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[Diabetes] General Chat and Support Thread

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Comments

  • Registered Users, Registered Users 2 Posts: 77 ✭✭CalisGirl


    Diabetes Ireland are having a free webinar this evening from 7-8pm on Emotional Wellness and Diabetes. It looks interesting and helpful to me so I'm just posting the details. For the registration link contact Diabetes Ireland. "The focus of this webinar is dealing with mental health and emotional wellbeing. Some may feel they cope well with their emotional and mental wellbeing, which is great, while others may feel differently and in need of support from time to time.

    This webinar will discuss in-depth the important topic of how to maintain emotional wellbeing and resilience when living with diabetes.

    If this is something that may interest you or someone you know,why not register today.

    We are delighted to be joined by special guest speaker Dr Mark Davies, who is the Consultant Clinical Psychologist at Belfast City Hospital."



  • Moderators, Sports Moderators Posts: 25,184 Mod ✭✭✭✭CramCycle


    I've been given the option of the Tslim + G6 sensor of the 780G plus G4 sensor. Anyone much experience with either? Both will be closed loop systems which I am very excited about but my only other real want is to display it on my bike computer, not sure of the G4 can do that.



  • Registered Users, Registered Users 2 Posts: 23,157 ✭✭✭✭Alanstrainor


    That's interesting, as I've been now told that 780G and guardian 4 is not approved for use in Ireland. I spoke to Medtronic directly on Friday and they confirmed that guardian 4 is not approved in Ireland. Although she was slightly confused by that, and told me she would send me an email when she got more info.

    I'll update this thread with all further info. There's no way in hell I'm getting a Guardian 3 when G4 is here. Pump is currently out of warranty now, so I might be forced to get Tandem and Dexcom.



  • Moderators, Science, Health & Environment Moderators, Sports Moderators Posts: 24,118 Mod ✭✭✭✭robinph


    I've got the T:slim X2 which I'm very happy with. Only negative compared to my previous Animas is that it's not totally clear if the pump is waterproof or not. I just take it off for swimming, it's perfectly fine for getting drenched in weather though. Don't have the sensor to close the loop, although things are gradually changing over here and funding might be possible soon. At the moment I just run open loop with my Libre.

    I think that the tandem app has just been authorised for linking with phones in the US, but its currently impossible to install or link to the pump over here. That should give you the possibility of a bike display when that comes along. Think that the G6 can be linked to the xdrip app, which would definitely then allow a link through to Garmin data fields. Not certain that you can link the G6 to the pump and the phone at the same time though, so that would be something to research.



  • Moderators, Sports Moderators Posts: 25,184 Mod ✭✭✭✭CramCycle


    I am only going by the nurse and it was my first appointment in 3 years so maybe I misheard but she was talking about upgrades, so maybe I put the G4 in there but I thought she did. My DSN is brilliant, very much on top of everything and knows everything going on and coming out down the line.

    Yep, I have seen the G6 can be added as a data field either direct to Garmin or via Xdrip to the Wahoo, so maybe this is the way I'll go with it then. They did say I'd be one of the first on it, and they don't have the same experience that they do with the Medtronic system but no pressure either way.



  • Registered Users, Registered Users 2 Posts: 8,638 ✭✭✭spacecoyote


    Hi All, I was out and about at the weekend and lost my insulin pen and carry pouch. Obviously have plenty of spare pens, so no issue on that front, but I now have no pouch at all for carrying pens and Needles. I checked in with the clinic and they said they have none at the moment. And have contacted a few local chemists and they also say they have none in stock.

    Was wondering if anyone has any recommendations of where they might be sourced easily (and preferably cheaply 😀)



  • Moderators, Sports Moderators Posts: 25,184 Mod ✭✭✭✭CramCycle


    Haven't used pens in awhile, but I remember a few people in clinic who had just gotten fountain pen hardcases, which you can get cheap online, just make sure they are the right length. The other option is a stationary shop and a hard (or soft) pencicase.



  • Registered Users, Registered Users 2 Posts: 23,157 ✭✭✭✭Alanstrainor


    So I finally got some clarity on this 780G and Guardian 4 from the head of Medtronic diabetes in Ireland.

    The Guardian 4 CGM is not available in Ireland yet, and it is still going through the approval stage. Medtronic expect to have this approved 'in the coming months', but they were very vague and I get the impression that there is little certainty on the timeline.

    She also mentioned that there would be some sort of upgrade program for those who get a 780G now with Guardian 3, to move to Guardian 4. However the process is not set in stone for that, or how it would work. Which is concerning as it is possible that this promised upgrade program may not work out as they say it should. She did say that I should reach out to here in a few weeks for an update.

    There is significant difference between a 780G with G3 and 780G with G4. Asides from the removal of a need to calibrate the sensor 3 times a day, there is auto bolus and more advanced auto-basal.

    Or do I abandon Medtronic entirely and go with Tandem+Dex. I read great things about the system online, and it is tempting.



  • Moderators, Sports Moderators Posts: 25,184 Mod ✭✭✭✭CramCycle


    I went with the T slim anyway. On the guardian 3 sensor at the minute, it is grand, not as bad as I hear elsewhere but not as accurate as the Libre was or the old dexcom I had.



  • Registered Users, Registered Users 2 Posts: 16,158 ✭✭✭✭iamwhoiam


    Has anybody had a severe skin allergy to the dexcom adhesive and found a solution ?

    Thanks in advance for any advice or help



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  • Registered Users, Registered Users 2 Posts: 6,984 ✭✭✭ebbsy


    Back from Newcastle on Thursday, after getting my next 6 months of Noctura 400 masks.

    Scans again show no changes, which is good. Over 3 years since my last bleed.

    Just one thing in case anybody is going to an optician, ask them to check for ingrowing eyelashes. I had to get a few plucked out on Wednesday.



  • Registered Users, Registered Users 2 Posts: 1,711 ✭✭✭uli84


    I’m sick of medtronic products, and the whole malarky of transmitter/sensor compatibility or the lack of it. Also seems like newer sensor is worse than the previous which is ridiculous. Any idea how to approach the hospital about the system change? Or should i just try and go private? Or change hospitals…

    Also, is Omnipod dash available in Ireland? Is it any good? I really like that it doesn't have all those wires and stuff and uses the app...



  • Registered Users, Registered Users 2 Posts: 746 ✭✭✭calfmuscle


    Glad to read some people are getting the T-slim with the dexcom. I had my latest endo appointment on Thursday and have said I'd like to move onto this from mdi. My control is very good but I'm hoping the close loop will help reduce nighttime lows. I'm exhausted with the dexcom going off at night.



  • Registered Users, Registered Users 2 Posts: 746 ✭✭✭calfmuscle





  • Registered Users, Registered Users 2 Posts: 16,943 ✭✭✭✭banie01


    Is anyone here encountering neuralgia/neuropathy either due to or incidental to their diabetes and struggling to manage the pain?

    I have an ongoing issue that stems originally from a thrombosed varicocele and that lead to ilioinguinal and other nerves being impinged as well causing renal colic, phlebitis and congestion.

    No surgical fix for it as yet and the usual course of action involves high strength anti-inflammatories. Unfortunately Diabetes rules those out for me outside of hospital. Currently struggling to manage on a combo of Gapabentine and opioids. I am having amitriptyline added into the mix next week in an effort to at least give me some longer periods without opioids.

    I've heard good things re the Gabapentin & Amitriptyline combo for neuralgia, so fingers crossed.

    If anyone here has similar difficulty in managing neuralgia/neuropathy that could well be helped by anti-inflammatory meds and has found a way to manage it? I'd love hear the story.



  • Registered Users, Registered Users 2 Posts: 2,973 ✭✭✭IrishHomer


    Wow just had my t2 diabetes reiew today I was charged €80 for ten minutes chat with go an bloods were excluded from that. :(



  • Registered Users, Registered Users 2 Posts: 40,536 ✭✭✭✭ohnonotgmail


    Do you not get your review done in a hospital?



  • Registered Users, Registered Users 2 Posts: 2,973 ✭✭✭IrishHomer


    Loca hospital is ten minutes away but I was never referred to that



  • Registered Users, Registered Users 2 Posts: 40,536 ✭✭✭✭ohnonotgmail


    Feck that I wouldnt be paying for a review. I certainly wouldn't trust a GP to do it.



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  • Registered Users, Registered Users 2 Posts: 4,212 ✭✭✭Roberto_gas


    If you have good control GP will not refer you to hospital ! have to shed €80 twice a year for blood forms/ECG and prescription.



  • Registered Users, Registered Users 2 Posts: 40,536 ✭✭✭✭ohnonotgmail


    I was referred immediately when I diagnosed a long time ago. Now I am close to a hospital with a dedicated diabetic unit so that may be why.



  • Registered Users, Registered Users 2 Posts: 1,711 ✭✭✭uli84


    Omg isn’t a GP Fee like around 60€ these days? Charging 80€ just because you have diabetes is seriously not on…



  • Registered Users, Registered Users 2 Posts: 1,711 ✭✭✭uli84




  • Registered Users, Registered Users 2 Posts: 2,973 ✭✭✭IrishHomer


    Question please, anyone know what H1AC levels can cause circulation problems in the feet/toes?



  • Registered Users, Registered Users 2 Posts: 16,943 ✭✭✭✭banie01


    The multiple units in use don't make it easy to know what's bad but, 7%, 54mmol/MoL, 158mg/dl, 8.7mmol/L are all in and around the same glucose concentration.

    My Endo varies between reporting in mmol/MoL & or %. The target for keeping healthy as long as possible is 54mmol or better. The damage is cumulative, high levels long term damage the small blood vessels. The higher the hba1c, the faster the damage accrues but, any elevated hba1c long term will have a detrimental effect.



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  • Registered Users, Registered Users 2 Posts: 16,943 ✭✭✭✭banie01


    Diabetes and me are having a fall out. I have a chronic pain issue that is quite life limiting and debilitating. Only pain relief that touches it really is Oxy and while it works I don't like taking it unless absolutely necessary.

    IV Keral was the only other pain relief that had any real impact and thanks to Diabetes, NSAIDs were only ever given in hospital.

    I got a nailed down diagnosis a few weeks confirming that front treatment was NSAID but Endo has said no to that. So now I have to get to grips with pain management and limitation that the condition and the lack of NSAID are going to impose.

    Pain in the Bollox, quite literally at times 😉

    In other Diabetes related news, my GP was blown away by the level of detail available from my Dexcom G6 tied into Xdrip+ and tidepool. He loved the trending, time in range and the units per kg data.



  • Registered Users, Registered Users 2 Posts: 1,542 ✭✭✭BlackEdelweiss


    Rookie question here (12 years as a diabetic!). When carb counting do I count the total carbs or the sugars only?

    I have been told this years ago but over the years have slipped into guestimating the amount of carbs I am eating and I have forgotten the basics. I cant seem to get any dose correct these days. I had a bowl of porridge this morning, weighed it out on the scales, allowed for some milk but shot down low about 2.5 hours later. I went with the full carb total as per the pack.

    Does anyone else have a problem with delayed absorption of carbs causing a drop soon after dosing but returning with an almighty high a few hours later when the insulin has largely worn off? I have this a lot with different types of food and it is very hard to does correctly for.



  • Registered Users Posts: 737 ✭✭✭Xofpod


    Total carbs I think, as that's what the insulin acts on. If it's any comfort, my carb to insulin ratio went all over the place during the pandemic; less exercise, far more sitting with WFH, etc. Has reverted somewhat to the previous baseline now but I found myself doing a hell of a lot more guesstimating during the period. I have an appointment coming up next month with the dietician in the clinic - if you have a similar option you should definitely have a chat with them.



  • Registered Users Posts: 737 ✭✭✭Xofpod


    Also, high fat content delays the absorption of carbs. For high fat/high carb foods like pizza or indian food, splitting the insulin dose can be a good idea. Again, I'd probably talk to a dietician before doing too much experimenting though.



  • Registered Users, Registered Users 2 Posts: 1,542 ✭✭✭BlackEdelweiss


    Can splitting the dose be done on a pump? I use the dual and square delivery modes but these do not solve the problem either.

    I was going low just before lunch, 7 but arrows pointing down. I had a bagel for lunch, worked out the carbs as about 45g. Took the appropriate dose for this amount of carbs. Blood rose for 1 hour, then an almost mirror image descent for the last hour and getting a low warning at 7 again now with a load of insulin still on board. I presume this must be my carb to insulin ratio that is incorrect.



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  • Registered Users Posts: 737 ✭✭✭Xofpod


    Don't know re the pump tbh. I'd talk to someone about the insulin/carb ratio, but another possibility may be slightly too high a long-acting dose? Pure speculation on my part so I'd definitely speak to a professional. Also, everyone's parameters are different - I'd need to be down around 4 before I'd consider myself going low.



  • Registered Users, Registered Users 2 Posts: 580 ✭✭✭ddarcy


    You can manually do it. Not ideal though

    as above I’d be looking at basal rates. You should be able to deliver everything at once.

    When are you due an upgrade? The 780 is really helpful



  • Registered Users, Registered Users 2 Posts: 1,542 ✭✭✭BlackEdelweiss


    I should be due an upgrade around now but I had a plastic ring crack where the insulin vial sits into the pump about a year ago. They replaced the full pump immediately so they say my pump is now only 1 year old so not ready for an upgrade for 3 years!



  • Registered Users, Registered Users 2 Posts: 580 ✭✭✭ddarcy


    I’d double check that. Usually the replacement is a refurbished model. So you should be due an upgrade now. Is it your clinic saying this or Medtronic?



  • Registered Users, Registered Users 2 Posts: 1,542 ✭✭✭BlackEdelweiss


    The clinic. I might look into it. They have not been much help with it.



  • Registered Users, Registered Users 2 Posts: 13,055 ✭✭✭✭Snake Plisken


    Folks. Got the Dexcom G6 last year haven't flown with it yet is it safe to go through X-Ray scanner or will it get damaged?



  • Registered Users, Registered Users 2 Posts: 16,943 ✭✭✭✭banie01


    Not flown with it yet myself either, but Dexcom say it's grand.




  • Registered Users, Registered Users 2 Posts: 580 ✭✭✭ddarcy


    Yeah I’d bring it up to them when you originally got it. Don’t tell them about the replacement. Just says it been 4 years and you’re do an upgrade.



  • Registered Users, Registered Users 2 Posts: 1,542 ✭✭✭BlackEdelweiss


    Turns out I have almost a year before I am due for an upgrade. The lady in Medtronic said the replacement pump does not count so at least that is something. Apparently there is a backlog of people waiting for pump upgrades due to covid and now probably Putin causing a shortage of raw materials so even if I was due one now I would not be able to get one straight away anyway. Booked in with the dietician anyway to get a bit of a refresher on carb counting and dietary advice, its been a while since I went over things.



  • Registered Users, Registered Users 2 Posts: 1,542 ✭✭✭BlackEdelweiss


    We are applying for a mortgage at the minute and we applied for mortgage protection insurance and also illness cover and a few other bits and pieces they were offering. It was an expensive premium that I was offered but I thought it worth it for peace of mind. I thought the insurance company would probably not give me the level of cover I applied for but I thought I might get something. They came back yesterday and refused me everything but the basic mortgage protection policy.

    I know we are high risk but is this standard policy for insurance companies?

    I was willing to pay a high price but to get no cover is a bit disappointing. I am not 100% sure if I am even getting the mortgage protection cover, they are requesting a report from my GP so I dont know where that could go.



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  • Registered Users Posts: 944 ✭✭✭Kremin


    Hi, I was diagnosed with Type 1 Diabetes two weeks ago. I received a prescription which said 1 Months Supply of glucose test strips but the pharmacy only gave me a packet of 50. Testing 4 times a day + the few I messed up getting used to it means I'll need to get more tomorrow.


    Could anyone shed some light how this works? Should I ring the diabetic clinic and get a new prescription or can/do I just buy them out of my own pocket?


    Sorry this is all very new to me. Cheers



  • Registered Users Posts: 737 ✭✭✭Xofpod


    Ring the clinic and get an increased prescription definitely but don't get caught out in the interim. If you go to the pharmacist they should be happy to provide you with an extra box or two on the Long Term Illness (LTI) scheme before a new prescription arrives. You shouldn't be out of pocket for the basics.



  • Registered Users, Registered Users 2 Posts: 40,536 ✭✭✭✭ohnonotgmail


    you should you have no problem getting more strips from the pharmacist on the prescription you. There is a limit on the amount of strips dispensed to Type 2 diabetics but there is no limits for Type 1s.



  • Registered Users Posts: 737 ✭✭✭Xofpod


    Also, sorry to hear about the diagnosis but 13+ years after diagnosis, I can safely say that it's not the end of the world. It's a pain in the #ss but it's very manageable and won't stop you doing anything you want to do.



  • Registered Users Posts: 944 ✭✭✭Kremin


    Thanks All!


    Definitely a shocker being told you're diabetic while being rushed to A&E while DKA but it explains so many of the issues I've been facing these last few months and already feel like a new person after starting on insulin.


    Definitely been a few tearful moments and a real eye opener how much of our lives revolve around food-events.. seriously... I don't think food has been off my mind once these last few weeks!


    Thanks again for the help!



  • Posts: 0 [Deleted User]


    Hi all, had my yearly visit to the endo this week. HBA1C down to 45 from 52 in 6 months after doing DAFNE so I am delighted with that, is 45 the target range or is it 40 I can't remember?

    Have started the gym in the last month and have noticed the weight isn't coming off and I'm putting it down to insulin, so I have started to reduce my carb and insulin intake mainly at breakfast and sometimes lunch. I've heard in the past it's difficult to shift weight when taking insulin(maybe if it's over a certain amount per day)

    Anyone have any advice on weight loss? What works or what doesn't work as T1 diabetic.



  • Registered Users, Registered Users 2 Posts: 433 ✭✭GoogleBot


    Well done. 45 good result but should be below 40.



  • Posts: 0 [Deleted User]


    Thanks, i recall them telling me on the DAFNE course that there was no benefit getting it below a certain level...must find dig out the book again.



  • Registered Users, Registered Users 2 Posts: 433 ✭✭GoogleBot


    We are still evolving and no one knows for sure if there any benefits, but new studies suggests that there are certain benefits to keep your a1c as low as possible. Reduce; inflammation, harmful viruses, including covid, cancer.



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  • Registered Users Posts: 944 ✭✭✭Kremin


    Hi everyone, hope everyone is keeping well!


    I decided to self fund purchase a Libre today while waiting to see the consultant and hopefully be prescribed a CGM long term.


    I have read you can claim the vat back through revenue but the receipt from the pharmacy just says DISPENSED GOODS and doesn't have any VAT details or state what the item is, am I out of luck claiming this back then?


    Thanks!



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