Sodium Valproate (Epilim) Safety update for Males

TomOBrien2605

Hi,

I have a super 14 year old Son who happens to have neuro-developmental issues (ADHD and Dyspraxia).

I have mild epilepsy and was prescribed Epilim since I was 18. To be honest I has been complacent with it during my 20s as my Epilepsy is so mild.

During my 30s I started taking it more continuously and never missed it. I noted the health warning on it for expectant mothers.

Recently I was disappointed to find out that studies have found that fathers to be who are taking Sodium Valproate (Epilim) increase the likelihood of their child having neuro-developmental issues.

I try not to think about this too much, but it has saddened me (more for my Son) that me being on Epilim could have been a contributory factor to my Son having impaired brain functioning.

If I knew this in 2009, I would have without question have given the Epilim a break (after consulting with the constultant of course) during the family planning phase at least.

Does anyone have any advice? Should I ask my consultant about this at the next consultation which I have in July 2024.

I know I can't conclusively prove this but I feel guilty if my taking Elipim has impacted on my Son's wellbeing.

jos_kel

https://www.boards.ie/discussion/2058333798/sodium-valproate-epilim-safety-update-for-males

To be honest I know it gives up to date safety information on the box but sometimes feel the consultants don’t do enough to highlight it to patients.

Eventhough the risk of using Sodium Valproate to fathers to be is a new development. I would have have at least raised it back before your son was born when it was a known risk to mothers to be.