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Psoriasis

12357…71

Comments

  • #202
    LittleMissH
    Closed Accounts Posts: 2 ✭LittleMissH


    Thanks Bravo!
    Will give it a try anyway, am willing to try anything, this problem has been going on for too long!

    Also am intrigued about what I've been reading about cider vinegar, think I might try it if I have no success with Betamousse!


  • #203
    rubadub
    Registered Users, Registered Users 2 Posts: 32,382 ✭✭✭✭rubadub


    If you look on google scholar you can see studies done on various readily available creams. I have been using aloe vera gel for the last week or so, combined with the nappy/zinc oxide cream mixed with veg oil. I am the clearest I have ever been even after a very heavy drinking session, after drinking I applied cream which I think makes a huge difference, usually I would just go to sleep and wake up dehydrated I think is a combined effect of the toxicity of the alcohol and smoking (I only smoke when drinking). I also did some coal tar with UVB. My skin was a little red one day but I think this was just the mild sunburn you should expect from the UVB, it was fine 2 days after.

    The aloe vera gel should be fine for peoples scalps with long hair as it would simply wash out.

    http://onlinelibrary.wiley.com/doi/10.1046/j.1365-3156.1996.d01-91.x/abstract
    The treatment was well tolerated by all the patients, with no adverse drug-related symptoms and no dropouts. By the end of the study, the Aloe vera extract cream had cured 25/30 patients (83.3%) compared to the placebo cure rate of 2/30 (6.6%) (P<0.001) resulting in significant clearing of the psoriatic plaques (328/396 (82.8%) vs placebo 28/366 (7.7%), P<0.001) and a decreased PASI score to a mean of 2.2. The findings of this study suggest that topically applied Aloe vera extract 0.5% in a hydrophilic cream is more effective than placebo, and has not shown toxic or any other objective side-effects. Therefore, the regimen can be considered a safe and alternative treatment to cure patients suffering from psoriasis.


    Though this one found otherwise
    http://onlinelibrary.wiley.com/doi/10.1111/j.1468-3083.2004.01186.x/full
    Results  Data on 40 patients were analysed. The score sum of erythema, infiltration and desquamation decreased in 72.5% of the Aloe vera-treated sites compared with 82.5% of the placebo-treated areas from week 0 to week 4, which was statistically significant in favour of the placebo treatment (P = 0.0197). Fifty-five per cent of the patients reported local side-effects, mainly drying up of the skin on test areas.

    Conclusions  The effect of this commercial Aloe vera gel on stable plaque psoriasis was modest and not better than placebo. However, the high response rate of placebo indicated a possible effect of this in its own right, which would make the Aloe vera gel treatment appear less effective.

    This one would show it reduces reddening (sunburn) after UVB
    http://content.karger.com/ProdukteDB/Produkte.asp?doi=10.1159/000114871&typ=pdf
    Erythema values were determined photometrically after 24 and 48 h. Results:A. vera gel (97.5%) significantly reduced UV-induced erythema after 48 h, being superior to 1% hydrocortisone in placebo gel. In contrast, 1% hydrocortisone in cream was more efficient than A. vera gel. Conclusions: In this study after 48 h the A. vera gel (97.5%) displayed some anti-inflammatory effects superior to those of 1% hydrocortisone in placebo gel. The A. vera gel tested here might be useful in the topical treatment of inflammatory skin conditions such as UV-induced erythema.

    You could make up your own mixture after finding what works best, this one was testing honey mixed with beeswax & olive oil.
    http://www.sciencedirect.com/science?_ob=ArticleURL&_udi=B6WCS-4BNVGXH-7&_user=10&_coverDate=12%2F31%2F2003&_rdoc=1&_fmt=high&_orig=gateway&_origin=gateway&_sort=d&_docanchor=&view=c&_searchStrId=1697794508&_rerunOrigin=scholar.google&_acct=C000050221&_version=1&_urlVersion=0&_userid=10&md5=5e032ef9b831662d048cdb287b6c1012&searchtype=a
    Conclusion: Honey mixture appears useful in the management of dermatitis and psoriasis vulgaris.


  • #204
    fionny
    Registered Users, Registered Users 2 Posts: 2,367 ✭✭✭fionny


    Hi All,

    Newbie to this thread but I suffer from psoriasis on the elbows, knee's, knuckles and recently by my ankle, its spreading... I went to the doctor and got prescribed dovobet which is great in the fact that it clears it up but not for long.... I use it really sparingly but its damn expensive to keep getting the perscriptions and then the 120euro for the 120g tube's!

    Anyway my dad has been doing a bit of googleing in auto-immune conditions (more so for someones crones disease) and came up with LDN or Low Dose Naltrexone, apparently it works wonders and doesnt have any apparent side effects...

    Anyone here using it? If so who perscribed it? Id like to try it out.

    http://www.lowdosenaltrexone.org/

    Cheers All,


  • #205
    Gophur
    Closed Accounts Posts: 1,921 ✭✭✭Gophur


    LittleMissH wrote: »
    Hi all,

    I have had this scalp problem for I'd say over 10 years now. Always put it down to dry scalp and tried all the usual shampoos, Neutrogena T-Gel, Nizoral etc...
    So finally went to my doctor last week and he has prescribed Betamousse, anyone else tried this? I read most of the thread but didn't see anyone else mention it..

    It seems there are so many different products out there and everyone is different as regards what works for them but its good to see there are many other people out there with this very annoying condition!!
    bravo wrote: »
    Hi Littlemissh,
    I've used it and still have some in my "psoriasis armoury", and still use it from time to time. I also use Stieprox shampoo (prescribed) and between the two of them the scalp stays clear.
    I'm also using enbrel (as I was very severe) but i think the other two are controlling the scalp.

    Betamousse is a steroid based product and must be used in moderation. Like all steroids, it can work well for a while, but you could end up where you started.


  • #206
    fionny
    Registered Users, Registered Users 2 Posts: 2,367 ✭✭✭fionny


    My Doctor is going to perscribe me the LDN I mentioned and I have found 2 chemists in Ireland which will supply it. I will let ye all know what effect it has, if its as described on some sites my psoriasis should be gone in 3-4 weeks and stay away as long as im taking the tablets.


  • #207
    DonFred
    Registered Users, Registered Users 2 Posts: 454 ✭✭DonFred


    Any tips or balms I can buy to help reduce the reddness of my psoriasis? Too warm in work and need to wear t-shirt. I like to disguise the patches on my elbow. Appreciate any help.


  • #208
    rubadub
    Registered Users, Registered Users 2 Posts: 32,382 ✭✭✭✭rubadub


    DonFred wrote: »
    Any tips or balms I can buy to help reduce the reddness of my psoriasis?
    Zinc oxide is white, the stuff in sudocreme or the nappy cream I posted above. This can lessen redness but is a bit too white. I have mixed it with cocoa butter to make it a more transparent paste.

    The bonus is I find zinc oxide creams to be excellent for psoriasis.


  • #209
    DonFred
    Registered Users, Registered Users 2 Posts: 454 ✭✭DonFred


    Where do you get the Cocoa butter? Just bought some high strenght Aloe Vera gel so am going to give this a try. Also have that Tesco nappy cream, yes its a big white alright.


  • #210
    rubadub
    Registered Users, Registered Users 2 Posts: 32,382 ✭✭✭✭rubadub


    DonFred wrote: »
    Where do you get the Cocoa butter?

    In some chemist in the US, women use it for pregnancy stretch marks should be in most chemists, I have seen it in supermarkets but it is usually just water oils and then some cocoa butter in the mix. The real stuff is quite thick and beige and mixes well with the zinc oxide creams. Vaseline might also work, not sure.

    This is an active "boards deal", not sure if it is any use, I think I read on some forum somebody had good results, possibly here on boards.
    Boards Deals: Niamh wrote: »
    Have you or someone you know got breathing difficulties? Asthma? Struggling with eczema? Halotherapy - a salt therapy proven to treat respiratory and skin conditions in both adults and children - might be the solution.

    Pay €70 for five sessions of halotherapy plus one free starter session at the brand new Salt Therapy Wellness Centre, Blackrock or at the Salt Therapy Spa, Malahide with today's Boards Deal.

    Buy this deal now!

    Salt Therapy Spa Ireland was founded by a chronic asthma sufferer, Richard Lindsay, after he discovered the benefits of halotherapy to his own health. You can read about his experience here. This therapy is suitable for both adults and children and the voucher will allow an adult to accompany a child for sessions. Each treatment lasts 45 minutes.

    100% drug free, scientists and researchers developed halotherapy as a means of concentrating the positive effects of salt observed in nature. It is a proven treatment for respiratory and skin conditions.

    For more than 20 years dry salt aerosol, administered in specially-designed halochambers, has been used to help upper and lower respiratory conditions such as cold and flu, allergy, asthma, bronchitis, sinus infection, sinusitis, rhinitis, hay fever and emphysema. In addition, the anti-bacterial and anti-inflammatory properties of dry sodium chloride aerosol has been shown to be an effective treatment for ear infection and conditions of the skin such as eczema, dermatitis and psoriasis.

    Some of the many benefits you'll receive from treatment at Salt Therapy Spa or Wellness Centre include:

    • Clearence of bronchial inflammation

    • Removal of airborne pollen particles from airways

    • Strengthening of immune system that decreases allergic reaction to pollens

    • Cleansing and sanitation of the airways

    • Prevention and treatment of common colds and flu

    • Improvement of dermatological disorders such as acne, dermatitis and psoriasis

    • Reduction of snoring

    • Better sleep

    If you still have some unanswered questions about halotherapy you can read the Salt Therapy frequently asked questions or read the testimonials of others who have tried the therapy.

    Salt Therapy Wellness Centre,
    41 Main Street,
    Blackrock,
    Co. Dublin.
    T: 01 2143383/ -86
    E: info@salttherapyspa.ie

    Salt Therapy Spa,
    Railway House,
    Railway Avenue,
    Malahide,
    Co. Dublin.
    T: 01 8457411
    E: info@salttherapyspa.ie

    http://www.salttherapyspa.ie/

    Buy this deal now!

    Terms of the Deal:
    • New customers only
    • Voucher valid for one adult or one child with accompanying adult
    • Voucher valid for 3 months
    • Not valid with any other offers
    • One voucher per person, multiples may be bought as gifts
    • Must be booked in advance by calling 01 2143383 or 01 2143386
    • Course to be completed within 5 weeks of first session for best results


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  • #211
    DonFred
    Registered Users, Registered Users 2 Posts: 454 ✭✭DonFred


    Have anyone tried this shampoo for psoriasis??

    JASON Dandruff Relief Shampoo 355ml
    JASON_Dandruff_Relief_Shampoo_360ml1273736418.jpg


  • #212
    gillsD
    Closed Accounts Posts: 23 ✭gillsD


    Hi all skin sufferers... how are u all getting on?? I've used moogoo, still using the shampoo (varied with other non perfumed shampoos as i think sticking to the one no longer has an effect after a while..) and i also use the wash. Currently using palmers cocoa butter as my daily moisturiser as i simply could not afford to keep buying moogoo (at 20 odd a tub & i fly through it as sometimes use twice a day)
    Am currently using the óg ireland peat face & body mask a couple of times a week - this has a defo effect of my normal skin, smooth as a babys, most of my patches are quite red after but calm down a bit the next day & also breathing from the saltpipe every evening, sometimes twice a day if i've time in the mornings - this is the home version of going to a saltcave session - bought online from UK.
    Still stressed over work etc so until that changes i suppose i wont get fully better.
    There are days when i think im doing well & other days when i feel ugly & disgusting! :(
    I just wish i had a magic wand to make me 'normal'....
    Am also trying the tesco nappy cream on face & neck in evenings just to see if it helps a bit more - can take the harsh redness look out of it but not sure if it would work permanently to get rid of it but on i continue trying anyway...
    Im sure my family & friends are sick to death of me talking about my skin, giving out, what im trying next etc etc... but its so hard when its all u think about 24/7!
    Anymore tips on whats working for you all - please keep posting! Hopefully in a few wks also after a trip to the sun i'll have happy news to share...

    And i would just like to ask that Mr Sun stay as LONG as possible in Ireland so we can better oursevles outdoors :D


  • #213
    ger vallely
    Registered Users, Registered Users 2 Posts: 766 ✭✭✭ger vallely


    Hi, I was asufferer of psoriasis for years. Mainly in my child and teenage years. It was awful and literally a right pain. I was covered,head, neck, belly, underarms, knees, elbows,eyelids,in and behind ears. Anyways I found sea water to help hugely. It stung like hell but over time it worked. I also used emulsifying ointment mixed with some dead sea salts,rubbed on gently. Again there is a stinging factor but it did definitely work. I'm not sure how good this would be to try on the face,I didn't but everywhere else it worked. I remember being taunted in school over it(back in the day you had to change in the classroom before going to P.E), I used pick off a piece and chase the annoyers with it!Found that to be a great coping strategy. Best of luck and hope ye all clear up soon!!


  • #214
    gillsD
    Closed Accounts Posts: 23 ✭gillsD


    totally know THAT feeling im same, eyelids, undereyes, neck, chest, stomach, back, legs etc etc pretty much head to toe literally!
    Hmmm im away in few wks so will make sure i get plenty of sea water all over - cheers! Lets hope all my efforts combined actually work this time!
    After 12yrs trying i really feel im due a break!
    What did you mix the dead sea salts with exactly?? I've also once a week been using a dead sea salt exfoliator, my bathroom looks like a chemist i swear! :o


  • #215
    ger vallely
    Registered Users, Registered Users 2 Posts: 766 ✭✭✭ger vallely


    I mixed salts with regular emulsifying ointment bought at chemist. Like I say,I'm sure you'd know this anyway,rub it on gently. I used leave it on for as long as possible. Then wash off. I hope you get some relief gillsD, people underestimate the effect of psoriasis.


  • #216
    Jim
    Registered Users, Registered Users 2 Posts: 14,181 ✭✭✭✭Jim


    Just a small note in case it helps anyone...

    I was back living with my mother who always tries new things to help get rid of my P (have had it for about 12 years). I usually just go along with anything she suggests in case it works. She was making me carrot juice (with a small bit of green apple and beetroot) everyday. It's fairly easy to make (just need a good juicer) and tastes good (imo). After a couple of weeks the flakeyness was mostly gone and then after about a month patches on my scalp started to clear up totally.

    I moved out a couple of weeks ago and it's stopped clearing up but hasn't taken back over the bits it did clear. Not sure if it really was the juice that did it, or it will work for anyone else, but I plan to get myself a juicer and carry on with it as soon as I have enough money.


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  • #217
    fionny
    Registered Users, Registered Users 2 Posts: 2,367 ✭✭✭fionny


    My prescription for LDN is winging its way down to me now, I have done a lot of reading on it and it seems to be a winning formula and CHEAP compared to the likes of dovobet etc... a months worth cost me 39euro including postage from a pharmacy in louth.

    http://www.ldnscience.org/
    http://ldnresearchtrust.org/

    Anyway I will keep you updated.


  • #218
    stevejr
    Registered Users Posts: 1,041 ✭✭✭stevejr


    glad to report my psoriasis has totally disappeared with the good weather:D. No scales, no patches, no redness!

    Try the sunshine folks!

    What's the reason for being reasonable?

    Is that an unreasonable question?



  • #219
    bhur
    Closed Accounts Posts: 105 ✭✭bhur


    stevejr wrote: »
    glad to report my psoriasis has totally disappeared with the good weather:D. No scales, no patches, no redness!

    Try the sunshine folks!

    Glad to hear, well done!

    AM fooked with it myself, doing exams at the mo so cant afford to stroll around, plus dovobet waaayy too expensive for a student. Was on steroids for a week, reduced original patches, but since then one or two small ones appeared.

    Cant Win :(


  • #220
    stevejr
    Registered Users Posts: 1,041 ✭✭✭stevejr


    bhur wrote: »
    Glad to hear, well done!

    AM fooked with it myself, doing exams at the mo so cant afford to stroll around, plus dovobet waaayy too expensive for a student. Was on steroids for a week, reduced original patches, but since then one or two small ones appeared.

    Cant Win :(

    Have you tried an over the counter steriod cream containing 1% cortisone, €3 or €4 AFAIK? Maybe that combined with a few sunbeds might do the trick.

    You have two major things that will help you shortly.

    1) No exams, less stress. I've found stress to be a major aggravating factor with my psoriasis.

    2) No exams, will hopefully mean more time outdoors. Remember the sun is your friend.

    You can win:)

    What's the reason for being reasonable?

    Is that an unreasonable question?



  • #221
    rubadub
    Registered Users, Registered Users 2 Posts: 32,382 ✭✭✭✭rubadub


    stevejr wrote: »
    Remember the sun is your friend.
    Yep, if you can get out at lunch break you can get some sun in, just do not put on suncream, 10mins is enough for many. You can consider it a free vitamin D cream like dovobet!

    I posted this ages ago in this thread
    The SunSafe Advice – Safe and Smart
    1. Sunbathe safely without burning – every day if you can.
    2.The middle of the day is a good time for sunbathing in the UK.
    3. Start by sunbathing for 2-3 minutes each side. Gradually increase from
    day to day.
    4.Don’t use sun screen while sunbathing.
    5. If feeling hot or uncomfortable expose a different area, cover up, move
    into the shade – or use sun screen.
    6.When abroad, where the sun is generally stronger, expose yourself for
    shorter times until you find out how much is safe.
    7. Children benefit from sun exposure, but need guidance.
    8.A tan is natural and is generally associated with good health.

    Tesco are doing a deal where you trade in €5 clubcard vouchers for a €10 voucher for various departments, one of them is baby stuff and the nappy cream is included (sudocrem is not), more here

    http://www.boards.ie/vbulletin/showthread.php?p=72128652#post72128652


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  • #222
    blink182
    Closed Accounts Posts: 3 ✭blink182


    im so jealous ye all seem to be able to clear it up even if it doesnt last long. mine wont go away and i have tried practically everyting. i hate using creams now cause if i go to sleep without putting cream on i wake up in pain.but i dont mind the pain its the shame and the looks off people. especially on nights out when i wana wear a dress but cant like. i dont know i think some of us our just destined to have p :(that moogoo thing ye were talking about sounds good though ill give it a go :)sun doesnt seem to help me im just back from florida spent 10 days in a in the sun and it didnt make any different to me.


  • #223
    fionny
    Registered Users, Registered Users 2 Posts: 2,367 ✭✭✭fionny


    blink182 wrote: »
    im so jealous ye all seem to be able to clear it up even if it doesnt last long. mine wont go away and i have tried practically everyting. i hate using creams now cause if i go to sleep without putting cream on i wake up in pain.but i dont mind the pain its the shame and the looks off people. especially on nights out when i wana wear a dress but cant like. i dont know i think some of us our just destined to have p :(that moogoo thing ye were talking about sounds good though ill give it a go :)sun doesnt seem to help me im just back from florida spent 10 days in a in the sun and it didnt make any different to me.

    Try the LDN, Ive been on it for a month now, no changes yet but it can take up to 3 months to work. Upside is no side-effects exluding strange dreams for the first week but that was warned of!

    Its also quite cheap compared to the bloody steroid creams.


  • #224
    blink182
    Closed Accounts Posts: 3 ✭blink182


    never heard of it but looked it up i like the sound of it thanks a mill will try :D


  • #225
    Brightest Star
    Closed Accounts Posts: 19 ✭Brightest Star


    Hi there. :)

    Based on a couple of posts earlier in this thread, I've decided to give the Pagano book a go. I've ordered it online, so should hopefully get it during the week.

    My backgroud - female, mid twenties, been suffering with psoriasis the last six years or so. It's currently worse than it's ever been before, covered with the stuff, even starting to get patches on my face which is awful. :( It's everywhere now ... scalp, ears, very bad on arms and legs and feet. The odd patch on my tummy and back. It's mostly guttate rather than plaque psoriasis.

    I'm fed up of using horrible expensive creams and ointments. So I'm going to read Healing Psoriasis and give the diet a go. I also suffer from IBS, so hopefully it'll help relieve that a bit too. I'm going to try to stick to it as strictly as possible, although I know already that I'm going to find it incredibly tough. Hopefully be worth it eventually.

    I probably drink too much wine, so cutting that out will hopefully help a lot (will help with losing a few pounds too!) I love tomatoes, and I'll find it hard to find alternatives for my sauces when cooking. I don't smoke, don't drink tea or coffee, and I don't eat a whole lot of fried foods. I've never drunk herbal teas, but I see they're recommended so I'll give them a go. I drink loads of water, however I also drink a fair bit of Diet Coke - will find that very tough to cut out altogether. I don't eat a massive amount of red meat, but will probably miss it all the same. Love dairy products - will really miss them. :( Also will miss white bread.

    Just a few questions for anyone familiar with the book/diet ...

    - Looking up reviews of the book online, I've seen something called spinal cord therapy mentioned - what is this?

    - I saw somewhere that the first three days of the diet involve eating only apples - is this true?! :eek:

    - I also see that a professional enema is recommended at the start!!! Although I can see how this would help, specially as I have IBS, it's just not something I can afford at the moment. How important is this - as in, is there any point in me starting the diet til I can afford one?

    - How does it work as regards reintroducing foods? The diet is pretty restrictive, and chances are I'm not sensitive to all those foods - do you start reintroducing them one by one after a while? Or are you meant to cut all of them out permanently?

    - Is it recommended to keep using Dovobet, Dovonex, etc, in addition to the diet, or does it matter? (I'm very bad for actually using these regularly anyways! :o Just so nasty and time-consuming.)

    I'd love to hear anyone else's experiences of trying to control their psoriasis through dietary changes, either using this diet or others.

    Hope everyone is keeping well! :)


  • #226
    DonFred
    Registered Users, Registered Users 2 Posts: 454 ✭✭DonFred


    Hi, There I got the book and its really really difficult to stick to the diet. I did however give up all tomatoe based product, potatoes (carbs basically) for a while (about a month), coffee etc and I got a small relief. Its worth a read but maybe I dont have the will power.


  • #227
    cailineile
    Registered Users Posts: 105 ✭✭cailineile


    Brightest Star
    Just sent you PM :cool:
    Cailin


    Grapes, and other fresh fruits can also be used during 3 day apple phase


  • #228
    Brightest Star
    Closed Accounts Posts: 19 ✭Brightest Star


    DonFred wrote: »
    Hi, There I got the book and its really really difficult to stick to the diet. I did however give up all tomatoe based product, potatoes (carbs basically) for a while (about a month), coffee etc and I got a small relief. Its worth a read but maybe I dont have the will power.

    DonFred, I have terrible will-power! :o The only reason I'm even going to attempt this diet (starting tomorrow, with the three-day apple detox) is that I've gotten to the stage where I'm desperate, absolutely desperate, to find a solution. I have to give up pretty much all the food I like, but I'm just going to take the attitude that it's only temporary - as in, hopefully I'll eventually be able to reintroduce at least some of those foods.

    Also, I have been almost psoriasis-free before for several months a couple of years ago, and the relief was just amazing. Such a sense of freedom. Diets have never worked for me before because I'd have only used them to lose weight, and the motivation wasn't there as I'm only slightly overweight, I could live with it. I can't live with the way my psoriasis is right now, I just can't. I'm going to have a proper go at this diet, and the thought of having lovely clear skin again is such a great motivation.

    Have taken some "before" pictures to remind myself just how bad it is right now. The way I see it, it can't get much worse anyways. :pac:
    cailineile wrote: »
    Brightest Star
    Just sent you PM :cool:
    Cailin


    Grapes, and other fresh fruits can also be used during 3 day apple phase

    Thanks so much for all the info in your PM! :)


  • #229
    madma
    Registered Users, Registered Users 2 Posts: 1,773 ✭✭✭madma


    Brightest Star wrote: »
    Hi there. :)

    Based on a couple of posts earlier in this thread, I've decided to give the Pagano book a go. I've ordered it online, so should hopefully get it during the week.

    My backgroud - female, mid twenties, been suffering with psoriasis the last six years or so. It's currently worse than it's ever been before, covered with the stuff, even starting to get patches on my face which is awful. :( It's everywhere now ... scalp, ears, very bad on arms and legs and feet. The odd patch on my tummy and back. It's mostly guttate rather than plaque psoriasis.

    I'm fed up of using horrible expensive creams and ointments. So I'm going to read Healing Psoriasis and give the diet a go. I also suffer from IBS, so hopefully it'll help relieve that a bit too. I'm going to try to stick to it as strictly as possible, although I know already that I'm going to find it incredibly tough. Hopefully be worth it eventually.

    I probably drink too much wine, so cutting that out will hopefully help a lot (will help with losing a few pounds too!) I love tomatoes, and I'll find it hard to find alternatives for my sauces when cooking. I don't smoke, don't drink tea or coffee, and I don't eat a whole lot of fried foods. I've never drunk herbal teas, but I see they're recommended so I'll give them a go. I drink loads of water, however I also drink a fair bit of Diet Coke - will find that very tough to cut out altogether. I don't eat a massive amount of red meat, but will probably miss it all the same. Love dairy products - will really miss them. :( Also will miss white bread.

    Just a few questions for anyone familiar with the book/diet ...

    - Looking up reviews of the book online, I've seen something called spinal cord therapy mentioned - what is this?

    - I saw somewhere that the first three days of the diet involve eating only apples - is this true?! :eek:

    - I also see that a professional enema is recommended at the start!!! Although I can see how this would help, specially as I have IBS, it's just not something I can afford at the moment. How important is this - as in, is there any point in me starting the diet til I can afford one?

    - How does it work as regards reintroducing foods? The diet is pretty restrictive, and chances are I'm not sensitive to all those foods - do you start reintroducing them one by one after a while? Or are you meant to cut all of them out permanently?

    - Is it recommended to keep using Dovobet, Dovonex, etc, in addition to the diet, or does it matter? (I'm very bad for actually using these regularly anyways! :o Just so nasty and time-consuming.)

    I'd love to hear anyone else's experiences of trying to control their psoriasis through dietary changes, either using this diet or others.

    Hope everyone is keeping well! :)

    keep us updated with how you get on

    thinking about getting the book also!


  • #230
    madma
    Registered Users, Registered Users 2 Posts: 1,773 ✭✭✭madma


    hi all

    a while back i got dovobet to clear upsmall patches i got on my chest which have gone..they were barely noticable but didnt want it to spread

    Im wondering can i use the dovobet on my face as thats really were i got my Psoriasis :( also scalp but that isisnt bad anymore just when i scratch my head alot!

    ive read forums saying it thins skin and dont use it.. but i really havent had a break from the psoriais on my face in a while.. i had a brillaint moistueizer that had me clear for ayear but my skin got immune to it.

    would love to be able to use the dovobet on my face even just a few times to clear it up....


  • #231
    fionny
    Registered Users, Registered Users 2 Posts: 2,367 ✭✭✭fionny


    I think there is a milder version for softer skin, however i have used dovobet on tiny patches on my scalp once or twice with no bother... just wouldnt use it regularly there!


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  • #232
    rubadub
    Registered Users, Registered Users 2 Posts: 32,382 ✭✭✭✭rubadub


    You might want to ask your dermatologist. I had dermovate for my feet and was warned not to touch my face (after applying to my feet). A lot of the "milder versions" are simply more dilute, most of the time they are just diluted down with the likes of vaseline but they charge a lot more than what they should, and you have to buy 2 tubes. Since dermovate was so powerful I would mix it very well with vaseline with the handle of a spoon in a little pot, this meant I could apply a even light coat all over my feet, as I said though check with your doc.


  • #233
    Dudess
    Closed Accounts Posts: 37,214 ✭✭✭✭Dudess


    Got pretty severe temporary dermatitis about six weeks ago as an allergic reaction to an exfoliator (those body buffer/scrub things that are a cream/gel containing lots of little coarse grains that you rub into any dry skin to smooth/soften it) - serious hats off to those with chronic skin conditions, my heart genuinely goes out to you. I always knew it must be unpleasant, but didn't realise until the last five/six-week period just how miserable it can be.

    Found Dermovate brilliant - apply extremely sparingly though.

    Dermatitis nearly gone now, but what an eye-opener. Very best wishes to you all...


  • #234
    Will I Amnt
    Closed Accounts Posts: 13,222 ✭✭✭✭Will I Amnt


    Brightest Star wrote: »
    Hi there. :)

    Based on a couple of posts earlier in this thread, I've decided to give the Pagano book a go. I've ordered it online, so should hopefully get it during the week.

    My backgroud - female, mid twenties, been suffering with psoriasis the last six years or so. It's currently worse than it's ever been before, covered with the stuff, even starting to get patches on my face which is awful. :( It's everywhere now ... scalp, ears, very bad on arms and legs and feet. The odd patch on my tummy and back. It's mostly guttate rather than plaque psoriasis.

    I'm fed up of using horrible expensive creams and ointments. So I'm going to read Healing Psoriasis and give the diet a go. I also suffer from IBS, so hopefully it'll help relieve that a bit too. I'm going to try to stick to it as strictly as possible, although I know already that I'm going to find it incredibly tough. Hopefully be worth it eventually.

    I probably drink too much wine, so cutting that out will hopefully help a lot (will help with losing a few pounds too!) I love tomatoes, and I'll find it hard to find alternatives for my sauces when cooking. I don't smoke, don't drink tea or coffee, and I don't eat a whole lot of fried foods. I've never drunk herbal teas, but I see they're recommended so I'll give them a go. I drink loads of water, however I also drink a fair bit of Diet Coke - will find that very tough to cut out altogether. I don't eat a massive amount of red meat, but will probably miss it all the same. Love dairy products - will really miss them. :( Also will miss white bread.

    Just a few questions for anyone familiar with the book/diet ...

    - Looking up reviews of the book online, I've seen something called spinal cord therapy mentioned - what is this?

    - I saw somewhere that the first three days of the diet involve eating only apples - is this true?! :eek:

    - I also see that a professional enema is recommended at the start!!! Although I can see how this would help, specially as I have IBS, it's just not something I can afford at the moment. How important is this - as in, is there any point in me starting the diet til I can afford one?

    - How does it work as regards reintroducing foods? The diet is pretty restrictive, and chances are I'm not sensitive to all those foods - do you start reintroducing them one by one after a while? Or are you meant to cut all of them out permanently?

    - Is it recommended to keep using Dovobet, Dovonex, etc, in addition to the diet, or does it matter? (I'm very bad for actually using these regularly anyways! :o Just so nasty and time-consuming.)

    I'd love to hear anyone else's experiences of trying to control their psoriasis through dietary changes, either using this diet or others.

    Hope everyone is keeping well! :)

    I've been on it for just over 5 months now(didnt do the 3 day apple thing or enema)and while starting out is a bit tough you kind of get used to it after a while.It's really not as restrictive as I first thought and if you are serious about it you will put up with it easily enough.
    The hardest part for me strangely enough is drinking plenty of water,I'm just never that thirsty.I have been off the smokes and drink since day one which in itself is an achievement I couldn't have imagined,
    Results have been varied,I'm as clear as I have been in the last few years,there are still one or two stubborn spots that I would put a tiny amount of dovobet on once a week,have not had a single bad flare up since I started however I would say from my experience not to expect a complete clearance,I'm convinced diet does play a part in triggering it but yet to be convinced it can clear it as others will testify.
    Overall I feel so much better fitness and healthwise and it's probably worth trying even just for that,I've a friends wedding coming up soon and I'm giving myself a day off,just hope I don't do too much damage:)
    I can pass on a few tips on food and where to get foods that will make life a bit easier if you want,just let me know.
    Good luck with it :)


  • #235
    Brightest Star
    Closed Accounts Posts: 19 ✭Brightest Star


    cambo2008 wrote: »
    I've been on it for just over 5 months now(didnt do the 3 day apple thing or enema)and while starting out is a bit tough you kind of get used to it after a while.It's really not as restrictive as I first thought and if you are serious about it you will put up with it easily enough.
    The hardest part for me strangely enough is drinking plenty of water,I'm just never that thirsty.I have been off the smokes and drink since day one which in itself is an achievement I couldn't have imagined,
    Results have been varied,I'm as clear as I have been in the last few years,there are still one or two stubborn spots that I would put a tiny amount of dovobet on once a week,have not had a single bad flare up since I started however I would say from my experience not to expect a complete clearance,I'm convinced diet does play a part in triggering it but yet to be convinced it can clear it as others will testify.
    Overall I feel so much better fitness and healthwise and it's probably worth trying even just for that,I've a friends wedding coming up soon and I'm giving myself a day off,just hope I don't do too much damage:)
    I can pass on a few tips on food and where to get foods that will make life a bit easier if you want,just let me know.
    Good luck with it :)

    Thank you so much for all of that! :) And yes, would appreciate any tips you would have about foods I can eat!

    The book didn't arrive in the post today, which is pretty annoying, was really hoping to get it before the weekend! I've picked up as much info as I can about the diet online, but I can't wait to read the book and find out more about the theory behind the diet etc.

    Quick question - are eggs allowed as part of the diet? And also, do you need to cut out all bread and pasta etc, or just the white stuff? How about porridge?

    I started the apple detox yesterday but just couldn't keep up with it today! :o So I had a salad with just lettuce, cucumber, onion, tuna and olive oil. I'm drinking lots of water though, and will try to keep to similar foods (mostly fruit and veg) over the next day or two.


  • #236
    Will I Amnt
    Closed Accounts Posts: 13,222 ✭✭✭✭Will I Amnt


    Brightest Star wrote: »
    Quick question - are eggs allowed as part of the diet? And also, do you need to cut out all bread and pasta etc, or just the white stuff? How about porridge?.

    if I remember correctly it said 2 or 3 eggs a week is ok,porridge is fine as are some other cereals as long as it's skimmed milk.
    Wholegrain breads are permitted but don't overdo it,if you can get your hands on spelt bread that's probably the best to get and it's really nice aswel.

    I get a lot of stuff from evergreen.ie,I think they're based in Galway,some things I regularly get there:Sanchi organic brown rice noodles(garlic,onion and organic soya sauce go well with these)
    Orgran gravy mix(sweet potato ain't that nice without something covering it)
    Orgran toasted buckwheat crispibread(crackerbread)
    Orgran buckwheat pasta(i add light Mayo,tuna,onion and sweetcorn)

    Supervalu own brand Swiss style muesli is nice and has nothing added to it
    Carmans fruit muesli bars(I eat a lot of these as a sweet substitute)
    Honey and splenda is allowed in small quantities if you have a sweet tooth like me,that's all I can think of off the top of my head at the moment.

    Fish and chicken will be your main ingredients it's just about getting something you like to go with them,tesco do good deals on salmon,I usually get a large fillet and cut into portions and freeze it.

    There's plenty of other things allowed and some recipes in the book that are quite nice especially the oatmeal cinnamon hotcakes,I could live on them with honey and banana topping:) if I think of anything else I'll post it up


  • #237
    missingtime
    Closed Accounts Posts: 6,942 ✭✭✭missingtime


    For those that are finding it hard to give up the beer. I have bad Psoriasis on my legs and found that Tiger Beer was the only beer that didnt aggravate it.

    Worth a shot. And its delicious too :)


  • #238
    fionny
    Registered Users, Registered Users 2 Posts: 2,367 ✭✭✭fionny


    I think the LDN im taking is beginning to work, I am taking them around 40 days now and my psoriasis is fading and doesnt seem to be flaring... im hoping by the 3 month mark it may be cleared.

    I will update again.


  • #239
    flossie
    Registered Users Posts: 160 ✭✭flossie


    I used to get pretty bad psoriasis in my scalp and a bit on my knees/elbows. Have you tried Cocois? It's a coconut compound available from the pharmacy. You apply the thick brown lotion to your head (doesn't smell half as bad as most treatments), leave on for a few hours, preferably overnight, and then rinse off. I could see a difference within one treatment, and would have one or two treatments a week when things were bad.

    Stress is my flare up. Although have been all clear for a long long time now, when i get very stressed i see it starting to appear around the edges of my hairline.


  • #240
    Brightest Star
    Closed Accounts Posts: 19 ✭Brightest Star


    I've been sticking to the Pagano diet fairly well (but without the initial "cleansing") for about a week now. I'm definitely seeing changes in my skin ... although of course it's so hard to tell if these or down to the diet, or just random changes! :rolleyes: Last week, the psoriasis patches were red, hard, itchy and scaly. For a couple of days, they got really bright red, inflamed, extremely itchy, and the scaling sort of disappeared, leaving them very open and painful. Now, the redness and itching has calmed down a little ... I wouldn't say they look any "better", but it's only been a week, and I see any change as a positive thing because it would seem to prove that there is a correlation between diet and psoriasis? Not expecting any immediate miracle results, but I'm going to persevere with the diet (which is actually surprisingly easy to stick to most of the time.) The only products I'm using on my skin at the moment are Infacare baby bath, Lush Dream Cream moisturiser, and Vaseline/Sudocrem on particularly bad itchy spots.

    My scalp/ears have cleared up quite a bit since last week, but I put that down to dying my hair a few days ago - instant results! Anyone else find that hair dye is great for clearing your scalp? - temporarily at least. I googled it and apparently it's the peroxide in it. Good for a short-term fix anyways!


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  • #241
    DonFred
    Registered Users, Registered Users 2 Posts: 454 ✭✭DonFred


    Has anyone tried Elizabeth Arden 8th hour cream on their Psorasis?


  • #242
    Brightest Star
    Closed Accounts Posts: 19 ✭Brightest Star


    So I was saying in earlier posts that I'm giving the Pagano diet a shot. Couldn't do the three day detox! :o Stuck to mostly just fruit and veg for a couple of days though. I did a good bit of research into the colonic irrigation stuff, and I couldn't find enough evidence to justify the cost right now. Might give it a shot in a couple of months though, depending on progress.

    Being honest, so far, I'm sticking to the diet approx. 80% of the time. My life is sort of in a bit of an upheaval at the moment, I'm between homes and jobs etc, so I should be able to settle into a better routine in the next couple of weeks. Main problems are having a couple of glasses of wine with friends, and then the white bread craving the following morning! :rolleyes: Don't really miss red meat or potatos. I haven't touched chocolate or Diet Coke at all - I thought I'd find it impossible to give up Diet Coke, as I drank an awful lot of it, but it's fine! I'm beginning to wonder if maybe that was a big bit of the problem. Feel much better now that I'm not drinking it. My IBS symptoms aren't as bad these days too.

    So far, I've noticed that my skin is changing rapidly since I've been on the diet. One day the psoriasis is all dry and crusty (sorry! :o ), then the next it's red and itchy and inflamed, then the next its all sore and tight. To be honest, any changes I notice I consider to be positive. If it's true that, despite what conventional medicine says, diet does have some impact on psoriasis, then there's hope of at least making it a bit better through my diet, even if I can't cure it completely. The last day or two, I've noticed on a couple of the larger spots, there is clear "new" skin starting to grow in the middle of the spots, even though the outside is still all raw and red. This was mentioned as part of the healing process in the book! Fingers crossed I'm going to see more results soon, I just need to get stricter with the diet.

    Sorry for the essay and for the graphicness! :o
    DonFred wrote: »
    Has anyone tried Elizabeth Arden 8th hour cream on their Psorasis?

    Tried that a couple of years ago - caused an immediate very bad flare-up! It's worth a try though, as is anything - just maybe try it on a small unnoticable patch first and see how it goes. It's one of the few times I had a real instant flare-up that I could link to the particular product straight away.

    I'm using Lush Dream Cream right now, it's very good for softening and sort of cooling the skin. Most skincare products don't suit me but this one seems OK for now. It's got oat milk, extra virgin olive oil, cocoa butter, chamomile, lavender, and other stuff for sensitive skin. Very expensive though unfortunately. :( I was using the Dream Cream shower cream too, and it suited my skin fine, however I just ended up going through the tubs of it far too quickly to justify the price.


  • #243
    madma
    Registered Users, Registered Users 2 Posts: 1,773 ✭✭✭madma


    missingtime wrote: »
    For those that are finding it hard to give up the beer. I have bad Psoriasis on my legs and found that Tiger Beer was the only beer that didnt aggravate it.

    Worth a shot. And its delicious too :)


    thats great as its 1 of my fav beers... i end up drinking alot of other beers aswell though as alot of off licences and bars/clubs dont have it.


  • #244
    Brightest Star
    Closed Accounts Posts: 19 ✭Brightest Star


    I. HATE. THIS. F*CKING. CONDITION.

    It's just so unfair. :mad::mad::mad: Why do WE have to suffer every single day, when everyone else is so lucky?

    I look like an idiot because I'm wearing big heavy hoodie, jeans, runners, when everyone else is in summer clothes. Also I'm way too warm. :mad:

    I look like I have disgustingly bad dandruff, and I look like I never wash my hair or exfoliate my skin. Other people would never leave the house looking like this, and I'm sure they look at me and judge me. I wouldn't leave my house looking like this if I had a choice though! But I have to work, and live, and I do my best to look normal, but it's hard when you can't. :(

    This stupid condition is destroying my life. If I could only just wear a Tshirt sometime again. :( If only.

    "Normal" people don't know how lucky they have it. I didn't know how lucky I had it. God, what I'd give to have that again.


  • #245
    missingtime
    Closed Accounts Posts: 6,942 ✭✭✭missingtime


    I long for the day when I can wear 3 quarter length pants while walking around the city without feeling self conscious.

    Or even go to the swimming pool with some concerned mother staring at me for fear i've leprosy and will infect her precious Tommy.

    I also long for the day when I dont have to worry about the bed sheets, either being covered in flakes or blood. Or that I can eat whatever I want and not need to shower my legs with cold water so they cool down.

    And I really long for the day when I can stop ****ing scratching...


  • #246
    DonFred
    Registered Users, Registered Users 2 Posts: 454 ✭✭DonFred


    Having a bad flare up myself. My scalp is flaking like mad its like its snowing. Its a tough lif for us psoriasis suffers.


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  • #247
    eilo1
    Closed Accounts Posts: 874 ✭✭✭eilo1


    I'm very lucky my psoriasis is only on my scalp, but today it drove me mad.
    I was watching surgeries all day with a scalp cap and gloves on!
    My god the itch drove me insane!!! lol!


  • #248
    flossie
    Registered Users Posts: 160 ✭✭flossie


    eilo1 wrote: »
    I'm very lucky my psoriasis is only on my scalp, but today it drove me mad.
    I was watching surgeries all day with a scalp cap and gloves on!
    My god the itch drove me insane!!! lol!

    Have you tried the cocois ointment i mentioned in an earlier post? I used to see some relief after only 1 application - think it can be prescribed on prescription if you have a medical card?


  • #249
    Zombienosh
    Closed Accounts Posts: 6,911 ✭✭✭Zombienosh


    missingtime wrote: »
    I long for the day when I can wear 3 quarter length pants while walking around the city without feeling self conscious.

    Or even go to the swimming pool with some concerned mother staring at me for fear i've leprosy and will infect her precious Tommy.

    I also long for the day when I dont have to worry about the bed sheets, either being covered in flakes or blood. Or that I can eat whatever I want and not need to shower my legs with cold water so they cool down.

    And I really long for the day when I can stop ****ing scratching...

    I wear 3 quarter lengths proudly. and my legs are probly the worst part of my body.


  • #250
    Brightest Star
    Closed Accounts Posts: 19 ✭Brightest Star


    Still sticking to the Pagano diet maybe 80% of the time, going to aim to improve that though. It's definitely doing something anyways! My skin flared up horrifically there for a week or so, but the last 3-4 days I'm definitely seeing signs of healing. Very little itching, redness is fading, flaking isn't too bad.

    One thing I'm concerned about now is that, even if my psoriasis were to go away completely, would my skin look normal? I'm afraid I'll be left with big red patches all the places where it used to be? Sort of like scars. Anyone got experience with this? It seems impossible that my skin could become completely normal ever again.

    Also - I've a question for any ladies (or indeed lads! ;)) who have psoriasis and who shave their legs. Is there anything you can use apart from shaving foam which mightn't be as harsh on the skin? I'm currently using Gillette Satin Care for sensitive skin. A nurse advised me before not to shave them at all, but I have a boyfriend who still fancies me despite the psoriasis - I think I'd be pushing it a bit if I had big gorilla legs! :pac:


  • #251
    Jim
    Registered Users, Registered Users 2 Posts: 14,181 ✭✭✭✭Jim


    "Ouch, that looks sore, did you burn yourself with an iron?"

    ...


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