Thyroid problems

checkered flag

Has anyone on the forum gone through any type of thyroid problems? I'm thinking hyperthyroidism, hypothyroidism, or the various other thyroid problems.

sam34

i'll move this to longterm illness, as you'll get a better response there.

checkered flag

All righty.

LilMrsDahamsta

Yeah, I've had Hashimoto's Thyroiditis (i.e. underactive) since I was 15 or 16; more than half my life. Tbh, since I was put on eltroxin, I've had no symptoms and no problems; it's a total non-issue for me.

Why the question?

ziggy23

Yes have an underactive thyroid which has gotten way worse since becoming pregnant. It's not a major illness but a pain nonetheless

CathyMoran

I have an underactive thyroid and am pregnant too, so I know how you feel.

ziggy23

CathyMoran wrote: »

I have an underactive thyroid and am pregnant too, so I know how you feel.

It's a pain alright regarding the tiredness and all. Mine has just stabilised and I'm 37 weeks now. Am taking 200mg eltroxin a day. After I have the baby I'm goin to see a specialist. Can anyone reccommend a good one in Dublin? Cheers

lynnsback

I am hypo thyroid with Hashimotos disease. On 240 mg dessicated thyroid.

CathyMoran

When I was 4 I had an overactive thyroid - Graves disease.

shazba

Hi there, Just thought i would let you know my son has treated Hypothyroidism He was diagnosed at 10 days old in Dublin he was put on thyroxine. He is now nearly 20 and in great health and attending college in Cork. He will be Taking thyroxine all his life ,But its just a way of life now . Hope this is of use to you if you need any more info just ask will help if i can.:)

glitterbug86

I was just diagnosed with hypothyroidism just a few weeks back. My symptoms started at the end of May. I have been on 50 mcg eltroxin daily for almost 3 weeks now. Not feeling any better yet but I understand it takes time.. plus I think I may need an increase in the dosage but we'll see..

(22, female)

shazba

Hi Glitterbug , Dont be too put out by not havi9ng a quick response to Thyroxine it takes a while to work. My sons on 275 mcgs daily but hes fine. T.G so just keep an eye on it and if still no change inform G.P who will test your TSH levels in blood test to see if you need more Thyroxine. Good Luck:)

Turquoise

I had hyperthyroidism from the age of 13 or so. Eventually it came to having my thyroid removed just before my 18th birthday after the Neomercazole didn't work. I'll be on eltroxin for the rest of my life, but it was the best decision I ever made. Even when my thyroid levels came back in the right levels for a while (while I was on the meds) I just wasn't myself, I was unhappy. It was only after the surgery that I could fully appreciate just how much it affected me.

If you've any questions feel free to PM me, or obviously post here.

ChewChew

I also have hypothyroidism and PCOS to throw that into the mix! Am on the max doe of eltroxin and getting no where and a thyroidectomy has been discussed with my consultant but I'm not keen tbh. I'm only 26 so really want to hold out on having major surgery as long as I can! I found the first 3 years of my diagnosis the worst. . . . but have a fantastic consultant so am really able to manage it that bit more!

$lash

I'm a 22 year old girl and i had my thyroid removed when i was just 18 due to hyperthyroidism. Physically i am in far better health than i was before hand but mentally I'm not so sure, i think i get down a lot more than i used to, sometimes i have symptoms of being under active but my TFT's have always been normal.

I've often considered alternative medicine but mentioned it to my doctor and he didn't have a clue....I'm about as clueless as him.

Has anyone felt like this since getting theirs removed?

Turquoise

$lash wrote: »

I'm a 22 year old girl and i had my thyroid removed when i was just 18 due to hyperthyroidism. Physically i am in far better health than i was before hand but mentally I'm not so sure, i think i get down a lot more than i used to, sometimes i have symptoms of being under active but my TFT's have always been normal.

I've often considered alternative medicine but mentioned it to my doctor and he didn't have a clue....I'm about as clueless as him.

Has anyone felt like this since getting theirs removed?

Your story doesn't sound too far from mine. Mine was removed at 17, I'm nearly 20 now. I have to say that personally, I feel great. However, I have heard alot of stories similar to yours. I wish I could remember all the details now, but it's been so long since I felt compelled to do any thyroid research.

I read that for some people, eltroxin isn't enough. It's something along the lines of this (apologies to anyone who actually knows what they're talking about, I can't remember exactly what I read!): Eltroxin contains T4, which the body can then convert to T3. Thyroid levels show up normal, but some peoples body's can't convert the T4 properly to T3. There is some medication available, I *think* it's called Armour, which contains both T3 and T4. I gather it's not as popular here as it is in the States though, I think only certain doctors will prescribe it. Hang on...I read on some website...let me see...

I'll post again.

Turquoise

http://www.mercola.com/article/hypothyroid/treatment.htm

That's a link about Armour. Surprisingly, I was actually right about what I was waffling - who'd have guessed?

This site also has plenty of posts you might find helpful:
http://www.thyroid-disease.org.uk/smf/index.php

I did notice something about dessicated thyroid hormones (Armour and some other one) potentially being taken off the market, but I didn't read up on it.

The important thing to do is push your doctor. Don't rest until you're happy with your treatment. It IS possible to feel great after the surgery - I know I do. Clearly something isn't right.

Turquoise

I'm sorry, I just re-read your post and realised you're saying your levels are supposedly normal without *any* meds? They took the right amount of thyroid out?! Who'd have thought it!

How often are you getting your bloods done?

cyning

Just wondering does anyone have problems on controlling an underactive thyroid? I take 300mg per day and am still underactive with all the symptoms... Just wondering if there is anyone who's on that kind of dose?

$lash

Turquoise wrote: »

I'm sorry, I just re-read your post and realised you're saying your levels are supposedly normal without *any* meds? They took the right amount of thyroid out?! Who'd have thought it!

How often are you getting your bloods done?

hey sorry only getting back to this now, no i do take med, im on 150mg of eltroxin a day, i've had my thyroid fully removed, they only left the para thyroid glands which means i dont have to take calcium supplements!

Thanks for that information, i'm going to go through it now!!

$lash

cyning wrote: »

Just wondering does anyone have problems on controlling an underactive thyroid? I take 300mg per day and am still underactive with all the symptoms... Just wondering if there is anyone who's on that kind of dose?

that seems very high, i've no thyroid gland and i only take 150mg.
As far as i know if your pregnant your dose gets quite high but im not sure how high!

cyning

I'm not pregnant though: Noone seems to be on such a high dose:and its so strange being on that kind of dose and still underactive!

tatli_lokma

saw on TV today that there is also a reflex test which can help diagnose thyroid probs, as thyroid disfunction also affects reflexes.

anyone know if this test is done/is available in Ireland?

After yet another "normal" blood test my GP is having A LOT of trouble getting me an appointment for an endocrinologist. Soonest appt I can get is next Feb, and I've been on my hands and knees for months now.

My doc has said, if I really feel I can't cope he will give me a letter for casualty, in the hope that some form of treatment is given and it might push me further up the waiting list. Its an option, but not one i want to go for too soon, but think I might just have to.

If this test was available, I might even consider finding the money to pay for that or other tests.

Turquoise

300mcg seems VERY high. I'm currently on 100mcg a day. I went underactive on this dose last year, so my doc had me taking an extra 100mcg a week (so 800 a week) and I went over - so back down to 100/day.

$lash - did you have any luck with that information? I was initially to have a partial thyroidectomy, but the tissue apparently looked extremely active, so they removed virtually all of it.

vajust

my son was diagnosed with thyrotoxicosis (hyperthyrodism) just over 2 years ago......he stabilised on neo mercazole but then relapsed, so he is now on neo mercazole and el troxin....he also has a history of other illnesses which dont affect his thyroid but he seems fine to me its just hard to get meds perfect....

CathyMoran

vajust wrote: »

my son was diagnosed with thyrotoxicosis (hyperthyrodism) just over 2 years ago......he stabilised on neo mercazole but then relapsed, so he is now on neo mercazole and el troxin....he also has a history of other illnesses which dont affect his thyroid but he seems fine to me its just hard to get meds perfect....

I had that officially diagnosed at the age of 4, the treatments have improved a lot since I was young.

cyning

It really sucks being honest... I'm losing my hair and my skin is appalling. I just can't understand why I'm so uncontrolled!

vajust

cyning wrote: »

It really sucks being honest... I'm losing my hair and my skin is appalling. I just can't understand why I'm so uncontrolled!

Funny you mentioned losing your hair! My son has same prob unfortunately there isn't alot they can do as some meds like neo mercazole cause hair loss as does the condition..I did order some shampoo and conditioner from the states that seems to make a difference though, it's called "ovation" and they have a product called cell therapy, if its really getting you down, it no harm giving it a try....

shazba

Hi There, Just thought i,d let ye know my 20 year old son who was born without a thyroid and has been on Thyroine since Birth. He is on 275 mcgs daily at present, This level has gone up and down over the years 275 mcgs being top level 25 mcgs the least. it seems to differ through different stages and growth spirts .Hope this helps:)

fj1200

Was diagnosed with Graves disease about 7 years ago. Really knocked me for six physically and mentally. My eyes were badly affected and ended up having orbital decompression. 10mg a day of neo mercazole keeps it under control now and feeling fine.

lynnsback

Cying

Have you ever asked your doc about thyroid hormone resistance? It is rare enough, but it does happen.

Or, MORE LIKELY you are not converting your T4 meds to the active T3.

What does your doctor/endo say?

cyning

My TSH is 32... I am now on 350mg of Elthroxin a day. My endo thinks because my T4 is normal (which it is) its 11 I am fine.... with a TSH of 32. He just up and ups the elthroxin. My GP is great but when the endo is saying I'm fine its hard for him: he is sending me to different endo in new year.

kangaroo

cyning wrote: »

My TSH is 32... I am now on 350mg of Elthroxin a day. My endo thinks because my T4 is normal (which it is) its 11 I am fine.... with a TSH of 32. He just up and ups the elthroxin. My GP is great but when the endo is saying I'm fine its hard for him: he is sending me to different endo in new year.

A FT4 of 11 is on the bottom end of normal as I recall.

kangaroo

Turquoise wrote: »

I read that for some people, eltroxin isn't enough. It's something along the lines of this (apologies to anyone who actually knows what they're talking about, I can't remember exactly what I read!): Eltroxin contains T4, which the body can then convert to T3. Thyroid levels show up normal, but some peoples body's can't convert the T4 properly to T3. There is some medication available, I *think* it's called Armour, which contains both T3 and T4. I gather it's not as popular here as it is in the States though, I think only certain doctors will prescribe it. Hang on...I read on some website...let me see...

I'll post again.

I read a study which said that 58% of those who had hyperthyroidism and then had something done to their thyroid (can't remember if it was have it zapped and/or thyroidectomy), had symptoms of hypothyroidism on T4 only. Another way of getting T3 is simply having a doctor prescribe it. I got it from a local pharmacy. They might have to order it in but given that hypothyroid problems aren't usually "urgent", a little wait shouldn't necessarily be a problem (I've no qualifications, just a ME/CFS patient who read a bit).

thyroxine=T4 triiodothyronine=T3

Effects of thyroxine as compared with thyroxine plus triiodothyronine in patients with hypothyroidism.

N Engl J Med. 1999 Feb 11;340(6):424-9.

Bunevicius R, Kazanavicius G, Zalinkevicius R, Prange AJ Jr.

Institute of Endocrinology, Kaunas Medical University, Lithuania.

BACKGROUND: Patients with hypothyroidism are usually treated with thyroxine (levothyroxine) only, although both thyroxine and triiodothyronine are secreted by the normal thyroid gland. Whether thyroid secretion of triiodothyronine is physiologically important is unknown.

METHODS: We compared the effects of thyroxine alone with those of thyroxine plus triiodothyronine (liothyronine) in 33 patients with hypothyroidism. Each patient was studied for two five-week periods. During one period, the patient received his or her usual dose of thyroxine. During the other, the patient received a regimen in which 50 microg of the usual dose of thyroxine was replaced by 12.5 microg of triiodothyronine. The order in which each patient received the two treatments was randomized. Biochemical, physiologic, and psychological tests were performed at the end of each treatment period.

RESULTS: The patients had lower serum free and total thyroxine concentrations and higher serum total triiodothyronine concentrations after treatment with thyroxine plus triiodothyronine than after thyroxine alone, whereas the serum thyrotropin concentrations were similar after both treatments. Among 17 scores on tests of cognitive performance and assessments of mood, 6 were better or closer to normal after treatment with thyroxine plus triiodothyronine. Similarly, among 15 visual-analogue scales used to indicate mood and physical status, the results for 10 were significantly better after treatment with thyroxine plus triiodothyronine. The pulse rate and serum sex hormone-binding globulin concentrations were slightly higher after treatment with thyroxine plus triiodothyronine, but blood pressure, serum lipid concentrations, and the results of neurophysiologic tests were similar after the two treatments.

CONCLUSIONS: In patients with hypothyroidism, partial substitution of triiodothyronine for thyroxine may improve mood and neuropsychological function; this finding suggests a specific effect of the triiodothyronine normally secreted by the thyroid gland.

PMID: 9971866 [PubMed - indexed for MEDLINE]

cltt97

Was diagnosed with Hashimotos' hypothyroidism in 2007, was put on Eltroxin and highest I ever took was 125mcg. Had to stop taking it a couple of months ago because i got really severe symptoms usually associated with overactivity (heart palpitations, dizziness, headaches, high pulse). Being tested now for adrenal insufficiency and coeliac disease.
Cyning - you defo need free T3 tested, there is something very weird going on - you need an endocrinologist who looks beyond TSH and T4!

cyning

There's a new endo after starting near me so going to chance her in new year... although I have seen and felt a slight improvement lately so fingers crossed. Been taking iron and switched times I took tablets to an hour before I eat in the morning and stopped taking pill: massive improvements to what I was. TSH down to 16

batweaselx

Hi, I was diagnosed with hypothroidism 6 years ago when I was 16 after suffering 3 months of depression for no apparant reason, ( I thought I was going mad!) and I also put on a stone in weight even though my diet hadn't changed at all. luckily i felt better as soon as I was put on medication. I take 100 mcgs of eltroxin daily and 150mcgs on Saturdays and Sundays. The main thing is to get bloods done regularly.
About 3 years ago I was exhausted all the time, alot more than usual and I knew something was up so I got blood tests, it turned out I needed to double my dose for a while and then another time i was dizzy and i had to reduce my amount. Everyone is different and knows themselves when their body is acting up. I don't mind that I'll be on tablets for the rest of my life, its nothing compared to some people like my boyfriend who is fighting leukemia. i do get tired easily and feel colder than most plus i find it tough to lose weight even just a few pounds but I count my blessings that what i have is easily treated!

Bull76

Hi,

I was diagnosed as having an underactive thyroid, it was only by chance. Went in as my blood pressure was slightly elevated. In doing my bloods it was found as well as having elevated TtG counts. So from one blood test which led to about 4 different tests over as many weeks and months, I was diagnosed a Coeliac and having hypothyroidism. Both easily manageable, but goes to show you never know. All this just last year. I'm a male of 33 so can happen. Especially if there is a history in your family of it...

Regards,
Bull76.

Erper

Im also havin problem with thyroid, but dont know which one i have...

LegacyUser

Erper wrote: »

Im also havin problem with thyroid, but dont know which one i have...

Hi Erper

Have you had blood tests done yet?

What where the results?

What did your GP say?

Erper

i didnt check blood for long time now.. but last time my tyroidh was higher than normal

fel

Hi Kangaroo,
I have an underactive thyroid for a number of years. It is caused by an autoimmune disorder. I find that I am constantly exhausted eventhough I take thyroxine daily. A number of years ago, an endocrinologist told me to always have T3 tested as I was having problems converting it. However new consultant will not test for T3 saying it is not necessary. Can T3 be bought from pharmacy without prescription?
Many thanks.

kangaroo

fel wrote: »

Hi Kangaroo,
I have an underactive thyroid for a number of years. It is caused by an autoimmune disorder. I find that I am constantly exhausted eventhough I take thyroxine daily. A number of years ago, an endocrinologist told me to always have T3 tested as I was having problems converting it. However new consultant will not test for T3 saying it is not necessary. Can T3 be bought from pharmacy without prescription?
Many thanks.

Hi fel,

T3 is a thyroid hormone. It cannot be obtained in Ireland without prescription. T3 is more powerful and fast-acting than T4 (thyroxine) so in a way is a little less safe.

Cytomel was the name of the brand I got. Although I was told it might be hard to get, I don't think it turned out to be with I think two out of the three (or maybe two out of two) of the pharmacies we tried supplying the prescription at different stages. However occasionally they might be running low and I think requested we give them a bit of notice occasionally so they could order in more if we were going to get it.

My private consultant was not attached to any hospital (he was semi-retired). I got some blood testing done in the Mater Private following a note from him - I think they will also take notes from GPs.

However that was expensive so to keep track of my blood levels when I was on thyroid medication, I got blood testing done with NPTech. I believe they have been taken over by Lab21. Their prices are at:
http://www.lab21.com/healthcare/thyroid.php (I have no financial interest in this area). Of course, one needs to have someone to take the blood.

As I may have already said in this thread, my GP had previously requested T3 and T4 testing but only the T4 test came back.

Splendour

kangaroo wrote: »

Hi fel,

T3 is a thyroid hormone. It cannot be obtained in Ireland without prescription. T3 is more powerful and fast-acting than T4 (thyroxine) so in a way is a little less safe.

Cytomel was the name of the brand I got. Although I was told it might be hard to get, I don't think it turned out to be with I think two out of the three (or maybe two out of two) of the pharmacies we tried supplying the prescription at different stages. However occasionally they might be running low and I think requested we give them a bit of notice occasionally so they could order in more if we were going to get it.

My private consultant was not attached to any hospital (he was semi-retired). I got some blood testing done in the Mater Private following a note from him - I think they will also take notes from GPs.

However that was expensive so to keep track of my blood levels when I was on thyroid medication, I got blood testing done with NPTech. I believe they have been taken over by Lab21. Their prices are at:
http://www.lab21.com/healthcare/thyroid.php (I have no financial interest in this area). Of course, one needs to have someone to take the blood.

As I may have already said in this thread, my GP had previously requested T3 and T4 testing but only the T4 test came back.

Hi kangaroo, you got Cytomel prescribed to you by a Doctor?! You did well!! Can I ask how long you've been on Cytomel and are you taking a T4 med as well? Also, how are you feeling? (Sorry for all the questions) Any chance you could pm me the name of the Doc please?
Had a look at that website you mentioned as I'm self medicating and need to get bloods tested but I don't see reverse T3 mentioned. Have you ever had this tested?

fel

Hi Kangaroo,
Many thanks for all your help. I was prescribed T3 and T4 when I was first diagnosed with an underactive thyroid many years ago. Another endocrinologist took me off both T3 and T4 . As my T4 and my TSH levels were abnormal the G.P. started me back on T4. I asked him to test T3 but he said only an endocrinologist could do this test and prescribe the relevant medication. As I already told you this new consultant will not do the test!! Thank you so much for information on having bloods tested. I will avail of this labs. services. I find books by Mary J. Shomon on thyroid problems to be excellent. She advises to have T4 and T3 tested. Once again sincere thanks.

kangaroo

Splendour wrote: »

Hi kangaroo, you got Cytomel prescribed to you by a Doctor?! You did well!! Can I ask how long you've been on Cytomel and are you taking a T4 med as well? Also, how are you feeling? (Sorry for all the questions) Any chance you could pm me the name of the Doc please?
Had a look at that website you mentioned as I'm self medicating and need to get bloods tested but I don't see reverse T3 mentioned. Have you ever had this tested?

Hi Splendour, sorry for the delay in replying but I have a few things on.

I described my experiences in this thread: http://www.boards.ie/vbulletin/showthread.php?t=2055683901

I did have my reverse T3 tested with NPTech in around 2001. It's a pity the test isn't offered now. Thyroid groups such as Thyroid UK http://www.thyroiduk.org/ might be able to give you info if nobody else here can.

I'm PM you that doctor's details.

kangaroo

Irish Independent: "Real Life: Thyroid tyranny"
http://www.independent.ie/health/case-studies/real-life-thyroid-tyranny-2143056.html

Truthrevolution

kangaroo wrote: »

Irish Independent: "Real Life: Thyroid tyranny"
http://www.independent.ie/health/case-studies/real-life-thyroid-tyranny-2143056.html

Thats a very worrying story, just goes to show you how many people are needlessly suffering as a result of improper diagnosis.Luckily enough though as they pointed out thyroid problems can be helped by natural supplements.A high quality-high potency multi vitamin (without iron) and iodine may be all you need in assisting proper thyroid function.It has been shown time and time again that A,C,D,E and B complex vitamins will help reduce the symptoms of hypothyroidism as well as minerals such as magnesium, calcium, zinc, selenium and iodine.

LegacyUser

Hi all id really appreciate the headsup if anyone knows of a doc in CORK (or even munster) area who actually has read up on the whole supplementing with T3. Im going insane from frustration at docs who say 'jazuz i never heard a that now'