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Sleep Apnoea (Apnea) / OSA / Diagnosis and Support

  • 09-10-2022 8:34am
    #1
    Registered Users, Registered Users 2 Posts: 1,996 ✭✭✭


    Many threads already relating to OSA (Obstructive Sleep Apnoea), (A)CPAP ((Auto) Continuous Positive Airway Pressure) systems and diagnosis, but aiming to start this one as a catch-all.

    A brief summary of the illness can be found here.

    I was recently diagnosed as severe and have started with a CPAP machine.

    My story is some years of chest pains and extreme fatigue and despondency, most recently culminating in waking and being out of breath. This coupled with my wife claiming I was having night-horror type dreams of waking up distressed, and a friend sharing room claiming that I stopped breathing.

    I proposed the potential of OSA to my GP.

    As I had health Insurance, I elected to go private.

    The consultant met me for a few minutes and booked me in for an overnight within a few weeks, whereby I was monitored with a 1-piece piece of equipment (more on this later).

    The cost to my Health Insurer was €1200.

    I understood from speaking to others that the Public system could have waiting periods of between 6 months and 1 year.

    The consultant prescribed a ACPAP machine. He said it was critical that I begin this treatment as soon as possible.

    I was visited by his designated machine supplier and set up.

    I am finding the mask uncomfortable, but am going to persevere, as if there is no other option, the symptoms of OSA are a living hell, and the potential results of untreated OSA are life threatening.

    So, what's the problem?

    Considering OSA can result in heart disease, hypertension, stroke, fatigue (leading to accidents such as driving), anxiety, symptoms of depression, brain fog.......etc, and that a diagnosis and treatment can take an enormous future strain off the health services;

    1. I believe I have been suffering with non-diagnosed OSA for many years now. I have had multiple cardiac tests, been prescribed anti-depressants and sleeping tablets. Occasions when I awoke and could not get back to sleep, I now believe to have been due to high adrenaline levels due to low oxygen and increased heart rate episodes.
    2. I may have endured longer being non-diagnosed if I did not have a partner to report on my sleep.
    3. If I could not afford private or did not have health insurance, I would be still waiting in an untreated state with the OSA symptoms and continued quality of life and health degradation.
    4. The ACPAP systems prescribed in Ireland are done so by a very few companies. Their rental is approx €100 per month (this includes an annual "free" replacement of a mask also ~value €150), or purchase machine off them for approx €1600. These machines (exact same) can be sourced for €500. These companies show you how to claim back rental on Drug Repayment Scheme (if your monthly is over €80), or if Medical Card holder, they are free. None of those options are "free", as ultimately, the tax payer is footing the bill.
    5. The equipment I was monitored with, I googled and could see it was designed to be suitable for home sleep studies. However, I was put in a hospital bed. A bed and resources denied to someone who needed it.
    6. The equipment and Sleep Study can only be prescribed by a consultant (€€€€).
    7. There are likely multiples of people suffering from OSA, not being treated due to having been misdiagnosed or non-diagnosed.
    8. There are likely multiples of people having abandoned the ACPAP system due to cost or not being able to tolerate the designs of masks.

    Since been diagnosed, I researched and purchased (€110) a data-aquisition oxymeter/pulse rate monitor. The results from this, if I had used in the past, would have fast-tracked me to early data and hence earlier requests for medical support based on that. For example I observe drop in blood-oxygen levels coinciding with spikes in pulse rate (150BPM!!), prior to my waking unexpectedly. this equipment is a yardstick measurement for me and in no way replaces the proessional sleep study equipment and extra data points.

    I am not advocating bypassing professional medical diagnosis or support. It is just that the present routes in terms of delays and costs are totally unfair and putting lives and quality of lives at risk, coupled with strains on the health services due to future resultant illnesses.

    I believe that a focused thread such as this may offer an opportunity for others to share their stories, anxieties and advice.

    If it led to a momentum to getting the illness diagnosed (or negated) faster, using the modern available technologies and getting the ACPAP equipment, all at fair costs, all the better. I have considered, for example, some sort of co-operative to offer buying power.

    Those I have made personal contact with and who have adapted to ACPAP therapy have said that their lives have dramatically improved. To think that lives could dramatically change for the positive, with a piece of kit that can be sourced at €500 is phenomenal, but yet we are put through the hoops of time and inflated costs.



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Comments

  • Registered Users, Registered Users 2 Posts: 7 blueoceanfreedom


    Hi Andrea, just came across your post. I've been diagnosed with severe sleep apnea over 5 years ago and I have been using the phillips dream station with good success. I think it was earlier last year I was notified about the problems with the dream station, and I registered for a replacement, having bought my own machine as the monthly rental was astonishing. Long story short, I happened upon a youtuber CPAP reviews, who is based in Australia, and it looks like I'll be dead a long time b4 phillips do a replacement or refund here in ireland. Australia has had a great response as the consumer laws there are really strict, but the USA are lagging way behind in fixing the problem. Europe are also very slow so I'm not expecting anything soon. In Australia, those that got a replacement machine are now again being recalled as there's problems with the power flex, so I have lost all thrust in Phillips.

    I have decided to buy another CPAP, and I'm going with the Resmed 10. My sleep nurse got a rep to contact me from Dublin and I got a quote of over 1700 euro, this for a machine that's really outdated as the airsense 11 has taken over. Needless to say I turned it down and started researching buying online. I priced CPAPEUROPA, and got a quote for 750 euro. I presume there would be vat on that coming into the country.

    What I'd like to know is if anyone bought from this company, I've looked up the reviews and all have come out with top marks, but is it possible to have a 1000 euro price difference?? Hoping someone has some information.

    Thanks.



  • Registered Users, Registered Users 2 Posts: 1,996 ✭✭✭Andrea B.


    I have just yesterday purchased the BMC G3 A20 Auto CPAP with Smart Humidifier, BMC Medical from cpapstore.eu for €575 all in, incl delivery.

    Got a ups shipping notification this morning from Greece, so no duties.

    The Irish crew selling for €1600 with a reduction of €300 because I have paid 3 month rental. They would not budge when I explained my option.

    Like, what do they even do with the returned used kits?!

    Be sure that if buying the Resumed that you are including the humidifier.

    With respect to price differences; the nurse/rep that called to me was driving a high spec BMW, which I found out was a company car. Also, a visit to company website shows a top heavy smiling management team, so someone is paying for that side of it.

    Will post back on how my order goes.

    Btw, you mention a sleep nurse. Who has assigned them?



  • Registered Users, Registered Users 2 Posts: 35,181 ✭✭✭✭NIMAN


    I also think I have undiagnosed OSA.

    My OH has been telling me for years that I stop breathing often in my sleep.

    I am early 50s and a shift worker and used to put this down as the reason why, over the last few years, I am permanently exhausted. When I get up in the mornings after 8 or 9 hours sleep, I feel very fatigued, like I haven't slept at all. Often during the day I would feel the need to go for a nap.

    Also over the last 3 or 4 years I had heart checks done for palpitations. These were quite severe and I was diagnosed with a sinus pause. From reading I know that this condition may be made worse with SA.

    I recently spoke to my gp again about my extreme tiredness. He did a new blood test and its all OK, so I know am going to push him to send me for a sleep test, as a friend suffered similar symptoms as me, and now uses a mask, and he says his life has changed dramatically.

    I do think I really need to get this addressed as I am fed up with the fatigue. Don't think I'd be able to continue with shift work on top of OSA, as it will just grind me down.



  • Registered Users, Registered Users 2 Posts: 19,306 ✭✭✭✭Drumpot



    I was one years ago, asked the public service consultant some questions as I wasn’t sleeping well with the machine and the he took me off the machine.

    Went to a private sleep specialist but they said my apnea is mild and told me to use a Mouthguard. Since my jaw is sore I can’t really use it so was wondering if I could get my hands on a machine would it be worth it.

    So my question would be How exactly can you manage your sleep apnea machine on your own? How do you know what setting or how many apneas your are getting? Do these machines do all the work or do you need to be monitored by a sleep specialist?



  • Registered Users, Registered Users 2 Posts: 1,996 ✭✭✭Andrea B.


    I feel for you. Are you health insured?

    If not, and the cost is difficult on private overnight bed study, ask for a home test (same kit).

    Aside, if you get on wait for a sleep test, be it public or private, advise them that you will take any short notice cancellations. Saved me a 2 month wait on private.

    If you are positive and end up on machine, get back here for support.

    Many drop off due to discomfort, but with support and guidance, I am there after 2 months and now look forward to masking up.

    PS. Rereading. If you stop breathing in your sleep...those occurrences are apnoeas. You must get checked to find out the severity.



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  • Registered Users, Registered Users 2 Posts: 1,996 ✭✭✭Andrea B.


    So, the rep from machine company told me that my consultant would set a pressure after looking a the monthly auto data from machine. She told me that other consultants, by default, leave machine on auto. Mad stuff, which says a lot.

    As you have already been prescribed a machine, you could get an auto machine again.

    There is an interesting forum where users post their machine data and get feedback from experienced individuals.

    Not saying this is correct route, but an option.

    As an aside, it is a very active forum. For example, a very helpful bit of info I got was about loosening off mask (counterintuitive), so the cushion acts like a hovercraft skirt. For me, it was so effective.



  • Registered Users, Registered Users 2 Posts: 35,181 ✭✭✭✭NIMAN


    I am health insured, and hopefully it'll help when the time comes.

    My gp is in NI as I work there and pay my taxes there, so hopefully like my mate I'll get a machine on the NHS, if it comes to that. He swears by it.

    His test was a monitor that he took away for 24hrs from the local hospital, showed him how to hook it up to himself at bedtime I think. He had 90 occasions per night.



  • Registered Users, Registered Users 2 Posts: 1,996 ✭✭✭Andrea B.


    Great. I think they rate them per hour. 90 is extreme high and my friend had sameish.

    I was 33. Above 30 is severe. Below 3 does not warrant treatment. Possibly farts.



  • Registered Users, Registered Users 2 Posts: 4,224 ✭✭✭trashcan


    I was diagnosed a few years ago. Tried the machine on two separate occasions, for about 3 months each time. It was a living hell. I couldn’t sleep at all with the machine, which seemed to me to defeat the purpose. Usually ended up having to take it off at about 4 in the morning. My sleep still isn’t good at all, but I just could not take that machine. Was nearly having panic attacks at times with it on. It got so I absolutely dreaded going to bed. I’ll take a bit of tiredness over that any day.



  • Registered Users, Registered Users 2 Posts: 1,996 ✭✭✭Andrea B.


    Sorry to hear that. I believe that around 40% can not endure.

    My friend had same for 6 months. For him, having a one-skinner before bed resolved it completely.

    Btw, what was your apnoea score?



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  • Registered Users, Registered Users 2 Posts: 35,181 ✭✭✭✭NIMAN


    My mate hasn't got the full mask, just something on his nose AFAIK.

    Says its no bother at all. Has changed his life.

    Has anyone tried the mouth guards at all?



  • Registered Users, Registered Users 2 Posts: 19,306 ✭✭✭✭Drumpot


    I tried mouth guard and my jaw started giving me issues. I’d wake up like I’m gonna snap my teeth. Going to a osteopath to help the jaw (they think I have TMJ) and will retry the Mouthguard if it improves.



  • Registered Users, Registered Users 2 Posts: 4,224 ✭✭✭trashcan


    I think my score was 42, from memory. Thing is I don’t feel too bad generally. As long as I’m doing something I mostly am ok. Sometimes get a slump if I’m doing something a bit tedious at work, like working on a spreadsheet for a while, and my eyes can start to go heavy, but it doesn’t last long. I’ve tried all the different masks, even just the nose plugs referred to by Niman above. They weren’t quite as bad, but I still couldn’t get to sleep. Often felt as if I was suffocating. I also tried getting a custom mouth guard made, but found that pretty uncomfortable too.



  • Registered Users, Registered Users 2 Posts: 1,305 ✭✭✭nibtrix


    I was diagnosed about 3 years ago, with an apnoea score of 53. I did the sleep study through a private consultant and they used the full testing kit with all the sensors stuck all over me... very tricky when you have to get up to go to the bathroom 😆.

    I have the Resmed Airsense 10 which I rent, my monthly spend on the Drug Payment scheme is always over the limit anyway so essentially the cpap doesn't cost me anything. However I have used cpapstore.eu to order masks as Resmed only provide one a year which really isn't enough.

    Like most people it took me weeks/months to get used to the mask, but at this stage I actually can't sleep without it as it has become such a habit. I went away for a night a while ago and decided not to bring it with me as I was sick of packing everything up and lugging it around, but I had the worst night's sleep i've had in years... hard to get to sleep, kept waking up etc.

    After the initial diagnosis and before I received the cpap, the consultant did a second overnight study called a "titration" study, where they basically test out different pressure settings throughout the night while monitoring apnoeas, which was then used to set a fixed pressure (10 in my case). I'm still using the same pressure setting 3 years later as it's comfortable enough to sleep, while keeping apnoeas to a minimum. The auto setting will basically do the same thing, reducing the pressure as low as possible but then increasing it if it detects apnoeas. The only issue is that you have to experience the apnoea to trigger a pressure increase, so some consultants don't like the auto setting.



  • Registered Users, Registered Users 2 Posts: 378 ✭✭Gerard93


    Hi

    If you purchase masks from CPAP store.eu

    Can you claim anything from

    Drug Refund Scheme or will it only cover Purchaes within Ireland?

    Thanks



  • Registered Users, Registered Users 2 Posts: 7 blueoceanfreedom


    The sleep nurse I attend is working with my doctor, and I only get to see her every 2 years. I'm still waiting on my prescription to order, but I think I'll go with cpap store.eu,as most people here seem to have bought there.

    It's really great to have an Irish group set up, and I'm glad I came across this board. Information and help is not very good in Ireland. Will keep in touch.



  • Registered Users, Registered Users 2 Posts: 1,996 ✭✭✭Andrea B.


    You don't need a prescription to order from them.



  • Registered Users, Registered Users 2 Posts: 1,996 ✭✭✭Andrea B.


    No cpap purchases covered by drug refund afik. Only prescription rental.

    Which is a very questionable situation. The renter's keep rolling in the taxpayers money on rental fees. Both for medical card and drug repayment scheme.

    Post edited by Andrea B. on


  • Registered Users, Registered Users 2 Posts: 1,018 ✭✭✭mondeoman72


    I don't mean to preach, but if you need a cpap, then fecking use it. I was in the UK last week and like a dope, brought the machine, but left the power cable at home..... I had forgotton how bad I felt not using it and really do believe the damage untreated OSA causes. I was even ringing sleep clinics in the Uk trying to beg/borrow/buy one while over there.

    I know it takes a lot of getting used to, but you just have to put up with it.



  • Registered Users, Registered Users 2 Posts: 1,996 ✭✭✭Andrea B.


    For anyone willing to gamble on quality, there are masks available on Amazon, below the €60 mark.

    Not saying cheaper is necessarily worse.



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  • Registered Users, Registered Users 2 Posts: 1,996 ✭✭✭Andrea B.


    It does prove very challenging for some.

    There are people with different levels of sensitivity ( and claustrophobia) to the point that a t shirt label freaks them. It really takes time.



  • Registered Users, Registered Users 2 Posts: 1,996 ✭✭✭Andrea B.


    Would anyone care to comment on masks they have settled with?

    Need to dig out my labels and comment later, as I have 3 now, but am finding the Resmed F20 the most favourable so far.

    Only 8 weeks in.



  • Registered Users, Registered Users 2 Posts: 7 blueoceanfreedom


    Curious to know but, when getting your cpap with a European plug, do you get an adaptor or can you specify for a 3pin plug??



  • Registered Users, Registered Users 2 Posts: 7 blueoceanfreedom


    I have the Dreamwear under the nose mask with a pillow, and find it very comfortable. When I first got the mask it was with a full face, that is covering mouth and nose. I found this very claustrophobic and also my face was getting sore with rash like symptoms. I've had the pillow for 4 years and no issues.

    For people finding it hard to get used to having a PAP machine, I found it helped to put it on for a while each day, it seemed to help getting used to breathing with it.



  • Registered Users, Registered Users 2 Posts: 1,996 ✭✭✭Andrea B.


    No option, so if Euro one arrives, I will replace plugtop.



  • Registered Users, Registered Users 2 Posts: 7 blueoceanfreedom


    Well I'm one very happy bunny, ordered my cpap Wednesday night from cpapstore.eu and as it was a fraction of the cost of buying one here, I paid for the fast delivery. Had it up and running Friday night and they also included an adaptive 3pin plug.

    Seriously how can our health service allow this price gouging here, especially when people's lives are affected. All in and including delivery, plus hypoallergenic filters it cost just under 650 euro. For the same machine here they were looking for just over 1700 euro..seriously...

    But for this board, I would have been very slow to purchase abroad, as they say if it sounds too good to be true..

    So I can honestly say purchase without fear and save yourself a packet..



  • Registered Users, Registered Users 2 Posts: 1,996 ✭✭✭Andrea B.


    Well wear. I am due mine tomorrow by slowpost.

    The drugs repayment scheme payed out €3.6M of taxpayer money to reimburse cpap rental in 2020.

    That does not include what they pay out on behalf of medical card holders.



  • Registered Users, Registered Users 2 Posts: 100 ✭✭redsheeps


    Can you claim back tax relief on the device as long as you have prescription for it?



  • Registered Users, Registered Users 2 Posts: 100 ✭✭redsheeps


    Could anyone who has purchased an AirSense 10 AutoSet Auto CPAP (card only) from cpapstore.eu post about where the machine was made? It says where it's made on the back near where the power plug goes in. The ones I've gotten from ResMed in Ireland are made in Singapore.

    I've been renting from ResMed PEI in Ireland for the last few years and want to purchase as I've settled on this machine doing a great job for me. However, I've had some serious noise issues with the AS10 that has led to five AS10's being returned to ResMed in the space of about one year (each of these was made in Singapore and I'm wondering if there is/was a bad batch out there).

    In fairness to ResMed they accepted all five them as all being faulty and gave me new ones each time without hassle. I've stayed renting because of my bad experiences and I didn't want to risk buying from abroad and getting a lemon that I have to send back but the cost of renting is adding up when the AS10 is definitely the machine for me.



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  • Registered Users, Registered Users 2 Posts: 1,996 ✭✭✭Andrea B.


    Are you taking a big risk ordering same from abroad, irrelevant of where manufactured? Likely same component source.

    My BMC G3 A20 just arrived and set up perfect. They also have quite solid reviews. The one I had rented worked a dream. That choice was solely based on what came from the boot of the rep's car and not a prescribed type, as the first type she pulled out wouldn't function.



  • Registered Users, Registered Users 2 Posts: 7 blueoceanfreedom


    Hopefully yes. I will have to wait until the end of the year to see if I can claim tax, as we're self employed.

    Because I didn't have a medical card my only options were to rent or buy. Well when I looked at the rent I would be charged, I had to buy mine.

    Because of the greed of Irish companies, I will now be giving all my business to Bulgaria. Between replacing masks,tubes,nasal pillows etc the money wouldn't be long adding up.



  • Registered Users, Registered Users 2 Posts: 7 blueoceanfreedom


    Hi redsheeps, I've just taken delivery of my airsense 10, card only, and hand on heart can say I don't hear a thing from the machine, only a little hiss from the excess air coming out the front of the pillow. I noticed the pressure was fairly high so today I lowered the max, tonight will tell if I've solved that problem.

    I got my cpap from cpapstore.eu, and it was delivered within 2 days, but I did pay for delivery as it was a fraction of the cost of buying one here, and I had the Phillips dreamwear which has been recalled over a year ago, so didn't want to be taking chances with my health.

    I would definitely not be afraid of buying overseas, especially from cpapstore.eu. All in it cost me less than 650euros, as I also got some hypoallergenic filters. Put that against what rent you pay in a year.

    On YouTube there is a channel called CPAP Reviews and they go into great detail of how to adjust your machine.

    I would look into getting more info for yourself, as your doctor will probably see you every 1-2 years. Best of luck.



  • Registered Users, Registered Users 2 Posts: 100 ✭✭redsheeps


    Cheers for that - super to know the one you got is quiet. I was tormented by noises and blown motors, so I'm really weary of taking the plunge to buy one when the rental one I finally sorted is silent...

    Where does it say it was made on the back of your machine?



  • Registered Users, Registered Users 2 Posts: 3,114 ✭✭✭Field east


    You did not explain why it did not work. Maybe the pressure was too high. Some masks are very uncomfortable. Was your mask leaking while trying to get to sleep. ? Did it have a humidifier ?. It takes a while to get used to the COAP machine . There is a bit of trial and error involved in trying to get used to them



  • Registered Users, Registered Users 2 Posts: 3,114 ✭✭✭Field east


    Is it not the same power cable that’s used to power radios, charge those chargeable flashlights , etc. that happened me once and got such a cable



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  • Registered Users, Registered Users 2 Posts: 3,114 ✭✭✭Field east


    I was on a CPAP machine for circa 11 years - at pressure of 11. I experienced all the items highlighted here - being constantly tired , etc.

    ONE DAY, an expert who had studied the condition said that if I lost some weight then there is a real possibility that I might not need a machine . I went from 95 to 83 Kg and am happy to report that I no longer suffer from SA. It worked for me anyway. Apparently the build up of fat around the respiratory tract but especially around the trough does not help



  • Registered Users, Registered Users 2 Posts: 1 ChristineMackey


    For years, CPAP machines have been used to treat sleep apnea. However, in the past ten years, experts on obesity disease have suggested utilizing CPAP to treat obesity. My sister had a CPAP for about 15 years. One day, a specialist who had examined the illness claimed that there was a chance she might not require a machine if she lost some weight. She dropped from 100 kg to 70. It worked for my sister.



  • Registered Users, Registered Users 2 Posts: 788 ✭✭✭markmoto




  • Registered Users, Registered Users 2 Posts: 29,423 ✭✭✭✭looksee


    Has anyone tried sleeping with head elevated - with a bed not just pillows?

    I was diagnosed about 10 years ago but as a result of lack of feedback and support I stopped using it after a year or so. About 7 years later I had another sleep test and had a reading of 47, in the meantime my arrhythmia and other cardiac problems had got much worse (I am being treated but there isn't much joined up thinking between cardiac and SA)

    I am very compliant with the CPAP machine, wear every night, almost always all night. My readings are still in the 10 to 17 range with the odd one higher or lower. I have tried numerous masks, atm am using a memory foam one that isn't washable and is replaced every month (it starts leaking at pretty much 4 to 5 weeks). This is the best option but even now I am getting a permanent bruise on the bridge of my nose because I have to tighten it - if it is any way loose it just leaks. Talked to Resmed but they just say 'oh we'll send you a video of how to put it on'.

    I am on variable pressure. At one stage I was on pressure of over 20, then on a bipap machine on 24 which I could not deal with at all, though I suspect it was incorrectly set up. Went back on to cpap and got down to pressure 17 but could not keep the mask on my face (my face is a bit asymmetrical). I got a literally overnight huge improvement when I decided to sleep on my side, no-one had suggested this but it was the biggest game change. Put on variable which is better but not dealing with the apnoeas.

    I am permanently tired, not sleepy but weary. I am trying to reduce the events and am trying sleeping sitting up, using a recliner chair at the moment but will invest (2.5k) in an electric bed if it seems successful. My reading was 7.3 last night sitting up, after a week of 14.9; 9; 15.4; 11.4; 3.8 (I have no idea how that happened); 16.0. I will try it for a week and see how it goes.

    At this stage I am pretty much fed up with the whole business, I get the impression that there are no consultants out there with any real interest in sleep issues, beside the fact that they are pretty lucrative, and not a lot of knowledge either.



  • Registered Users, Registered Users 2 Posts: 585 ✭✭✭R11


    Went to see Prof Lane in Hermitage. Booked a home sleep study with Beechfield Healthcare…….results showed high levels of hypoxia. Have to see him again next Wednesday,secretary said he will be recommending a CPAP machine…..any advice from anyone out there using a CPAP for sleep apnea??



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  • Registered Users, Registered Users 2 Posts: 29,423 ✭✭✭✭looksee


    Don't expect instant results. You might possibly get lucky but mostly it can take a good while to get used to the machine, find a mask that suits, etc etc.



  • Registered Users, Registered Users 2 Posts: 105 ✭✭Baasterd


    Research the machine they give you (or suggest you get), watch some youtube videos there is an aussie guy thats great can't recall the channel, will dig it out, the thing is a few tweaks can make all difference to how you tolerate it, ideally you want a humidifier and a heated air tube.

    Try a nasal pillow (or similar) mask first, yes you will have to stop breathing through your mouth but that's a bad habit anyway. Keep in mind the machine is for life so it's worth taking the time to find out how to co exist with it, as looksee say's find a mask that works for you.

    I guess I was one of the lucky ones I took to it immediately but I was completely fcked beforehand, my apnoea was so bad I would fall asleep standing up 😂 Like seriously once I drifted off chopping onions…how fcked up is that ha, funny but not funny!

    So for me the difference was almost overnight, after a few solid nights on the machine I could stay awake reading a book or watching a movie, or just sitting in the one place for more than 10m 😀

    I wouldn't go as far to say it changed my life but I can now see I was operating at maybe 30-60% of my potential in previous jobs because of sleep deprivation basically, I don't drive but for the last few years before the machine I would have been unfit to be behind the wheel.

    I bit the bullet and just bought my own machine off the internet because I realised I just couldn't wait 6 mths to get one on the NHS, I watched a few YouTube video's to get it setup etc and that was that, I did go through the NHS route and got a spare for my troubles 😀 but wow it took so long and I was down as an urgent case.

    I also bought a O2 monitor that recorded my levels which kinda confirmed what I knew.

    Like when you wake up choking in the middle of the night at first maybe you can blame the wife/gf but once your on the 2nd or 10th one of those its probably you not them 🤣

    Anyway best of luck, I wish I found this thread earlier ha.



  • Registered Users, Registered Users 2 Posts: 105 ✭✭Baasterd


    https://home.sleephq.com/ Thats' the site for the guy I followed to work out how to best setup the machine.



  • Registered Users, Registered Users 2 Posts: 585 ✭✭✭R11


    Thanks for that. My wife already hits the €80 limit on the Drugs Payment Scheme so I'll just rent the machine as it will effectively cost me nothing. From reading online,it does appear that everyone has to tweak their set up to get it right. I'll see what the consultant says on Wednesday and take it from there. Hopefully I'll see an improvement in the daytime tiredness,fogginess,lethargy,poor motivation,grumpiness etc…..or maybe I'm expecting too much!!



  • Registered Users, Registered Users 2 Posts: 29,423 ✭✭✭✭looksee


    I just recently had an appointment with the nurse/technician of the agency that supplies my equipment. I had 40 minutes of clear explanations, practical help and adjustments to the machine which cost me nothing and was in stark contrast to the woolly, generally unhelpful 20 minutes that is usually the input by the consultant - and I have had numerous consultants - having travelled half way across the country to get to them and been charged around €200 for the privilege.



  • Registered Users, Registered Users 2 Posts: 585 ✭✭✭R11


    Who is supplying your equipment? My consultant is recommending Beechfield



  • Registered Users, Registered Users 2 Posts: 15,526 ✭✭✭✭Vicxas


    Hi folks, was diagnosed with mild OSA in the Mater Private yesterday after an awful night of sleep study with all the wires and hoses.

    What can i expect from the CPAP machine? I've been advised to rent it and see how i feel considering the cost of buying one. I have the option of the machine or a dental gumshield. Which machine is provided by the Mater does anyone know? Will i be better off buying my own if i find it working.

    Did the CPAP help you feel more rested in the mornings? I have so many questions.



  • Registered Users, Registered Users 2 Posts: 29,423 ✭✭✭✭looksee


    Look I am not dismissing you, but really if you read this thread you will gather a good few ideas about your questions.

    If a dental gumshield will work would you not try that first? Setting into CPAP is a big undertaking.



  • Registered Users, Registered Users 2 Posts: 4,408 ✭✭✭whomitconcerns




  • Registered Users, Registered Users 2 Posts: 15,526 ✭✭✭✭Vicxas




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