Sleep Apnoea and CPAP

The Mighty Quinn · 04-02-2021 11:34pm

Fathom wrote: »

Identify. I've got COVID brain fog.

Weirdly you're the third person to say that to me today. Covid life seems to be shutting people's brains down, or their ability to focus.

Fathom · 05-02-2021 11:39pm

Yo Quinn. Lots of folks classified as long term patients.

Bailey43 · 07-02-2021 4:21pm

Anyone have a increase in weight gain from using the cpap machine

beerguts · 07-02-2021 4:48pm

Bailey43 wrote: »

Anyone have a increase in weight gain from using the cpap machine

No I think that would be highly unusual. With cpap therapy you generally have better sleep patterns. You can lose weight from making better life choices from not being tired all the time

jesus_thats_gre · 07-02-2021 10:00pm

Bailey43 wrote: »

Anyone have a increase in weight gain from using the cpap machine

It was flagged with me as being common - few pounds anyway. Sweaty legs are seemingly down to how much you move in your sleep with each apnea event. The CPAP solves this. And it seemingly isn't uncommon that this can result in moderate weight gain.

Fathom · 08-02-2021 10:05pm

Bailey43 wrote: »

Anyone have a increase in weight gain from using the cpap machine

You might want to bring this up next time you see your GP?

Cushtie · 08-02-2021 10:14pm

Bailey43 wrote: »

Anyone have a increase in weight gain from using the cpap machine

I put on a shot alright. My CPAP therapy coincided with the start of Covid so I'm putting it down to that. Diet went to ****e. Have copped on a bit since Christmas and the weight is coming off again thankfully.

Fathom · 08-02-2021 10:20pm

Cushtie wrote: »

My CPAP therapy coincided with the start of Covid so I'm putting it down to that.

COVID has confounded a lot of therapies. It will be good when it has been controlled.

Bailey43 · 09-02-2021 8:29pm

Fathom wrote: »

You might want to bring this up next time you see your GP?

I have a appointment with my consultant the end of the month and I will mention it to him thanks

Fathom · 09-02-2021 8:58pm

Bailey43 wrote: »

I have a appointment with my consultant the end of the month and I will mention it to him thanks

Good show.

pinklilies · 21-03-2021 11:35am

Davexirl wrote: »

I am waiting since September to go back in to St Vincents to start my CPAP trial. Doesn't look like I'll be going in anytime soon with the current Covid situation.

Would I be mad to go buy a machine without having the trials in St Vincents?

Hi Davexirl

I seem to be about 4 months behind you on the study then diagnosis (2 weeks ago) - I'm wondering did you try anything or are you still waiting? I'm desperate to get started!

Thanks

Davexirl · 21-03-2021 12:14pm

pinklilies wrote: »

Hi Davexirl

I seem to be about 4 months behind you on the study then diagnosis (2 weeks ago) - I'm wondering did you try anything or are you still waiting? I'm desperate to get started!

Thanks

I contacted Vincent's and asked when I might be brought in for the trial, they said they have no control over the appointments and they can't give me any date. I haven't heard anything since. I am like you, desperate to get started.

pinklilies · 21-03-2021 12:53pm

Davexirl wrote: »

I contacted Vincent's and asked when I might be brought in for the trial, they said they have no control over the appointments and they can't give me any date. I haven't heard anything since. I am like you, desperate to get started.

Ok, thank you for coming back to me. Fingers crossed for both of us!

Dublinandy3 · 22-03-2021 9:01am

Has anyone had experience with buying a mask from wish? They look great but dubious because it's wish and they're so much cheaper

NIMAN · 06-04-2021 12:01pm

Does anyone think something like this has any credibility when it comes to sleep apnea, or is it just wild claims that it would help?

https://www.gordonsdirect.com/salin-plus-salt-therapy-air-purifier.html?gclid=EAIaIQobChMI1tW6zrnp7wIVwp7tCh2SMAC2EAQYAyABEgJ-7_D_BwE

Samuel T. Cogley · 06-04-2021 12:34pm

If you taped it to your face maybe. Otherwise I can't see how it would work.

Dublinandy3 · 07-04-2021 10:46am

Samuel T. Cogley wrote: »

If you taped it to your face maybe. Otherwise I can't see how it would work.

Ah Ha! I was sent this yesterday from a friend, now it makes sense after seeing these last few posts!

Fathom · 07-04-2021 7:53pm

Attached images: Very amusing. My next stage in masking.

Odyssey 2005 · 07-04-2021 8:05pm

NIMAN wrote: »

Does anyone think something like this has any credibility when it comes to sleep apnea, or is it just wild claims that it would help?

https://www.gordonsdirect.com/salin-plus-salt-therapy-air-purifier.html?gclid=EAIaIQobChMI1tW6zrnp7wIVwp7tCh2SMAC2EAQYAyABEgJ-7_D_BwE

I don't know if it would help with S/A, but my daughter has been using it for about 1.5 years and it has definitely improved her sleep. I notice a difference in the air quality in her room,no doubt about it,so much so that I'm considering getting one myself.

FaganJr · 27-04-2021 10:31pm

Used to get my replacement masks from my rental company, but opted out of that option for financial reasons.
Where are people getting their supplies now? Online?

Any recommendations?
Thanks

nibtrix · 28-04-2021 7:43am

I get one a year free from the machine rental company. After that I buy spares and replacements from http://cpapstore.eu/

plhealy2000 · 28-04-2021 8:00am

I generally just get them from the rental company and reclaim under the drug payment scheme.

Covers most of the cost of the replacement parts.

Odyssey 2005 · 28-04-2021 8:28am

plhealy2000 wrote: »

I generally just get them from the rental company and reclaim under the drug payment scheme.

Covers most of the cost of the replacement parts.

Same,I get one per year from the rental company,also tubes and filters. Then I buy one from them and reclaim on the drugs payment scheme,it covers the entire cost for me.

The Mighty Quinn · 28-04-2021 8:56am

If I purchase a new CPAP machine (or APAP as it'd likely be) - they are about 700-800eur - can I claim some tax back on this as a medical expense at the end of the year does anybody know?

I've a Fisher Paykal Icon+ at the moment, this fella here

which will be needing replacement I'm guessing sometime soon. Maybe not, but trying to get the facts straight before going to buy another!

Any recommendations on brand and why?

I'd be looking for something quiet, the FP one is quiet enough really, only noise is it hissing air if it slips off my face a bit during the night. I don't like the water tank in it though. It's difficult to clean, and routinely limescales up (i do use a descaler, but if I could actually take it apart to clean it regularly it'd be better)

Odyssey 2005 · 28-04-2021 9:11am

The Mighty Quinn wrote: »

If I purchase a new CPAP machine (or APAP as it'd likely be) - they are about 700-800eur - can I claim some tax back on this as a medical expense at the end of the year does anybody know?

I've a Fisher Paykal Icon+ at the moment, this fella here

which will be needing replacement I'm guessing sometime soon. Maybe not, but trying to get the facts straight before going to buy another!

Any recommendations on brand and why?

I'd be looking for something quiet, the FP one is quiet enough really, only noise is it hissing air if it slips off my face a bit during the night. I don't like the water tank in it though. It's difficult to clean, and routinely limescales up (i do use a descaler, but if I could actually take it apart to clean it regularly it'd be better)

Can't help you with you're first question, although I would imagine the answer is no, however on your limescale problem, I use de-ionised water from Tesco in mine. Wiped out my limescale problem overnight. Cheap as chips,it's €1.50 for 2.5 liters

Dublinandy3 · 28-04-2021 1:53pm

FaganJr wrote: »

Used to get my replacement masks from my rental company, but opted out of that option for financial reasons.
Where are people getting their supplies now? Online?

Any recommendations?
Thanks

cpapstore.eu is the easiest for most things and cheapest.

If you know someone in the UK, includes the north, then you can order from resmed site, they tend to be cheaper than the cpapstore.eu as you can tick the box vat exempt and not pay vat.

The last cushion I bought I save 18 euro over the cpapstore.eu price doing it that way, that included the extra money it cost me to pay for it to be sent from the UK to here. But that is a bit of a ball ache, cpapstore is cheap and reliable.

nibtrix · 28-04-2021 2:57pm

Dublinandy3 wrote: »

The last cushion I bought I save 18 euro over the cpapstore.eu price doing it that way, that included the extra money it cost me to pay for it to be sent from the UK to here. But that is a bit of a ball ache, cpapstore is cheap and reliable.

Just wondering, was that before Brexit? I wonder would you get caught for VAT/import fees on arrival into Ireland now, in particular from July when the exemption for low value shipments is ended.

Dublinandy3 · 28-04-2021 3:08pm

nibtrix wrote: »

Just wondering, was that before Brexit? I wonder would you get caught for VAT/import fees on arrival into Ireland now, in particular from July when the exemption for low value shipments is ended.

No, I got my last one last week. I also got the sender to put a value of £10 on it to avoid any extra fees. I know not particularly honest. In July, I'll have to wait and see what happens I guess, it probably will shut that option down.

nibtrix · 28-04-2021 3:36pm

Dublinandy3 wrote: »

No, I got my last one last week. I also got the sender to put a value of £10 on it to avoid any extra fees. I know not particularly honest. In July, I'll have to wait and see what happens I guess, it probably will shut that option down.

Thanks, we'll have to wait and see I guess!

It's the fact that they will charge VAT on the combined value of the item and the shipping charge, plus the €10-18 admin fee depending on which post/courier service it is that could really add a sting.

dubstarr · 02-05-2021 2:56pm

Diagnosed 3 months ago.While i was in hospital for something else.Its brilliant.
No longer wake up tired or narky.
The mask can be a bit of a pain sometimes.But other that than that im flying.

looksee · 05-06-2021 8:36am

I am with a consultant who is supposed to be one of the best, but I am not convinced. After my last phone consultation I have been aggravated since, I cannot get answers to questions and significant things that are causing problems are not addressed. I found them abrupt, dismissive and accusatory. Everything is my 'fault' with no suggestions as to how any issues could be dealt with. I am only getting about 5 hours sleep on average - absolute best, very occasionally might be 7 but also some 4 hours.

I have not felt well rested since I (re)started the therapy about 15 months ago, I have been told by the Resmed nurse that my conformity is very good, and I have missed almost no nights of using the mask (illness or power cuts being only exceptions). But the consultant is consistently negative about it all. There are some rather complicated connected issues that the consultant is not taking on board, just use the machine, increase the pressure, any issues are your fault. I am getting noticeably slower to understand things or think and permanently weary.

Too many sleep apnoea consultants are respiratory specialists who have picked up a bit of sleep apnoea stuff on the side and don't really know much about it. I have had two like that in the past. I think the current one knows the stuff but isn't really all that interested in individuals. If anyone is with a consultant who they are happy with and who knows the subject could you pm me names please? I think I need to move on.

Field east · 05-06-2021 8:50am

I was using a Cpap machine for about 12 years - at pressure of 11 - and was told that if I lost some weight that I might not need it. At the time I ‘weighed in’ at circa 94 kg and over two years I am now down to 82 to 83 kg - depending. Result is I am off the machine completely now for over three years. I did nothing drastic to lose weight . I do a bit more physical work, walk about 3 mlles a day- this includes walking around the place doing things. , 3 meals a day - smallish portions of good quality food and no snacking

Fathom · 05-06-2021 4:23pm

Field east wrote: »

walk about 3 mlles a day

Read articles suggesting the value of walking.

JamesDupree · 12-06-2021 9:38pm

Has anyone had issues with cpapstore.eu?

Placed order 12 days ago and still don't have a delivery date.

They replied to my query 3 days ago that I would have UPS information 'tomorrow'.

Tomorrow has been and gone and there's no reply to my last email.

Is this normal for them? Or should I claim chargeback now and cut my losses?

jesus_thats_gre · 12-06-2021 10:06pm

The fact that they are responding to email queries in a timely manner would allay my concerns.

JamesDupree · 12-06-2021 10:18pm

Have you ordered from cpapstore.eu?

jesus_thats_gre · 12-06-2021 11:21pm

Yup and had no issues whatsoever - CPAP machine and accessories across multiple orders.

Dublinandy3 · 13-06-2021 1:00am

JamesDupree wrote: »

Has anyone had issues with cpapstore.eu?

Placed order 12 days ago and still don't have a delivery date.

They replied to my query 3 days ago that I would have UPS information 'tomorrow'.

Tomorrow has been and gone and there's no reply to my last email.

Is this normal for them? Or should I claim chargeback now and cut my losses?

Bit early for chargeback, the stuff comes from Greece, unless you paid d for the fast delivery. I found them to be helpful and never had an issue. Maybe whomever it was just forgot to send you the details, no harm in asking again

JamesDupree · 13-06-2021 2:56am

Thanks thats reassuring. Bulgaria is the address on the website?

Dublinandy3 · 13-06-2021 9:45am

JamesDupree wrote: »

Thanks thats reassuring. Bulgaria is the address on the website?

Yeah I know, confusing but they def ship from Greece

Masala · 13-06-2021 10:16am

Strange request.... but I have an in-law working in Hong Kong and he due to come home in August for a months holidays. Was gonna ask him to source a few replacement masks for me and bring them home in his luggage.

Anyone on here deal with a HK supplier that I can put him in touch with

Told u it was strange!!

Dtp1979 · 13-06-2021 10:21am

Not sure if it’s allowed but I’m selling a CPAP machine. Brand new, never used. Pm me if interested. Thanks

JamesDupree · 14-06-2021 9:35pm

Sorry if this has been asked before; do Revenue accept CPAP as medical appliance for tax relief? (Purchase not rental)

I read the info on Revenue website, cpap isn't listed, though they do say it's not an exhaustive list.

Has anyone here claimed tax relief?

nibtrix · 14-06-2021 11:02pm

JamesDupree wrote: »

Sorry if this has been asked before; do Revenue accept CPAP as medical appliance for tax relief? (Purchase not rental)

I read the info on Revenue website, cpap isn't listed, though they do say it's not an exhaustive list.

Has anyone here claimed tax relief?

I haven’t claimed tax relief as I rent a machine (I’m already over the monthly limit for the Drug Payment Scheme so it’s not worth it for me to buy) but it looks like it should be covered so long as you have a prescription/letter from a medical practitioner saying that you need it:

3.4 Surgical, Dental or Nursing Appliances Relief is allowed on the costs incurred on the:
• supply,
• maintenance, or • repair
of any medical, surgical, dental or nursing appliance used on the advice of a practitioner.
Appliance Confirmation
Where there is any doubt that the appliance in question is a medical, surgical, dental or nursing appliance, a certificate from a medical practitioner should be obtained which:
a) states the nature of the patient's illness,
b) confirms that the appliance is being used on the advice of a medical
practitioner, and
c) outlines how the appliance will help to prevent, diagnose, alleviate or treat
the ailment, injury, infirmity, defect or disability from which the patient is suffering.

https://www.revenue.ie/en/tax-professionals/tdm/income-tax-capital-gains-tax-corporation-tax/part-15/15-01-12.pdf

JamesDupree · 15-06-2021 1:12pm

Got an update on delivery today from cpapstore.eu.

Yes it is shipped from Greece!

Thanks for reassurance, its a big chunk of change & I was starting to worry.

Reputable Rog · 16-06-2021 8:08pm

JamesDupree wrote: »

Sorry if this has been asked before; do Revenue accept CPAP as medical appliance for tax relief? (Purchase not rental)

I read the info on Revenue website, cpap isn't listed, though they do say it's not an exhaustive list.

Has anyone here claimed tax relief?

You should get it for purchase, I get it for rental. With tax back and €200 refund from Laya along with a replacement mask in my agreement it’s effectively cost neutral.

dubstarr · 16-06-2021 8:51pm

Talking about replacement masks,how often do they have to be replaced.

looksee · 16-06-2021 9:33pm

What sort are they? Memory foam ones have to be changed each month.

3DataModem · 18-06-2021 9:24am

looksee wrote: »

What sort are they? Memory foam ones have to be changed each month.

I've found that if I clean them carefully, I get a lot more out of them (up to 6 months) with no impact on seal.

looksee · 18-06-2021 9:53am

What do you use to clean them? I have wiped mine with water wipes but didn't find any improvement. Also I imagine the pressure level would make a difference. I find I need a new one each month.

Sleep Apnoea and CPAP

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