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Recommend a good Thyroid/Adrenal Doctor

  • 09-03-2009 2:23pm
    #1
    Registered Users, Registered Users 2 Posts: 194 ✭✭


    Without going into the fine details, could somebody please advise on a Doctor who maybe specialises in this area. Preferably based in Dublin


«1

Comments

  • Registered Users, Registered Users 2 Posts: 2,684 ✭✭✭macadam


    Dr Sulliman , lourdes hosp Drogheda.


  • Registered Users, Registered Users 2 Posts: 14,062 ✭✭✭✭tk123


    I have a new specialist (my current one is retiring) but havent seen her yet so no review just yet. What I will say thou is that this thyroid business can cost you a bit with ultrasounds, isotope scans, biospies etc so make sure you have your health insurance sorted if you're planning on going private. Also if you can get bloods done at your GP it can save a lot of time both with going to hospital to get them done and with the GP getting the results and reviewing. My current GP is brilliant - my old one was crap - didnt make me get bloods and just repeated the perscription evey 3 months and never mentioned scans or antibodies or anything like that. With the right support from the GP its a lot easier to manage.


  • Closed Accounts Posts: 256 ✭✭$lash


    tk123 wrote: »
    I have a new specialist (my current one is retiring) but havent seen her yet so no review just yet. What I will say thou is that this thyroid business can cost you a bit with ultrasounds, isotope scans, biospies etc so make sure you have your health insurance sorted if you're planning on going private. Also if you can get bloods done at your GP it can save a lot of time both with going to hospital to get them done and with the GP getting the results and reviewing. My current GP is brilliant - my old one was crap - didnt make me get bloods and just repeated the perscription evey 3 months and never mentioned scans or antibodies or anything like that. With the right support from the GP its a lot easier to manage.

    I had professor Timons in the eye and ear, he was Very good!!!


  • Closed Accounts Posts: 734 ✭✭✭Bitsie


    Prof. Chris Thompson in Beaumont Hospital. Have been dealing with him for nearly a year now for my thyroid.


  • Registered Users, Registered Users 2 Posts: 2,024 ✭✭✭Redpunto


    Richard Firth - Mater


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  • Registered Users, Registered Users 2 Posts: 2,236 ✭✭✭lau1247


    Prof TJ McKenna dun laoghaire..

    Be prepare though.. private cos a bit

    West Dublin, ☀️ 7.83kWp ⚡5.66 kWp South West, ⚡2.18 kWp North East



  • Registered Users, Registered Users 2 Posts: 1,580 ✭✭✭Splendour


    lau1247 wrote: »
    Prof TJ McKenna dun laoghaire..

    Be prepare though.. private cos a bit


    Was referred to Prof. Mc Kenna and found him absolutely useless. My bloods came back all clear so he told me there was nothing wrong with me despite the fact that I'd put on a load of weight around the middle in a matter of just two months, was completely exhausted and suffering from severe brain fog.

    I think most Docs/Endos are ok if you are a text book patient but other than that I think they get totally stumped.


  • Registered Users, Registered Users 2 Posts: 1,580 ✭✭✭Splendour


    C Eng wrote: »
    Without going into the fine details, could somebody please advise on a Doctor who maybe specialises in this area. Preferably based in Dublin


    Patrick Mc Govern in Stillorgan. He's expensive though...


  • Registered Users, Registered Users 2 Posts: 14,062 ✭✭✭✭tk123


    Dr Maria Byrne in Berkley Road/Mater Private. The difference between her and the last doc is unbelievable!


  • Registered Users, Registered Users 2 Posts: 2,236 ✭✭✭lau1247


    Splendour wrote: »
    Was referred to Prof. Mc Kenna and found him absolutely useless. My bloods came back all clear so he told me there was nothing wrong with me despite the fact that I'd put on a load of weight around the middle in a matter of just two months, was completely exhausted and suffering from severe brain fog.

    I think most Docs/Endos are ok if you are a text book patient but other than that I think they get totally stumped.


    To me it's grand.. He did recommend getting sugery to remove part of the thyroid gland.. I've been putting it off.. Cos I don't think I'm ready..

    It's expensive indeed..


    I wonder how much the other docs are charging??
    Anyone care to give a price quote..

    West Dublin, ☀️ 7.83kWp ⚡5.66 kWp South West, ⚡2.18 kWp North East



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  • Registered Users, Registered Users 2 Posts: 14,062 ✭✭✭✭tk123


    I was charged €200 for the initial visit with the new doc last week and have been referred to a surgeon so i'll report back with the quote. Hopefully it wont be too high because my vhi only covers 50%!


  • Registered Users, Registered Users 2 Posts: 561 ✭✭✭dollydishmop


    tk123 wrote: »
    Also if you can get bloods done at your GP it can save a lot of time both with going to hospital to get them done and with the GP getting the results and reviewing.

    Can I just add, and hopefuly I'm not breaking any forum rules here, feel free to edit if I am....I hope all you thyroid folks are getting copies of your blood results to keep for yourself, and learning how to read and review them for yourselves!

    I've done this from the beginning (I'm technically hypER, although currently severely hypO, with a very unstable thyroid, and a huge goitre on both sides)
    I also keep a kind of thyroid diary, whereby I note down any increase/decrease in my symptoms, changes in medication, mood etc and anything odd which may on the outside look totally unrelated, but 99% of the time, with hindsight, can be totally attributed to what my thyroid was doing at that time..
    I get and review myself copies of all my bloods**, and often initiate interim, out-of-schedule blood tests myself if I'm just not feeling *right*...and research, research, research.
    (**In the past I have indeed reviewed an interim blood test, and on more than one occasion, phoned my Endo and asked for a drug increase/reduction/change, and when I've then faxed a copy of my bloods to him he's been in full agreement of my request/decision)
    That way, when I see my GP and my Endo, I can discuss it with them in full, with a much more complete understanding of what is actually happening to me and how to proceed and I can add my own thoughts, ideas, and recommendations into the mix when it comes to discussing and deciding what we're all going to do next.

    It helps me feel a lot more in control of this condition...and looking back I'm horrified at the sheep-like way I just did as I was told for years by my previous (and IMHO poor) GP, who just lectured me on diet and told me to stop making a fuss...and also told me that my bloods were out of range because they were normal....how stupid was I to just take her and her advice at face value at the time!


  • Registered Users, Registered Users 2 Posts: 7,971 ✭✭✭_Whimsical_


    Splendour wrote: »
    Was referred to Prof. Mc Kenna and found him absolutely useless. My bloods came back all clear so he told me there was nothing wrong with me despite the fact that I'd put on a load of weight around the middle in a matter of just two months, was completely exhausted and suffering from severe brain fog.

    I think most Docs/Endos are ok if you are a text book patient but other than that I think they get totally stumped.


    Did you find that you lost the weight after you were treated by the doctor you are now going to?I think you mentioned you were on Armour in another thread.I apologise if that is not right.


  • Registered Users, Registered Users 2 Posts: 1,580 ✭✭✭Splendour


    Pernickity wrote: »
    Did you find that you lost the weight after you were treated by the doctor you are now going to?I think you mentioned you were on Armour in another thread.I apologise if that is not right.

    Am not under the care of any Doctor at the moment because although the Doctor I mentioned is good, I can't afford to attend him!

    I haven't lost any weight as yet but nor have I gained anymore which is good.
    I am indeed on Armour but not yet at my optimal dose (Armour has to be upped slowly). I am hoping that when I reach my optimal dose that I will lose the weight I've gained. Thing is, because I've been sick and untreated for so long, I imagine it will take a long long time before I regain my former health.
    Before I got really sick I went jogging at least three days a week, now I'm lucky if I manage a walk!


  • Registered Users, Registered Users 2 Posts: 1,580 ✭✭✭Splendour


    dollydishmop,

    I've a library of notebooks with my symtoms/temps/reactions to various foods/meds etc! It is something I would recommend to anyone with any 'unexlained' illness to do...
    You are obviously blest with an understanding Endo if they are willing to listen to how you feel-this is fantastic!
    I wouldn't dismiss the diet thing though; alot of hypothyroid patients are also gluten intolerant so this is something to think about too-more to add to the list:rolleyes:


  • Closed Accounts Posts: 1,398 ✭✭✭Phototoxin


    Dr Sulliman , lourdes hosp Drogheda.

    +1 for Dr Abdul Sulliman, he's good.


  • Closed Accounts Posts: 192 ✭✭elli21


    Dr Griffin ,Clane hospital she treats patients and symptoms ,not just lab numbers.
    She switched me from Eltroxin(I might as well have been taking smarties,it wasn't for me) to Armour and I am doing great.
    It is private though 120 euro for each visit and I think 150 for initial consultation.
    She also practices at Charlemont Clinic and Bon Secours,Glasnevin,but I am not sure if cost is the same in those clinics.

    ETA ,good tip for finding good docs is to go to others countries embassies web site and see who they are recommending here in Ireland to their citizens.

    eg .if you go to the American embassy site ,type in medical specialists,they will give you a list of fields of medicine to choose from ,click on endo and then click on your county.


  • Registered Users, Registered Users 2 Posts: 166,026 ✭✭✭✭LegacyUser


    elli21 wrote: »
    Dr Griffin ,Clane hospital she treats patients and symptoms ,not just lab numbers.
    She switched me from Eltroxin(I might as well have been taking smarties,it wasn't for me) to Armour and I am doing great.
    It is private though 120 euro for each visit and I think 150 for initial consultation.
    She also practices at Charlemont Clinic and Bon Secours,Glasnevin,but I am not sure if cost is the same in those clinics.

    ETA ,good tip for finding good docs is to go to others countries embassies web site and see who they are recommending here in Ireland to their citizens.

    eg .if you go to the American embassy site ,type in medical specialists,they will give you a list of fields of medicine to choose from ,click on endo and then click on your county.

    Great info elli-thanks! €120 is alot cheaper than the Doc. I attended in Stillorgan...
    Are you soley on Armour or are you being treated for Adrenal fatigue also?


  • Closed Accounts Posts: 192 ✭✭elli21


    Great info elli-thanks! €120 is alot cheaper than the Doc. I attended in Stillorgan...
    Are you soley on Armour or are you being treated for Adrenal fatigue also?

    No I am solely on Armour.

    I had been under the care of HSE before and the Endo that I was seeing was of the attitude "oh well" when I tried explaining that Eltroxin was not helping me .I stayed that way for over a year until I just had enough and made appointment with my new doc.
    I have to say the moment I sat down and told her about my experience with Eltroxin the first thing she asked was if I had my cortisol checked.


  • Registered Users, Registered Users 2 Posts: 1,580 ✭✭✭Splendour


    elli21 wrote: »
    No I am solely on Armour.

    I had been under the care of HSE before and the Endo that I was seeing was of the attitude "oh well" when I tried explaining that Eltroxin was not helping me .I stayed that way for over a year until I just had enough and made appointment with my new doc.
    I have to say the moment I sat down and told her about my experience with Eltroxin the first thing she asked was if I had my cortisol checked.

    That's great elli,and had you had your cortisol checked? If so was it done by saliva?

    It's very frustrating dealing with endos/docs who dont understand.


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  • Registered Users, Registered Users 2 Posts: 174 ✭✭lynnsback


    Hi elli. I am in a similar boat to splendour. I see a doctor but can't afford to see him regularly as he is so expensive. Plus he would only prescribe the tiniest amount of HC and I have had to get more in order to handle armour. And he only tested my antibodies when I asked him to. I have Hashimotos. Does my GP need to refer me to her or can I go see her myself?


  • Closed Accounts Posts: 3 Roy_Boy


    Hiya,

    I am bumping this post as I thought about starting a new one concerning doctors who will prescribe Armour but this thread has some useful info and I think my enquiry fits this very same topic.

    I was diagnosed with Hashimoto's at the tender age of 21 (4 years ago). What is more striking, I am a male and I was and am very fit. I actually enquired my then GP about the issue as I was having problems with concentration and asked my doc to have a thyroid panel. My TSH was 4.5 and I tested positive for TPO antibodies. Fast forward 4 years and the TSH ranges from 4.5 to 6.6 with all tests, TPO antibodies on the rise everytime.

    I was offered levothyroxine 4 years ago and tried it for 6 months. I gained fat and felt fatigued, it was me who decided to stop taking it and since I was sub-clinical, deal with it naturally. My diet is good and I exercise, my bodyfat is about 12% and I have a six pack and am muscular, you would never think I am sub-clinically hypothyroid.

    Anyway, over the last months my brain fog has increased and I feel constant pressure in my throat. I was offered levothyroxine again after really pushing my doctor for meds, he said my TSH was nothing to worry about despite being 6.6. All he offered was levothyroxine, has not heard of Armour and says T3/T4 is not used in Ireland, therefore he wont prescribe it. I have been fortunate enough to be scheduled for a thyroid ultrasound at Mater Hospital at his request, regarding the pressure in my neck (I applied for it 4 months ago and I am having it done in one week).

    I am currently trying to look for doctors, preferably in Dublin (but will travel anywhere, even considering the UK), that will prescribe Armour, or even T3/T4 combo if all else fails. I have enquired about Dr. Patrick Magovern but he is very expensive, or so he seems since I don't have any price references other than him. Overall, after initial appointment and second appointment (plus tests), it all comes down to about 550 euros, just to get to the damn Armour (and I am not that sure he will prescribe it).

    I would like to know of any other doctors that will indeed prescribe Armour. I am not bothered at all to pay a high price, after all, this is for life and you bet I am willing to pay as much as needed for something that will affect the rest of my life, as much as I may have to sacrifice (no summer holidays now). However, I would like to know of other doctors and experiences.

    I would appreciate any input, and any replies from those of whom I have PM'ed.

    Many thanks,

    Roy


  • Registered Users, Registered Users 2 Posts: 14,062 ✭✭✭✭tk123


    I had a subtotal thyroidectomy almost 2 weeks ago. The pressure in my throat is gone, no chest pains, no palpatations, its a bit swollen around the incision but the bulge at the side of my neck is gone :D. I'm knackered thou - the max I've been up and about is 4 hours so I don't think what's left is working 100% yet or its not going to happen (the surgeon reckoned he'd left enough to do the job). I'll be heading to my GP in the next week or so to get a letter for more time off work (hospital wrote me a letter for 2 weeks but I don't have the energy to sit at my pc surfing for the day let alone working) so I'm going to get them to do some bloods and see what they know about Armour. I'll report back!
    I have to say going private was the best decision I made - everything just got sorted so quickly once I changed endos (the one I was seeing for almost 2 years retired) - saw the new endo, a month later I see the surgeon and he wanted to operate the next week! The GP plays a big part in it as well - my old GP 'treated' me for years by handing me a perscription every 3 months with no bloods etc. I got pi$$ed off and changed GPs - the first thing they did was send me for an ultrasound and it was hello to mr. toxic nodule. Also my current GP can take bloods so it saves loads of time going to the hospital and taking a number and sitting around etc


  • Registered Users, Registered Users 2 Posts: 14,062 ✭✭✭✭tk123


    Just to update my remaing thryoid seems to have 'switched on' this week so the energy levels are getting better! My only issue now is hayfever - I used to take my tablet each morning when I took my thryoid meds - since I've been off them since the op I've gotten out of the habit of taking the hayfever pill :rolleyes:


  • Closed Accounts Posts: 308 ✭✭nicola09


    I go to Professor Tom Gorey in the Mater Private, anyone else go to him? Also, how often am I supposed to get a blood test when taking Eltroxin?! I've been reading posts here about people monitoring their results and stuff, I haven't been tested in over a year! :eek:


  • Registered Users, Registered Users 2 Posts: 3,408 ✭✭✭Huggles


    Dr Diarmuid Smith Beaumont Private Clinic. Hes an excellent Endocrinologist.


  • Registered Users, Registered Users 2 Posts: 561 ✭✭✭dollydishmop


    nicola09 wrote: »
    I go to Professor Tom Gorey in the Mater Private, anyone else go to him? Also, how often am I supposed to get a blood test when taking Eltroxin?! I've been reading posts here about people monitoring their results and stuff, I haven't been tested in over a year! :eek:

    Hi Nicola

    Ideally your Endo should tell you what blood testing schedule he wants you on, so make sure you ask him next time you go and see him.
    In the meantime, if you're worried or feeling unwell, head along to your GP and get your bloods done yourself. I often do this, if I'm on a long testing schedule 3-4 months) and start feeling really bad.
    Don't forget to ask for copies of your results, and do lots of research yourself.

    I'm currently hyperT, on a monthly blood testing schedule, have a CT scan due next month, and facing surgery for a total thyroidectomy.

    Stay well <<hugs>>


  • Closed Accounts Posts: 770 ✭✭✭viztopia


    I have attended Patrick Mc Govern twice and yes he is very expensive. My initial visit was the guts of €200 and the second was lower. he got me to do a number of tests - blood tests in 2 different places, stool sample, adrenal test. when all the results were back in he went through it all and put me on a schedule of tablets (majority no pescription) i was on eltroxin at the begining and he left me on it. he put me on one pescription medication also. all in all i am now taking 21 tabs a day (only 4 are pescription and some of the rest are vitimans etc) he is expensive. i estimate that i have spent almost €1,000 with him so far but if it works then it will be worth it. i am on the current medication about two weeks and havenoticed a slight improvement but i am still very tired. i am due to go back to him in 3 weeks and i will keep everyone updated.


  • Closed Accounts Posts: 1 oz chick


    Hi guys, has anyone else had all the symptoms of an underactive thyroid but doctors keep telling them they're normal? I was reffered to an endo because my GP didn't know what was wrong and he was useless! Cost me €250 and all he said to me was its all in my head there's nothing wrong with me.

    I've been putting on weight over the last 5 months as well even though I've no appetite and the endo said to me I'm so exhausted because I'm fat! I've put on almost 3 stone in 5 months but he didn't think this was strange. I'm so frustrated and just don't know what to do.

    Can anyone reccommend what to do? I've booked an appointment with Dr Griffen but I can't get in until the end October :(

    Oh the endo I saw was Professor Tomkin in the Beacon, I'd avoid him at all costs!!!


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  • Closed Accounts Posts: 308 ✭✭nicola09


    Hi Nicola

    Ideally your Endo should tell you what blood testing schedule he wants you on, so make sure you ask him next time you go and see him.
    In the meantime, if you're worried or feeling unwell, head along to your GP and get your bloods done yourself. I often do this, if I'm on a long testing schedule 3-4 months) and start feeling really bad.
    Don't forget to ask for copies of your results, and do lots of research yourself.

    I'm currently hyperT, on a monthly blood testing schedule, have a CT scan due next month, and facing surgery for a total thyroidectomy.

    Stay well <<hugs>>

    Thanks for your help, best of luck with your surgery you'll be right as rain in no time! I'm borderline hypothyroid, runs in my family, and I take Eltroxin to control my wonderfully named "multi nodular goitre", so I suppose in my case blood tests aren't urgent!


  • Registered Users, Registered Users 2 Posts: 2,131 ✭✭✭RentDayBlues


    Just came across this post, some great advice here.

    I saw an endo in Blackrock clinic and it was one of the worst experiences ever. Basically, in his works "there is nothing that can be done about your thyroid, you'll just to have live with it. If you want to continue taking eltroyxin then you can but its really only a placebo"

    I came out of there in tears and was very proud of myself for refusing the only medication he did offer "anti-d's"

    I've been getting my bloods done every 6 months and monitoring it myself, I always get a copy from my doc. I've managed to get my TPO's down from 1800 to 400 and finally feel "good" , not well but good. My doc did want to recently reduce my dose as she felt my TSH was too low but I know that the does is working for me so I said no, she was happy with that.

    I would like to see another consultant to discuss my results and get some real advice, so can anyone recommend one in South Dublin who they have found to be good. I know McGovern in Stillorgan is recommended but if I'm going to pay a huge fee I'd prefer it to be for an endo not just a GP.


  • Closed Accounts Posts: 94 ✭✭Turquoise


    Huggles wrote: »
    Dr Diarmuid Smith Beaumont Private Clinic. Hes an excellent Endocrinologist.


    I'll second that, just in case anyone is still looking.


  • Registered Users, Registered Users 2 Posts: 166,026 ✭✭✭✭LegacyUser


    tk123 wrote: »
    I have a new specialist (my current one is retiring) but havent seen her yet so no review just yet.


    just wondering TK what Maria Byrne is like? i've been assigned to her recently but haven't visited her yet, you said in previous post that there was some difference between her and the previous doc - a good difference or bad difference?? thanks!.


  • Registered Users, Registered Users 2 Posts: 14,062 ✭✭✭✭tk123


    DRBH wrote: »
    just wondering TK what Maria Byrne is like? i've been assigned to her recently but haven't visited her yet, you said in previous post that there was some difference between her and the previous doc - a good difference or bad difference?? thanks!.

    I found her brilliant!! She had the same attitude as me - here's a problem lets fix it. The old one was very old skool and had more of wait and see attitude - I was sent to her when a cystic nodule turned up on an ultrasound. 2 years of watching later I had a huge mass compressing my airway and causing a lot of discomfort and pain. It was also hot so producing way too much thyroid hormones causing the other lobe/side of the thryoid to shut down. I was saw Maria in April, the surgeon in May and had the op in June. After the op I was left with one side and it took about 2 weeks to switch on and my levels are all normal. My main "side affect" from the whole thing now is my breathing from where the mass was wrapped around everything inside my chest. I'm getting a bronchoscopy next week (gah!!!) so they can take a look inside my lungs - at the moment I'm on asthma inhalers to try and bring down the irritation in my lungs.


  • Registered Users, Registered Users 2 Posts: 166,026 ✭✭✭✭LegacyUser


    thanks TK, I went to see her myself a couple wks ago and really liked her. she listened and gave me medication to fix it, which is more than I got off the GP (got fobbed off by him!). hope you're feeling better soon, you sound like you could be in a lot of pain, hope you feel better and get it all sorted soon :)


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  • Registered Users, Registered Users 2 Posts: 14,062 ✭✭✭✭tk123


    No probs!! The bronc. was fine and no probs with the lungs- just a little irratation but it's almost sorted. I'm glad your on the mend!! :)


  • Registered Users, Registered Users 2 Posts: 4,494 ✭✭✭harr


    hi
    hope somebody might help me with a little problem,i am currently hypothyroid and on 200 mg of eltroxin daily i have been hypothyroid since birth and was attending crumlin up the age of 18(35 now) but since then i have gone only to my gp to get my bloods done every couple of years and he increases or decreases my dose other than that i get a 6 month repeat prescription.At the moment my health is up and down and i am geting it hard to keep the weight down and i also have the start of arthritis in my joints.
    i had some surgery done on my knees already,i also feel very tired and sick in the mornings and have chest pain with a lot of phlegm plus pins and needles in my feet.
    Is it time for me to see a specialist regarding my condition or is ok for me to continue to just attend my gp.There has never a mention of any other meds i could take when i was younger.
    Thanks


  • Registered Users, Registered Users 2 Posts: 737 ✭✭✭cltt97


    I would definitely look for a referral. There are other meds than Eltroxin that might work better for you and I would look for a host of other blood tests also. Especially with the arthritis you're describing I would want to rule out rheumatoid arthritis. you should get your adrenals tested, your iron/b12 tested, gluten antibodies, the list goes on...


  • Registered Users, Registered Users 2 Posts: 31 realtinh


    Hello there,
    My girlfriend has been attending her doctor nearly once every two weeks now for symptoms that we think are of hypothyroidism. She literally has every symptom of it so we really want to get her diagnosed. But the problem is, her doctor is crap. He said there is nothing wrong with her blood tests (I assume they were just general blood tests) so he said she needs to do exercise to get the weight off.. Which just means he wasn't listening to her. I am a personal trainer so had been doing exercise with her for a few weeks prior to that. I strongly recommended that she see her GP because she was having horrible pains in her legs during every exercise session, increased leg cramping, and she actually GAINED weight over those few weeks. Her doctor's response when she told him that I had sent her to see him?.. "Well you've seen me now!"
    I don't know how to get around him at all.
    Does anyone know if there is any way of insisting that she get referred to an endocrinologist or at least to do the tests for thyroid function? It's really horrible seeing her have to go through that pain and be told that everything is normal:(

    Edit: She has just rang me to tell me she had to come home from work early because the pains in her legs got so bad. We did exercise yesterday morning. Any link there?


  • Registered Users, Registered Users 2 Posts: 737 ✭✭✭cltt97


    Well, you can switch GP or try and get a consultation with an endocrinologist without referral. For the latter you will most definitely have to go private. But I'd suggest you go and find another GP, the one you mention sounds pretty useless. Where are you based? Folks here might be able to recommend someone.


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  • Registered Users, Registered Users 2 Posts: 31 realtinh


    Thank a mill. I'll see what can be done, even switch GP if necessary. He really is useless:/

    Based in the Dunleer/Dundalk area if anyone knows somebody good?


  • Registered Users, Registered Users 2 Posts: 2 Apple tree


    can someone please tell me a good consultant that deals with under active thyroid, I have been on the same dose of eltroxin (150 mg) for the last 5 years and have trouble loosing weight, I go to the gym 4 times a week and do 45minute spinning classes. Please help!


  • Registered Users, Registered Users 2 Posts: 2 Celia Young


    I am waiting to see an endo in May. Have to have an op in June but hosp want my thyroid to be stable. Im lashing on the weight, skin falling off, hair falling out. My bloods came back at 13. Two years ago I lost almost four stone. My bloods were at 24. I need to be at that level. Rang the secretary to try and bring my appointment forward. She said she showed my results to the endo and she said as its 13 that fine and theres no need to bring my date forward.

    I am stuck and not sure what my next step is. I heard about this armour. Can anybody explain it to me. My pharmacist said that maybe I have antibodies. Anybody have this problem????

    Thanks

    Celia


  • Registered Users, Registered Users 2 Posts: 37 MistySky


    Celia that sounds like a very long wait to see an endo - is that through the public system or have you tried going private? It can be costly but if you have private health insurance and can afford it I would definitely recommend it.

    If you do some research there are some good websites that will explain the tests that should be carried out (far better than me as I'm not an expert!) But basically a doctor should be checking your TSH, T4, T3 and also TPO antibodies. GPs generally only checks the first two, but they don't always give the full picture.

    The TPO antibodies test your pharmacist mentioned is a test to see if you suffer from an autoimmune form of thyroid condition - Hashimotos Thyroiditis. I'm open to correction, but with this condition you can go through periods where your thyroid is underactive and at other times you can be overactive. So it can be a balancing act in treating it.

    Armour is a natural form of thyroid medication. Some people have had great success, but when I discussed it with my endo she said it can be hard to get the balance right, so she's tried me on other medication first which has worked for me (so far) thankfully. Are you on any medication at the moment for your thyroid?

    I think the important thing is to get in to see a good endo first and get all the tests done - including checking your adrenal glands too if necessary. They will be able to recommend the best treatment for you then, as everyone is different.

    Check out the 'Thyroid Misery' thread here on boards and you'll find lots of experiences from other sufferers and some great advice. It's helped me a lot.

    Best of luck!


  • Registered Users, Registered Users 2 Posts: 2 Celia Young


    Does anybody know anything about professor Donal O Shea in St. Vincents Private Hospital. My GP has recommended him but dont know if he will listen or is he just like the rest of them..... Thanks


  • Registered Users, Registered Users 2 Posts: 3 RC_Galway


    Dr Wilson ( leinsterclinic.ie ) in Maynooth will prescribe Armour and stopthethyroidmadness.com has excellent info on it. I was able to get it easily in pharmacy in HSQ across from Heuston station once I told them 2 days in advance. I'm not on any meds since a few years ago.

    I know this is an old thread but asking for a friend - anyone know where you can get ultrasounds for thyroid in/near Dublin? She is coming from France to live here and won't have health insurance - just the European medical card.


  • Registered Users, Registered Users 2 Posts: 37 MistySky


    RC_Galway wrote: »
    Dr Wilson ( leinsterclinic.ie ) in Maynooth will prescribe Armour and stopthethyroidmadness.com has excellent info on it. I was able to get it easily in pharmacy in HSQ across from Heuston station once I told them 2 days in advance. I'm not on any meds since a few years ago.

    I know this is an old thread but asking for a friend - anyone know where you can get ultrasounds for thyroid in/near Dublin? She is coming from France to live here and won't have health insurance - just the European medical card.

    Check out the 'Thyroid Ireland' group on Facebook - lots of great support.

    I think your friend will need a referral from a doctor or consultant in order to get an ultrasound. I got one done recently in The Beacon - very expensive at around €180. Affidea also do them - there's one next to VHI Swiftcare clinic in Dundrum. But they will definitely ask for a referral letter.


  • Registered Users, Registered Users 2 Posts: 7 Dmac72


    Hello, could anyone recommend a good GP in the sth Dublin/ Dunlaoghaire area who is willing to work with my wife in treating her
    Thyroid problem. She has still not being diagnosed by her current GP even though she has all the typical symptoms. Blood tests for anti-bodies are consistently high and TSH scores have been 6.54, 3.8, 3.28, 2.49, 3.06 and 3.61.
    She seen one endo in Tallaght who told her that she is a person of "low mood" and today her GP prescribed her anti-deppressants.
    My wife is not depressed, but she is very frustrated at the lack of understanding she has received from the medical profession thus far.
    Thanks, from a concerned husband.


  • Registered Users, Registered Users 2 Posts: 363 ✭✭Galbin


    Dmac72 wrote: »
    She seen one endo in Tallaght who told her that she is a person of "low mood" and today her GP prescribed her anti-deppressants.
    My wife is not depressed, but she is very frustrated at the lack of understanding she has received from the medical profession thus far.
    Thanks, from a concerned husband.

    Dr Neville Wilson in Maynooth prescribes a mix of T4 and T3. T4 on its own is useless for virtually everyone. It may alleviate some symptoms, but it won't make you feel completely right.


  • Registered Users, Registered Users 2 Posts: 7 Dmac72


    Hi,

    Thanks for reply Galbin.
    She has been to see Dr Wilson recently and he has put her on NDT.
    Early days but the signs are good, energy levels are great amongst other improvements.


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