Undiagnosed circle of hell.

dlofnep

No, my testosterone levels are fine. It has nothing to do with that. My problem is due to mercury toxicity. I've been to the Drummartin clinic, and while I think they are genuinely trying to seek out alternative methods - I felt that I was spending needless cash with them that I just didn't have. They weren't really identifying my problem.

Anywho...

Finish up my 28th round tomorrow. Tired right now, tough day today. Weak, tired... Can't wait for tomorrow to rest.

sam34

modnote: yet again, a reminder to posters not to suggest potential diagnoses

dlofnep

Thanks Sam

Round 28 complete, now I can finally relax! Supposed to be going to Dublin tomorrow to meet up with a friend, hopefully I'm well enough for it.

dlofnep

Really upset tonight. So much brain fog, I can't think. Had to come home from my Irish language group as I was just zoned out and upset. I feel taxed and don't want to wake up tomorrow. If I could sleep forever, I'd gladly accept it. At least, I'm not a mentally challenged wreck in my sleep.

</whine>

Splendour

Hey dlofnep,

You have my total sympathies as I know only too well what you are going through; am so brainfogged of late I feel like I'm going out of my mind.
I hope today will bring you a clearer head...

opinion guy

Sorry to hear you are having a rough time.

Can I ask - since you've started - do you feel you are improved ?

Seanachai

I can relate to your frustration dlofnep. I am currently chelating when I can on weekends. I realise that the metal toxicity is a big factor in brain fog and fatigue. However lately I've also been investigating the effect of viruses in this regard in people with autoimmune conditions caused by metal toxicity or otherwise. I can't afford to be seeing the boutique doctors that have sprung up or getting expensive tests. I've been researching and trying a whole raft of supplements and protocols. One that stands out is the Lyme disease protocol from Dr Buhner. www.planetthrive.com.

Last month I ordered the herbs and nattokinase ( breaks down biofilms ) needed and I have to say that they have made a big difference in brain fog issues. I don't think I have Lyme disease but the cats claw used can also kill fungi such as candida which may be what is helping. So as well as chelating it may also be worthwhile to look into possible viral issues that co-exist with the mercury toxicity.

dlofnep

Already had 2 blood tests for Lyme disease, both came back negative.. Sorry, I just had a rough day yesterday and needed to vent. I'm not too bad today. Sometimes it gets the better of me and brings me to tears.. I feel helpless at times, and nobody truly understands how difficult it is. Everyone thinks that I'm just "tired". They can't understand how bad it is until they experience it themselves..

Torakx

dlofnep wrote: »

Already had 2 blood tests for Lyme disease, both came back negative.. Sorry, I just had a rough day yesterday and needed to vent. I'm not too bad today. Sometimes it gets the better of me and brings me to tears.. I feel helpless at times, and nobody truly understands how difficult it is. Everyone thinks that I'm just "tired". They can't understand how bad it is until they experience it themselves..

Check for fungals for sure.
Ive been in states like this before with candida.
The brain fog was quite overpowering.I had a healthy dollop of depression and severe anxiety aswell though.
Since the brain fog was caused by bacteria/fungus entering my bloodstream from leaky gut syndrome, i would think if it was candida you would have depression and/or anxiety issues aswell.

Keep searching and dont give up hope.
It took me over ten years to realise i had a condition and zone in on what it was to get to even start recovering.
Looking back now, im just happy i kept looking.
You'll get there too

Edit. Ah read a couple pages into the thread.Seems to me candida would have been one of the first things you would have checked for doing all those tests.So maybe my post is not of much use.
But obviously for some reason you havent looked into that,it should be a priority to cancel it out.

Splendour

Seanachai wrote: »

I can relate to your frustration dlofnep. I am currently chelating when I can on weekends. I realise that the metal toxicity is a big factor in brain fog and fatigue. However lately I've also been investigating the effect of viruses in this regard in people with autoimmune conditions caused by metal toxicity or otherwise. I can't afford to be seeing the boutique doctors that have sprung up or getting expensive tests. I've been researching and trying a whole raft of supplements and protocols. One that stands out is the Lyme disease protocol from Dr Buhner. www.planetthrive.com.

Last month I ordered the herbs and nattokinase ( breaks down biofilms ) needed and I have to say that they have made a big difference in brain fog issues. I don't think I have Lyme disease but the cats claw used can also kill fungi such as candida which may be what is helping. So as well as chelating it may also be worthwhile to look into possible viral issues that co-exist with the mercury toxicity.

Thanks for that link Seanachai-very interesting; I'm currently seeing a Neuro and have asked him to check for Lymes as I seem to have almost all of the symptoms. Unfortunately, it seems it will be the last thing he's going to check for and could be about a year before I get that far.

Splendour

dlofnep wrote: »

Already had 2 blood tests for Lyme disease, both came back negative.. Sorry, I just had a rough day yesterday and needed to vent. I'm not too bad today. Sometimes it gets the better of me and brings me to tears.. I feel helpless at times, and nobody truly understands how difficult it is. Everyone thinks that I'm just "tired". They can't understand how bad it is until they experience it themselves..

No need to apologise, I think most of us here understand how you feel. It is difficult when others seem to think that a 'few good night's sleep' and you'll be grand. If only...

A simple blood test is not always enough to eliminate Lyme disease http://www.ticktalkireland.org/diagnosis.html and it is more prevalent in Ireland than we're doing think.

dlofnep

I don't have lyme disease, but thanks for your reply. It is absolutely 100% due to mercury toxicity. I am comfortable with that, and working on remedying it - and have read more than enough papers, and spoken to more than enough people to feel that the protocol I am undergoing is the most successful.

RUCKING FETARD

Head up with the Rounds, I see abit of fed up/slipping in the last few sessions.

Be careful with the running, no better way to cause yourself an injury (especially a back injury and they suck big time) than abit of harmless running when your body wouldn't be use to it. Hills man, walk up them instead for awhile.


These dudes would show you how to run!!

No fancy trainers there!! Read a few reports lately where the high tech trainers take the force/pressure from the hips and knees and plow it all into the ankles.

Thousands of years of evolution say we don't need the springed cushioned trainers that have popped up in the last few decades.

I may start a Thread in the running Forum for the craic!:D

Or get a rowing machine, 1 of only a couple of exercises that will get your heart rate over 200 beats a minute. That'd get ya sweating.:p Again though, slow build up needed. More Hills!:pac:



Head up!!:)

amdublin

How far are you through dfnlop?

dlofnep

Haha, thanks Fetard!

Amdublim - As Fetard pointed out, it's my first year anniversary on the Cutler protocol in 2 weeks. So almost a year on the protocol - Been documenting every round on my blog: http://rejectmercury.blogspot.co.uk/

34 rounds (22 rounds with ALA included). My target is 62 rounds, so I think I should be hitting it maybe around April of next year. Have adjusted lovely to the doses now, only kick is the redistribution.. While on your round, it mobilizes the mercury and you excrete whatever the body can during that time - and when the round is over, you re-absorb some of the mercury... To overcome this, I hit the sauna like a champion and try to sweat out a good bit of it.

Going strong in anycase, feeling positive! Thanks everyone

dlofnep

Hey guys - Just wanted to post a quick update. Today marks 1 year on the Cutler protocol. I finished my 36th round today. It's been tough, but it's getting easier. Posted a long update on my blog: http://rejectmercury.blogspot.com

opinion guy

Hey dlofnep - how are you doing ?

dlofnep

About to tackle candida next week - Starting with a liquid fast for a few days, followed on by strict diet + supplements. Will return to chelation after the fast. In order for chelation to be productive, the digestive system needs to be optimal. I won't be giving any updates on how I'm feeling until I have reached my target. Incremental updates serve no purpose at this point.

BTW - I got an advanced copy of Daniel Forsythe's new book (He recovered from mercury toxicity through the cutler protocol, much like Áine Ní Cheallaigh (Author of 'Getting the Mercury Out'). I'll put a review on the blog when I'm finished reading it.

Splendour

Get yourself prepared for that cleanse dlofnep;I decided to try option 2 but had to give up after three days. I thought not eating would be the killer for me but not so. The detox drinks were unbelievably harsh and totally exacerbated my symptoms of headaches/fatigue etc...
I got headaches so bad that I at one point wanted to bang my head off a wall to get relief and I basically couldn't move for the extent of the detox.

Of course, we are all different and don't all react the same but I would advise you to cancel any appointments for the week that you decide to do the detox as if you end up like me you won't be able to do anything. I couldn't even talk to anyone!
Having said that, if I had the chance I'd love to do the full week although I think I'd keep the detox drinks to a maximum of two or not make them as strong as suggested.

I'll be curious to hear how you get on with it. Best of luck...

dlofnep

Cheers mate. I'm just waiting on a fibre supplement to come. Hopefully it will be here tomorrow or monday! I've had a few stable days the last few days. Nice for a change!

Ando's Saggy Bottom

How has this therapy been working so far? It should have started to have an effect by now I'd imagine?

dlofnep

All's going well. Currently going through detox/parasite cleanse. Even managed enough muster to go up to Belfast last weekend to visit my cousin and friends. Still ill - it will take more time, but feeling positive. Cutler protocol takes 50-60 rounds with ALA before you notice a substantial improvement. I've only complete 32 rounds with ALA, so only realistically about half-way there.

I'm not going to be chelating over Christmas, as I want to have some rest for the holidays.

I got a free advance copy of another guy (An english lad called Daniel Forsyth) who's chelated back to good health using the Cutler protocol - very interesting book. Áine Ní Cheallaigh who wrote Getting the Mercury Out is now recovered 100% and is living her life as normal again. Another guy - Robert Cartland documented his recovery with the protocol in great detail also.

I hope to reach 50 rounds by next summer. Maybe before then.

Squeaky the Squirrel

Hadn't read the blog ina while, thought it was gonna take an hour to catch up but it's been very quiet!

dlofnep

I've been on a break over the Christmas holidays. I was in with the Doctor yesterday to test for thyroid issues, as it seems to crop up consistently with people with mercury toxicity. Will see how the results go. Planning on resuming chelation soon

dlofnep

Apparently me mam has hypothyroidism, which she's been on medication for for 20 years. I never knew. We'll see - hopefully results will be in by Wednesday! I hit 30 three weeks ago, I kinda feel like my life is passing fast and I've feck all to show for it. Most of my mates are settled down now. Hopefully I'll be right as rain by the end of the year, going to piss off to the US then I think. We'll see.

dlofnep

Finished round 49 round (37 with ALA). Actually did 2 straight rounds without a break, so redistribution is going to suck tomorrow! Looking to try hit my target of 62 by early summer. Have enough DMSA and ALA to do me until then. I've added Acai Berry extract to my supplements, as studies have shown it reduces oxidative stress (which is extremely important during chelation). I also take vitamin E for this.

As for thyroid - the hospital didn't complete all the tests I asked for, so I've asked to be referred to an endo. Will see how that goes. It actually turns out my mam is hypothyroid, which is what I feel I am. (Due to exhaustion/coldness all the time). We'll see!

Until then, it's chelation non-stop until round 62. Hard to believe I'm already on round 49, feels like only yesterday I was just beginning.

cheeky2105

im sorry to interrupt everyone just having nose thru this thread and i see somepeople here r undergoing treatment for toxicity ? i wont go into my issues as id be here all night all valid medically confirmed long term health problems which i now recently believe were down to long term chronic lead exposure am waiting on blood lead levels from uk but have been told this may not be 100pc accurate as only measure recent exposure but that other tests such as xrf xray etc can be done to measure total body burden but this is very hard to get done mostly for research purposes I have emailed some chelation dr stewart and have had no reply then i contacted an ART therapist in cork who said there are load more test to measure same but then on asking here how reliable they would b as in will they stand up as this may go legal obciously wont divulge anymore info here then she never got back to me hmmmmmm??? Does anyone please please have any advice or info as to where to go from here

thanks all

dlofnep

There are two methods for testing heavy metals - The first is a urine challenge test. In the case of lead, you would typically use a high dose of DMSA (1500mg). You fill a vial with urine before and another after taking the DMSA. You compare and contrast the excreted lead levels then to test your toxicity. I would be happy to share you my lab results if you like, to give you an idea of what the tests show.

The second test is a hair mineral analysis. You're typically not looking for high lead levels, but rather - looking at the levels of all minerals. Depending on which are high, and which are low - you can confirm toxicity. For example - with mercury, selenium levels will be low, while copper levels will be high at the expense of zinc. There are other indicators, but it's not really an area I'm overly qualified in.

With respect to lead - I often hear it crop up, but I suspect there may be further underlying issues. What sort of exposure have you had with lead?

With respect to my health - I've recently moved up to 250mg of adrenal cortex and it has really helped. Cleared out brain fog, and has drastically improved my self confidence in public, which I suspect is due to stabilising my cortisol levels. (Great talk on TED which covers the relation between cortisol and social confidence or lack of). When I used to go shopping, I would get very shy.. Not nervous, but unable to make contact with anyone, and just kept my head down - afraid to even socialise with anyone at all. Since taking the adrenal cortex, it has really sharpened up everything - and the social weirdness has gone.

Popped back into the doc for more blood tests (iron + b12), so waiting on them to come back. Unsure how long I'll be waiting to see an endo. Haven't chelated this week, as have just been too busy. Will hopefully resume again next week. Interested to see how I'll feel chelating with adrenal cortex to support me.

cheeky2105

dlofnep wrote: »

There are two methods for testing heavy metals - The first is a urine challenge test. In the case of lead, you would typically use a high dose of DMSA (1500mg). You fill a vial with urine before and another after taking the DMSA. You compare and contrast the excreted lead levels then to test your toxicity. I would be happy to share you my lab results if you like, to give you an idea of what the tests show.

The second test is a hair mineral analysis. You're typically not looking for high lead levels, but rather - looking at the levels of all minerals. Depending on which are high, and which are low - you can confirm toxicity. For example - with mercury, selenium levels will be low, while copper levels will be high at the expense of zinc. There are other indicators, but it's not really an area I'm overly qualified in.

With respect to lead - I often hear it crop up, but I suspect there may be further underlying issues. What sort of exposure have you had with lead?

With respect to my health - I've recently moved up to 250mg of adrenal cortex and it has really helped. Cleared out brain fog, and has drastically improved my self confidence in public, which I suspect is due to stabilising my cortisol levels. (Great talk on TED which covers the relation between cortisol and social confidence or lack of). When I used to go shopping, I would get very shy.. Not nervous, but unable to make contact with anyone, and just kept my head down - afraid to even socialise with anyone at all. Since taking the adrenal cortex, it has really sharpened up everything - and the social weirdness has gone.

Popped back into the doc for more blood tests (iron + b12), so waiting on them to come back. Unsure how long I'll be waiting to see an endo. Haven't chelated this week, as have just been too busy. Will hopefully resume again next week. Interested to see how I'll feel chelating with adrenal cortex to support me.

Thanks 4 reply I have been drinking large amts of highly contaminated water over 13 yrs the doc in hse told me to get tested due go my Med history I have blood clotting disorder 6 miscarriages crohns disease not to Mention my spine fused !!! So fun & games anyhow my bloods were sent to uk 6 weeks ago by toxicologist in one if the main dub hospitals they were just goin to do normal blood profile 1st n compare to last set of bloods but the they requested my full history n rang my dr back n said they wud do the blood lead test straight away then my mind is racing very concerned I suffer the brain fog all the time too n spells if delirium then feeling v low do b all over the place it's madness sometimes only this lead thing has come to lite it may just all b starting to make sense now why ?:(

opinion guy

cheeky2105 wrote: »

im sorry to interrupt everyone just having nose thru this thread and i see somepeople here r undergoing treatment for toxicity ? i wont go into my issues as id be here all night all valid medically confirmed long term health problems which i now recently believe were down to long term chronic lead exposure am waiting on blood lead levels from uk but have been told this may not be 100pc accurate as only measure recent exposure but that other tests such as xrf xray etc can be done to measure total body burden but this is very hard to get done mostly for research purposes I have emailed some chelation dr stewart and have had no reply then i contacted an ART therapist in cork who said there are load more test to measure same but then on asking here how reliable they would b as in will they stand up as this may go legal obciously wont divulge anymore info here then she never got back to me hmmmmmm??? Does anyone please please have any advice or info as to where to go from here

thanks all

Sorry to hear your story - I saw your posts elsewhere.
Can I ask you something - why not stick with the toxicologist ? Why reaching out for chelation docs etc ?