Asperger's Syndrome news.

RobbingBandit

I went to Aspire in May and they told me to go back to Prof Fitzgerald, strange coincidence in that I sent an email to Dr Honan at 7am this morning to which I have already received a reply and will be arranging an appointment with one of her team in the coming weeks thanks for the reply.

treecreeper

Hi, this is a comfort to know. remember when one door closes another opens./
have you dont the written questionaire for asperger cos its useful to have that done so that dr. honan can see this and also get someone you know who knows you very well to fill out a similar one and to give his/her opinion, its actually a fair testing method. i got my twin to do it and i didnt interfer. it needs to be very objective. but remember, at the end of the day, all traits even if asperger is just another way of viewing the world, acceptance of that and who you are is the order of the day.
but one thing i implore stay away from cutting into yourself. there are far less invasive methods to deal with inner turmoil, try writing or speaking intoa camera/'computer etc. but not the blade.
people who see self injury on an arm believe one thing 'oh a nutter!\

fergal.b

Hi guy's/girls just want to ask a quick question,my brother who has Aspergers got a letter today saying that his disability allowance will be taken away next week after 12 years of him getting it. This has really upset and worried him, has anyone else got such a letter and if so is there anything that can be done about it or what steps should we take next.
Any advice would be great thanks.

RobbingBandit

Asperger's Syndrome is no more... At least according to the Irish Independent newspaper.

http://www.independent.ie/health/asperger-syndrome-is-no-more-3320150.html

What they don't say here is Asperger's Syndrome may now fall under or should I say may be misdiagnosed as social communication disorder.

Janneke

Two of my nearest and dearest have Asperger's and my family were never aware of it being classed as a disability for which you could get disability allowance in the first place. One was never diagnosed (despite the best efforts of his family) and never received proper support.

So what happens now? Will people with Asperger's be lumped in with autism?! From my experience, Asperger's isn't a black and white thing at all. I've known some people who go undiagnosed but manage to "blend in" with some degree of success and others who don't. Lack of diagnosis was a HUGE problem for our family, and it seems insane they're just "removing" it.

RobbingBandit

Janneke wrote: »

Two of my nearest and dearest have Asperger's and my family were never aware of it being classed as a disability for which you could get disability allowance in the first place. One was never diagnosed (despite the best efforts of his family) and never received proper support.

So what happens now? Will people with Asperger's be lumped in with autism?! From my experience, Asperger's isn't a black and white thing at all. I've known some people who go undiagnosed but manage to "blend in" with some degree of success and others who don't. Lack of diagnosis was a HUGE problem for our family, and it seems insane they're just "removing" it.

It will be classed as Autistic Spectrum Disorder, think of it as a line 1 meter long, Autism is at the beginning and Asperger's would be anywhere from near the start of the line to the end depending on the individual, their needs and the support structure in place and when they are diagnosed.

I was diagnosed when I was 25, I am 30 now and have received very little support, I am now getting a small amount of support. Also to answer your question it's not being removed so to speak it is rather being revised which is in it's self insane as many people will be lumped in now in areas that do not concern them. Speak with your GP on the concern for your family members may be they may know of local services available to help.

EventHorizon

treecreeper wrote: »

so called 'normality' of ordinary day to day stuff can be.
try telling someone for instance, who is picking out all the onions in a dish cos the texture is strange and its a food that 'feels funny' thats another aspie i know.
so stay away from being so judgmental, its important to the person/s who say what they say here on this forum.

Wow! my partner does exactly that with onions and tomato its exactly what he says it feels funny. Interesting!

Occono

RobbingBandit wrote: »

Asperger's Syndrome is no more... At least according to the Irish Independent newspaper.

http://www.independent.ie/health/asperger-syndrome-is-no-more-3320150.html

What they don't say here is Asperger's Syndrome may now fall under or should I say may be misdiagnosed as social communication disorder.

That article is a mess.

SerialComplaint

Some good news on the employment front;

http://www.reuters.com/article/2013/05/22/us-sap-autism-idUSBRE94L0ZN20130522

aare

I feel under obligation to point out that the originator of this thread "tony.aspergers" has just received a 4.5 year sentence in Trim for serious sexual offences:
http://www.irishexaminer.com/ireland/sex-offender-assaulted-teenager-at-audition-233449.html

As someone with AS myself I do not believe that was a factor (whether causal or mitigating) in his offending.

Naked In Public

FUKKEN HELL :eek:

Scruffles

aare wrote: »

I feel under obligation to point out that the originator of this thread "tony.aspergers" has just received a 4.5 year sentence in Trim for serious sexual offences:
http://www.irishexaminer.com/ireland/sex-offender-assaulted-teenager-at-audition-233449.html

As someone with AS myself I do not believe that was a factor (whether causal or mitigating) in his offending.

am in agreement and do hope they dont use ASD as an excuse.

some people with aspergers do have issues in that area; am severely autistic and live in a specialist autism residential centre which also has a independant living service and one of the lads in that has aspergers; his biggest issue from it is social rules as he doesnt understand how to handle women and he has been in the police station many a time for his behavior towards women, however he has the capacity to learn not to do it and he has got to the point where he doesnt have any staff at all at night anymore and he has independant time during the day with no staff.

the person involved in this article has lied and manipulated to abuse a boy- lying and complex manipulation are difficulties found in people all over the spectrum,is he actualy a diagnosed aspie?

So what happens now? Will people with Asperger's be lumped in with autism?! From my experience, Asperger's isn't a black and white thing at all.

aspergers is autism,there is no label called autism and never has been.
why make it sound as if aspergers is the only label affected in this-it affected every other label on the spectrum! why the worry about aspies being 'lumped in' with us,perhaps those of us with classic autism didnt want to be 'lumped in' with anyone either as aspies arent the only people on the spectrum who can make opinions, it isnt nice to automaticaly make judgements about a group not being good/worthy enough to associate with.

there are a number of famous classic autistics who are/were under the label of high functioning and as adults are on a level with aspies; temple grandin, stephen wiltshire, einstein to name a few.

aare

Scruffles wrote: »

am in agreement and do hope they dont use ASD as an excuse.

some people with aspergers do have issues in that area; am severely autistic and live in a specialist autism residential centre which also has a independant living service and one of the lads in that has aspergers; his biggest issue from it is social rules as he doesnt understand how to handle women and he has been in the police station many a time for his behavior towards women, however he has the capacity to learn not to do it and he has got to the point where he doesnt have any staff at all at night anymore and he has independant time during the day with no staff.

That was, in essence, always Luckwill's excuse...but I am not buying it. You may not know how to handle social situations, but after the third conviction you have to figure out a behaviour is unacceptable.

Same applies to the lad where you live...

As you know, we are autistic, but we are certainly not morally bankrupt morons...we can't read the social signs, but we can understand what we must and must not do as soon as someone tells us.

Scruffles wrote: »

the person involved in this article has lied and manipulated to abuse a boy- lying and complex manipulation are difficulties found in people all over the spectrum,is he actualy a diagnosed aspie?

Apparently his solicitor said in court that he had "some of the traits of Aspergers" if memory serves me his family got him diagnosed years ago...but diagnoses can be wrong. Having spoken to him I am convinced he is actually psychopathic.

Scruffles wrote: »

aspergers is autism,there is no label called autism and never has been.
why make it sound as if aspergers is the only label affected in this-it affected every other label on the spectrum! why the worry about aspies being 'lumped in' with us,perhaps those of us with classic autism didnt want to be 'lumped in' with anyone either as aspies arent the only people on the spectrum who can make opinions, it isnt nice to automaticaly make judgements about a group not being good/worthy enough to associate with.

there are a number of famous classic autistics who are/were under the label of high functioning and as adults are on a level with aspies; temple grandin, stephen wiltshire, einstein to name a few.

NB above...*we* are Autistic...I have no problem telling people I am autistic, or accepting that about myself.

SerialComplaint

SerialComplaint wrote: »

Some good news on the employment front;

http://www.reuters.com/article/2013/05/22/us-sap-autism-idUSBRE94L0ZN20130522

Here's the Irish angle on the recruitment story;

http://www.irishtimes.com/sponsored/skills-matched-up-with-technology-needs-in-specialist-link-up-1.1424670