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Psoriasis
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seensensee wrote: ».... potatoes, bread, sugar, ect ect ect... yes diet appears to be so crucial but there is more to the story. I am currently looking at Candidiasis and Mercury toxicity as being a contributing factor. All in the theory department but there are strong indications.
Now I better go and make myself another pot of saltless garlic and onion soup with steamed whiting and spinach. it's taken months to wean off the bread and sugar, they sure are addictive.
Keep at it seensensee, you wont regret it
On a positive note, with all this attention you are giving to your diet you should feel a lot better too. Eventually you will figure out that its one particular foods that is killing you and not all the things listed above. I had
looked into candidiasis and cut out gluten based breads altogether, in fact I cut out bread altogether for about 4 weeks and no difference at all really.
I've been on the Pagano diet again now for about 5 weeks and I wasn't showing any signs of improvement. Was slightly annoyed because the last time I did this after 4-5 weeks I starting to clear!.
So I sat down at the weekend and tried to figure it out...its a really good idea to take a daily journal of what you are eating and grade the daily severity of your psoriasis should make it easier to pinpoint troublesome foods. Keep in mind that it takes about 24 hours to digest foods so if you start to break out it may be something you ate the day before.
So basically the only thing that I didn't change about my diet was plain old tea. I love my tea, so much that I hadn't copped I've been drinking about 6-7 cups a day with milk and sugar. So I quit tea and coffee 5 days ago and all my scaling is gone!, its just kinda red now which I am hoping will die off in a few days too!. I think that maybe I am intolerant to caffeine, I actually feel a lot better now too so fingers cross it was tea that was causing it!.
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Keep at it seensensee, you wont regret it
On a positive note, with all this attention you are giving to your diet you should feel a lot better too. Eventually you will figure out that its one particular foods that is killing you and not all the things listed above. I had
looked into candidiasis and cut out gluten based breads altogether, in fact I cut out bread altogether for about 4 weeks and no difference at all really.
I've been on the Pagano diet again now for about 5 weeks and I wasn't showing any signs of improvement. Was slightly annoyed because the last time I did this after 4-5 weeks I starting to clear!.
So I sat down at the weekend and tried to figure it out...its a really good idea to take a daily journal of what you are eating and grade the daily severity of your psoriasis should make it easier to pinpoint troublesome foods. Keep in mind that it takes about 24 hours to digest foods so if you start to break out it may be something you ate the day before.
So basically the only thing that I didn't change about my diet was plain old tea. I love my tea, so much that I hadn't copped I've been drinking about 6-7 cups a day with milk and sugar. So I quit tea and coffee 5 days ago and all my scaling is gone!, its just kinda red now which I am hoping will die off in a few days too!. I think that maybe I am intolerant to caffeine, I actually feel a lot better now too so fingers cross it was tea that was causing it!.
Hi, my first post here!! Just finished reading the whole thread. A REVELATION!....I knew other people had psoriasis, including my brother but the weird thing is I thought I was the only one in the world who REALLY had it. I know that sounds weird but that's how I felt.
I'm 32 now and got it in my early 20's,didn't have a clue what it was at first.It started innocuously enough- small dry patches on my face and a few weird waxy-like lumps on my scalp. That was the extent of it for a year. Then I got promoted at work and left home, both happening within the space of a month. BANG I went from being a confident happy, outgoing person to a withdrawn shy nervous wreck.
The reason, you may have guessed....f***ing Psoriasis. All over my face, scalp, chest, back and worst of all, ahem family jewels (to my enduring horror the Ex GF thought it must be an STD and freaked out, hence the... Ex part) Couldn't walk without discomfort.
Tried 6 different doctors and heard everything from ecsema to allergies. Eventually it was my grandmother who suggested i had Psoriasis, she'd told my symptoms to her homeopath. I told Doc No.7 and surprise surprise he confirmed it. So i had a diagnosis finally, was delighted, assumed that for every disease there must be a cure, modern medicine being super-duper and all that with antibiotics for everything. Assumed the doc would give me a few tablets and life would return to normal ie;
-Comb my hair without wincing
-Look in a mirror without cringing
-Go to the Barber's and not drread it
-Get up in the morning and look in the mirror without worrying how my apperance had changed overnight
-Not have to worry that everyone from family to colleagues to even my local shopkeeper was not freaked out by my appearance
-have a full head of hair
-have my confidence back
I couldn't have been more wrong. 7 odd years later and virtually nothing has changed. I have been clear a few times since then but after my first relapse it has been very hard to enjoy the clear times knowing this awful affliction is just around the corner.
As I've said I've just finished this thread and the comforting thing was the familiarity of reading post after post of what mirrored my own dismal experience. Lot's of pages of Deja-vu. I'll continue to read and use this great new(..to me) resource. ThanksWhat's the reason for being reasonable?
Is that an unreasonable question?
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Is horrible Steve, though there are plenty of people here including me who have gone and are still going through exactly those same emotions
I get pissed off sometimes looking at people who can drink all weekend, smoke like troopers, eat complete crap and have perfect skin and I think out of 2% of people in the world that get this disease why did I have to be one of them, but as a good mate of mine who has MS said to me - Life gives you ****, you make manure!
I don't think people realise how much it effects your daily life though, I was really outgoing too and loved life. When I got P I was getting paranoid in lifts, meetings and everywhere that people are looking at me. Its a truly horrible feeling one that I have spent 5 years trying to get rid of.
I don't believe a dermatologist can help us, all those expensive creams and sessions are treating the symptoms and not the disease. I believe the answer is in our diets....its our body saying **** you, I don't like what you are doing to me so all you have to do is start treating your body right and it'll heal. Is just matter of finding out what it is thats effecting you.
They actually did a great study on diseases effecting the populations of non western cultured countries, i.e. cultures that don't eat the crap that we do and the incidence of psoriasis was minimal. The 2 countries with the highest occurences were Germany and Italy!. Lots of red meat, pork, nightshades, etc!.
All hope is not lost, Id love to get a bunch of boardsies on this Pagano diet and see if we can't beat this thing. 0 -
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The barber advised my to take a few sunbeds. I'm quite dark as it is so i don't think my mates'll notice:) Do you think the sunbeds might do anything to improve the scalp scaling and facial redness? Any advice would be very much appreciated. Thanks
Maybe drop Rubadub a private message, he made his own UV light which I think he had some success with. Sun\Sunbeds are supposed to do the job alright. Then again overdoing it wouldn't be a bad idea. Again Id say Rubadub could tell you whats safe and whats not. Im in Oz at the moment and I have noticed improvement to some extent with the weather and that.
If you can get a copy of that book somewhere by Dr. John Pagano
and have a read. I think everyone with P should read it for the simple
reason that it gets you out of the mindset that psoriasis can't be cured,
it also moves you away from thinking that its a dermatologist you need
to be talking to. I wouldn't keep harping on about it only out of everything
I've tried over the last few years its the only thing I saw results with. 0 -
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Sorry for the double post.
Right I've been on the diet for just over a week at this stage.It's not that bad anyone who has done lipotrim or other similar diets would find it laughably easy but anyway.
My positive mentality got a boost as I looked in the mirror and found the P on my forehead and groin had cleared up slightly as had my arms and chest area.Automatically thought yes no more girl problems
)
However later today at work I noticed that while the plagues had not scaled over the skin around them looked like it was a light pink and other skin was pealing back causing 3 seperate areas to combine into 1.
I'm hoping that this is mearly new skin growth and trying not to worry untill i see otherwise can anyone confirm this?0 -
Right I've been on the diet for just over a week at this stage.It's not that bad anyone who has done lipotrim or other similar diets would find it laughably easy but anyway.
Delighted to hear that The diet isn't actually THAT bad. You just have to
be wary about certain things. When I first started it I quit bread and dairy and it was really really hard but now it doesn't even bother me. I feel a lot better these days too from that diet.My positive mentality got a boost as I looked in the mirror and found the P on my forehead and groin had cleared up slightly as had my arms and chest area.Automatically thought yes no more girl problems)
However later today at work I noticed that while the plagues had not scaled over the skin around them looked like it was a light pink and other skin was pealing back causing 3 seperate areas to combine into 1.
I'm hoping that this is mearly new skin growth and trying not to worry untill i see otherwise can anyone confirm this?
Yay!. Don't get annoyed if it gets worse before it gets better though, if you look towards the back of the book there is a whole section on healing. Look at the pictures and the different stages the skin goes through. You will notice that the scaling stops, then it will probably get amazingly red and inflamed and then new skin forms. Is all part of the healing process, as they say it'll get worse before it gets better! Just be patient with it, could take upto 3 months to be completely clear or more even. Just take it a day at a time..
Just think of it as one big detox exercise, just drink a ****load of water and all the right foods to help it on the way..keep us posted anyways!.0 -
Yup got myself a nice stash of detox /green tea and camomile.Also tracked down this handy bundle of stuff here http://www.baar.com/Merchant2/merchant.mvc?Screen=PROD&Product_Code=10200&Category_Code=PSO&Product_Count=1
I didn't bother with the cream or oil as I have a lot already.Just posting the link incase it helps someone
Seriously Though:
Anyone reading this who hasn't got that book get it.Costs 25-30 euros can't praise it enough.0 -
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CAn anyone tell me the full title of the book by Dr. Pagano. I google it but a couple showed up so am not sure which one is which. Thanks
Its the same book Donfred, he just keeps updating it so you will notice the cover changes. Its just called Healing Psorasis - A Natural Alternative
We spoke ages and ages ago about using apple cider vinegar for the scalp,
how you getting on mate?. Any progress?0 -
Its the same book Donfred, he just keeps updating it so you will notice the cover changes. Its just called Healing Psorasis - A Natural Alternative
We spoke ages and ages ago about using apple cider vinegar for the scalp,
how you getting on mate?. Any progress?
I gave up on it. I just use a shampoo and scalp cream from this company www.moogoo.ie. I find it good.0 -
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seensensee wrote: »Freshly peeled apples.
Yeah or a fruit salad!.
Bananas are good too, basically any alkaline fruit. Grapes, melon, peaches etc etc 0 -
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seensensee wrote: »No difference to the psoriasis but it's just a disciplining exercise prior to dr paganos recommendations.
Discipline is right and it does take a lot of discipline. Though on the quest to send P into remission everything else about you improves too so its not necessarily a bad thing.
Like quit smoking and I actually quit tea with sugar. I've lost about 1/2 stone, I'm a lot fitter, sleeping better there are multiple pluses!. The way I look at it is, if I had never gotten P I probably wouldn't have been as bothered quitting the ciggies and coffee.
That diet of yours seems very strict though seensensee, theres loads of other stuff you can add to that what about veggies!. Anyways hopefully in the new year there will be some really nice success stories 0 -
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I have found tesco nappy cream worked very well to moisturise and heal.
This consists mainly of zinc oxide which is the main ingredient in sudocreme. The tesco one is far cheaper and more watery than sudocreme. I have used sudocreme in the past and it worked OK but was a pain to get off, like it would stick to your hair & skin (I have scalp P).
I shaved my head very close, a blade 1 all over and treated myself with my UVB lamp. I could feel some patches of dry skin but they did not look too bad. I use sudocreme all the time to heal cuts, eczema and sunburn -I find it remakably powerful stuff for what is considered a mild baby cream.
With the UVB you are meant to treat yourself until you just begin to get a mild sunburn so the skin is just going red. Since my hair is so short I was using the cream mainly to stop reddening (i.e. cure "sunburn"), but it seems to have helped the P too. I put it on my scalp and slept with a plastic bag on my head to stop it coming off. I put on a little regular cooking vegetable oil before the cream which I think also helped. In the morning it was a very even even layer left (with sudocreme it looks caked on). The tesco one with more water must moisturise a lot more, I rubbed my head and the scales came very nicely and left a very smooth skin underneath, though a little pink. You could not feel any skin peeling off, it was like it had healed and loose moisturised scabs were left on top.
Sudocreme stands out a mile being white, this watery cream spreads more. You can actually use it to mask the redness like makeup. i.e. you put a tiny bit of the white cream on the red areas and it lessens the redness -and no doubt is far better than putting on makeup which could have nasty agents in it.0 -
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First off I would not try the zinc oxide in long hair, well maybe a small bit and see how it washes out.
Usually for the scalp people get the smaller handheld UVB lights, the dermalight has these transparent tubes
which serve 2 purposes.
1- they keep the light at a uniform distance from your skin
2- they allow light to travel down them so they can transmit light through your hair and to your scalp. They will also act a bit like combs to hold the hair apart, I expect you could use some sort of hair clips to hold it apart too.
I have been reading more and it seems if you use tar treatments along with UVB then you do not have to use as much UVB, and it can be beneficial even at suberythemogenic doses which is fancy talk for "no need to sunburn yourself!"
http://www.sciencedirect.com/science?_ob=ArticleURL&_udi=B6WM8-4SS8KD4-6&_user=10&_coverDate=06%2F30%2F1983&_rdoc=1&_fmt=high&_orig=search&_origin=search&_sort=d&_docanchor=&view=c&_searchStrId=1592694492&_rerunOrigin=google&_acct=C000050221&_version=1&_urlVersion=0&_userid=10&md5=14eb2f6649b236220816d132af9e4899&searchtype=aRecent studies have questioned the therapeutic value of coal tar versus ultraviolet (UV) radiation and their relative necessity in phototherapy for psoriasis. In this investigation, different aspects of tar phototherapy have been studied in single-blind bilateral paired comparison studies. The effects of 1% crude coal tar were compared with those of petrolatum in conjunction with erythemogenic and suberythemogenic doses of ultraviolet light (UVB) using a FS72 sunlamp tubed cabinet. Crude coal tar was clinically superior to petrolatum with suberythemogenic ultraviolet. With the erythemogenic UVB, petrolatum was equal in efficacy to crude coal tar. Suberythemogenic UVB was also used adjunctively to compare the effects of a 5% concentration of a tar extract in an oil base to 5% crude coal tar in petrolatum or the oil base without tar. The tar extract in oil plus suberythemogenic UVB produced significantly more rapid improvement than the oil base plus UVB. The direct bilateral comparison of equal concentrations of tar extract in oil base versus crude coal tar in petrolatum in a suberythemogenic UV photo regimen revealed no statistical differences between treatments. In a study comparing tar extract in oil and the oil base without ultraviolet radiation, the tar extract in oil side responded more rapidly. This demonstrates a direct effect of tar alone in therapy. We have also studied the effects of erythemogenic and suberythemogenic UVB with and without tar extract in oil in the hairless mouse epidermal deoxyribonucleic acid (DNA) synthesis suppression assay. It was found that erythemogenic dosages of UVB produced near maximal inhibition of DNA synthesis with or without coal tars. Suberythemogenic dosages of UVB produced submaximal suppression of DNA synthesis that was enhanced by adjunctive coal tar but not by vehicle, findings which are consistent with the above clinical results. These studies suggest that coal tars combined with suberythemogenic UVB therapy is a practical alternative (to more aggressive UVB therapy without coal tar) which reduces the UVB exposure to the patient. (J AM ACAD DERMATOL 8:781-789, 1983.)
I am a baldy git! so keep my hair short, but it can look odd being pink from the UVB -though it looks infinitely better than the psoriasis. I am giving the tar a go again with lower doses of UVB, it also is handy not to have to hold the lamp for so long.0 -
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http://www.psorinfo.ie/Home/Resources-and-tools/Download-the-New-Psoriasis-iPhone-App.aspxDownload the MyPsoriasis iPhone App for free today from the iTunes Store.
The MyPsoriasis iPhone application allows you to manage your psoriasis on the go on your iPhone or iPod touch.
Features:
Information on psoriasis and its treatments at your fingertips
Advice on common flare up psoriasis triggers and minimizing flare ups
Your psoriasis diary – Treatment reminders so you never forget to use your medication, catalogue flare ups and note appointments.
Track how you’re managing your psoriasis – take and store photos of your rash and see how your treatment is working
Useful videos on psoriasis and how to use prescribed treatments
Will be waiting for the Android one myself 0 -
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