Gluten intolerance in Non Coeliacs May not exist

Timmyctc · 16-05-2014 12:43AM #1

So apparently Professor Peter Gibson, who actually headed the initial research into Non-Celiac Gluten Intolerance in 2011, was unhappy with its results and has just recently finished a second study into the above and has found that it may in fact, not exist.

As someone who works with food products and often deal with Coeliacs and those non-Ceoliacs who 'reliably' inform me if they so much as sit next to someone eating a dish with gluten in it their 'intolerance' flares up tenfold I would love this to silence some of the more vocal about their apparent non-issue.

Linkz
Science yo'

What does AH think sure?

Jonny Blaze · 16-05-2014 12:49AM

Is this meant to be a revelation? You'll be telling us that ADHD doesn't exist next and that in fact those kids are just suger loaded little ****s!

hatrickpatrick · 16-05-2014 12:54AM

I'm a little confused - does this mean that all those people who claim to feel better, have better digestion, and various other improvements from going gluten free are all actually experiencing a massive placebo effect and nothing more?

shruikan2553 · 16-05-2014 12:56AM

I saw a great video before, they asked people if they have a gluten free diet and then asked them what gluten was. As you can imagine wheat and stuff was as much as they answered.

Timmyctc · 16-05-2014 01:01AM

hatrickpatrick wrote: »

I'm a little confused - does this mean that all those people who claim to feel better, have better digestion, and various other improvements from going gluten free are all actually experiencing a massive placebo effect and nothing more?

I really want to see the people who quoted the earlier research when pressed for their "condition"

Props to mah Coeliac homies keeping it real with an actual illness

The worst was when I was informed that I couldn't give someone with "Gluten Intolerance" any confectionery with a Gluten content of 20ppm (parts per million) Despite the international regulation stating anything 20ppm or less is "LEGALLY GLUTEN FREE" and that 20ppm was far too high or them and their condition would flare up if they were t a restaurant and someone at the next table ordered a meal with Wheat in it.

I have since printed the legislation RE: such and I brandish it openly to anyone with this "condition"

_Redzer_ · 16-05-2014 01:03AM

Seems like everyone who goes to the doctors with an upset stomach comes out with a gluten intolerance these days

Wishiwasa Littlebitaller · 16-05-2014 01:05AM

Gluten is just a term for things that are bad for you. Like calories or fat, that's all gluten.

hatrickpatrick · 16-05-2014 01:05AM

_Redzer_ wrote: »

Seems like everyone who goes to the doctors with an upset stomach comes out with a gluten intolerance these days

That's what I'm asking though, if they feel better following a change to a gluten free diet, is it purely a placebo effect they're experiencing, or is there something else (apart from gluten) in non gluten-free food which is causing them digestive problems?

kneemos · 16-05-2014 01:11AM

Sorry I'm having trouble with the title.

porsche959 · 16-05-2014 01:11AM

Timmyctc wrote: »

I really want to see the people who quoted the earlier research when pressed for their "condition"

Props to mah Coeliac homies keeping it real with an actual illness

The worst was when I was informed that I couldn't give someone with "Gluten Intolerance" any confectionery with a Gluten content of 20ppm (parts per million) Despite the international regulation stating anything 20ppm or less is "LEGALLY GLUTEN FREE" and that 20ppm was far too high or them and their condition would flare up if they were t a restaurant and someone at the next table ordered a meal with Wheat in it.

I have since printed the legislation RE: such and I brandish it openly to anyone with this "condition"

Talk about shooting yourself in the foot!

You obviously believe non-celiac gluten intolerance is a fad. You're wrong, but if that's your belief, fine. But the point is, the more people that pursue gluten-free diets, the more demand for gluten free products is created, thus driving down prices and creating more variety - which benefits celiacs.

BearBanjer · 16-05-2014 01:12AM

hatrickpatrick wrote: »

I'm a little confused - does this mean that all those people who claim to feel better, have better digestion, and various other improvements from going gluten free are all actually experiencing a massive placebo effect and nothing more?

Part of it I'd say.

Another part of it is that their obviously taking in better food - plenty of vegetables etc. Now, if they were to continue that and have some wheat or gluten - just less than before - I'm sure their 'intolerance' would magically disappear.

I did/am. I still eat grains and gluten, just less and tons of veg. All it means is I was eating too much of one thing.

Of course there are some actual cases, but nowhere near the amount some would have you believe. It's like some people want to be gluten intolerant so they can shout it from the rooftops.

wendell borton · 16-05-2014 01:13AM

I should to to bed, thought this was a thread about garda intolerance of non Catholics.

Timmyctc · 16-05-2014 01:14AM

porsche959 wrote: »

Talk about shooting yourself in the foot!

You obviously believe non-celiac gluten intolerance is a fad. You're wrong, but if that's your belief, fine. But the point is, the more people that pursue gluten-free diets, the more demand for gluten free products is created, thus driving down prices and creating more variety - which benefits celiacs.

So you think that their condition flares up if someone in the vicinity is eating wheat?

According to the research non-coeliac gluten intolerance may not exist. So call it what you want, but don't call it true

porsche959 · 16-05-2014 01:15AM

Timmyctc wrote: »

So you think that their condition flares up if someone in the vicinity is eating wheat?

????

Timmyctc · 16-05-2014 01:17AM

porsche959 wrote: »

????

My gripe was with being told this is the case by a sufferer of Non Coeliac Gluten intolerance. You quoted my post on such and called me out on that. Now we're here.

38Flowers · 16-05-2014 01:19AM

Read Grain Brain by Dr. David Perlmutter, US neurologist

Davarus Walrus · 16-05-2014 01:19AM

It's the same type of pox research that made people stop eating eggs for breakfast.

And it's the same type of scientific woo that has people following braindead paleo diets.

There will always be a Doctor - who got their award cheaply - ready to put their name to some new piece of 'ground-breaking' research about diet.

suicide_circus · 16-05-2014 03:33AM

Gluten is like kryptonite to tossers

Adamantium · 16-05-2014 07:10AM

This thread is making me come out in a rash.

Wompa1 · 16-05-2014 07:25AM

I'll reserve judgement until his third study....

It's fairly unreal that people can make money from research studies that go in circles. There's studies to discredit other studies and everybody's getting paid...the beauty is, if you have a hypothesis and enough know how. You can make the data represent whatever it is you want to prove

Cazzoenorme · 16-05-2014 08:06AM

Grains are harmful as far as I'm concerned.

Seaneh · 16-05-2014 08:23AM

werewookiee wrote: »

Part of it I'd say.

Another part of it is that their obviously taking in better food - plenty of vegetables etc. Now, if they were to continue that and have some wheat or gluten - just less than before - I'm sure their 'intolerance' would magically disappear.

I did/am. I still eat grains and gluten, just less and tons of veg. All it means is I was eating too much of one thing.

Of course there are some actual cases, but nowhere near the amount some would have you believe. It's like some people want to be gluten intolerant so they can shout it from the rooftops.

This. People buy into fads like Paleo or whatever other nonsense restrictive diet is flavour of the week and cut out everything like bread snd sugar completely. As a result they eat more whole fruits and veggies and unprocessed meats and fish. They start to feel better and exercise more. Great for them, but they could do all this and still have a sandwich or mars bar or can of coke now and then and have the same results.

Super restrictive to the point where you have to convince yourself your allergic to something to stop you eating it as often as you used to is just stupid.

ruth_wex · 16-05-2014 08:25AM

I think a lot of the time, when people go off gluten, they end up eating less pre-packaged rubbish and more fresh food in general and therefore see an improvement in symptoms. But I also definitely think that, just as people can have issues with beans or dairy or whatever, people can have a sensitity to gluten.

I put up with years of pains, skin problems and general feeling of crapness for years. I'm waiting to get the biopsy done to test for coeliac disease as the doctors are adament that I am, but in the mean-time I got a broad spectrum test done - gluten came up high but way worse was dairy. I notice that if I eat small bit of gluten-containing food then I'm relaively fine but any more and all of the symptoms come right back. I'd say most people with a sensitivity are the same. As for dairy, the tiniest bit and I'm in bits!

I set up a gluten-free bakery a few months ago in Wexford (Rake of Cakes) and have noticed that a large proportion of my customers are intolerant, rather than coeliac.

I don't really care if it's proven or not - my symptoms more or less disappeared, my iron levels have finally increased to a healthy level and I have a right little business on the go! Happy days!

JuliusCaesar · 16-05-2014 08:42AM

In fairness, a lot of people claim to be allergic to food that they just don't like.

How many of the allergy diagnoses are done by non-medics, by 'alternative' or 'complementary' therapists?

vidor · 16-05-2014 08:50AM

Davarus Walrus wrote: »

And it's the same type of scientific woo that has people following braindead paleo diets.

Wait, what's wrong exactly with a paleo diet?

Seaneh · 16-05-2014 08:54AM

vidor wrote: »

Wait, what's wrong exactly with a paleo diet?

It's a load of nonsense. That's what.

vidor · 16-05-2014 08:59AM

That's me told. I'm more inclined to go down the primal route but wouldn't knock someone for eating the paleo way. It does cut out some nothing foods (bread for example) with the added bonus of trying out a ****load of nutritious foods you might not have tried otherwise.

16-05-2014 09:17AM

Was reading it yesterday
article headlines were different to article conclusions which were different to study conclusions, iirc

4zn76tysfajdxp · 16-05-2014 09:26AM

Whinging about people who don't eat gluten is becoming as big a fad as not eating gluten was.

kylith · 16-05-2014 09:34AM

vidor wrote: »

That's me told. I'm more inclined to go down the primal route but wouldn't knock someone for eating the paleo way. It does cut out some nothing foods (bread for example) with the added bonus of trying out a ****load of nutritious foods you might not have tried otherwise.

It does do that, but many of the foods in it simply wouldn't have existed, or would have only been available seasonally, or would have only grown too far away for your ancestors to access. If I remember an article I read a few months back correctly (I must see if I can find it) if you tried to live on a paleo diet that would actually consist of what had been available in your locality you'd probably wind up sufferinf from malnutrition.

Sod the paleo diet, just increasing your intake of fruit, veg, and unprocessed foods is the best diet, but people always seem reluctant to do that unless you dress it up with a fancy name and sell them books and stuff.

ETA: I think this was it. http://jonbarron.org/article/paleo-diet#.U3XRj2d8OUk

Gotham · 16-05-2014 09:37AM

Jonny Blaze wrote: »

Is this meant to be a revelation? You'll be telling us that ADHD doesn't exist next and that in fact those kids are just suger loaded little ****s!

Actually the revelation is the other way around, sugar doesn't cause kids to go crazy.

http://www.webmd.com/parenting/features/busting-sugar-hyperactivity-myth

hatrickpatrick wrote: »

I'm a little confused - does this mean that all those people who claim to feel better, have better digestion, and various other improvements from going gluten free are all actually experiencing a massive placebo effect and nothing more?

Pretty much. http://en.wikipedia.org/wiki/Nocebo

Gluten intolerance in Non Coeliacs May not exist

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