Lyme Disease

moremedia

Hello Board people:D
I was wondering does anyone have any information on Why people have to leave the country to receive treatment for chronic Lyme Disease?
Studies have show that anti-bodies for Lyme disease has been found in 15% of blood samples tested, surely with such a high figure we should have the facilities here in this country to deal with it and it is said to be the fastest growing vector-borne infection in the world at the moment,
I hope this reads well and thank you in advance for any response.

Tick Talk

Hi there, sadly it's all down to controversy. A very long story & so hard to know where to start. If it's any help I started a blog topic called 'Myths about Lyme'. It tackles some of the contentious issues. Part of it has to do with the rules set by IDSA & CDC in America where they insist that restrictive testing & restrictive guidelines be used, some docs who have stepped outside of those lines have found themselves being investigated, fined & in some cases losing their licenses. This has spread fear amongst the doctor population & so to find anyone willing to treat chronic cases is very difficult indeed. Tick Talk have been trying hard to resolve the issue but as with other countries we haven't been able to change the status quo but we're still trying very hard. I'll attach some useful links as follows:

Myths about Lyme: http://ticktalkireland.wordpress.com/2012/08/24/mythbusting/
Letter of Concern (sent to Minister Health, head of HPSC, British PM, Dir of European CDC) https://ticktalkireland.files.wordpress.com/2012/03/letter-concern-web.pdf

We're currenty in the throes of publishing a children's book as we want to try & encourage prevention of lyme as much as possible but it's depdendent on funding - more details & a video link to the project can be found at: http://www.fundit.ie/project/the-adventures-of-luna--dips We also have some colouring sheets available for the kids including the main characters Luna, Fantaz & Dips! http://ticktalkireland.wordpress.com/2012/11/21/luna-colouring-sheets/ If anyone is in the Galway are there's going to be a Christmas Craft Fair at Oranmore Community Centre 8/9 Dec. Tick Talk will be there with information leaflets & tick prevention tools. Galway is a hotspot for Lyme Disease sadly!

I hope you receive treatment for your symptoms, Lyme is truly a horrible experience if it's left to reach chronic stage & requires a skilled physician to work through it!

roundy1

Tick Talk is so right when they say its a long story...they provide very good info at their links. I investigated this myself when I was diagnosed with aggressive rheumatoid arthritis. Basically, for a number of reasons it is effectively not recognised in this country. This is caused either by ignorance and therefore mis-diagnosis or professional denial of the disease.

Lyme affects 15% of the population in most countries with an agricultural bias...medically known as borreliosis. In ireland according to official stats its 0%!!!
Lyme disease is caused by the bite of tick which can be got from animals such as cows, horses, dogs, deer etc. It can also be got from stray and hay providing bedding and food for those animals. Borreliosis can also delivered to the body by mosquito bites.
It is being misdignosed, for whatever reason, by conventional medicine and treated as arthritis, ME, Fibromyalgia, Crohns, MS etc. I tried all sorts of conventional and alternative routes to cure what I thought was bad arthritis...none worked.

My life one of awful pain, bed-ridden, unable to work, depressed with further distress caused by painkillers and their side effects and aged on 45.

In 2007 somebody told me about Sabine Linek, a German natural healer, who provides a treatment called Sanazon. I travelled to see her and she read my blood by magnifying x 1750 times a drop of blood from my finger. This is called Dark Field Live Blood Analysis. She can read your state of health from head to toe, literally. She will diagnose each part of the body from this drop of blood. She identified immediately from the condition of the blood that I had Lyme Disease, not arthritis. She presribed 15 doses of Sanazon in her clinic over 10 days. Basically, this is a treatemnt that adds ozone (O3) to the blood along with vitamin injections and herbal extracts.

To cut a long story short, I was transformed. Almost immediately, the pain reduced and within three months I was totally pain free. The joints had restored themselves to normal shape. It took about three months for the accumulated toxins to leave my body (sweats and tiredness) but after that a huge improvement in energy. I was able to resume golf after 6 year absence.

Today, I feel a much younger, fitter and well person than I ever believed possible. It is 5 years since Sanazon was given to me and my life has been given back to me. In the interim, I have referred many patients to Sabine for all sorts of treatment including cancer, heart, bowel adn other issues. Many people are suffering from Lyme and don't know it. In my circle of referrals to Sanazon, 37 patients had Lyme disease and were being treated for various other conditions in Ireland.....without exception all are completely well with their health restored.

I cannot speak highly enough of this treatment.

Sanazon is not a quack treatment...it is based on science and the discoveries of two eminent German medical scientists...Prof Gunther Enderlein and Prof Otto Warburg.
Thers ia a Sanazon patient support group in Ireland which has a website giving info about the treatment and science behind it.
www.sanazonireland.com
http://www.sanazonireland.com
also Sanazon clinic has website partly in English. http://www.sanazon.de
also search for Sabine Linek for other info.

Hope this helps...feel free to respond to me for any further info.

Tick Talk

That sounds great, I do know of people seeking various means of treatment - there is no quick fix for lyme & no miracle cures for long term sufferers but management & relief can be granted with the right know how & knowledgable practioner. One thing I have to mention, I have never heard of Lyme being contracted via hay, straw or animal feeds! I can imagine diseases such as weil's disease & q-fever being transmitted this way (ie from rat's urine for example) but Lyme disease is carried in the mid gut of a tick so unless the ticks happens to be in the bedding the risk would be very small. Also ticks can dry out (dessicate) very easily, they can go for months without food but cannot survive without damp conditions, this means the hay may be too dry for them to hang out. I'd be very wary of promising curative treatments for anyone, I support both antibiotics & herbal routes but know from speaking to hundreds of patients that there is no one cure & no quick fix to be had UNLESS lyme is treated early. This is why we desperately need more doctors to be familiar with the disease & learn how to diagnose it at the onset to prevent further complications for the patient...this is a hard slog but news is spreading amongst the doctors now & hopefully testing can be improved to help make diagnosis more clear cut than it presently is.

With all the best, Tick Talk

Bruce7

roundy1 wrote: »

In 2007 somebody told me about Sabine Linek, a German natural healer, who provides a treatment called Sanazon. I travelled to see her and she read my blood by magnifying x 1750 times a drop of blood from my finger. This is called Dark Field Live Blood Analysis. She can read your state of health from head to toe, literally. She will diagnose each part of the body from this drop of blood.

She identified immediately from the condition of the blood that I had Lyme Disease, not arthritis. She presribed 15 doses of Sanazon in her clinic over 10 days. Basically, this is a treatemnt that adds ozone (O3) to the blood along with vitamin injections and herbal extracts.

I'm not a doctor or a scientist, and I don't know anything about Lyme disease, but I know a load of old bollocks when I see it.

geggles1

Hey everyone,

Looking for a bit of advice really. I have been ill since the week of 22nd of July and I am wondering if I could have contracted Lyme disease. For the past 6 months I have had the following symptoms;-

Fatigue
Changes to bowels
Pelvic pain
Floaters in my eyes

All of the above were then followed by:-
Joint pain - everywhere
Severe pressure in my head
Neck stiffness which was particularly sever
Back pain
Abdominal pain - lower and upper
Chills - which were constant
Skin rash on my face - this was quite mild
Facial flushes
Increased pulse rate
Ear pain and pressure
Confusion
Tingling in my face - especially in my cheeks and around my lips

I have been sent for MRI / CT / Colonoscopy / Endometreosis (which I was told I had two very tiny pieces of tissue which have been lasered away and I was told that there would be no further problems). I am now being told that I have suspected Fibromyalgia. I discussed Lyme's with my GP as the week before I got all these symptoms I had been in France on holiday and both myself and my son were bitten one night - but by what I don't know. Our bites lasted about 6 weeks and were very red, swollen and had some puss. I don't recall any bullseye type rash, but I do remember saying that I must keep a picture of the bite as it was like nothing that I had seen before - but I forgot to take the picture. My son has also been to the GP like a yoyo over the last 6 months but I kept getting told it was viral.

Anyway, due to tonsilitis my son was put on a antiobiotic - klacid for 12 days just before Christmas and he seems to have responded somewhat to the antibiotic. So my last visit to the GP I brought this up, she agreed to test me for Lyme - it was negative and agreed to put me on Klacid for 20 days to see if it would help. The antibiotic has relieved the symptoms a great deal (Skin rash and chills were gone within 24 hours, joint pain has almost completely subsided) and I almost feel normal again at the moment however I can still feel the symptoms still there in the background (my head and eyes still feel some pressure). I am going back to my GP again in a week and see if she will further test for me (using the UK testing centre).

Just wondering if anyone had any thoughts or guidance for me? I am so disappointed that they are now saying Fibromyalgia as I am certain this is not what I have - the fact that I am responding to an antibiotic (even if it is not the right one) would suggest that it is not that, right??

Also, I have family in the UK, so if anyone can recommend someone over there would be interested to hear about them...

Thanks again,
Gayle