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Psoriasis
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Hi,
Just to share although maybe I'm learning late but I've had scalp psoriasis for about 10 years now. I used to treat it with coal tar and urea cream by ovelle but it was discontinued. I then got by on Polytar and cocois. Now with polytar also gone ive been in a bad way. Doctor prescribed ointment but its not working.
So last night after making my scalp bleed i was close to tears so after reading about hot oil helping i got out baby oil & applied it to all the plaques, rubbing on with cotton wool. i slept with it in.... washed with oilatum scalp shampoo this morning & but baby oil on again after washing. this time i got a comb & really gently combed through & the plaques lifted really easily without pain. i was freaked out by the amount of hair that came out also but it is the first time in over a year that my scalp felt clear. now that it is clear i hope to not let the build up get so bad. it felt great to actually feel a scale free scalp, like my hair can grow again!
this is probably old news but i wanted to share because it is so difficult to find things that actually work.
i know i can't go to work with a head of baby oil but even doing it twice a week at night is worth it!
:-)
My god mother used to do this to me as a child when she was minding me using Olive oil, 30 years ago
. It gave me great relief as a child. Messy and hard work to do regularly but even occasionally was great.
For your information There is a coal tar lotion you can buy over the counter called Exorex.
My Derm recommended it. It's not cheap but lasts ages. It also comes in shampoo form but I haven't used this. The lotion I can vouch for. Gave me great help last year when the psoriasis was acting the maggot.0 -
My god mother used to do this to me as a child when she was minding me using Olive oil, 30 years ago. It gave me great relief as a child. Messy and hard work to do regularly but even occasionally was great.
For your information There is a coal tar lotion you can buy over the counter called Exorex.
My Derm recommended it. It's not cheap but lasts ages. It also comes in shampoo form but I haven't used this. The lotion I can vouch for. Gave me great help last year when the psoriasis was acting the maggot.
Thank you very much I will check that Exorex out for sure!0 -
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So after nearly 10 years of being free from any big flare-up my psoriasis is back with a fecking vengeance. Chest covered, shoulders, stomach, upper back, arms and legs speckled. It all started with a bout of strep throat and then a couple of particularly stressful weeks, including a failed driving test and a fairly manic work schedule gave it a life of its own.
I was at the GP a couple of weeks back and he prescribed me some steroid cream which I since ran out of, but since then the growth just went nuts.
I think I've managed to calm it down in the last few days by detoxing my diet - cut out sugar, gluten, nightshades, caffeine, alcohol, fun, etc and have started hitting the gym. The itching has gone way down and so has the growth of new plaques. I've started taking Super Cod Liver Oil Complex with Pantothenic Acid supplements and garlic capsules which seem to be giving me more energy.
The biggest thing I need to work on right now is stress though. I had a stressful day on Tuesday and I could feel it flare up a little bit. All work in progress though 0 -
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Mountainsandh wrote: »I don't really see how sunbeds would be any different than light therapy, since they're basically the same rays, except you also get unwanted rays, and it's all uncontrolled.
I mean, yes, they would probably help, just like the sun does, and light therapy does, but if you say you have done 3 rounds of light therapy without success...
Were they 3 rounds with 3 sessions a week for X weeks, or are you talking about 3 sessions ?
The first 3 sessions don't really show much improvement for me anyway, I would start seeing improvement after 2/3 weeks of 3 sessions, that's why I'm saying that.
It's really strange that light therapy would not work ! was it just UVBs ?
Did you try PUVA therapy ? That's the one with tablets to sensitize your skin beforehand, you take the tablets a few hours before exposure in the cabin. That's quicker than just UVBs in my experience.
There's also methotrexate, have never tried it myself, I'm older than you and it has a lot of side effects I believe, but I might have to sometime, as I have arthritis as well as the skin psoriasis.
Having a really weird time here with mine, my hands gradually (in the space of a week or two) cleared themselves, not fully, but to a very acceptable state. No change on the rest of the body, but it's great as the hands are what I'm most conscious about, and the most uncomfortable for me.
I started juicing (just various fruit, no wheat grass and all that) a short while ago, no other change in my diet, but since I don't usually eat much fruit (I do love veg), I'm thinking they might be helping.
I don't believe diet really works though, I think it's just that maybe the fruit help bring down inflammation or something, because the arthritis is much better too.
Hope I'm not jinxing it !
Yes the light therapy was 3 rounds three days a week for 15 weeks, Unfortuntely it just didn't work for me.I haven't tried PUVA therapy but I will look into it thank you.I was just looking towards the sunbed route because I thought because the timing would be longer and I'd have longer exposure that i might see a different effect.
It could just well be the fruit! Detoxing and cleansing out the liver is supposed to be very effective for psoriasis! Stick with the fruit for a while and see if you can spot anymore improvements! 0 -
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. Its like it has to escape somewhere.
Totally, it often feels like that : I find some improvement somewhere, but another spot gets worse. At the moment my feet are bad, thankfully I don't get anything under the sole, but the sides and a bit on the top are all "bubbled up".
I was rubbing in lots of dry heal cream and stuff over the summer (Keratin, and the usual paraffin type, when I saw the ingredients I thought I'm never paying that price again, that's the same as a good hands cream !), but my feet looked dreadful no matter what. Anyway, that's a small thing.
IrishGurll and Busy_girl08, welcome and yes, this is a great spot for information and for an old rant.
We're all in the same boat.
We're all bound to have some good stretches, and then some down times.
I'm dreading the winter approaching to be honest, from November on with the rain and the cold, I enter acute self-pity phase, because there's no escaping the flares, the soreness on my hands in particular, and the arthritis
I did sunbeds one year, and actually it felt great even just to get the few minutes of heat when it's cold outside, feeling I was doing something that might help. Think I might go for that again this year, that's really really rare when I do, so I don't see it as too much of a liability.
IrishGurll that's a real bummer that light therapy is no good to you. Then again, even when it does work, like for me it does work, you can't be doing it year in year out, and all I get out of a it is a month or so, then everything comes back progressively (pretty fast though).
It's too time consuming and the PUVA awkward (you've to wear sunglasses all day indoor incl.) for me.0 -
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Go back and ask him for that cream on repeat prescription. When things are out of control its the only thing that works in my experience. Then as things get better you use it less and less and can, if you wish stop it. I dont do that and its very much part of my regime but I use it a lot less than I used.
I don't fully believe that cutting out sugar but supplements are supposed to work but I always find that during a flare up you need the steroid.
.
I find with the steroids though that once you stop using them (whether you've finished the prescription or for whatever other reason, the psoriasis can get worse. I would just be worried about becoming dependent on it.
The good news is the huge patch that's taking up most of my chest has calmed down considerably. It's not itchy any more and I think it's starting to fade. It was the first area to appear and going by previous psoriasis experience it tends to go in a first-in-first-out fashion. Fingers crossed!
I also have an Indian Head massage and floatation therapy session booked for later this week so hopefully this will at least help me with my stress.
Positive thoughts, everyone, positive thoughts! 0 -
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Busi_Girl08 wrote: »So after nearly 10 years of being free from any big flare-up my psoriasis is back with a fecking vengeance. Chest covered, shoulders, stomach, upper back, arms and legs speckled. It all started with a bout of strep throat and then a couple of particularly stressful weeks, including a failed driving test and a fairly manic work schedule gave it a life of its own.
I was at the GP a couple of weeks back and he prescribed me some steroid cream which I since ran out of, but since then the growth just went nuts.
I think I've managed to calm it down in the last few days by detoxing my diet - cut out sugar, gluten, nightshades, caffeine, alcohol, fun, etc and have started hitting the gym. The itching has gone way down and so has the growth of new plaques. I've started taking Super Cod Liver Oil Complex with Pantothenic Acid supplements and garlic capsules which seem to be giving me more energy.
The biggest thing I need to work on right now is stress though. I had a stressful day on Tuesday and I could feel it flare up a little bit. All work in progress though
My psorasis broke out in a big way the first time in my late twenties when we were trying to get pregnant..we went for ivf and calmed down a little but after c section came back with a vengence..and after each section same happened.. now im stressed daily with my little crew and find exercise is my stress relief..do 3 classes a week just to get away! Changes to diet have helped..i swapped from dairy to soya ..cut out white bread potatoes pasta and rice and aldo tomatoes and peppers ( eating pizza inflames my symptoms) drink water!! I use to live on tea but was told to drink loads of water (i put slices of lemon in the jug to give taste) . I don't use steroids or coal tar but the natural clean eat seems to work realky well. Im trying out juice plus as they have had success storieswith psorasis sufferers so fingers crossed..so far so very good.
Good luck hope you find your way to treating ur psorasis x0 -
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Busi_Girl08 wrote: »Does anyone else find that breaking a sweat really helps? I was at the gym last night, wearing a long sleeve jumper for my sins, and my unsightly blobs, and my arms (where most of the sweat came from) are much less inflamed this morning.
There could be something in it, certainly it would cleanse out toxins so less inflammation, don't break a sweat enough to check it out
I should 
That Power Juice is ridiculously overpriced, not a hope in hell I'm going to spend 165 euros on it at once, or on the powder formula. If they had one little bottle of 60 capsules at a reasonable price, I would try it, as it is I will keep on buying fresh and juicing. Brilliant product idea, I'm sure it is high quality, but price is huge issue for me.0 -
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