Advertisement
If you have a new account but are having problems posting or verifying your account, please email us on hello@boards.ie for help. Thanks :)
Hello all! Please ensure that you are posting a new thread or question in the appropriate forum. The Feedback forum is overwhelmed with questions that are having to be moved elsewhere. If you need help to verify your account contact hello@boards.ie
Hi all! We have been experiencing an issue on site where threads have been missing the latest postings. The platform host Vanilla are working on this issue. A workaround that has been used by some is to navigate back from 1 to 10+ pages to re-sync the thread and this will then show the latest posts. Thanks, Mike.
Hi there,
There is an issue with role permissions that is being worked on at the moment.
If you are having trouble with access or permissions on regional forums please post here to get access: https://www.boards.ie/discussion/2058365403/you-do-not-have-permission-for-that#latest

Psoriasis

1121315171871

Comments

  • Registered Users, Registered Users 2 Posts: 32,382 ✭✭✭✭rubadub


    I keep forgetting about the cider vinegar, I even have a bottle already so will try it out.


  • Banned (with Prison Access) Posts: 7,771 ✭✭✭michael999999


    I would agree diet should be looked at. But outside of that, I would just like to repeat that apple cider vinegar mixed with a small bit of water has kept mine under control more than any combination of creams / moisturizers in 5-10 years. I'm using a UV Lamp too because of the damage I've done to my skin in the past through harsh rubbing and putting all sorts of concoctions on it.

    I really can't recommend apple cider vinegar enough, it's even better than manuka honey. I use apple cider vinegar 'with mother', which means it is basically the unfiltered or processed version.

    Again, just wanted to repeat because I don't have to worry about itchiness at all anymore, and the redness is almost completely gone.

    :)

    What do you do with it?


  • Registered Users, Registered Users 2 Posts: 8,449 ✭✭✭Call Me Jimmy


    I just throw AVC into a small container with a bit of water and dab it with a cotton pad then rub it gently on problem areas (around my nose). As I said, redness hasn't completely disappeared but the texture is MUCH better and no itchiness, I rarely have to think about it even.

    There will be an odd sensation for a few seconds but then completely fine.


  • Registered Users, Registered Users 2 Posts: 32,382 ✭✭✭✭rubadub


    he replied before, some also drink it. I have heard drinking vinegar will make the body more alkaline, you might have thought the opposite.
    ryanf1 wrote: »
    Jimmy do you put the apple cider vinegar all over your body?
    Well not at the moment, I put a bit mixed with water in a tub and the rub it on my face and scalp with a cotton pad. I haven't had any problems with it, I also use the hyaluronic acid just rubbed into skin on around my nose. I've managed to keep it under control like this. Years of rubbing and ruining that part my of my face left it pretty damaged so I think the lamp will hopefully be the final cog.

    Edit -beaten to it!


  • Registered Users, Registered Users 2 Posts: 8,449 ✭✭✭Call Me Jimmy


    From what I've read rubadub you're correct re: alkalising effect.

    For me I drink ACV and freshly squeezed lemon juice in a glass of water every morning and it has a great effect on my body, especially my digestive system. If I don't drink it for a couple of days I have noticed myself feeling slower overall and more bloated for want of a better word.


  • Registered Users, Registered Users 2 Posts: 32,382 ✭✭✭✭rubadub


    I was drinking it before, I sort of did it like a tequila, I would lash down a shot glass and instead of lemon I would just drink water right after it to wash off any taste. Though its not really that bad tasting.


  • Registered Users Posts: 311 ✭✭LottieP25


    Thanks for all the replies folks.

    I've been referred to a specialist as of today , and he put me on steroid tablets in the meantime as he said it's bad enough to warrent them atm.

    Will definitely try the vinegar. Thanks so much.


  • Registered Users, Registered Users 2 Posts: 8,449 ✭✭✭Call Me Jimmy


    Let us know how ye get on with the steroid tablets, was always interested to hear if they actually worked.


  • Registered Users Posts: 311 ✭✭LottieP25


    Will do :)


  • Banned (with Prison Access) Posts: 7,771 ✭✭✭michael999999


    Let us know how ye get on with the steroid tablets, was always interested to hear if they actually worked.

    They always cleared mine. But I'd just be worried about using them every time there was a flare up.


  • Advertisement
  • Registered Users, Registered Users 2 Posts: 10 sneakysimon


    steroids creams do work but for a while ie. dovabet dovanex the only way I found to clear it up 100% is light treatment at saint james hos in dublin. You can buy the uvb lights off the internet but if you are going to do this be very carefull with them as if you leave them on you 10 seconds to much the will give you really bad burns


  • Closed Accounts Posts: 556 ✭✭✭sligoface


    I sincerely believe stress and diet are the two main culprits. Mine goes crazy if I drink, which sucks because I love beer. Also goes bad if I am stressed or not sleeping enough.

    I really think the diet outlined in Dr. Pagano's book will cure most cases but most people just can't stick to it. Usually only when it becomes utterly unbearable and you get truly desperate for relief will you be willing to cut out pizza, beer, sugar, fried foods,etc. It is hard because you feel like you can't enjoy your life the way you want and the way others can. Also it takes a bit more time and money to eat healthier. But you can't enjoy life when your skin is red, sore, itchy and flaking off so I think it is worth it. Even if you can't stick to it completely his book is well worth a read. Someone earlier was asking what the reasoning is behind te dietary restrictions, in a nutshell it is about avoiding foods which cause an acid reaction im your body and keeping toxins out of your system which is compromised by leaky gut, thinned intestinal walls.

    As posted earlier, I find baths with epsom salts and dead sea salts to give great relief from flare ups, and I have a home UVB lamp I paid a lot of money for but people on here have posted much cheaper ways to put one together. Between that and the diet I had cleared it up considerably. Of course then I went back to old habits and it came back. Alcohol really flares it up and it can be very hard to avoid in Ireland especially. When my skin finally looks and feels good I want to go out and socialize and then I end up in a bad way again, it's like your skin gets a hangover that lasts for ages!

    Back on the diet and a sober Paddy's for me!


  • Banned (with Prison Access) Posts: 7,771 ✭✭✭michael999999


    rubadub wrote: »
    I keep forgetting about the cider vinegar, I even have a bottle already so will try it out.

    Stupid question here, but would cider vinegar do. Or does it have to be apple cider vinegar?


  • Registered Users, Registered Users 2 Posts: 12,123 ✭✭✭✭Gael23


    Steroid Tablets are only a very short term solution but for you I think it is appropriate. After that you should be able to tackle it with the Dovobet.
    The uv therapy does work but it's 3 sessions a week and I'm not in a position to do that at the moment.
    Been using dovobet and dovonex combined for close to a year now with great results.


  • Registered Users Posts: 311 ✭✭LottieP25


    Yeah I wouldnt like to take them long term anyways, due to side effects and what not, but its definitely warranted at the moment. Im on them for the next two weeks, so will see how it is after that.


  • Registered Users, Registered Users 2 Posts: 32,382 ✭✭✭✭rubadub


    You can buy the uvb lights off the internet but if you are going to do this be very carefull with them as if you leave them on you 10 seconds to much the will give you really bad burns
    Timers are essential, some one posted before about getting burned in the hospital too. In the beginning you have to be very careful. I am up to 5mins on one patch I have, so 10 seconds more would not be much more % wise. In the beginning you are treating for 20 or 30seconds, so 10seconds more is indeed a huge amount more.
    sligoface wrote: »
    Someone earlier was asking what the reasoning is behind te dietary restrictions, in a nutshell it is about avoiding foods which cause an acid reaction im your body and keeping toxins out of your system which is compromised by leaky gut, thinned intestinal walls.
    This may have been me, but I was trying to understand the reasoning behind his guidelines. He is totally against frying, but allows baking, no chemical or physical explanation is given. If he is against browning then you could be frying very gently, or baking until it is gone totally brown, so by not giving the true reasoning people might be inadvertently doing it wrong (i.e. overbrowning in an oven), or could be unnecessarily changing their cooking habits, e.g very gentle heat frying could be fine.
    Stupid question here, but would cider vinegar do. Or does it have to be apple cider vinegar?
    Cider will be made from apples unless otherwise stated, so any cider vinegar you typically get will be apple cider vinegar. Technically you can make ciders made from other fruits, but it would say it, I don't think I have ever seen it. Dunno if normal vinegar would work, it is basically acetic acid at the end of the day, dunno what extra effect the apple gives, smells nicer than chipper vinegar anyway!


  • Registered Users, Registered Users 2 Posts: 6,700 ✭✭✭Mountainsandh


    LottieP25 wrote: »
    Yeah I wouldnt like to take them long term anyways, due to side effects and what not, but its definitely warranted at the moment. Im on them for the next two weeks, so will see how it is after that.

    Lucky you, I'd love to do another course of oral steroids, apart from puvatherapy and Uvbs without tablets, they are the single most effective treatment I have ever had for the psoriasis. (haven't tried methotrexate and don't really want to)

    I was prescribed them for psoriatic arthritis symptoms, but they had great effect on the skin pso too. And it was only 2 weeks treatment too !
    The clearing of skin (not total of course, but great great improvement) lasted longer than with light therapy too, but strangely, it doesn't seem to be the case that it automatically clears skin for everyone either.

    I suppose mine is just that intimately linked to inflammation.

    Skin pso is bad enough at the moment (usual winter serious flare) to warrant something being done, but I am saving myself for treatment if and when arthritic symptoms flare up too, they're not too bad luckily right now.

    Going to get apple cider vinegar today if I can find some, that'll be nice for scalp for a change from tar (so hard to find now).

    It would be nice if it could tame down inflammation on hands, they're just killing me right now, this is the time of year when my skin is so vulnerable the least wind, cold, dry air, slight bumping or even brushing against anything (wall, furniture, objects) makes me bleed or breaks the skin into painful crevasses.


  • Registered Users Posts: 311 ✭✭LottieP25


    Yeah in noticing the difference already, I can lift my arms today with less pain. So was able to go to work which is a bonus.

    Colour wise it's no longer an very very vey angry red colour, it more an angry pink colour.

    Tbh I'm beginning to think that maybe stress does play a huge factor, cause I was so stressed all week about it and calmed down after visiting the doctor yesterday when I got the tablets. So maybe there's a connection - I doubt the tablets can be this fast working


  • Registered Users, Registered Users 2 Posts: 12,123 ✭✭✭✭Gael23


    Stress does without doubt make it worse but those steroids should work quickly. When you finish them I would give the creams another go to keep it down as much as possible.


  • Advertisement
  • Registered Users, Registered Users 2 Posts: 6,700 ✭✭✭Mountainsandh


    I don't believe in the stress link very much. Hardly, in fact.
    I think maybe the connection might be that if you're more stressed out, you might be more prone to inflammation ? don't know.

    It's the steroids working already imo, when my kids had asthma attacks previously, I was told by the gp, and I was able to see for myself, how quick the effects were. Within a few hours there was a significant improvement.

    Don't know if any of you read the Inspire site ?
    It is a discussion forum exclusively for psoriasis sufferers and family, but it does branch out into other things too.
    It's American initially, so a lot of very heavy meds, very extreme diets and hyperbolic miracle cures, etc... but I keep an eye on it, to keep up to date with possible trials and solutions.

    I was reading this discussion tonight, this fellow reckons pso is connected to the production/reaction to antioxidants. Don't really understand the ins and outs of it, but he advocates a three pronged approach :
    ~black seed oil
    ~5-Loxin (Boswellia)
    ~ Heparin

    I would be a bit weary of the heparin, which is an anti-coagulant, but it is available over the counter for vein problems, hematomas, etc... so I would chance it, sparingly, for my part.

    I think I'm going to try this. Black seed oil is a bit expensive, so I have to wait a bit to start, but I think it's worth giving it a go.

    Interestingly too, I think one person in the discussion, or someone in one of the links, recommends the use of apple cider vinegar too.

    http://www.inspire.com/groups/talk-psoriasis/discussion/three-pronged-approach-to-ridding-yourself-of-psoriasis-forever/?reply_sort=asc&page=3#replies

    Anyone tried that 3 pronged approach before ?


  • Registered Users, Registered Users 2 Posts: 8,449 ✭✭✭Call Me Jimmy


    I think stress is a factor but just a small one, as stress has negative chemical impacts on the body, so if you're predisposed to inflammation I think it does get effected (minimally) by stress.

    What I would say is that when the stress has a cyclical relationship with flare-ups, i.e. you flare up and get stressed because it's always a horrible feeling, for me, that induces panic 'treating' which often used to do more harm then good. Ye know when you're like 'what'll I try?' maybe i'll throw on a load of this cream, wash my face with that stuff, and generally just piss it off.


  • Registered Users, Registered Users 2 Posts: 6,700 ✭✭✭Mountainsandh


    I know what you're saying, but it's not my experience.

    Well, it was at first, for a while. But now more than 20 years on, to be honest, I don't give much of a toss about the pso most of the time, other than the sheer discomfort and sometimes pain of it.

    This thing is there no matter what I do, and although I am very lucky I don't have it on my face (touching wood), it is very visible since the tops of my hands (not palm side) is sometimes completely covered. At the moment after the steroids last summer, only one hand is about 80% covered, the other maybe 50%.
    I have it on legs, feet, drops on back and here and there anywhere, and my arms are pretty bad, especially the area closer to the hands, the wrists, so again very visible (don't care too much about elbows and up until the summer). Oh, and the ears, very visible on the ears.

    So really, when I have a flare up, other than being in pain since the skin is so vulnerable, I don't stress about it, but the cycle of flare ups continues.

    I have a job that's a bit "public", but when the need arises I just explain to my audience what psoriasis is, and that they're not burns, since that's what people usually think it is, when I am moisturising and very inflamed.

    I do get stressed out at my job, but again, no link that I can draw there from years back (more than 12 years in that job).

    I have had stressful, upsetting events in my life, and again, have not been able to draw a link.

    I can definitely draw a link with alcohol, that's the only sure thing with my pso. Can't draw link to diet either, other than I have much better skin (not clearing) when I eat an avocado a day, I sometimes do for a while then stop.

    It's just my experience.
    But yeah, I do think stress has a general chemical effect on the body, so then I suppose by ricochet, it might have some impact.

    I do think various oils taken internally can have a beneficial effect on skin, and reduce inflammation a bit, that's why I'm interested in that black seed oil.

    There seems to be a good few conspiracy theorists on Inspire, I don't really go for that myself, but I do find it strange that there is so very little progress in research.


  • Registered Users, Registered Users 2 Posts: 8,449 ✭✭✭Call Me Jimmy


    As a veteran you've probably tried all sorts but for the pain alone, have you tried apple cider vinegar? I 100% would ask you to try it, I am completely pain free.

    Point taken on stress, when I have not been stressed it has been bad too.


  • Registered Users, Registered Users 2 Posts: 12,123 ✭✭✭✭Gael23


    I do believe that there is a link with stress as whenever I have exams at college or something on my mind I always get a flare up. I'm not suggesting it is the only trigger but I think it is one of many.
    As for the heparin that mountainsandh mentions, I wouldn't take that without a doctors advice.


  • Registered Users, Registered Users 2 Posts: 166,026 ✭✭✭✭LegacyUser


    Hi,

    Could i recommend Udos 8 probiotics to the girl (or anyone) who takes a lot of antibiotics. It replaces the good bacteria necessary for a healthy bowel and immune system and stops leaky gut as well. I've been taking them for years as needed and they do help with the Psoiasis.

    I have it on my face and used Laroche Posay cream cleanser if that's any help to anyone

    and finally, a word of warning on Heparin - i have to take it every few years for clots and you are injected in the stomach - i do this myself now as i'm not squeamish and i'm well used to it and it has some serious side-effects. And i was not aware that it has gone non-prescription?!!

    Great thread - i spent ages reading it all the other night.

    PS I also this year started taking vit d3 tablets as i read that in out hemisphere, the angle of the sun means we get not vit d from october to april every year and i react to the lamps. There has been a noticeable improvement.

    HTH someone


  • Advertisement
  • Registered Users, Registered Users 2 Posts: 4,456 ✭✭✭wonga77


    The lamp im using is not working as well as I had planned. I have no doubt it works but im finding it very hard to find the time to do each area evenly during the day. I think i need a bigger lamp which covers more of an area and is less time consuming seen as i have spots dotted all over the place.
    Just a quick question for those of you affected, Have ye had it since a young age or is it a more recent thing?
    Ive had patches on my elbows for as long as i can remember, going back to 11-12 years old anyway, (thats my first memory of it being questioned by others)
    In recent years it has got much worse, I worked in England for a spell 5 years ago and it deffo got alot worse during that time, I think it was the water which used to really dry my skin out


  • Registered Users Posts: 311 ✭✭LottieP25


    wonga77 wrote: »
    The lamp im using is not working as well as I had planned. I have no doubt it works but im finding it very hard to find the time to do each area evenly during the day. I think i need a bigger lamp which covers more of an area and is less time consuming seen as i have spots dotted all over the place.
    Just a quick question for those of you affected, Have ye had it since a young age or is it a more recent thing?
    Ive had patches on my elbows for as long as i can remember, going back to 11-12 years old anyway, (thats my first memory of it being questioned by others)
    In recent years it has got much worse, I worked in England for a spell 5 years ago and it deffo got alot worse during that time, I think it was the water which used to really dry my skin out


    Did get it until about ten years ago. It's isolated to my arm pits 100% coverage there. And down the sides a bit. Hoping it doesn't spread but atm it's looking like it is a bit


  • Closed Accounts Posts: 556 ✭✭✭sligoface


    wonga77 wrote: »
    The lamp im using is not working as well as I had planned. I have no doubt it works but im finding it very hard to find the time to do each area evenly during the day. I think i need a bigger lamp which covers more of an area and is less time consuming seen as i have spots dotted all over the place.
    Just a quick question for those of you affected, Have ye had it since a young age or is it a more recent thing?
    Ive had patches on my elbows for as long as i can remember, going back to 11-12 years old anyway, (thats my first memory of it being questioned by others)
    In recent years it has got much worse, I worked in England for a spell 5 years ago and it deffo got alot worse during that time, I think it was the water which used to really dry my skin out

    For the elbows where patches can get really thick I find baths in dead sea salts will soften it up, gently exoliate as much of the plaque as ypou can without pain with your fingertips (not nails) or a loofah pad and then moisturize, let dry, use the lamp, moisturize again and lock in the moisture with vaseline or there is an ointment you can get at holland and barrett that is sort of the consistency of vaseline, a little less thick, but is made with dead sea minerals. Iis a bit dear but is really good for dry flaky skin conditions, it's in a blue and white bottle called dead sea spa or something similar. Cleared big thick patches for me.


  • Registered Users Posts: 40 Anomic


    Anyone on Enbrel & Salazopyrin combo for Psoriatic Arthritis ? Just looking for some info, starting in the next few weeks. ta.


  • Registered Users, Registered Users 2 Posts: 32,382 ✭✭✭✭rubadub


    wonga77 wrote: »
    The lamp im using is not working as well as I had planned. I have no doubt it works but im finding it very hard to find the time to do each area evenly during the day. I think i need a bigger lamp which covers more of an area and is less time consuming seen as i have spots dotted all over the place.
    I would use the lamp 3 times a week max, usually only once. I set my timers and just watch TV using it. The hospitals only usually do 3 times a week max too, if you consider the time taken to commute to & from a hospital it does not seem that bad.

    The reasons against the bigger lamp is that you may be unnecessarily exposing yourself to the UVB, which some worry about cancer risk. After reading many studies myself I am personally not worried about it, there are benefits to the extra vitamin D that would be produced from additional exposure, so its not all bad. The bigger lamps cost more of course. I did consider getting 1 or 2 more small bulbs to treat more places at one.

    With a larger lamp if you were concerned about over exposure you could possibly use sunblock or a physical barrier to stop the rays. e.g. if you had 2 patches fairly close on your leg you could have a bit of card board with holes cutout where the spots are, now hold this in place, maybe with a sweatband.

    I have wondered if the actual spots can cope with more UVB treatment than the surrounding area. i.e. I might have a spot which has 4mins max, after which the surrounding area becomes sunburnt, but if I had used sunscreen on those surrounding areas could I possibly have safely gone to say 5mins on the actual spot that needs treatment.

    I am currently using lidl "sos hand concentrate" moisturizer and find it nice to apply, and not too noticeably shiny/liquidy when applied to skin. It appears to be a cheap version of that neutrogena hand cream. It is high in glycerine.

    Just looking for a picture now & I see similar comments to mine

    Cien+SOS+Lidl+hand+cream.JPG
    The Lidl book (stop pretending you don’t love reading this on a Sunday) says Cien SOS hand cream concentrate is every bit as good as Neutrogena, but at less than half the price.

    So off I traipsed to the German everything-market where I shelled out £1.25 for 75ml of this. It’s a really thick balm that absorbs really quickly.

    It doesn’t leave my hands feeling greasy or slimy and although I haven’t done the print test yet, I don’t think it’s something that’s going to leave my hands covered in newspaper print.

    Once again, it will live beside my bed. I put it on last night going to bed and it felt like a barrier protecting my hands, but also making any sad rough bits disappear.

    I’m converted!


  • Advertisement
  • Registered Users, Registered Users 2 Posts: 8,589 ✭✭✭brevity


    Just on the lidl cream, Aldi have a bunch of stuff coming up that might be helpful, I'll definitely be adding them to my substantial collection of moisturisers.

    https://www.aldi.ie/en/specialbuys/sunday-16th-march/products-detail-page/ps/p/seaweed-body-lotion/
    https://www.aldi.ie/en/specialbuys/sunday-16th-march/products-detail-page/ps/p/seaweed-face-cream/
    https://www.aldi.ie/en/specialbuys/sunday-16th-march/products-detail-page/ps/p/shea-butter-hand-cream/

    I've used products like these before and find them quite good.


  • Registered Users, Registered Users 2 Posts: 12,123 ✭✭✭✭Gael23


    I would be nervous using anyrhing from Lidl on my skin even though its probably fine


  • Registered Users, Registered Users 2 Posts: 5,490 ✭✭✭stefanovich


    I spent a couple of weeks this winter in the French alps. I noticed my skin improved considerably. Also happened the last time I was there. Trying to figure out what change caused the improvement.
    The cold? The altitude? (I was staying 2km above sea level). The water, I was showering in and drinking spring water. Exercise? Lots of skiing and sweating. The food? Lots of cheese and dairy. Also I was taking a spoon of pollen every morning.


  • Registered Users, Registered Users 2 Posts: 4,456 ✭✭✭wonga77


    I spent a couple of weeks this winter in the French alps. I noticed my skin improved considerably. Also happened the last time I was there. Trying to figure out what change caused the improvement.
    The cold? The altitude? (I was staying 2km above sea level). The water, I was showering in and drinking spring water. Exercise? Lots of skiing and sweating. The food? Lots of cheese and dairy. Also I was taking a spoon of pollen every morning.

    I had to use the cryotheraphy center in wexford a few years back for a sports related injury. That involved walking around a chamber at temperatures of -100 or something silly like that. My pso was exposed and it disappeared for a while after, nothing long lasting mind but it did have a positive effect on it.


  • Registered Users Posts: 311 ✭✭LottieP25


    Just a quick update if anyone is interested.

    On the steroid tablets over a week, with little or no improvement from them. Constantly feeling sick!

    However, I was advised to try out the following cream

    http://www.boots.ie/en/Boots-Baby-Zinc-Castor-Oil-Cream-1-x-250ml_924158/

    I put it on little over 24 hours ago for the 1st time and I can now move my arms with little or no pain, and the colour of the psoriasis is gone the closest it been to my natural skin colour in years. Very happy I must say. Now I know its not a long term fix but for right now its pretty great!


  • Registered Users, Registered Users 2 Posts: 12,123 ✭✭✭✭Gael23


    This morning I found out that my GP who has been fantastic to me, has left the practice. I'm so stressed at the minute I can feel the plaques starting to come out on my skin.
    I know that I'm on a plan now so I just have to follow it but as we all know sometimes things change and you need to do different things. As in quite recently I got itching that I couldn't control and all it took was a quick phone call to him and he told me to use a different cream, and again any doctor can do that. But he was probably the best doctor I've been to,ever, not just since I've had psoriasis and above all he was such a nice person. I got a bad flare up a while back because I was dealing with some personal things and he was someone I could talk to about that so really I'm not sure what I'm going to do without that.
    Sorry for this being more of a vent but today hasn't been a good day.


  • Registered Users, Registered Users 2 Posts: 32,382 ✭✭✭✭rubadub


    LottieP25 wrote: »
    The castor oil is what makes it so thick.

    I was saying this about it before
    rubadub wrote: »
    I am using these armband type things on my arm & leg, like sweat bands, you can apply cream and then a plastic film on top and the armband on top of it to hold it on all day and they don't budge.
    In the morning the oil is still there on the skin, with other oils its usually all gone/absorbed.

    Also my removal methods for the white zinc oxide creams.
    rubadub wrote: »
    I would have a small bag on my head and sleep with it on. I have a sheet of rubber than a wipe/scrape if off with, like a windscreen wiper. I have used a credit card loyalty card thing too, which is flexible. Then you still have some remaining. To get this off you can wipe on cooking vegetable oil or baby oil, this blends into the sudocreme, water does not readily mix. Then you can scrape off the newly applied layer, and if needed you could do the process again, mix in new oil on the now diluted sudocrem. Then I would have shower and most comes out, I have a shaved head though and going grey so if some is left its not noticeable, which is handy, the whiteness sort of acts like makeup covering the redness so even though its actually white it looks normal colour on top of the red.


  • Registered Users, Registered Users 2 Posts: 6,700 ✭✭✭Mountainsandh


    ryanf1 wrote: »
    This morning I found out that my GP who has been fantastic to me, has left the practice. I'm so stressed at the minute I can feel the plaques starting to come out on my skin.
    I know that I'm on a plan now so I just have to follow it but as we all know sometimes things change and you need to do different things. As in quite recently I got itching that I couldn't control and all it took was a quick phone call to him and he told me to use a different cream, and again any doctor can do that. But he was probably the best doctor I've been to,ever, not just since I've had psoriasis and above all he was such a nice person. I got a bad flare up a while back because I was dealing with some personal things and he was someone I could talk to about that so really I'm not sure what I'm going to do without that.
    Sorry for this being more of a vent but today hasn't been a good day.
    I have a great GP too, so I understand how you feel, but mine is so busy, it was becoming impossible to see him, so I have gradually moved to another in the same practice. Presumably your new GP, if in the same practice, will have all your notes on computer, so as regards treatment I'm sure you'll be fine. Hope you'll get on with him/her, it is important. I don't see my GP that often, but when I do, I like to have someone I feel comfortable with.
    Hang in there, it will be fine, you never know, that new person might have new, successful ideas.

    Stefanovitch, if you exposed yourself, would it simply have been the UVs being stronger in thinner air ?

    Wonga77, I've had mine since I'm 17 I think, it was only little dry patches on the elbows at the start. I'm 40 now.



    I like the zinc/castor oil cream too, once in a while, it helps when there are crevasses or raw spots like at the moment. I use epaderm at the moment, 500mg pump bottle, chemist suggested it as they just had it in for the son's eczema, usual glycerin paraffin ingredients, emollient and skin cleansing, great stuff, and not bad value, I think it was maybe 15 euros for the 500g bottle, that's still going strong ages after, and I plaster it all over son's body every evening.

    I'd use anything, I've no problem using lidl stuff, when the basic ingredients are so simple, like paraffin etc... why not ? The only chance you'd be taking is if there was a lot of alcohol or something in it, which you'd quickly find out. (I know straight away if there's too much alcohol in an ointment on my hands).


  • Registered Users, Registered Users 2 Posts: 8,589 ✭✭✭brevity


    I'd use anything, I've no problem using lidl stuff, when the basic ingredients are so simple, like paraffin etc... why not ? The only chance you'd be taking is if there was a lot of alcohol or something in it, which you'd quickly find out. (I know straight away if there's too much alcohol in an ointment on my hands).

    I'm the same. The flat is full of tubs and tubes of ointments and creams. Some really help like the Nappy Cream that turns up every so often in Aldi. Some do nothing at all.


  • Registered Users, Registered Users 2 Posts: 12,123 ✭✭✭✭Gael23


    I have a great GP too, so I understand how you feel, but mine is so busy, it was becoming impossible to see him, so I have gradually moved to another in the same practice. Presumably your new GP, if in the same practice, will have all your notes on computer, so as regards treatment I'm sure you'll be fine. Hope you'll get on with him/her, it is important. I don't see my GP that often, but when I do, I like to have someone I feel comfortable with.

    I know your right but I just got such a shock and I still haven't fully calmed down. I wouldn't know only I've been sick with a kidney infection the past few days so went in there today. Most of my visits relate to my psoriasis were planned at 3 monthly intervals so I would always book in advance to be sure I would get him. There is another doctor there but I'm just worried that he will mess around with my medications that work so well for me.
    The doctor I was going to had great ideas, that's why I'm so wound up over it. Up to a year a go I was just using a firefighting approach applying Dovobet when I had a flare up but this man showed me a way of keeping it under control so it never gets to a bad flare up by using Dovonex and also put me in this amazing cream for my face.
    I had been seeing him every 3 months so fairly often but he asked me to do that. I know I'm wound up today and in a few days time I'll have calmed down!


  • Advertisement
  • Registered Users, Registered Users 2 Posts: 6,700 ✭✭✭Mountainsandh


    This French hand cream is gorgeous if you ever go to France. It's on the greasy side, but that doesn't last too long, and the feeling is luxurious. It's got allantoine (for the nails) in it.
    http://www.testsdeproduits.fr/application/product/view/creme-pour-les-mains-a-lallantoine-mixa


  • Registered Users Posts: 311 ✭✭LottieP25


    Would ya not try and find out where he is gone to? If it was me and I found someone that worked for me I would follow them


  • Registered Users, Registered Users 2 Posts: 12,123 ✭✭✭✭Gael23


    LottieP25 wrote: »
    Would ya not try and find out where he is gone to? If it was me and I found someone that worked for me I would follow them

    I will try but I've got this bad feeling that it's not somewhere nearby. If it is then I would absolutely look into moving with him.
    EDIT: Someone said to me today that he's relocating back to Limerick where he came from.
    I've got knots in my stomach. I guess it just shows nobody has any loyalty to you these days


  • Registered Users, Registered Users 2 Posts: 373 ✭✭ShortskirtCiara


    Hey Guys!

    Has anyone been using any shampoos lately that prove to work? I've been using Moogoo Milk Shampoo for the past 2 years but moved to Toronto & they don't seem to sell it here yet. I want something similar that will work just as well as my psoriasis is really starting to flare up on my scalp these days. I don't want to use the tar shampoos as they have a really strong, potent smell. Any suggestions?


  • Registered Users, Registered Users 2 Posts: 12,123 ✭✭✭✭Gael23


    Hey Guys!

    Has anyone been using any shampoos lately that prove to work? I've been using Moogoo Milk Shampoo for the past 2 years but moved to Toronto & they don't seem to sell it here yet. I want something similar that will work just as well as my psoriasis is really starting to flare up on my scalp these days. I don't want to use the tar shampoos as they have a really strong, potent smell. Any suggestions?
    First thing I will say about specialised washes and shampoos is that some of them are ridiculously expensive and they don't always work.
    I use a prescription Shampoo called Stieprox on my scalp. I probably don't absolutely need to but been using it for years now, I have a medical card so not sure how much it costs otherwise.


  • Registered Users, Registered Users 2 Posts: 8,449 ✭✭✭Call Me Jimmy


    Just got the baby zinc and castor oil today and it is very good. It seems like sudocreme at first but sudocreme doesn't absorb for me, this stuff almost completely absorbs and doesn't leave skin feeling too wet or oily.

    Very good imo.


  • Registered Users, Registered Users 2 Posts: 32,382 ✭✭✭✭rubadub


    Sudocreme is like paint! you can mix it with vaseline or oils to dilute it down. I use cooking vegetable oil to get it off my skin or hair, you just apply oil and massage it and it dilutes, you might have to repeat it a few times to be rid of it.

    Tesco do a zinc nappy cream which is more dilute than sudocreme, and a fair bit cheaper.

    Most of the tar shampoos are not really for cleaning hair, they are just treatments that are lathered into the hair, you can probably not get them now anyway due to the worldwide shortage of coal tar product.


  • Registered Users, Registered Users 2 Posts: 454 ✭✭DonFred


    Hi, where did you buy the baby zine and castor oil? thanks


  • Registered Users, Registered Users 2 Posts: 8,449 ✭✭✭Call Me Jimmy


    Got it in boots in swords meself. The one I got is a boots product so have a look, ye can order online too I think but I had problems with the address options.


  • Advertisement
  • Registered Users, Registered Users 2 Posts: 12,123 ✭✭✭✭Gael23


    Are you still using the hyaluronic acid Jimmy?


Advertisement