown Hospital will highlight the importance of, and the need for, regular diabetic retinopathy (an eye condition affecting 1 in 3 people with diabetes in Ireland) and foot care screening while Professor Richard Firth, Consultant Endocrinologist and HSE Diabetes Clinical Lead, will be speaking on the national development of new screening services in these areas and when people can expect to avail of them.

Kieran O’Leary, CEO, Diabetes Federation of Ireland, said “the development and launch of these new services is of extreme importance to thousands of people with diabetes throughout the country. On their behalf, I very much welcome the HSE’s commitment to developing these diabetes services and look forward to the day the first patients receive their written invitation to attend for eye and foot screening appointments”.

To conclude the meeting, Ms Anne Mullan, Dietitian, Diabetes Federation of Ireland will draw attention to the sneaky little habits that sabotage our best efforts to lose weight despite eating well on a daily basis.
“I would urge people with diabetes to come along to this meeting and hear from the experts” said Kieran.

For further information please contact:
Kate Moran on 01 8363022 or email: kate.moran@diabetes.ie

graflynn

Dublin Parents Support Meeting to take place this Thursday in DFI offices at 76 Lower Gardiner Street, Dublin at 6 pm. Looking forward to it. Contact kate.moran@diabetes.ie for more information.

graflynn

The next Type 1 meeting takes place on Tuesday, 12th April in the Old Ground Hotel, Ennis from 8pm til 9:30pm.

The subject of dealing with alcohol came up last month so I've found a couple of fact sheets on the subject and will bring them. I also thought that we would talk about blood glucose testing; how often we do it and why. This might be interesting to discuss because we all seem to do it differently.

Regards,
Grainne.

graflynn

The next meeting of the Limerick Diabetes Social Group is on wednesday the 20th of april in Georges quay LIT Campus (beside the Locke Bar) at 6.30 pm

Its a casual gathering for adults with type 1 and type 2 diabetes to meet up, talk and share any tips, recipes, experiences and advice, make some new friends and have a laugh.

See Diabetes Limerick facebook page for more information.

SusanOF

There is a Type 1 Support group meeting in Cork which is held the last Thursday of every month. The next meeting is April 28th, 2011. The meetings are held in the Diabetes Federation offices on the Grand Parade. If you or someone you know would like to attend please just let me know or contact the federation on 021 4274229.

graflynn

Diabetes Limerick is having a social evening for people with diabetes in The Locke Bar, Georges Quay, Limerick on Wednesday May 4th from 7pm to 8:30pm.

This is a chance for people with diabetes to meet up, chat, have a laugh and maybe go for pints after!


Log onto facebook for more information http://www.facebook.com/profile.php?id=747796000&ref=name#!/profile.php?id=100002268134103

graflynn

The next Type 1 meeting takes place on Tuesday, 10th May in the Old Ground Hotel, Ennis from 8pm til 9:30pm.

The topic will be "Travelling with Diabetes"

Regards,
Grainne.

graflynn

Hello Everyone,

I've done this as a separate thread to ensure that as many people see it as possible - hope that's ok with the mods.

The following can be found on DA's website; http://www.diabetesaction.ie/campaign-archives/2011/04/paediatric-adolescent-diabetes-services/23

Paediatric & Adolescent Diabetes Services

There are approximately 3,500 children and adolescents with diabetes in Ireland and nearly all have of whom have type 1 diabetes. Hundreds of children and adolescents with diabetes can’t access advances in care, such as insulin pumps, because local paediatric diabetes teams in hospitals around Ireland are under resourced.

Children and adolescents with diabetes should attend hospital an average of 4-5 times a year to monitor their diabetes this aims to limit the subtle but cumulative damage which diabetes can cause to the eyes, kidneys, nerves (neuropathy) and smaller blood vessels (microvascular damage).

The care children and adolescents with diabetes receive as youths will decide how full and productive a life they can lead as adults and studies show that long term health outcomes for children and adolescents with diabetes relates directly to the resources put in to health services.

Children and adolescents with diabetes learn to control their diabetes, to monitor their blood sugars and insulin levels. Self-control of diabetes is challenging, but technological advances now allow children and adolescents with diabetes to monitor their diabetes with intensive therapies (such as insulin pumps or MDIs /multiple daily injections) much more effectively and accurately than with standard treatments.

However, insulin pump technology is not available at hospitals where to the vast majority of children and adolescents receive their diabetes care, even though improved control of diabetes can lessen the development of complications in adulthood by as much as 76%.

Diabetes Action is seeking the restructuring of current services to allow more children and adolescents to access life changing treatments. Click this link to see our proposal; http://www.diabetesaction.ie/PDFs/PaedsCampaign.10.05.05.11.pdf

Support out campaign by clicking on this link: http://www.diabetesaction.ie/CFLatestCampaign/index.cfm and sending the predrafted letter to your local TD or Senator about services in your area, asking them to seek policy change in the Department of Health and the HSE.


Insulin pump therapy is particularly valuable in paediatric patients especially for those of pre-school age in whom the developing brain is vulnerable to hypoglycaemia but should be offered as a treatment option for to all children and adolescents where appropriate.

New treatments that control blood sugar and insulin levels are available, but patients need to work with a specialist diabetes nurse and dietician to access this care and paediatric diabetes teams outside of Dublin rarely have the resources to offer these new treatments.

This often leads families to seek a referral to one of the three Dublin hospitals offering intensive treatments like insulin pumps, requiring time off school, off work and causing a separation from the care provided by the local diabetes service team.

Please support our campaign for improved services!

graflynn

The next meeting of the Limerick Diabetes Social Group is on wednesday the 18th of April in The Locke Bar, Georges Quay, Limerick City at 7pm

Its a casual gathering for adults with type 1 and type 2 diabetes to meet up, talk and share any tips, recipes, experiences and advice, make some new friends and have a laugh.

See Diabetes Limerick facebook page for more information.

graflynn

On Saturday 25 June, the Diabetes Federation of Ireland is holding a sponsored 30km Walk around the streets of Dublin. Starting at 10pm at night you will walk through the night passing many places of historical interest and see the sun rise before finishing with a full Irish breakfast in the Burlington Hotel.

Why not take on this challenge and encourage your colleagues, friends and family to do it as well. Go on, get a team together and register for the Dublin Lunar Walk.

REGISTRATION
Registration fee is €20 and a further €180 is the minimum for each participant to raise to take part (total of €200 minimum)
Apon registering we will send you your information pack which will contain:

- a training programme
- some fundraising ideas to help you reach your sponsorship target
- a letter giving you authorisation to fundraise for us
- sponsorship cards
- background information on the Diabetes Federation of Ireland


To register and/or for further information, contact Kate on 1850 909 909/ 01 8363022 or register online at http://www.diabetesshop.ie/iopen24/events_calendar.php?eID=486

graflynn

Hello everyone,

So far, 650 people have logged onto www.diabetesaction.ie and supported this campaign – this is good but given the amount of children and adolescents with diabetes in Ireland is 3,500 we should be doing better.

However, on the up side, there’s been a very good response from TDs who have submitted 31 parliamentary questions on paediatric diabetes services. The parliamentary questions will all focus the minds of the HSE on paediatric services so it is important that they are submitted from all over Ireland.

The constituencies where no TD has entered a parliamentary questions are:
Clare, Cork East, Cork North Central, Cork North West, Cork South Central, Donegal North East, Donegal South West, Donegal, Dun Laoghaire, Galway West, Kerry North-West Limerick, Limerick, Limerick City, Longford-Westmeath, Mayo, Meath West, Roscommon-South Leitrim, Sligo-North Leitrim, Tipperary North, Tipperary South, Wexford

Diabetes Action and all the children in Ireland with Type 1 Diabetes need your help. Please take the two minutes to log onto www.diabetesaction.ie and send a letter to your local TD's!

graflynn wrote: »

Paediatric Diabetes Services

There are approximately 3,500 children and adolescents with diabetes in Ireland and nearly all have of whom have type 1 diabetes. Hundreds of children and adolescents with diabetes can’t access advances in care, such as insulin pumps, because local paediatric diabetes teams in hospitals around Ireland are under resourced.

The care children and adolescents with diabetes receive as youths will decide how full and productive a life they can lead as adults and studies show that long term health outcomes for children and adolescents with diabetes relates directly to the resources put in to health services.

Children and adolescents with diabetes learn to control their diabetes, to monitor their blood sugars and insulin levels. Self-control of diabetes is challenging, but technological advances now allow children and adolescents with diabetes to monitor their diabetes with intensive therapies (such as insulin pumps or MDIs /multiple daily injections) much more effectively and accurately than with standard treatments.

However, insulin pump technology is not available at hospitals where to the vast majority of children and adolescents receive their diabetes care, even though improved control of diabetes can lessen the development of complications in adulthood by as much as 76%.

Diabetes Action is seeking the restructuring of current services to allow more children and adolescents to access life changing treatments. Click this link to see our proposal; http://www.diabetesaction.ie/PDFs/PaedsCampaign.10.05.05.11.pdf

Support out campaign by clicking on this link: http://www.diabetesaction.ie/CFLatestCampaign/index.cfm and sending the predrafted letter to your local TD or Senator about services in your area, asking them to seek policy change in the Department of Health and the HSE.


Insulin pump therapy is particularly valuable in paediatric patients especially for those of pre-school age in whom the developing brain is vulnerable to hypoglycaemia but should be offered as a treatment option for to all children and adolescents where appropriate.

New treatments that control blood sugar and insulin levels are available, but patients need to work with a specialist diabetes nurse and dietician to access this care and paediatric diabetes teams outside of Dublin rarely have the resources to offer these new treatments.

This often leads families to seek a referral to one of the three Dublin hospitals offering intensive treatments like insulin pumps, requiring time off school, off work and causing a separation from the care provided by the local diabetes service team.

Please support our campaign for improved services!

central

Hi All,

Just wanted to let you know that our next meeting for the Support Group is going to be a Social Outing! We are thinking of heading out for dinner in town. The chosen date is Thursday 28th July and the usual time of 6.30pm. We would like some ideas on where you would all like to go so please let us know. I put forward Boulevard Cafe http://www.boulevardcafe.ie/ or Niamh has suggested Saba http://www.sabadublin.com/ .

We will need to book a table wherever we decide to go so can you please let us know via email if you will attend and if you have any suggestions on a venue, a majority vote will win.

Thanks a mill guys and looking forward to our night out :-)

Please let us know via email to usual address or visit us on Facebook - "Diabetes in Ireland"

graflynn

The Diabetes Federation of Ireland is organising its annual “Activity Day for Teenagers with Diabetes” between the ages of 10-16 years on Friday 15th July 2011.

The Diabetes Federation has booked 6 outdoor activity centres around the country. The activity centres have being chosen so that all teenagers who wish to attend an event can do so regardless of where they live in Ireland.

The aim of the event is to bring together as many adolescents with diabetes as possible from the locality to enjoy a fun day with their peers in a relaxed environment.

During the day, teenagers will have a chance to have a go at kayaking, rock climbing or caving. A hot lunch and snacks will be provided throughout the day. Healthcare professional support, provided by the Federation, will be available throughout the day. Buses from a number of paediatric clinics to each of the centres have been arranged.

The Diabetes Federation of Ireland will cover the majority of the costs for this event but we are asking each participant to pay a nominal fee of €20 to secure their place.

Register is required and forms can be obtained from; Siobhan O’Grady, Diabetes Federation of Ireland, who can be contacted on Lo-call 1850 909 909 or email Siobhan.ogrady@diabetes.ie

graflynn

This year, the RTE television show Operation Transformation plans to feature Type 2 Diabetes (T2D). They are looking for people whose lives have been affected as a result of developing Type 2 Diabetes. It doesn't matter what age you are, or where you live, Operation Transformation would love to hear from you. Please e-mail your story, including when you developed Type 2 Diabetes, how you felt about it and how it has affected your life, to ot@vipmg.tv before closing date of the 17th September.

This would be a great opportunity for someone who feels like they need help from a team of experts to get on top of their diabetes.

graflynn

Hello everyone,

The Diabetes Federation of Ireland launched their new look website yesterday. I was just wondering what people thought of it? It was definately overdue.

www.diabetes.ie

central

TYPE 1 DUBLIN SUPPORT GROUP MEETING

The next meeting will take place @ 6.30pm on Wednesday 7th September in DFI Offices, Lower Gardiner Street, Dublin 1.

All newcomers welcome.

graflynn

“Ask the Diabetes Dietician”


The Clare branch of the Diabetes Federation has invited Ciara Heverin, Senior Diabetes Dietician with HSE Galway to join the Clare Diabetes Support Group and answer all of your diabetes related questions. This event will take place on Tuesday evening, September 13th in the Temple Gate Hotel, Ennis at 8pm.

The event is free and all are welcome.

The Clare branch of the Diabetes Federation can be contacted on 087 641 5747 or by emailing clarebranchdfi@gmail.com

central

central wrote: »

TYPE 1 DUBLIN SUPPORT GROUP MEETING

The next meeting will take place @ 6.30pm on Wednesday 7th September in DFI Offices, Lower Gardiner Street, Dublin 1.

All newcomers welcome.

The next Type 1 Dubliln Support Group Meeting is taking place at 6.30pm on Wednesday 5th Oct in DFI offices, Lower Gardiner Street. Hope to see some new faces there.

cynder

Any Facebook group set up? That these can be announced on aswell? Might be an idea trying to find Irish type 1 support groups on facebook and can't find any!

graflynn

grindelwald wrote: »

Any Facebook group set up? That these can be announced on aswell? Might be an idea trying to find Irish type 1 support groups on facebook and can't find any!

Unfortunately, some people have their pages set up as groups so when they post details of meet ups it doesn't get posted in your news feed.

These are all the irish groups that I know of;
Type 1 Dublin Support Group

Diabetes in Ireland

Mayo Parents Support Group

Cork Parents Support Group

Diabetes Limerick

Diabetes People

Cork Type 1 Support Group

SusanOF

Cork Type 1 Support Group

The group meet the last Thursday of every month in the Diabetes Ireland offices, Grand Parade, Cork. Meetings are from 7.30pm - 9.30pm

graflynn

Sorry Cork - I didn't mean to forget you:-)

graflynn

Diabetes Ireland need people with type 2 diabetes, aged 30-60, to attend a focus group in the Davenport Hotel, Dublin 2, on Tuesday 18th October next. The group will meet at 6:30pm and a meal will be provided. The group will conclude by 8:30pm that evening.


If interested please e-mail david.mcmahon@diabetes.ie with your name and age. There are two places available.

graflynn

The Type 1 Diabetes Support Group will meet on Tuesday, the 8th of November, in the Old Ground Hotel, Ennis from 8pm to 9:30pm.

The topic will focus on sharing information about the benefits of alternative medicine. Anyone interesting in learning more about Type 1 Diabetes is welcome.

The meetings take place in a relaxed setting and are focused on sharing the challenges we face in living with diabetes and congratulating the triumphs. The Support Group can be contacted on the following telephone number 087 641 5747 or by email at clarebranchdfi@gmail.com

graflynn

National Diabetes Health Awareness Exhibition.


World Diabetes Day falls on the 14th November every year and to mark the occasion Diabetes Ireland is bringing the National Diabetes Health Awareness Exhibition to the Rochestown Park Hotel, Douglas, Co. Cork, on Sunday 13th November from 12 – 5pm.

The exhibition will provide people with diabetes with the latest information on diabetes management and it will offer support to people with diabetes, their families and friends. It is also hoped that the event will help to raise awareness of diabetes among the general public.

Learning about the impact of diabetes is a vital part of helping people to manage their condition. Health checks will be freely available at the event and they include:
• Diabetes Screening
• Eye Screening
• Cholesterol
• Blood Pressure
• HbA1c
• BMI

Healthcare professionals, such as Diabetes Nurse Specialists and Dietitians, will be available to answer questions on diabetes, footcare, weight control and other diabetes-related issues.

Educational workshops will be covering topics ranging from hypoglycaemia to top tips for looking after your feet and having a healthy diet.

For the younger members of our community, there will be fun attractions with face painters and clowns providing entertainment.

“This exhibition is part of the Diabetes Ireland’s on-going dedication to increase awareness of diabetes in Ireland and I would encourage you to attend with your family and avail of the array of workshops, free testing and information” says Professor Hilary Hoey, chairperson of Diabetes Ireland.

The will be a free bus service from Cork train station and the bus station to the Rochestown Park Hotel from 11am and on the hour, every hour and returning throughout the day.

For more information on the Diabetes Health Awareness Exhibition contact Diabetes Ireland on Callsave 1850 909 909 or email info@diabetes.ie

graflynn

This sounded really interesting. It was posted on the World Diabetes Day facebook page

Have you got a camera? Would you like to do something different to mark World Diabetes Day on 14th November? Why not take part in the Blue Monuments photowalk in Dublin, being organised through Photowalk.ie for details and to sign up check: http://photowalk.ie/world-diabetes-day-blue-monument-dublin-photowalk-nov-14th

graflynn

“TYPE 1 Diabetes Group Meeting.”

The Type 1 Diabetes Support Group will meet on Tuesday, the 13th of December, in O'Connor's Bakery, in Ennis from 8pm to 9:30pm.

Family owned and local business, O'Connor's Bakery have invited us to sample their new "Sugar-Free" Christmas Puddings and their "Sugar-Free" Cheesecake. We are taking this opportunity to commend O'Connors on taking an interest in Diabetes but to also high light the complexity of the relationship between type 1 diabetes and food. In particular, the differences between "sugar-free" and "No added Sugar" and other commercial phases used to target people with diabetes.

The group will also take the opportunity to discuss tips to overcome the temptations that go hand and hand with the Christmas season. Places are limited and RESERVATION IS REQUIRED. To reserve your place call the Support Group on the following telephone number 087 641 5747 or by emailing your name to clarebranchdfi@gmail.com

graflynn

Or are you between 16-19 years old and living with a chronic illness or have you spent long periods of time in hospital? Maybe someone close to you has? (examples include: asthma, diabetes, epilepsy, cancer, cardiovascular disease, autoimmune disease, cystic fibrosis)

http://www.spunout.ie/action/Make-a-difference/Acting-for-a-cause

graflynn

The Type 1 Diabetes Support Group will meet on Tuesday, the 21st of February, in the Temple Gate Hotel, Ennis, Co. Clare from 8pm to 9:30pm. Anyone interesting in learning more about Type 1 Diabetes is welcome. The meetings take place in a relaxed setting and are focused on sharing the challenges we face in living with diabetes and congratulating the triumphs. The Support Group can be contacted on the following telephone number 087 641 5747 or by email at clarebranchdfi@gmail.com

franlynch

are there any support groups or meetings for type 2 diabetics in Cork City please?

graflynn

franlynch wrote: »

are there any support groups or meetings for type 2 diabetics in Cork City please?

Contact Diabetes Ireland at:
Southern Regional Office
32 Grande Parade
Cork

Tel: 021-4274229
email: sro@diabetes.ie

for information. I know they have a Type 1 Teens group and a Type 1 adults group. I'm not sure what they have for Type 2's.

franlynch

thanks

graflynn

Clare Type 1 Diabetes Support Group for Adults and Parents.

The next type 1 diabetes support group meeting will take place on Tuesday 13th March from 8pm to 9:30pm in The Grove Bar in Roslevan Shopping Centre, Tulla Road, Ennis.

This group is open to adults living with type 1 diabetes and to parents of children with diabetes. The starter topic will be "Caring for Diabetic Feet".

The Type 1 Diabetes Support group offers support and information on living well on insulin. The Support Group can be contacted by leaving a message on the following telephone number 087 641 5747 or by email at clarebranchdfi@gmail.com

graflynn

Diabetes Ireland Research Alliance in association with the Juvenile Diabetes Researc Foundation (JDRF)

Type 1 Diabetes Research Development Meeting

Global Type 1 diabetes research is moving at such a pace that it is bringing renewed optimism of finding a cure to families living with Type 1 diabetes. Recent advances in the areas such as the artificial pancreas and stem cell research give cause for such optimism.

Come along to our meetings in Portlaoise on Monday 26th March and Limerick on Tuesday 27th March and hear from the experts on the latest cutting edge Type1 diabetes research and how you can help find the cure.

Speakers will include Janet Allen, a researcher on the Artificial Pancreas Project, Maebh Kelly, who will give an update on the Diabetes - Genes, Autoimmunity and Prevention (D-GAP) project and Emma Warrinton, a parent of a child with diabetes who participated in the D-GAP project.

Click on this link for more information on the venues.

graflynn

Hello Everyone,
I'm the secretary of the Clare branch of Diabetes Ireland and I'm trying to create media publicity for the Type 1 Research meeting in Limerick on the 27th.

I'm looking for a person with type 1 diabetes or a parent with a child with type 1 living in Co Clare and Co Limerick who would agree to be interviewed by local newspapers about life with type 1 and the importance of research.

If you are interested in taking up this cause please email me at clarebranchdfi@gmail.com Your help would be much appreciated.

Regards,
Grainne Flynn

graflynn

Finding the cure for Type 1 diabetes is just a matter of time and money to fund the world’s best research.

Global Type 1 diabetes research is moving at such a pace that it is bringing renewed optimism of finding a cure to families living with Type 1 diabetes. Recent advances in the areas such as the artificial pancreas and stem cell research give cause for such optimism.

The primary charitable funder of this research, the Juvenile Diabetes Research Foundation (JDRF) who spend $70 million per annum on research, developed a partnership with Diabetes Ireland to provide an opportunity for Irish people to be part of the global work of JDRF into finding a cure for Type 1 diabetes.



Under the umbrella of the Diabetes Ireland Research Alliance, the subsidiary charity of the Diabetes Ireland, the partnership aims to:

• encourage high quality type 1 diabetes research in Ireland.
• promote Ireland as a JDRF base for international-led research into finding a cure for diabetes.
• build a sustainable relationship with Irish based scientists and researchers.
• raise funds for Type 1 diabetes research.

Chairperson of the Diabetes Ireland Research Alliance, Professor Seamus Sreenan said “this is a fantastic opportunity for Irish based scientists and researchers to build a sustainable relationship with JDRF and work
towards being part of its huge Type 1 diabetes research programme. Our shared aim is to develop Ireland’s contribution in the field of Type 1 diabetes research through the partnership. It is also an opportunity for the Irish community to directly donate to this research”.

The partnership will hold two public research open meetings focusing on these developments. The first will take place in the Heritage Hotel, Portlaoise on Monday 26 March at 7.30pm and the second in the Greenhills Hotel, Limerick on Tuesday 27 March at 7.30pm.

Speaking at the meeting will be Ms. Maebh Kelly on current Type 1 research developments which will include the Diabetes – genes, autoimmunity and prevention (DGAP) research project. Insights from this study have the potential to lead to key drug developments aimed at preventing or reversing Type 1 diabetes.

Also speaking on the day will be Ms Emma Warrington, on how she and her family got involved with the D-GAP research project. Janet Allen, researcher from Cambridge University will present on the Artificial Pancreas Project. The Artificial Pancreas Project or closed loop system can automatically regulate blood sugar levels by not only giving insulin according to the body’s minute to minute needs, but also administering
glucagon automatically as well. The findings of this project are extremely positive and there is a great deal of work going into making this a reality for people with type 1 diabetes.

Last year the partnership set itself a target of raising €75,000 per annum for Type 1 research. Based on funding raised, the Alliance recently put out a call to Irish researchers for a €225k three year high quality innovative Type 1 diabetes research project which it plans to jointly fund in conjunction with the Health Research Board and the Medical Research Charities Group starting later this year.

Professor Sreenan added “last year, the members of the Irish diabetes community helped reach the €50k target and with their continuing support we hope to achieve more this year. This is a cutting edge diabetes research development and local people with diabetes should not miss this opportunity to hear from the experts”.

graflynn

graflynn wrote: »

Finding the cure for Type 1 diabetes is just a matter of time and money to fund the world’s best research.

Greenhills Hotel, Limerick on Tuesday 27 March at 7.30pm.

Speaking at the meeting will be Ms. Maebh Kelly on current Type 1 research developments which will include the Diabetes – genes, autoimmunity and prevention (DGAP) research project. Insights from this study have the potential to lead to key drug developments aimed at preventing or reversing Type 1 diabetes.

Also speaking on the day will be Ms Emma Warrington, on how she and her family got involved with the D-GAP research project. Janet Allen, researcher from Cambridge University will present on the Artificial Pancreas Project. The Artificial Pancreas Project or closed loop system can automatically regulate blood sugar levels by not only giving insulin according to the body’s minute to minute needs, but also administering
glucagon automatically as well. The findings of this project are extremely positive and there is a great deal of work going into making this a reality for people with type 1 diabetes.

I wish I could go to this meeting tonight but unfortunately my daughter's first confession comes first.

Maybe there's somebody from boards who is and can post a mini review of it tomorrow???

CramCycle

graflynn wrote: »

I wish I could go to this meeting tonight but unfortunately my daughter's first confession comes first.

Maybe there's somebody from boards who is and can post a mini review of it tomorrow???

Wish I could go to as I am involved in Diabetes Research, will they be hosting a similar evening in Dublin at any time in the future?

Have you heard of any research groups going down, speaking to a few in UCD, no one seems to have heard about it, will it be a generally science based presentation or its it more of a public awareness to the benefits of funding research?

graflynn

CramCycle wrote: »

Wish I could go to as I am involved in Diabetes Research, will they be hosting a similar evening in Dublin at any time in the future?

Have you heard of any research groups going down, speaking to a few in UCD, no one seems to have heard about it, will it be a generally science based presentation or its it more of a public awareness to the benefits of funding research?

The Diabetes Research Alliance usually hold 2 meetings like this per year - they could be anywhere. You can join their email list to be informed of the meetings. Their contact info is here

There was a couple of small research projects during 2011; details would have been posted on the Diabetes Ireland facebook page and I know that there are tenders out to launch a Irish based Type 1 research project at the moment.

The presentations are public awareness based and will talk about Type 1 specific research being undertaken by the JDRF in the UK. There will be a presentation at the end on fund raising and how none of this research can take place without it. People will be asked to consider organising a fund raising event or if they would participate in others but no-one will be asked for money there and then.

I should probably add at this point that admission at this event is free.

graflynn

Clare Type 1 Diabetes Support Group for Adults and Parents.

The next Clare type 1 diabetes support group meeting will take place on Tuesday 10th April from 8pm to 9:30pm in The Temple Gate Hotel, Ennis. The topic of discussion will be a review of the recent Type 1 Diabetes Research Development meeting in Limerick. This group is open to adults living with type 1 diabetes and to parents of children with diabetes. The Type 1 Diabetes Support group offers support and information on living well on insulin therapy.

The Support Group can be contacted on the following telephone number 087 641 5747 or by email at clarebranchdfi@gmail.com

graflynn

Sunday 22 April 2012 at 2.00pm

Newpark Hotel, Kilkenny
Chair: Professor Hilary Hoey

All Welcome and admission is free.

Current Medications used to control my diabetes – what do they do for me?

Presented by Dr John McDermott, Consultant Endocrinologist,
Connolly Hospital, Dublin

The Shape of future Diabetes Services: How will it impact on me

Presented by Ms Mairead Gleeson, Programme Manager,
HSE National Diabetes Programme

Tea/Coffee

Understanding Carbohydrates to control blood sugar levels

Presented by Ms Kate O’Connor, Dietitian,
St Luke’s Hospital, Kilkenny

graflynn

Starter Kit; A Guide for Adults with Type 1 Diabetes.

Diabetes Ireland launched the Irish version of “Starter Kit; A Guide for Newly Diagnosed Adults with Type 1 Diabetes” in March 2012.

This book has been adapted from it’s original format, which was written by the Type 1 Diabetes Network; a group of young adults with type 1 diabetes in Australia. We sincerely thank them for giving their permission to adapt it for Ireland.

The Starter Kit is for newly diagnosed adults and contains lots of useful information on how to adjust to life as a person with diabetes, such as a “checklist of stuff to do within the first month after diagnosis” and “10 things we wish someone told us the day we were diagnosed”.

Established adults with type 1 diabetes and adolescents who have recently transitioned into the adult world of diabetes will find the Starter Kit useful too. It includes information about where to find peer support, recommendations for books and websites, and links to all public resources available to a person with diabetes.

Everybody will appreciate the Cheat Sheet: this is a two-sided page of information aimed at those without type 1 diabetes. It is there for you to copy and share with your family and friends and can help you get on with living your life rather than feeling compelled to be the “font of all diabetes knowledge.”

Diabetes Ireland hopes that this book will help guide you on the right path to managing your diabetes successfully and open a world of support to you.

The Starter Kit is available to download from the http://www.diabetes.ie/wp-content/uploads/2012/02/T1-Starter-Kit.pdf and paper copies are available by contacting Diabetes Ireland’s head office on LoCall 1850 909 909 or by emailing your request to info@diabetes.ie.