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Fibromyalgia
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I have not had much success with physios for fibromyialga. I find pilates good and the heat and moving in the water. Have chronic pain from spinal disk disease lower and upper and referred pain from c5/6 . What therapies help or stauff that does not cost much money?
Water therapy is very good for us who have fibro
Certain pools around Dublin offer it, not sure where you are, but you could google it.
The warm water really helps the muscles.
I did it last year at the Hospice in Harolds Cross as part of the pain management program. found it be to very helpful.0 -
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Thanks for that info Jake. I have noticed am good in warm water and when pools are lowering their temp a bit it makes a negative difference. whose Pain management programme are you on and how do you get on it if you don't mind me asking? 0
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Thanks for that info Jake. I have noticed am good in warm water and when pools are lowering their temp a bit it makes a negative difference. whose Pain management programme are you on and how do you get on it if you don't mind me asking?
No problem :0
I was refered to the 'Program' , not exactly sure what its called, but its along those lines
I was refererred by Consultant, Prof Cunnane in St James Hospital, Dublin.
I was a day patient, 4 times a week at first, you basically attend every morning, get in pool, do a circuit of exercises. At first you are really exhausted and dehyrated, by you get used to it. The heat is brilliant, after the first week, I was already starting to feel the benefits. After the pool therapy, you might do occupational therapy, they go through things that just make day to day life a little bit easier.
Then , you do meditation for about half an hour. This too is very useful, for me it was anyway.
Then it would be lunch time, so its off to canteen.
After noon it would be exercise and heat massage.
It was one of the best things I ever did since I was diagnosed with Fibro. The staff are wonderful, I really mean it, couldnt say enough good things about the place.
I used to think of the Hospice, as a place of end of life treatment. They have helped me get some quality of life back.
Very grateful to them all.
So I would highly recommend asking your Consultant about it.
Best of Luck 0 -
I know it's an old topic, but I have to try. How are you? Have you found treatment that is actually working?
I'm working part time, but feeling worse and/or (even) worse, my GP suggested to go on Illness Benefit, but when I checked info... I'm still shocked :[ 120e per week? whaaa? How do you manage to live for 120euro per week? jesus, maybe I should start to dig my own grave instead
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I'm going through an awful bad patch this week. ;(:( It has never been this bad. Am absolutely flummoxed with fatigue for the last few days. I'm really getting scared now, I've slept for the last 4/5 days pretty-much solid, have managed to get up a couple of hours in the middle of the day to do a couple of things around the house but it's horrendous. I really havn't eaten in the last few days or nothing. I'm far too tired to function or do anything at all at the minute, cooking, putting down a fire. It's just too risky. I don't know if this is just a really bad flare-up this week, or if it's a sign of things to come. But I'm getting worried now, if this is what it's gonna be like, I won't be able to live independently, I'm gonna have to move back home. ;( It's awful.
My skin is a mix of purple and green and ashen-colour all day lol but I think it's back to itself now. My glands are sore. I'm starting to get headachey now and have pain in my nose like I've been eating ice-cream lol. I've un-luckily somehow managed to get my period even though it's not due for another while yet and that's a killer coz it's doubling the fatigue on me at the mo. I've some sort of a chest-infection too at the moment and I'm wrecked and exhausted from all the coughing. Every last muscle in my body is starting to get sore. I went to the shops and Chemist today to stock up on supplies so hopefully all that stuff will knock me out now soon! It's really hard isn't it!0 -
I know it's an old topic, but I have to try. How are you? Have you found treatment that is actually working?
I'm working part time, but feeling worse and/or (even) worse, my GP suggested to go on Illness Benefit, but when I checked info... I'm still shocked :[ 120e per week? whaaa? How do you manage to live for 120euro per week? jesus, maybe I should start to dig my own grave instead
Well, we manage.. There are some additional benefits also. look at the excellent Citizens information web site. eg Household Benefit package, rent allowance, solid fuel allowance. Do check before you pick up a spade! Citizens info are excellent.0 -
No problem :0
I was refered to the 'Program' , not exactly sure what its called, but its along those lines
I was refererred by Consultant, Prof Cunnane in St James Hospital, Dublin.
I was a day patient, 4 times a week at first, you basically attend every morning, get in pool, do a circuit of exercises. At first you are really exhausted and dehyrated, by you get used to it. The heat is brilliant, after the first week, I was already starting to feel the benefits. After the pool therapy, you might do occupational therapy, they go through things that just make day to day life a little bit easier.
Then , you do meditation for about half an hour. This too is very useful, for me it was anyway.
Then it would be lunch time, so its off to canteen.
After noon it would be exercise and heat massage.
It was one of the best things I ever did since I was diagnosed with Fibro. The staff are wonderful, I really mean it, couldnt say enough good things about the place.
I used to think of the Hospice, as a place of end of life treatment. They have helped me get some quality of life back.
Very grateful to them all.
So I would highly recommend asking your Consultant about it.
Best of Luck
This highlights the difference between fibro and M.E. No way could that be done with M.E.. glad you are benefitting!0 -
misstearheus wrote: »I'm going through an awful bad patch this week. ;(:( It has never been this bad. Am absolutely flummoxed with fatigue for the last few days. I'm really getting scared now, I've slept for the last 4/5 days pretty-much solid, have managed to get up a couple of hours in the middle of the day to do a couple of things around the house but it's horrendous. I really havn't eaten in the last few days or nothing. I'm far too tired to function or do anything at all at the minute, cooking, putting down a fire. It's just too risky. I don't know if this is just a really bad flare-up this week, or if it's a sign of things to come. But I'm getting worried now, if this is what it's gonna be like, I won't be able to live independently, I'm gonna have to move back home. ;( It's awful.
My skin is a mix of purple and green and ashen-colour all day lol but I think it's back to itself now. My glands are sore. I'm starting to get headachey now and have pain in my nose like I've been eating ice-cream lol. I've un-luckily somehow managed to get my period even though it's not due for another while yet and that's a killer coz it's doubling the fatigue on me at the mo. I've some sort of a chest-infection too at the moment and I'm wrecked and exhausted from all the coughing. Every last muscle in my body is starting to get sore. I went to the shops and Chemist today to stock up on supplies so hopefully all that stuff will knock me out now soon! It's really hard isn't it!
You MUST eat even if Complan or similar. You really must fuel your body. We have all been through the not eating thing and learned the hard way that this makes it worse. While you are out, stock up on easy foods. You will just get weaker and worse if you give your body nothing t work with especially if you are in bed most of the day. Need to get up and walk round every hour and get water , or milk or bread and jam even!! It is very hard but you can do it. When I was at my worst I used to get out if bed every hour, bathroom, flll my water jug, check on the critters I had then, eat something however small, then back to bed. I still get days like that ; grit your teeth time! Food matters and your mood will go down and down if you fail to eat. Up to you! Blessings and peace and I am offline soon for the day...0 -
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Gehad_JoyRider wrote: »CBD oil helps coupled with some of my pain meds and a hot water bottle it really depends on the level of pain, Im experiencing.
If I was to put on a sacale of how rough I'm feeling today, I'd say a safe 8.
Think you need to get your pain meds reviewed?0
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