Psoriasis

brevity · 06-01-2014 1:36am

wonga77 wrote: »

Where did u get it, how did you use it?

I'd be interested as well. From what Google tells me is there are supplements and cream. Seems to help with joint pain and anti ageing.

EDIT: The supplements are available on amazon, a lot of good reviews saying that their joint problems have improved and, almost as a side effect, their skin and hair is much better.

Definitely worth a shot it seems. Gonna nip into holland and Barrett tomorrow to see if they know anything about it.

Call Me Jimmy · 06-01-2014 1:46am

http://www.amazon.co.uk/dp/B00EG5STPS/ref=pe_385721_37038051_TE_3p_dp_1

I've bought a couple of different versions but this one is what I've been using.

Only need a small bit and doesn't have to be rubbed in, I just dip a finger in a bit and spread it lightly on problem areas.

Skin goes a tiny bit red and might feel a tiny bit tight in a couple hours it will be looking great. I haven't tried moisturising as well, but give it a chance!

Call Me Jimmy · 06-01-2014 1:49am

I've ordered supplements as well but they haven't arrived. Don't think I'll need them but we'll see how they go too.

Gael23 · 07-01-2014 6:44pm

Back with my GP today. He was happy enough with me. Im not as good as 3 months ago but things contributed to that.
He changed the Protopic to 0.03% which I have doubts about but im willing to give it a go. So just have to keep going as I am for another 3 months.

Call Me Jimmy · 07-01-2014 6:53pm

wonga77 wrote: »

Right, day 5 of using, ive increased to a minute at a time per area, its enough at the moment, just enough for me to feel a little tingle afterwards. I wouldnt say theres a huge improvement but the p has thinned out ever so slightly. Obviously its early days but im happy enough with how its going so far. Should be interesting to see what the next 10 days bring.

Do keep us updated, very interested as I'll possibly get one if you get decent results! (The hyaluronic acid isn't having quite the same effect as at first for some reason, but still miles better than any other topical I've used. In fairness its only a week now and its been years of red raw ruined skin in a single area on my face so it may be underlying redness that is still present. At least it feels so much better.

Gael23 · 07-01-2014 7:00pm

Protopic works a treat for me. My face is the best it has been for years but for the last few months I've been using a higher dose, will keep you posted though!
Have you gotten control of the dermatitis on your face?

Call Me Jimmy · 07-01-2014 7:44pm

Yes it worked well for me too, I would still use it again if things got very bad possibly. It didn't deal with the underlying redness however.

Gael23 · 07-01-2014 10:08pm

Call Me Jimmy wrote: »

Yes it worked well for me too, I would still use it again if things got very bad possibly. It didn't deal with the underlying redness however.

It wont really do that. It reduces the bumpy patches and the flaking. I can live with the redness much easier than the lumpy patches

brevity · 07-01-2014 10:24pm

Right, I've gone and ordered this and this

The reviews on the Solgar Hyaluronic Acid are very reassuring. I'm going to do a personal photo log as well to see if there is any noticeable improvement.

wonga77 · 07-01-2014 10:49pm

Day 7 of the lamp, early days I know but no major or dramatic changes. Dont want to overdo it but gradually increasing the time. I have p in my scalp too and i find it too hard to use the lamp I got for it. Slow and steady wins the race they say. Pity im so impatient...

Call Me Jimmy · 07-01-2014 11:08pm

Well think about it in terms of time in the sun maybe? I'd expect a noticeable difference after a month I'd say depending on severity of the problem.

mayobumblebee · 09-01-2014 9:21pm

well i was going so good and now my back is covered from about midback all the way up to just below neck and all my chest is also covered. they are small and not to scaly yet. i have not used anything other than eucerin in years but thats not touching this my scalp is also very bad now at the moment im snowing which can be a bit embarrising. i have very sensitive skin anyone have any thing i can try which is mild or at least not so harsh ah i have very reactive skin.

i dont want to go to doctor just yet at its not that bad

Call Me Jimmy · 09-01-2014 9:25pm

try apple cider vinegar or lemon on the scalp, leave on for 30 mins and rinse off with just water. mixed with water I might add!

Will I Amnt · 09-01-2014 9:35pm

If anybody has never given Sudocrem a go just try it. It never even crossed my mind to bother with it before but it has been working for me as well as Dovobet or anything like that.
For the price it's worth trying anyway.

Gael23 · 09-01-2014 9:36pm

mayobumblebee wrote: »

well i was going so good and now my back is covered from about midback all the way up to just below neck and all my chest is also covered. they are small and not to scaly yet. i have not used anything other than eucerin in years but thats not touching this my scalp is also very bad now at the moment im snowing which can be a bit embarrising. i have very sensitive skin anyone have any thing i can try which is mild or at least not so harsh ah i have very reactive skin.

i dont want to go to doctor just yet at its not that bad

In my experience , it's best to hit a flare up ASAP . You want to stop it from getting to that stage as much as you can. So even though it's not that bad at the minute, I would suggest you go to doctor sooner rather than later.

Amazingfun · 10-01-2014 10:31pm

Participants needed for psoriasis study

[Posted: Fri 10/01/2014 by Deborah Condon www.irishhealth.com]

People with the skin condition, psoriasis, are being asked to take part in a new study, which aims to investigate the effects of a psychological intervention known as mindfulness.

Psoriasis is a chronic, inflammatory skin condition that affects around 2% of the Irish population - some 100,000 people. It appears as pink or red raised patches on the skin. These patches, which are known as plaques, have a well-defined edge around them. They also have a scaly surface and can be large or small.

Mindfulness aims to develop our awareness of the present moment through the practice of a form of meditation. It has been found to be effective in improving mental health, for example, by reducing the symptoms of depression, anxiety and stress. It has also been found to improve health-related quality of life.

The study is being carried out by the department of dermatology at St Vincent's University Hospital in Dublin. It follows on from a smaller scale study there, which indicated that certain psychological and immunological factors changed a lot over time among patients with psoriasis who completed an eight-week mindfulness intervention.

"The negative impact of psychological distress on immune function is well documented and there is a well-established link between psychological stress and both the onset and severity of psoriasis," explained the study's principal investigator, clinical psychologist, Dr Paul D'Alton.

He said that this latest study would build on the previous study by including a much larger group of people with psoriasis. This will help to ‘identify in greater detail the psychological mechanisms that impact on the severity of this skin condition'.

People over the age of 18 with moderate to severe plaque psoriasis are invited to take part. Participants will be randomly assigned to one of four intervention groups:
-Mindfulness-based cognitive therapy
-Mindfulness-based self-compassion therapy
-Audio guided mindfulness-based self-compassion therapy
-Treatment as usual.

Those in the first two groups will be asked to attend a group-delivered mindfulness intervention over the course of eight weeks between February and April in St Vincent's. Sessions will be weekly and will last for two hours.

Those in the audio group will practise mindfulness meditation at home every week with the aid of a meditation CD.

Those in the final group will simply continue with their current treatment, however they will be given the chance to take part in the mindfulness intervention next year.

All participants will be asked to complete psychological questionnaires and provide blood samples on four different occasions. Those taking part can continue taking their psoriasis medication as normal.

Anyone interested in taking part should contact assistant psychologist, Orla Walsh, on (01) 221 3318 or or.walsh@svuh.ie

http://www.irishhealth.com/article.html?id=23097

Tsipras · 11-01-2014 3:46am

My friend had Psoriasis and giving up wheat helped in a big way

rubadub · 13-01-2014 11:34am

I was skimming thought he Pagano diet book again. Has anybody got good links to sites discussing it, especially questioning why certain things are ruled out?

Some of the "banned foods/drinks" just seem like educated guesses to me, and I cannot see no scientific reasons given for some of them (or maybe I missed it). Or he is just tagging on general diet recommendations which were given to the general population. Like many people needlessly stay off alcohol on antibiotics just because they ask their doctor if they can drink, and the doctor says no, or just 1-2pints, but the doctor would say that if the patient was in perfect health too! -nothing to do with an allergic reaction to the medicine.

e.g. fried foods -I am guessing this might be to avoid chemicals produced at high temperatures, e.g. acrylamide. This might not be produced if fried at a lower heat, or in much smaller quantities.

Saturated fat & animal fat- he rules this out but I am guessing he might have just been jumping on the anti-sat-fat bandwagon which was big back then. He does recommend coconut oil -very high in sat fat.

"hard liquor" & beer -I think he is says hard liquor (whiskey, vodka, gin etc) is worse than beer. This makes no sense to me since whiskey is basically distilled beer, so nothing new is added. It would make more sense to me to be the other way around, having purified "beer" which removes potential allergens and leaving behind only the pure alcohol. He gives no real reason apart from being gut irritants, in which case he might be presuming all spirit drinkers are taking it at high % levels. I would have thought vodka diluted to 4.3% would be better than beer at 4.3%. Maybe he is just presuming spirit drinkers are binge drinking while beer drinkers might have 1 or 2.

If the logic behind the bans was explained then better alternatives might be found, or different way so ingest the foods, i.e. low temp frying, or heavy dilution, or counteractive solutions, e.g. having antacid with beer to minimise gut irritation.

Amazingfun · 13-01-2014 2:09pm

I think a much better diet is what's called "Autoimmune Paleo". It's an elimination diet essentially, you do it for a set period of time and add things back in to see how you react. Nightshades appear to figure in psoriasis/eczema/skin disorders, as do dairy, nuts, legumes, etc....but everyone has their own path with it.

http://autoimmune-paleo.com/paleo-autoimmune-protocol-print-out-guides/

This lady is a PhD and offers a lot of reasons for why we need to try this, and she herself lost an enormous amount of weight, plus she has psoriasis and Lichen planus I think:

http://www.thepaleomom.com/2012/04/modifying-paleo-to-treat-psoriasis.html

So, what do you do about psoriasis? The first and most important step is to follow the paleo diet “autoimmunity protocol”. This means that in addition to all of the foods we already avoid while eating paleo, we must also avoid:

Eggs (especially the whites)
Nuts and Seeds (or at least severely restrict quantities)
Nightshades (tomatoes, eggplant, peppers of all kinds)

I am on day 13 of the 'protocol' and finding it grand so far. My only stumbling block was giving up coffee, but after one day of discomfort I am fine, drinking lots of teas instead

rubadub · 13-01-2014 6:40pm

wonga77 wrote: »

I have p in my scalp too and i find it too hard to use the lamp I got for it.

What model is the lamp? any photos or links to one which looks similar? I might have some ideas, you might be able to tape on an extension handle or something.

I made mine and made a handle on it. To do the back of my head I can sit in bed with my back up against the wall. I can then sort of balance it on my shoulders so I do not have to sit there holding it for long, I do 3 areas like that which would otherwise take 9mins total.

I was even considering modifying some sort of helmet where I could slot the light into, and move it about. Or get 1 or 2 more bulbs and do a few areas at once.

This is one advantage of the cheaper office light fixtures over the expensive medical hand held ones, you can fix the office light into place and then sit up against it.

Red Nissan · 14-01-2014 11:26am

rubadub wrote: »

"hard liquor" & beer -I think he is says hard liquor (whiskey, vodka, gin etc) is worse than beer. I would have thought vodka diluted to 4.3% would be better than beer at 4.3%. Maybe he is just presuming spirit drinkers are binge drinking while beer drinkers might have 1 or .

Beer is an alcoholic beverage produced by the saccharification of starch and fermentation of the resulting sugar. Strength 4 ~6% typically.

Whisky is a type of distilled alcoholic beverage made from fermented grain mash 30% [varies]

Wine from grapes 10% further distilling produces Sherry and Brandy.

A common misconception is the distillate rate further distillation by volume, IE a glass of whiskey in pint of water is still say the 30% that it started with ~ and old alcoholic's trick to get the best bang for the buck was to swallow the glass of whiskey and immediately follow it with a half pint or pint of water, it mazimised the absorption of the alcohol.

wonga77 · 15-01-2014 11:11pm

Had to take a break from the uv light for a few days, dont ask me what i was doing but i somehow managed to scald my leg, just to the side of my shin. I hadnt noticed any hugely visable effects to my p. I was starting to wonder how effective the bulb was, well i got my answer.
I was messing around on the internet and lost track of time, overdid my time by 3 or so minutes. Dam sore, on plus side the p in that area seems to have cleared up. So much so that there is a large patch in that area and half of it got burnt, that burnt half seems to have improved drastically while the other half looks like it was never touched.
Not for a split second would i be recommending that though, slow and steady much safer tha the pain

Gael23 · 15-01-2014 11:17pm

the UV therapy given in hospital is only for literally 2 minutes 3 days a week so I guess you should only use that light for a very short time too.
Im not doing great this week. the lighter protopic doesn't seem to be working. Im going to stick with it for a week or two more and then get in touch with my doctor if I still feel the same.

pixbyjohn · 15-01-2014 11:23pm

Try an ointment called Diprosalic, it may help. Its on prescription. Worked for me

Call Me Jimmy · 16-01-2014 12:52am

Will I Amnt wrote: »

If anybody has never given Sudocrem a go just try it. It never even crossed my mind to bother with it before but it has been working for me as well as Dovobet or anything like that.
For the price it's worth trying anyway.

How do you remove the sudocrem without aggravating the psoriasis?

feargale · 16-01-2014 2:37am

Just asking. Should a food allergy test be the first step?

michael999999 · 16-01-2014 8:41am

feargale wrote: »

Just asking. Should a food allergy test be the first step?

Can anyone recommend a good one?

Gael23 · 16-01-2014 9:27am

pixbyjohn wrote: »

Try an ointment called Diprosalic, it may help. Its on prescription. Worked for me

That's got the same steroid in it as Dovobet so I'm not sure it can be used on my face. Protopic had been working great but my doctor dropped the dose and the results are not he same.
In relation to sudcream, I did try it on some delicate areas and it made a slight difference but the itch was driving me crazy so I had to go to my doctor and get Daktacort.

rubadub · 16-01-2014 10:47am

Call Me Jimmy wrote: »

How do you remove the sudocrem without aggravating the psoriasis?

I put sudocrem and other zinc oxide creams on my scalp if it is really bad. Sudocrem is pretty expensive I got one in boots and tesco have a nappy rash cream like it.

I would have a small bag on my head and sleep with it on. I have a sheet of rubber than a wipe/scrape if off with, like a windscreen wiper. I have used a credit card loyalty card thing too, which is flexible. Then you still have some remaining. To get this off you can wipe on cooking vegetable oil or baby oil, this blends into the sudocreme, water does not readily mix. Then you can scrape off the newly applied layer, and if needed you could do the process again, mix in new oil on the now diluted sudocrem. Then I would have shower and most comes out, I have a shaved head though and going grey so if some is left its not noticeable, which is handy, the whiteness sort of acts like makeup covering the redness so even though its actually white it looks normal colour on top of the red.

The boots & tesco ones were more dilute to begin with, you can mix 50/50 sudocrem & vaseline. Dealz do big pots of petroleum jelly (vaseline) for only 1.50. I think they have zinc oxide cream too.

http://www.dealz.ie/baby-and-kids/baby/baby-care/zinc-and-castor-cream-225g
http://www.dealz.ie/baby-and-kids/baby/baby-care/petroleum-jelly-375g
http://www.dealz.ie/baby-and-kids/baby/baby-care/medicated-nappy-cream-125g
http://www.dealz.ie/baby-and-kids/baby/baby-care/johnsons-baby-oil-200ml-100ml-extra-free

the nappy creams can vary, sudocrem has other stuff in it so a direct comparison is not really fair. But petroleum jelly should all be the same. Cheapest vaseline in tesco is €4.49 for 250ml, the dealz is in grams, 375g for €1.50, this is about 440ml in volume so a fraction of the price.

brevity · 16-01-2014 10:56am

Aldi were doing big tubs of nappy rash cream a while back, there might be some still around. I picked up 2 or 3 as they were about 2 euros.

I found it excellent for calming inflamed psoriasis but it can stain clothing.

rubadub · 16-01-2014 2:09pm

wonga77 wrote: »

i somehow managed to scald my leg, just to the side of my shin. I hadnt noticed any hugely visable effects to my p. I was starting to wonder how effective the bulb was, well i got my answer.
I was messing around on the internet and lost track of time, overdid my time by 3 or so minutes.

The timer is essential, I often use 2 timers, my iphone has a countdown timer and last night it was running low and ran out of power, I spotted it, my old phone used to give a few final beeps when turning off but this just turned off and could easily have been missed. It had given a 10% warning so I was on the lookout for it. I would apply sudocrem and/or aloe vera gel to the spot, it might get worse in the coming days.

You need a timer that beeps, I used to watch tv with the teletext clock on the corner of the screen, but you could forget when you started and so not know when to stop, and if you are engrossed in a program you can forget altogether.

I had replied to this post below the other day but it somehow did not go through

wonga77 wrote: »

Tried it today and its really tempting to stay under it for a few minutes as you dont feel any sensation. So il start with 30 ish seconds at a time and see how I get on.

I was saying the bulbs are prescription only in the US, and should be best viewed as prescription drugs. You would not say "sure these pills are tiny, I'll have a few more". I fully agree it is tempting at first as you feel nothing and want to use the "new toy" more, or think the manufacturers/guides were being overly cautious.

You can see instructions here
http://www.beatacne.org/forms/dermalight80.pdf

My bulb has no cover so it could directly contact the skin, this can cause sunburning, not from the heat of the bulb, but you have a greater intensity of light on the skin than if its a few cm away.

Call Me Jimmy · 16-01-2014 2:55pm

So can someone with success with a UVB light recommend one to buy online? I know it could technically be made by myself but I'd rather buy all in one. I just want to be able to get a reputable one, or at least where the bulb is guaranteed uvb?

wonga77 · 16-01-2014 3:09pm

@ Jimmy
http://www.ebay.ie/itm/261275913795

This is the one i bought, i was going to make one up myself but was worried id end up with the wrong fittings, at least this way I knew it would all fit together. Incl postage I think it cost me about 80 yoyo's, so not too bad, I think the bulb on its own can be 30 to 40 euros on its own. I got the correct philips uv bulb that was mentioned earlier in the thread, they threw in a european adaptor plug too which was handy.

@rubadub, yeah I was so careful at the start, i have been using the timer on my iphone but really need something better, as you said its easy lose track of time. I sit at the computer while the lamp is woring away on my legs, i managed to forget myself and overdid the time. It didnt hurt at first but i woke in the middle of the night with a horrible itching sensation. Pretty much the same as your normal sunburn, not nice.
Lesson learned though

Call Me Jimmy · 16-01-2014 3:15pm

So are you saying I should order a bulb separately wonga? Cheers btw

wonga77 · 16-01-2014 5:33pm

no, i got the correct bulb with it, Rubadub linked to it (the correct bulb i mean) somewhere earlier in the thread. What i meant was that to buy a bulb on its own is 30 - 40 euros and finding another suitable lamp was costing me another 50 on top. By buying it through ebay in the link I showed, I got a suitable lamp with flexable arms, the correct bulb, goggles and postage for what I consider to be a good price. Im not sure you would do much better buying the bits and pieces seperately.
Rubadub made a great point earlier when i linked to another light I was looking at http://www.androv-medical.com/product/27/dermfix-1000mx-uv-b-lamp-for-psoriasis--vitiligo-or-eczema
Basically they just call these "medical lamps" and instantly add 100 to the price. Its made up of the same basic components that you can buy yourself for half the cost

rubadub · 16-01-2014 6:21pm

wonga77 wrote: »

Im not sure you would do much better buying the bits and pieces seperately.

Probably not, esp. as you might need to fork out for 3 postage costs.

I think philips are still the only ones making narrowband UVB bulbs. You will see UVB bulbs for reptiles which is not what you want! Some also sell another 9W philips bulb which is UVB but not narrowband, they work but narrowband was always recommended over it on every site & study I saw.

The cheapest bulb I see on ebay is from israel for $50 which includes postage

the same ebay linked seller also has a cheaper model, but I would prefer the previous one as the arm is longer and can be got into more positions

http://www.ebay.com/itm/UVB-Narrowband-311nm-9W-Lamp-arm25cm-VITILIGO-PSORIASIS-PHILIPS-PL-S-9W-01-2P-/261270033096?pt=US_Skin_Care&hash=item3cd4e852c8

my bulb was €50 from the UK, the shop is no longer selling them.

wonga77 wrote: »

Basically they just call these "medical lamps" and instantly add 100 to the price.

And they would be sold in lower volumes than office lights. Some have timers built in so it is turning off the bulb itself, so you are not relying on yourself to do it.

The medical tag is a definite factor though. Scholl, the feet people, sell sodium bicarbonate for deodourising shoes and charge a fortune, this is simple baking soda, go to the baking isle and get it for a fraction of the price. Same goes for antacids, some are just baking soda, or rennies are calcium carbonate, bags of foodgrade calcium carbonate can be got in wine making shops for a fraction of the price.

huskerdu · 17-01-2014 5:35pm

Also, medical devices are subject to very, very rigorous testing, regulatory compliance and certification requirements which seriously pushes up the cost for low volume products.

rubadub · 20-01-2014 11:38am

I have been trying to follow the Pagano diet for about a week and am seeing good improvements. As I said before his book is full of some odd things and I would really like to see the reasoning behind it.

I have been trying to be off anything containing tomato and potato. This rules out loads of stuff. I have not been off fried stuff which he recommends. I have also not given up drinking and drank a lot and had no real bad reaction. I have tried to cut down on wheat a lot too, eating lots of fruit & veg.

This is from the book

If I find early on in my course of treatment that a patient is unwilling to accept the fact that he or she must avoid hard liquor in any form hard liquor in any form, I have no qualms in advising against further treatment.

So if I had been his patient he would have advised against further treatment, even though it seems to be working :rolleyes: Its things like this that annoy me, and some other bits in the book seem very anecdotal.

He is not a dermatologist but a chiropracter which some regard as quacks. He recommends colonics which some also regard as "snake oil".

From reading the book it would seem the alcohol leads to "leaky gut syndrome", so basically irritates and weakens intestinal walls allowing toxins to get into the blood. It is not strongly inferred that alcohol is a toxin that causes psoriasis itself, rather it will weaken the walls. So if I keep drinking the walls maybe weak, but if no toxins are ingested there is nothing bad to transfer across. Now I do think alcohol is certainly not going to be good in anyway, but its stupid to just not try any of the rest. Usually while drinking I might well have gotten a big bag of chipper chips eaten with a load of ketchup, which would be a killer if the theory is to be believed. -extra weakened walls allowing the toxins through.

He has tomato as the number 1 nightshade to avoid, and includes peppers, bell & chilli peppers (black pepper is fine), and potatoes. But there is no quantity said, or relative potency. e.g. I have really strong chilli pepper, so if I add a tiny pinch is that just the same as a tiny pinch of potato flour -i.e. going to do very little but add a lot of taste. In fact he recommends laxative type foods and the hot chilli powder could even be of overall benefit.

brevity · 20-01-2014 12:27pm

rubadub, have you heard of Jason Vale? He's a fairly popular juicing personality who suffered from Psoriasis for a number of years and cleared it all up by juicing. IMO he gives some good reasoning behind the recipes and why you should eat one thing instead of another.

Here is a document on his clear skin programme:
http://c203605.r5.cf1.rackcdn.com/Clear_Skin_Programme.pdf

I've tried some of his juices and they are quite nice, I just need to be a bit stricter with the routine.

With regards to drink, I've found that wine, spirits and certain craft beers drive my skin crazy. Tiger Beer seems to be one of the few beers that doesn't affect it.

After a bad few weeks, I'm going to have cut back on a lot of things. My skin is destroyed from scratching

rubadub · 20-01-2014 2:25pm

brevity wrote: »

rubadub, have you heard of Jason Vale?

Saw his face before alright. Many would think of juicing as a bit of a dodgy science too, just saying eat the stuff.

The guide seems suspiciously like the pagano diet, at first I just thought it was coincidence and just good advice, but one bit did make me think it was copied, this bit

Red Meat (Pork & Beef especially) [SOS]
This also includes all guises they come in, such as hot dogs, burgers, luncheon meat, patés, ham, bacon, etc. Lamb is the only red meat allowed occasionally

Pagano also allowed lamb and gave a few reasons, but I did think it seemed he was on the anti-sat-fat bandwagon -yet then goes on to recommend coconut oil and never mentioned its high sat fat value.

The only specific reason I see him (Vale) give for alcohol is dehydration, and strangely does not recommend drinking more water to counter this, which I do. I also drink baking soda solutions to counter the acidity. I am a heavy drinker and have friends who drink a lot, a few have problems with ulcers and another has psoriasis. I am thinking the leaky gut syndrome is believable, the "stomach ulcer guys" just get it in a different area. Of course the dehydration is another bad effect and can lead to very bad skin cracking.

The brazil nuts was interesting, I was wondering which nut was best, I will check the pagano book, I don't recall seeing the specifically mentioned as beneficial due to zinc & selenium, possibly did say zinc.

brevity · 20-01-2014 3:40pm

I'm beginning to think the same re leaky gut, just have to eat the right foods to help with that. No matter how many creams, moisturisers and ointments I use, I feel that this is definitely an "inside problem".

wonga77 · 20-01-2014 8:22pm

I never bother with the diet stuff,
Sure you cant eat a thing reading that list, tomatoes, potatoes, hot and spicy nightshade foods, Currants,Large Prunes,Plums,Strawberries,Oranges,Lemons,Limes,red meat, dairy, grains, wheat and yeast, crabs, lobsters, mussels, oysters, scallops etc or any smoked, pickled or fried fish,sweets, tobacco, alcohol, orange juice, coffee, carbonated drinks,

Dairy, grains and wheat cover a huge range of foods alone

Jeez there isnt much more to eat

Gael23 · 20-01-2014 8:30pm

Yeah I'm the same with diet, I don't eat crap but my diet is far from perfect. I got a pretty bad flare up over the weekend so I went to GP today and he put me back on strip onager ointment for a while and possibly wants me to see a dermatologist in the next few months because he wants to know more about the long term safety of protopic.

Call Me Jimmy · 20-01-2014 8:55pm

I'm going to order that UVB lamp tonight. Wonga hows it going for you? I shouldn't have the problem of timing or leaving it on too long because I would meditate while it's working away. I take it instructions come with it or do ye just read online?

My skin is actually doing well with hyaluronic acid and apple cider vinegar. I just feel the lamp will really add some extra consistency. I literally do not come in contact with direct sunlight so its bound to have some affect.

Will I Amnt · 20-01-2014 10:38pm

wonga77 wrote: »

I never bother with the diet stuff,
Sure you cant eat a thing reading that list, tomatoes, potatoes, hot and spicy nightshade foods, Currants,Large Prunes,Plums,Strawberries,Oranges,Lemons,Limes,red meat, dairy, grains, wheat and yeast, crabs, lobsters, mussels, oysters, scallops etc or any smoked, pickled or fried fish,sweets, tobacco, alcohol, orange juice, coffee, carbonated drinks,

Dairy, grains and wheat cover a huge range of foods alone

Jeez there isnt much more to eat

I stuck to the Pagano diet religiously for nearly 2 years. Looking back I honestly don't know how I did it. I used to study every label in the supermarket before it went in the trolley, even trace amounts of any "bad" ingredients and they wouldn't make it in.

I was more or less totally clear after a few months and stayed that way for the duration. I'm as sceptical as they come and I kept looking to attribute it to something else but it did work for me, well, to be honest I think it was just not drinking that did it. I started to drink again and it gradually came back, now I haven't been drinking in 4 months and it's gradually clearing up again.
I still avoid the nightshades but I don't think I could ever go through the whole thing so strictly again, I'm naturally slim but I was stick thin by the end of it.

I'd recommend anyone to try it for at least a few months and gradually introduce the things you find it hard to do without.
It does take a monumental effort to do it properly. I never knew I had that discipline in me tbh, I do love my food, although you wouldn't guess by looking at me :pac:

wonga77 · 21-01-2014 1:02am

Call Me Jimmy wrote: »

I'm going to order that UVB lamp tonight. Wonga hows it going for you? I shouldn't have the problem of timing or leaving it on too long because I would meditate while it's working away. I take it instructions come with it or do ye just read online?

My skin is actually doing well with hyaluronic acid and apple cider vinegar. I just feel the lamp will really add some extra consistency. I literally do not come in contact with direct sunlight so its bound to have some affect.

Not going to lie, it's not working as well as I'd hoped, il post a more detailed response in the morning

Amazingfun · 21-01-2014 10:17am

Just an update:

I have psoriasis on my elbows mainly, and scalp. The elbows have completely cleared up since I've been doing the "AIP", and the scalp has calmed as well. Now, as we all know too well, they may return, but for now this is a good result for the protocol. May be worth a shot to some here struggling.

http://www.thepaleomom.com/2012/04/modifying-paleo-to-treat-psoriasis.html

** I am on Day 21

Amazingfun · 21-01-2014 10:24am

By the way, for people saying there isn't much you can eat, I'm afraid that is bollox. I love food, and have weight to lose, but I am almost a stone down in 21 days, although that isn't the point of the protocol, the point is to "heal your gut", etc.

I eat roast chicken, fish, beef, pork, bone broth soups, apples, raspberries, bananas, plantains, a ton of vegetables including gorgeous sweet potatoes, I even make treats with coconut cream, etc. You will never go hungry, it's just getting used to dropping some of the former habitual foods, which for me included a lot of crap, lol.

Anyways, good luck in whatever road you choose.

wonga77 · 21-01-2014 11:36am

Right on the uvb lamp, 21 days in, I think ive missed about 4 nights max due to being out and about. Now im not expecting miracles but I did expect to be making better progress. The p has thinned out but im also using a cream which has worked well for me in the past (magicream, saw someone mention it earlier)
I do each area for 3 minutes max, I dont think its too safe to go much more and i do not want to overdo it, especially after burning myself, which took a good few days to heal. Interestingly the piece of my leg that I burnt has now more or less totally cleared but its not safe and I definately wont be doing that again.
I may try to cut out some foods, I also like my drink so il try give that a skip for a few weeks and see how I go.
I would still recommend the uv light, every person will get different results and you will never know until you give it a try. Like I said earlier, my cousin had a few sessions in a uvb sunbed and it cleared him up completely and he was covered in it.

Btw, there are no instructions with the type I bought, so for me it was a bit trial and error to start with, I did a bit of research on it and found that most recommend to start off slow and find out how your skin reacts as you progress. I started at 30 seconds and was up to 3 minutes in a short time. I wouldnt say Im a pale skin shade though which would probably burn easier, my skin would be used to the sun (whenever we get it)

deadeye187 · 21-01-2014 11:46am

I have plaque psoriasis, its in all the places you would expect to find it. I have tried so many things but what works for me is moisturising twice a day with paraffin gel and using the special cream my dermatologist gave me, I only use this when I need it as I find the Paraffin gel keeps it under control for the most of it.

As I said this works for me and would not work for others, but once I have a drink it will come back super aggressive, leading me to live the quite life! Not a bad compromise.

Psoriasis

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