Keratoconus

irishproduce · 19-09-2011 8:45pm

glineli wrote: »

Best if luck with it. Let us know how you get on. Thats my plan.

As far as insurance, VHI dont cover CXL yet and last time i contacted them, a few months ago, they said they had no plans to cover it in the medium term

If VHI won't cover CXL, then I will have to be moving to someone who does.
I am with VHI a long time now.

S.M.B. · 19-09-2011 9:08pm

Would there not be issues with moving?

I'm looking into health insurance coverage for a full private corneal transplant and I'm out of my depth. Could never make any sense of what's covered and what's not.

Does anyone know a good source of information for getting my head around this. I just read my policy there but I'm none the wiser.

eddiem74 · 20-09-2011 9:37am

glineli wrote: »

Best if luck with it. Let us know how you get on. Thats my plan.

Will do, current plan is:

Friday
- Arrive 13.00 for prep/scans/etc
- 14.00 surgery
- 15.30 go home

Saturday
- back for post-op review/check-up

Wednesday
- back for post-op review/check-up

irishproduce wrote: »

If VHI won't cover CXL, then I will have to be moving to someone who does.
I am with VHI a long time now.

Yes I don't believe they do. You can always call them and check using the CXL procedure code 2801. I was lucky in that my company changed our group insurance from VHI to Aviva this year so I lucked out. Aviva cover CXL on a pre-approval basis so your doctor has to present the case to them on your behalf.

S.M.B. wrote: »

Would there not be issues with moving?

I'm looking into health insurance coverage for a full private corneal transplant and I'm out of my depth. Could never make any sense of what's covered and what's not.

Does anyone know a good source of information for getting my head around this. I just read my policy there but I'm none the wiser.

I think the only thing you would need to consider when moving is ensuring you get a similiar level of cover or better as your current policy and to establish if there are any restrictions as a result of switching i.e. is anything not covered or excluded for a certain period of time ? With a pre-existing condition this will most likely be the case. The HIA website can help with policy/level of cover comparisons.

If you need clarification on your current policy just call up your insurance provider and ask. They are usually helpful and will either let you know or tell you what information they need. Alternatively your eye doctor or their secretary might be able to let you know what is usually covered or not and by what insurance companies.

Gearoidk · 01-10-2011 1:04am

Hey
I was diagnosed with keratoconus a few years ago. I went to see a specialist and was given a set of rgp lenses which i never got used to and were just left sitting at the bottom of a drawer. A few weeks back i went for an eye test again and i have to be forwarded onto another specialist for treatment. At the time i could not get used to the lenses, i was also not happy with the service i received from the consultant, he had absolutely no patience with me trying to get used to putting the lenses in and out this was one of the reasons that i gave up on them 2 years ago... Now im going to go to someone different and try again as i know my eye sight had gotten a small bit worse and glasses arent perfecting it. Does anyone know of anyone in the Clare/Limerick or Galway area that deals with it and if it will be covered by medical card as im a student and money is tight as ye all well know.

irishproduce · 02-10-2011 12:33am

Hi Gearoid,

It is covered on medical card.
Ms Cleary and Mr O'Reilly are cornea/ eye specialists in Limerick regional.
When I was a student, I had the cornea graft done on medical card.
I am VHI now but no difference in treatment, see the same people etc.

irish

S.M.B. · 02-10-2011 7:49pm

After 12 years of deferring any form of surgery it's looking like a first graft is on the cards.

CXL2011 · 07-10-2011 5:43pm

Hey all,

This FB page has been set up to help Keratoconus sufferers. Videos and information on treatment are still to come. Anyone can tell their story or give advice on how to deal with it.

Check it out:

http://www.facebook.com/pages/Keratoconus-Ireland/229959307058459?ref=ts&sk=wall#!/pages/Keratoconus-Ireland/229959307058459?sk=wall

IBren · 08-10-2011 8:45am

Hey CXL, thats a cool idea. I had a check there of the page, it is good to have some sort of a support group. I have keratoconus but not sure what my options are.:eek:

Shane732 · 12-10-2011 11:45am

Well I've taken the plunge and made an appointment with the Wellington Eye Clinic.

My lens are causing me a fair amount of hassle at the moment so I might as well see what my options are.

eddiem74 · 13-10-2011 8:22am

Shane732 wrote: »

Well I've taken the plunge and made an appointment with the Wellington Eye Clinic.

My lens are causing me a fair amount of hassle at the moment so I might as well see what my options are.

That's great let us know how you get on.

Shane732 · 17-10-2011 11:36pm

Ok so I went to see Arthur Cummings in the Wellington Eye Clinic. Firstly I must say that Mr. Cummings was excellent - very informative and straight about the various options etc...

In relation to my own eyes, it's pretty much as I'd been told by the optician I'm under in Dixon Hempenstall.

My left eye is far too progressed to consider CXL and be confident that it would work. The steepest part in my left eye being just under 90D (CXL is recommended up to 58D)! He was very surprised that the optician I use was able to get a lens to sit comfortably in my eye. The only option in my left eye is Keraflex. I think Mr. Cummings is the only person to have done keraflex in Ireland to date and there's only been about 12 patients so far. Procedure was first done in October 2010.

In relation to my right eye the prognoses isn't quite so bad. I'm a good candidate for SimLC in my right eye. So it looks like I'll run with the SimLC as a starting point in my right eye.

He talked about whether I'm happy stopping the progression in my right eye. Of course the answer is yes, but realistically I'd like to improve the vision and potentially get away from a lens in my right eye (or at least to soft lens). We discussed the possibility of doing laser on the right eye subsequent to doing SimLC - this would potentially get me away from having to wear a lens in my right eye. It's something I'm very interested in. Having said that my optician shudders at the thought of doing laser on an eye that's had SimLC done. Anyway the decision on laser is a long way down the road.

Has anyone had the SimLC procedure? How do you find it?

Finally, what I would say is to make sure you're with a good optician. I picked Dixon Hempenstall by complete chance when just going for a regular eye test for a provisional licence and couldn't recommend them highly enough. I don't attend Donal in DH by choice as the optician I'm under is excellent. Even Mr. Cummings at to take his hat off to the fact that she'd be able to go a lens to fit. Unfortunately at present my left eye is very irritated so she gets the pleasure of sorting that problem out so I can get back to wearing a lens comfortably in my left eye!

I'll probably have SimLC done in late November.

eddiem74 · 18-10-2011 9:15am

Shane732 wrote: »

Has anyone had the SimLC procedure? How do you find it?

I had SimLC at the end of September. I was diagnosed with KC a few months back, never wore contacts or glasses. It was worse in my right eye but I have it in both. Vision is also worse in my right eye so I opted for SimLC to see if it can improve things.

After the procedure which was on a Friday I had a check-up on the following Wednesday and Dr. Cummings said he could already see around a 75% improvement in the centre and 50% elsewhere so that seems to have gone well. I am back at the start of November for another follow-up including scans this time, so I will be discussing my vision in detail at this time. The goal was first to tackle KC and see what I could do to improve my vision, at the moment my vision has not changed considerably post-OP but I was told it could take months to settle down. Dr. Cummings also told me he may consider some futher laser fine-tuning at around the 6 months mark so that all needs to be discussed more.

Just FYI, in terms of the SimLC procedure it was pretty much painless, the thought is always worse. I was in there for around 2.5hrs (Prep 1hr, Op 1hr, rest/recovery 30mins) and then home after that.

Best of luck !

Shane732 · 18-10-2011 1:29pm

eddiem74 wrote: »

I had SimLC at the end of September. I was diagnosed with KC a few months back, never wore contacts or glasses. It was worse in my right eye but I have it in both. Vision is also worse in my right eye so I opted for SimLC to see if it can improve things.

After the procedure which was on a Friday I had a check-up on the following Wednesday and Dr. Cummings said he could already see around a 75% improvement in the centre and 50% elsewhere so that seems to have gone well. I am back at the start of November for another follow-up including scans this time, so I will be discussing my vision in detail at this time. The goal was first to tackle KC and see what I could do to improve my vision, at the moment my vision has not changed considerably post-OP but I was told it could take months to settle down. Dr. Cummings also told me he may consider some futher laser fine-tuning at around the 6 months mark so that all needs to be discussed more.

Just FYI, in terms of the SimLC procedure it was pretty much painless, the thought is always worse. I was in there for around 2.5hrs (Prep 1hr, Op 1hr, rest/recovery 30mins) and then home after that.

Best of luck !

Thanks for this.

How long were you off work afterwards?

eddiem74 · 19-10-2011 8:18am

Shane732 wrote: »

How long were you off work afterwards?

I had the Op on a Friday afternoon from 13.00 to 15.30 so took that day off work. They told me I could return to work the following Thursday after my Wednesday follow-up appointment but I took the whole week and went back on the following Monday. So I was off for 6 days including Op.

I had a choice of a Wednesday or Friday Op appointment so I picked a Friday as more family would be available in case some assistance was needed over the coming days.

Best of Luck.

Darragh11 · 11-11-2011 1:18pm

helllo every1 i recently had a crxl done in wellington eye clinic, i am waiting to get my other eye done, i am 24 and have had kr since i was 18 and was just told by my local optician that i have a condition and was told i needed glasses, i was never told about cxl and my kr is too bad for laser, i will have to wear hard contact lenses for the rest of my life but have no problems with them so far, only wearing them 2 months, i had cxl done in wellington eye clinic and they have been brilliant to me finally providing me with info and solutions, i was wondering and researching about intacs so i wouldnt have to wear contacts, wellington dont think they would be a great idea, i was wondering if any1 has had them fitted and how they are with them?

many thanks Darragh

Lolo55 · 02-12-2011 12:04am

MY SON HAS JUST BEEN DIAGNOSED WITH KC and visited Mr. Billy Power in Blackrock last week. Due to operate mid January. Bit worried as all the boards seem to concentrate on Wellington Clinic. He was referred to Blackrock by opthomologist in Galway. Should we look into Wellington?

eddiem74 · 02-12-2011 9:10am

Lolo55 wrote: »

MY SON HAS JUST BEEN DIAGNOSED WITH KC and visited Mr. Billy Power in Blackrock last week. Due to operate mid January. Bit worried as all the boards seem to concentrate on Wellington Clinic. He was referred to Blackrock by opthomologist in Galway. Should we look into Wellington?

I can't comment on elsewhere so it really depends on how happy you were with the service you got from Blackrock. I had appointment there myself originally but decided to change to the Wellington and have no complaints. An initial consultation cost around €100 at the Wellington, so something you could consider as a second opinion to ease your mind if you wanted.

I believe (I could be corrected?) Dr. Cummings and his team at the Wellington are leaders in this area and do a lot of research, give talks abroad, etc... around KC. I am sure other doctors do also, I just have no experience or information on that.

Darragh11 · 02-12-2011 11:06am

I live in galway and the way i found out about wellington and cross linking was over the internet, My optician never referred me and didnt tell me about cross linking as he didnt know much about it, There isnt enough awareness and info out there about keratoconus. Wellington are very well established and dr cummings worked with the inventor of the cross linking procedure, i dont know much about blackrock either but cannot fault wellington at all they have been fantastic as soon as i walked through their door. They were also the first in ireland to begin laser eye treatment.

Lolo55 · 02-12-2011 3:30pm

Thank you Eddie and Darragh. New to Boards so hope ye get this message. Will keep the forum informed.

irishproduce · 13-12-2011 12:57am

Looks like CXL for me in January as it has progressed slightly in my good left eye.
Consultant said CXL should halt it.
I asked her would it be safe to say best case scenario, the vision imporves and worst case scenario that it doesn't worsen vision but doesn't improve it and she agreed that was a fair way to look at it.
I was just concerned that if I was unlucky, the vision would get worse which would leave me rightly snookered as i'd be in a bad situation then!

Will post back and let you know what happens.

Oh, by the way, I mentioned earlier that if VHi wouldn't cover it, I would be moving to Aviva, looks like I am doing that too. Spoke to an Aviva rep today and she said she would speak to medical consultant at their side to explain my case so I wouldn't lose cover and wouldn't have to wait.
Fingers crossed.

eddiem74 · 13-12-2011 9:10am

irishproduce wrote: »

Looks like CXL for me in January as it has progressed slightly in my good left eye.
Consultant said CXL should halt it.
I asked her would it be safe to say best case scenario, the vision imporves and worst case scenario that it doesn't worsen vision but doesn't improve it and she agreed that was a fair way to look at it.
I was just concerned that if I was unlucky, the vision would get worse which would leave me rightly snookered as i'd be in a bad situation then!

Will post back and let you know what happens.

Oh, by the way, I mentioned earlier that if VHi wouldn't cover it, I would be moving to Aviva, looks like I am doing that too. Spoke to an Aviva rep today and she said she would speak to medical consultant at their side to explain my case so I wouldn't lose cover and wouldn't have to wait.
Fingers crossed.

Best of luck !!

So is your vision still good in your left eye? I only ask as perhaps SimLC might be another option to tackle vision improvement and KC in one go?

irishproduce · 14-12-2011 11:41pm

eddiem74 wrote: »

Best of luck !!

So is your vision still good in your left eye? I only ask as perhaps SimLC might be another option to tackle vision improvement and KC in one go?

Thanks Eddie. I'll come back once I start the process.
This SIM CL is something she didn't mention. Se was saying she was trying to get the equipment in regional on public but if she is not able to get this in new year, she could refer me.
I spoke to aviva too and they said they would cover but because it was a new techology, my consultant would have to write a medical case to them for aproval. Not sure how that would go.
The vision is good. I only wear glasses at work as words blur and i have to squint a bit. My contacts for sports are astigmatism ones.
I will ask her about sim cl and see what the story is there.
Tell me, if you know, can these treatments wreck it altogether as that is my fear or will they at worst in your opinion just not do anything??

Thanks again
Irish

eddiem74 · 15-12-2011 1:01pm

irishproduce wrote: »

Thanks Eddie. I'll come back once I start the process.
This SIM CL is something she didn't mention. Se was saying she was trying to get the equipment in regional on public but if she is not able to get this in new year, she could refer me.
I spoke to aviva too and they said they would cover but because it was a new techology, my consultant would have to write a medical case to them for aproval. Not sure how that would go.
The vision is good. I only wear glasses at work as words blur and i have to squint a bit. My contacts for sports are astigmatism ones.
I will ask her about sim cl and see what the story is there.
Tell me, if you know, can these treatments wreck it altogether as that is my fear or will they at worst in your opinion just not do anything??

Thanks again
Irish

Well in my case I was diagnosed with KC earlier this year and only found it as I noticed my sight was worse in my right eye. For example if I closed my left good eye and looked at my email on a 20" monitor around 2-3 foot away I could not read it. So when I went to the Wellington as I had not got glasses or contacts, I was looking to; 1) stop KC progressing, and 2) improve my vision if possible. This is where SimLC came in, although you have to have enough corneal thinkness to be able to have it, 400 micron I think, and I had 470'ish. I bascailly said I would give it a shot and worst case glasses or perhaps contacts would then be needed. As it could also be done in the same procedure within 1hr it made sense.

I am with Aviva also, they will cover the CXL piece but not the laser so you would need to cover that yourself. I just had the Wellington fax in a justification and I was approved in a matter of days.

I was just back this week for my 3 month checkup and all progress has been great and better than expected, so I seem to be really lucky. My vision is improving I can now read the email and my eye test this week said I would easily pass a driving test with a few lines on the chart to spare. Once the eye settles down and measurements become consistent there might be a option for some further laser fine tuning to get it as good as it can be, but that will be probably 9 months or so down the line.

So in summary in my case, so far, so good.

I also have KC in my left eye, so will need to tackle that also after the right eye is finished.

irishproduce · 15-12-2011 3:24pm

You are in a very similar situation to me Eddie.
My right eye was knackered by the time I realised it.
Was way too late for any corrective treatments. I went straight for graft.

My left isn't too bad so still workable I am hoping but I can tell it is getting worse progressively.

I would like for it to be stopped.

I will ask my consultant for the results of my orb scan and see what the 400 micron situation for me.

Michael O Toole · 29-12-2011 7:42pm

I attend Donal O'Malley, too and Professor Michael O'Keefe in the Mater. Both are excellent.
Had a full graft in 1991 at the age of 21 and hadn't had any major problems since.

Shane732 · 02-01-2012 1:10pm

Going in for Keraflex on the 13th and Crosslinking the following Tuesday

S.M.B. · 02-01-2012 11:11pm

I made a claim with VHI for a consultation I had which basically recommended grafts for both eyes and VHI are after responding with a letter saying that my condition is Chronic and I am only covered for acute episodes.

Has anyone come across something similar? I was never very informed in my health insurance policies but I was very surprised to be told this.

Shane732 · 02-01-2012 11:16pm

S.M.B. wrote: »

I made a claim with VHI for a consultation I had which basically recommended grafts for both eyes and VHI are after responding with a letter saying that my condition is Chronic and I am only covered for acute episodes.

Has anyone come across something similar? I was never very informed in my health insurance policies but I was very surprised to be told this.

Yea - they're a crowd of *****rs!!

S.M.B. · 03-01-2012 12:11am

Did you encounter a similar situation?

Any luck in getting them to cover anything KC related?

Shane732 · 03-01-2012 2:22am

S.M.B. wrote: »

Did you encounter a similar situation?

Any luck in getting them to cover anything KC related?

I'm having a similar battle with them at the moment. They just aren't interested in covering cross-linking.

I'm told the other insurance companies will cover it.

What are you trying to get them to cover?

irishproduce · 03-01-2012 11:11pm

I am still with vhi but have out in request to transfer to aviva.
Was in regional limerick today to have some corrective work done on the grafted cornea (right). Consltant needed to make some incisions to relieve tension in it so that a lens night hopefully be possible to get on over it. When i was in there, they asked me if vhi or public etc, i said vhi so although it was only day treatment, they will probably bil vhi. If vhi write me saying not covering, they can go and sing, hospital with them. It was no cxl related but kerataconus yes.

Back in tomorrow to see how the incisions went.
Wll be chatting to he also about the microns etc. Also about cxl on right.

ozymandias10 · 06-01-2012 3:27pm

Lolo55 wrote: »

MY SON HAS JUST BEEN DIAGNOSED WITH KC and visited Mr. Billy Power in Blackrock last week. Due to operate mid January. Bit worried as all the boards seem to concentrate on Wellington Clinic. He was referred to Blackrock by opthomologist in Galway. Should we look into Wellington?

how did this go., Iwas referred to Billy Power as well....was told him and one other in London were the leading lights in this surgery

lastlaugh · 06-01-2012 3:42pm

irishproduce wrote: »

I am still with vhi but have out in request to transfer to aviva.
Was in regional limerick today to have some corrective work done on the grafted cornea (right). Consltant needed to make some incisions to relieve tension in it so that a lens night hopefully be possible to get on over it. When i was in there, they asked me if vhi or public etc, i said vhi so although it was only day treatment, they will probably bil vhi. If vhi write me saying not covering, they can go and sing, hospital with them. It was no cxl related but kerataconus yes.

Back in tomorrow to see how the incisions went.
Wll be chatting to he also about the microns etc. Also about cxl on right.

How is your vision after the graft? Does the grafted part cloud up initially and is it gone now?

Is KC 'fixed' after that procedure as in halos etc gone?

Cheers

MarcusFenix · 06-01-2012 3:52pm

Hi guys, I am due to get crosslinking this day week in the royal victorian ear eye and nose, I think my doctor's name is Dr. Murphy. Anyone have any opinions as to what kind of standard this place works to? I only really thought about this today but are they good in there? No-one here has ever really mentioned it so I'm starting to question....why?

NealB · 12-01-2012 12:27pm

MarcusFenix wrote: »

Hi guys, I am due to get crosslinking this day week in the royal victorian ear eye and nose, I think my doctor's name is Dr. Murphy. Anyone have any opinions as to what kind of standard this place works to? I only really thought about this today but are they good in there? No-one here has ever really mentioned it so I'm starting to question....why?

Hi Marcus,

You'll be reading this after your crosslinking, but just to give an answer, I was referred to the Eye and Ear fifteen years ago and heve been with then ever since. I was seen by a Dr Kavanagh in the contact lens clinic. He was great, I never had an issue with my lenses, but he is now retired. I'm not a regular attender but I have just seen a new Dr there; Dr O Malley of Dixon Hempenstall mentioned positivly on this thread, so it seems that they are still getting good people.

Shane732 · 12-01-2012 10:15pm

Heading in for Keraflex tomorrow.....

eddiem74 · 13-01-2012 8:49am

Shane732 wrote: »

Heading in for Keraflex tomorrow.....

Best of Luck, let us know how you get on.

MarcusFenix · 13-01-2012 8:55am

I'm sitting in waiting room waiting to be cross linked!

eddiem74 · 14-01-2012 10:13am

MarcusFenix wrote: »

I'm sitting in waiting room waiting to be cross linked!

Hope it went well, let us know how you got on.

ZoeZii · 17-01-2012 5:40pm

Is there a long waiting list to see Donal O'Malley?

MarcusFenix · 17-01-2012 5:58pm

eddiem74 wrote: »

MarcusFenix wrote: »

I'm sitting in waiting room waiting to be cross linked!

Hope it went well, let us know how you got on.

Went relatively ok I assume, vision is much worse but I presume that's to be expected, have a follow up next Monday and will let ye all know then if it's yay or nay!

NealB · 23-01-2012 11:52am

ZoeZii wrote: »

Is there a long waiting list to see Donal O'Malley?

You need to be referred by an optician/doctor to go to the Eye and Ear and it takes about 5 weeks to get an appointment. O'Malley is the contact lens guy in the E&E so if it's contacts you want then make sure that the referral letter says you want to attend the contact lens clinic, otherwise you'll see a general optician first and have to wait for another appointment for the lens clinic (which is on Wednesdays).

Or you can make an appointment at O'Malley's practice on Suffolk Street. That shouldn't take more than a week or two.

MarcusFenix · 25-01-2012 2:49pm

Hi lads,

Well I've had my right eye cross linked in the eye and ear almost two weeks ago, and had my follow up Monday, the vision is still blurry which is to be expected. I had more pain for longer than usual as the contact fell out the day after, so...be warned I suppose!

When I went in Monday, the doctor who saw me (not prof Murphy) for the follow up told me I'll have to come back in 4 weeks, but I'm going to the states for 2 months for work so had to push that out till first week of April.

I asked about the next course of action for the eye as the vision is very poor. She basically said two things, 1st, it's my own problem but she would advise me to go with contacts which I don't want but are most likely to work because 2nd, they have to see how long the cross linking will last!! So they think it will only slow down progression not stop it. Apparently grafting fixes it totally, why not graft first day??

Seeing as the eye and ear is hse I'm afraid I'm not getting the best advice available, does anyone know the best place for me to go next? is there a well known expert in Ireland who I would be better off seeing?

I've seen a procedure where they insert a ring under the cornea and i'd love to see what an expert would think of this procedure.

Any advice is appreciated!

Thanks

eddiem74 · 26-01-2012 9:15am

MarcusFenix wrote: »

Seeing as the eye and ear is hse I'm afraid I'm not getting the best advice available, does anyone know the best place for me to go next? is there a well known expert in Ireland who I would be better off seeing?

You could get a second opinion from Dr Cummings at the Wellington Eye Clinic. Its the only Doctor I have been too primarily based off the recommendations in this thread and my own research. He seems to be well recognised in the field and does lots of research into KC on it.

You could always contact the clinic directly and ask for information about his expertise and what he does in the field of KC.

Best of luck.

Gearoidk · 05-04-2012 12:34pm

Hey.
I was diagnosed with keratoconus about 4 years ago. My vision isnt the worst with glasses but i still know that i need better. I got the contact lenses a few weeks ago but i cannot seem to get used to them. Does anyone out there have any tips on how to get used to them as i seem to be having no luck with them. Any tips would be greatly appreciated.

NealB · 05-04-2012 6:27pm

Gearoid,

It depends on what problems you are having. Eyes dry out during the day if you don't drink liquids, you won't notice any difference wearing glasses but hard lenses are a different story. So make sure to drink liquids.

Are you cleaning the lenses every morning before you put them in? Protein builds up on the lenses so give them a rub (between index finger and thumb) every morning in a bit of the soaking solution. You can use protein removal tablets but I didn't find that great (my Op also thought they were a waste of time).

Also try taking the lenses out for an hour and give your eyes a break, particularly if you're at a computer all day. You will get use to them over time.

N

irishproduce · 26-04-2012 10:06am

Gearoid, I have problems with lenses too. I cannot get them to sit on my left eye properly which is supposed to be my good eye. I could spend about 30 minutes trying to get one in but eventually I will get it, I have to be quite aggressive. Stay at it, it is a nusiance but some days it can be easier, I don;t know why.
Go to see the Donal O'Malley if you are near him, he will be able to help you too.

bambi215 · 26-04-2012 11:36pm

Hey all, ive recently been diagnosed with keratoconus... Reasonable bad in.left eye and a little bad in right eye. I visted Mary Eustace in dublin today and she put me so at ease. I still have a lot of worries esp about lookin.in cross linking and if it may b an option.for me in the future. But i am sure all my concerns will b dealt with as we move forward i am worried about the.lenses n the fitting hopefully it wont be to scary

irishproduce · 03-05-2012 11:26am

Folks,

Got my appointment with Blackrock (Wiliam Power) after being referred for CXL by Ms Cleary in Limerick.
Have to bring €180 with me on the day :-)

Can anyone tell me what is the craic on the day.
Is this it like, straight into the surgery that day? I am gonna ring em to confirm tomorrow anyway.
Ms Cleary told me the worst case scenario is that it wont improve but it wont get worse as a result of the CXL

irish

Dero · 03-05-2012 3:40pm

bambi215 wrote: »

Hey all, ive recently been diagnosed with keratoconus... Reasonable bad in.left eye and a little bad in right eye. I visted Mary Eustace in dublin today and she put me so at ease. I still have a lot of worries esp about lookin.in cross linking and if it may b an option.for me in the future. But i am sure all my concerns will b dealt with as we move forward i am worried about the.lenses n the fitting hopefully it wont be to scary

I've had lots of lens fittings with Mary and never had any issues. She really does know her stuff with regard to lenses. I have to go back shortly to get fitted in my right eye after my cornea transplant (no CXL magic for me

).

Anyway, good luck. I've had KC for almost 25 years and the lenses are fine really. Sure they're a hassle and a pain on dusty days etc., but you do get used to it and it's better to be able to see. :-)

Keratoconus

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