Hyperthyroidism

spurious · 13-09-2008 08:55AM

High calcium levels can be a parathyroid problem.
PTH is the parathyroid hormone.
As the name suggests the parathyroid glands are alongside the thyroid.
Your doctor will be able to help you.

tk123 · 14-09-2008 12:50PM

GAH! mine is gone hyper again after being fine for the last few years. Had an ultrasound on Fri and it was pretty uncomfortable and painful

The guy seemed to be taking shots all over the place so I've a feeling there's extra nodules and the original one has gotten bigger - it was 3cm last time around but I can feel myself that it's bigger. I have hypertension from it so too so have medicine for that and on double the neomerc till it settles down and I can breath properly. GP told me that if the consultant couldn't fit me in the next week i was to call back so she could speed things up so I'm a bit worried about whats going to happen

majella1917 · 16-09-2008 06:08PM

Turquoise wrote: »

Raverbaby - I had most of my thyroid removed last year (at 17) and have to say I feel great now. I was underactive for about 5 months, (realised in May, a month before the Leaving Cert) but since increasing my eltroxin to 800mcg a week I feel fine. Thankfully my Leaving Cert still went really well, couldn't be happier.

I know I've read online about another drug which provides T4 aswell as T3, (or possibly T3 as well as T4) but I can't remember the name of it off the top of my head. If you do some googling I'm sure you could find out more about it.

Majella1917 - I have a book called 'Thyroid for Dummies' which is pretty good. It simplifies everything so you can understand, but also gives the scientific terms and explanations as well if you need/want them. It goes through various different treatment options as well - it'd be worth a read, I know I found it helpful last year.

Hi Turquoise,

Thank you for name of book. I have ordered it online and hope it will be delivered soon. I am off Neo mercozole for the moment as my T4 and T3 levels went way below normal. I was having terrible cramps in my upper arms and a problem with my neck. As far as I can tell these symtoms were all connected to the drugs.

I have been off them now for a month and I am feeling more like myself. Although, I have started to lose weight again and my hair has started to fall out in clumps. Has anyone else had problems with their hair and nails?

tk123 · 01-12-2008 09:26PM

Has anybody had an isotope/uptake test?

Lupine · 17-11-2010 02:53PM

Has anyone become paranoid because of their hyperthyroid and how did it affect you and others? What is the right way to deal with someone that is paranoid? Any advice or experience is appreciated.

sam34 · 17-11-2010 05:03PM

Lupine wrote: »

Has anyone become paranoid because of their hyperthyroid and how did it affect you and others? What is the right way to deal with someone that is paranoid? Any advice or experience is appreciated.

Lupine the only advice that can be given is that the person needs to be sen by a doctor if they have developed paranoia.

Lupine · 18-11-2010 12:15PM

sam34 wrote: »

Lupine the only advice that can be given is that the person needs to be sen by a doctor if they have developed paranoia.

They have been to their doctor and a specialist twice. They are on the same medication as the people that have left a comment on this thread. The medication seems to be working and making them more active put the paranoia seem to be worse.

dollydishmop · 18-11-2010 02:54PM

Lupine...several different treatment options have been discussed on this thread.

Thyroid disease affects each individual in widely different ways,and there is no one definite symptom that we all experience, and there is no magic 'cure-all' treatment that will suit everybody and provide the same result.

I strongly suggest that if your friend feels her alleged increasing paranoia isn't being addressed by her medical team, she should consider a new medical team, ask for a different referral, or find another way to get her point across to her GP does take it more seriously.

At my most 'hyper' I never felt paranoia as such, but I did feel high anxiety levels, and would suffer with anxiety attacks thatwith hindisght potentially could have developed into paranoia. Sorry, that's all I can offer.
I'm post-TT now, so going hypER doesn't really happen for me anymore. My cursed gland is in the bin, and good riddance to it as far as I'm concerned

With regard to how *you* deal with her paranoia...when I am feeling my worst, and/or behaving totally irrationally or out of character, all I can ask is that my family & friends understand that it isn't *me*, to continue to support me and not to take my actions personally.
On the whole they do

sam34 · 18-11-2010 04:21PM

Lupine wrote: »

They have been to their doctor and a specialist twice. They are on the same medication as the people that have left a comment on this thread. The medication seems to be working and making them more active put the paranoia seem to be worse.

well then they need to go back to a doctor and explain this

LegacyUser · 01-05-2011 02:57AM

Hi all,

I'm looking for some advice. I know there is no fix.

I was diagnosed with Graves disease 10 years ago, although I know now that I had it longer than that.

I have managed it with neo-mercanzole during that time as I was only 25 at the time and knew that beginning a family would reach me at some stage and I didn't want to risk their health.

I also must mention that I have fought against my weight alll my life. At age 15 I weighed nearly 12 stone and decided, after years of bullying, that I would loose the weight. I suceeded and lost 3 stone after a lot of work and to this day I still monitor my weight religiously.

Everyone thinks that if you have an overactive thyroid that you're sorted weight wise. Not in my case unfortunatley. When my Thyroid is acting up I put on weight. Mainly because of the weakness and treamours that I experience. I eat more sugary foods to try and give me more energy.

Anyways... my new Consultant has advised me that staying on neo-mercanzole is not good for my health and I should now consider Radioactive Iodine or a Thyroid removal action.

I have read the symtoms for both and they are NOT ATTRACTIVE to say the least. All involve possibilities of weight issues if not more.

AND I still end up taking medication for life.... As much as it is nice seeing the Consultant and lining their pockets.... I would like the less impactful resolution possible.

Is there anyone who has had either Radioiodine treatment or surgery and what were the side effects. What are the beneifits and dissadvantages.

Honesty and advice are welcome to this nervous and confused sufferor.

Thanks X

cltt97 · 07-05-2011 11:10PM

Hi Scrather, sorry to hear about your misery, I'm hypo and gained 2 stone due to it.... but mainly because it went on undetected for a long time. once it's regulated my weight is actually quite stable. Anyhow, can't really give you much advice on your specific question, but I'd recommend that you go onto one of the thyroid forums, you'll have more luck getting lots of personal info there. For example either of these will probably have lots of info: realthyroidhelp, ThyroidUK

CathyMoran · 08-05-2011 09:42AM

I had graves when I was 4, I know that it was bad enough that they were very worried about me - I had the radioactive treatment and my daddy had the surgery a long time ago, he seems to have had an easier time of it after it. I do not have any real issues with my thyroid other than being hyperactive before diagnosis and it is monitored especially at the moment as I am heavily pregnant, the fact that I have other conditions (type 1 diabetes, oesophageal cancer survivor, sarcoidosos) means that it takes the back seat, I would be on the skinny side of normal but that is about it.

This is just my experience of having a funny thyroid - I hope that this helps some.

Joe10000 · 08-05-2011 10:02AM

My gf had the RAI three months ago and her state of mind has improved greatly. She is hypo now and on medication for life. She is a little over weight but she also was when hyper so it's not the same for everyone.

I read on one if the thyroid forums that nobody should be on neo mercanzole long term, a few months max.

Wyldwood · 08-05-2011 10:43AM

Hello Fellow thyroid sufferers.
I had a subtotal thyroidectomy many, many years ago when I was 18. A number of years later I went hypo & was put on Eltroxin 100. All went well for 20+ years, bloods all fine every year, until this year. Around Feb. I started to feel very unwell, shaky, palpitations, losing weight, pains in arms. Bloods show I'm gone hyper so GP reduced Eltroxin to 75/100 every second day. I thought last week things were improving but yesterday I felt rotten again. Due back for another blood test in 2 weeks but not optimistic of being back in normal range.

Has anyone else had a swing like this after many years stable?

dollydishmop · 10-05-2011 05:10PM

Scrather1974 wrote: »

Everyone thinks that if you have an overactive thyroid that you're sorted weight wise. Not in my case unfortunatley. When my Thyroid is acting up I put on weight.

Haha, can SO relate to this, yes, I am also, what my Endo calls, one of those 4%ers....who gained weight consistently when Hyper.

Joe10000 wrote: »

Scrather1974 wrote: »

Anyways... my new Consultant has advised me that staying on neo-mercanzole is not good for my health and I should now consider Radioactive Iodine or a Thyroid removal action.

I read on one if the thyroid forums that nobody should be on neo mercanzole long term, a few months max.

Agree with Joe, it has always been my understanding that long term carbimazole (neo-mercazole) use is a big no-no, 2-3 years max....your GP should know this!!!
After that time, if the thyroid hasn't gone into remission, then the next stage would be considered. This was show it was explained to me by my consultant at the very beginning of my treatment for hyper/Graves.

Scrather1974 wrote: »

I have read the symtoms for both and they are NOT ATTRACTIVE to say the least. All involve possibilities of weight issues if not more.

I was hyper/Graves for a long time (undiagnosed for too many years!). Ultimately I had a total thyroidectomy in May of last year (almost one year ago! Woo hoo!) and hand on heart I feel better now than I have done for years! I truly wish I'd pushed to have it done years ago!
I'm on 150mcg Eltroxin and my bloods are absolutely spot on, and my symptoms are so few as to be virtually undetectable apart from the very occasional random crappy day.
Even when I had the choice of TT over RAI, I chose TT...I wanted it gone, done & dusted. Obviously there were a few other factors in the decision, not forgetting my growing, toxic multi-nodular goitre, but it ultimately boiled down to that in the end!
Ultimately, the choice fo RAI was taken away from me,when my eyes started to get worse. I'm told RAI shouldn't be done where there is evidence of Thyroid Eye Disease...added to that, my goitre was in the process of crushing my windpipe, so in the end it came out sooner than scheduled!
Regarding your weight concerns...for what its worth, my weight is coming off far easier now that my levels are settled, and now that I have the motivation and energy to be more sustainably active etc.. All the while I was Graves/hyper and my levels were all over the palce, my weight would just keep piling on and refuse to shift.

Scrather1974 wrote: »

AND I still end up taking medication for life.... As much as it is nice seeing the Consultant and lining their pockets...

If your GP referred you to the consultant you shouldn't be paying, its free on the public system!

Scrather1974 wrote: »

Is there anyone who has had either Radioiodine treatment or surgery and what were the side effects. What are the beneifits and dissadvantages.

Yes, as detailed above, I had a TT in May '10.

As was explained to me...RAI, less invasive, but not guaranteed to work, have to have a period of isolation which can take a bit of organising, and if you're planning a family you can rule that out for 2 years or so. If you have a goitre, it won't be removed and only a slim chance that it may shrink a little bit. Personally I didn't like the idea of willingly allowing radio-active material to be pumped into my body...knowing it might have to be repeated if it didn't work first time.
Thyroidectomy (be it partial or total)...obviously a scar (which is minimal once settled and easily hidden with a necklace for social occasions),and a sore, immedate period of recovery. If partial, there's a very good chance, the remaining section of thyroid gland will cop itself on and start to work properly again, meaning no more meds,or much reduced meds!
There's loads more to consider for both options, I could type for hours, my best advice is to get to the library, get on line and research, research, research.

I chose surgery...but everyone has to make their own decision to fit in with their situation and what they want out of it. I just wanted mine gone because it was making my life a living hell!

Keep in touch!

tk123 · 10-05-2011 09:59PM

dollydishmop wrote: »

As was explained to me...RAI, less invasive, but not guaranteed to work, have to have a period of isolation which can take a bit of organising, and if you're planning a family you can rule that out for 2 years or so. If you have a goitre, it won't be removed and only a slim chance that it may shrink a little bit. Personally I didn't like the idea of willingly allowing radio-active material to be pumped into my body...knowing it might have to be repeated if it didn't work first time.
Thyroidectomy (be it partial or total)...obviously a scar (which is minimal once settled and easily hidden with a necklace for social occasions),and a sore, immedate period of recovery. If partial, there's a very good chance, the remaining section of thyroid gland will cop itself on and start to work properly again, meaning no more meds,or much reduced meds!
There's loads more to consider for both options, I could type for hours, my best advice is to get to the library, get on line and research, research, research.

I chose surgery...but everyone has to make their own decision to fit in with their situation and what they want out of it. I just wanted mine gone because it was making my life a living hell!

Keep in touch!

This is how I thought of it too and went for surgery. When they opened me up it turned out the mass was a lot bigger than they expected so it would have been left there and I probably would have had to get it removed anyway. Two of my grandparents had cancer (lung and oesophageal) - my nana had died about 4 months before I was asked what I wanted to do so there was no way I was taking the risk of cancer with the RAI no matter how tiny it was with the memory of it so fresh in my mind!
It'll be 2 years in June since I had the surgey. No meds since the other side took over (woohoo) and I try to stick to eating low carb so I don't put on weight Apart from that I have no problems at all. I was in hospital in March for something else and when different staff asked had I been there before they were all impressed that I'd had the surgey so young (I'm 32 now) and suprised since my scar isn't that visible.

donnbradman · 13-09-2013 01:00PM

Hi guys, diagnosed with this just last week and was wondering if anyone had anyone any advice for me. I play a lot of sports and my performances have seriously deteriorated in the last few months. Am I best off taking a break? I must add at the start of the year I overtrained for about 6 months. It had resulted on significant weight loss to the point where I was diagnosed with an eating disorder

LegacyUser · 14-08-2017 05:08PM

I've just been diagnosed with hyperthyroidism. My GP is doing a referral. Does anyone know how long it takes to get a consult in a public hospital? Palpitations, weight loss, heat intolerance - I'd like to be seen soon. Thanks

Hyperthyroidism

Comments