Keratoconus

bootybouncer · 22-02-2013 07:37PM

tashiusclay wrote: »

Cross linking doesn't improve your vision in most cases, it just stops further damage from the Kc. And glasses don't do an awful lot for Kc either, they work best when its still in its early stages, in later stages their help in getting clear
vision is so-so. When did you first get diagnosed with Kc?

Diagnosed about 8 years ago champ....................I know I know Ive really neglected me oul eyes

bootybouncer · 28-02-2013 08:09PM

Anyone get the intacs procedure done ?????

tashiusclay · 05-03-2013 09:37AM

glineli wrote: »

Is Claire doing the fitting? She showed me the larger ones but so far i havent had to wear them.

I am hoping to get CK and CXL done on the right eye late March early April time. I had the 3 month check up on Monday and they are very happy with the left one so far

Yes its Claire thats fitting, up on 13th March to get measured up. Very anxious to see how I can adapt to these lenses, but I'm sure I'll manage to tolerate them.

Nice news on the left eye, glad the treatments are going well for you. Keep us informed throughout.

bootybouncer · 10-03-2013 10:00PM

Bump........Anyone get intacs done???

okoboyle · 11-03-2013 06:15PM

not sure if people on here know of a closed private chat group on fb called keratoconus ireland support, for all irish kc patients

glineli · 12-03-2013 10:04AM

Going to get right eye treatment in April. CK on the 15th and CXL on the 16th. Looking forward to it.

bootybouncer · 14-03-2013 11:37AM

Sim lc on the right eye in april ......................contact lenses fitting in the left eye in the meantime................................ at last Im doing something about it

tashiusclay · 15-03-2013 01:51PM

Well folks, I was up in the Wellington on Wednesday for fitment of the 14mm rgp's, the type being used for me are SoClear.
Not much to report this time, just fitting up and testing and ordering the lenses. Having the lenses in felt strange, as to be expected, but they were not as uncomfortable as I expected. Claire got 20/20 in my bad left eye with them, in which, uncorrected, or even very slightly corrected with glasses, I cannot even see any of the chart-the eye is usually pretty much useless as is, so that was quite nice.
The colours and line definitions were amazing, everything looked so vivid when I first put the lenses in!

Back up again on the 10th April when the lenses will be ready for me. I'll report more after that.

tashiusclay · 15-03-2013 01:52PM

bootybouncer wrote: »

Sim lc on the right eye in april ......................contact lenses fitting in the left eye in the meantime................................ at last Im doing something about it

Good luck with it, looking forward to seeing how the SimLc goes for you. Any idea what type lenses you will be offered?

MarcusFenix · 15-03-2013 02:31PM

tashiusclay wrote: »

Well folks, I was up in the Wellington on Wednesday for fitment of the 14mm rgp's, the type being used for me are SoClear.
Not much to report this time, just fitting up and testing and ordering the lenses. Having the lenses in felt strange, as to be expected, but they were not as uncomfortable as I expected. Clare got 20/20 in my bad left eye with them, in which, uncorrected, or even very slightly corrected with glasses, I cannot even see any of the chart-the is usually pretty much useless, so that was quite nice.
The colours and line definitions were amazing, everything looked to vivid when I first put the lenses in!

Back up again on the 10th April when the lenses will be ready for me. I'll report more after that.

Hi Lads,

Just add my bit to this as I've had some work done since my CXL in the royal Vic around this time last year.

I've been in to see Clare and I'm on my 2nd set of lenses, the first ones I had were too tight, and even though I found them comfortable initially they did start to get very uncomfortable by the time my new larger ones arrived.

Same story as tashiusclay regarding the vision. 20/20 in an eye that I wouldn't have read a word with in 4-5 years in!!!:eek:

So even though the new lenses are a tad more irritating with the added movement the increase in vision quality more than makes up for it!

Was in with Clare yesterday to see how the new lenses fit and she was over the moon at the fitment, so now my next visit will be the 6 month check up jobbie.

Overall I found the whole experience to be excellent (not plugging, just was very disillusioned with a few years of Specsavers & HSE treatment before this) and am getting used to no glasses anymore. Cannot recommend Clare highly enough in terms of treating the patient as no.1 and getting a result I couldn't have hoped for!

Regarding the lenses themselves....couldn't tell ya what they are other than largish gas permeable jobbies.

Thumbs up from me

bootybouncer · 15-03-2013 08:49PM

tashiusclay wrote: »

Good luck with it, looking forward to seeing how the SimLc goes for you. Any idea what type lenses you will be offered?

Was in the eye clinic last Wednesday the same as your self....getting sim lc in the right eye in april, and in for fitting next week for a contact lense in the left eye........................ im away for a while in march so i cannot get operation until april................no operation needed in the left eye as yet, but they will monitor it............................it will be money well spent I think

Lads are the contact lenses working out pricey???????? ive heard mad prices quoted for some

MarcusFenix · 15-03-2013 09:01PM

bootybouncer wrote: »

Was in the eye clinic last Wednesday the same as your self....getting sim lc in the right eye in april, and in for fitting next week for a contact lense in the left eye........................ im away for a while in march so i cannot get operation until april................no operation needed in the left eye as yet, but they will monitor it............................it will be money well spent I think

Lads are the contact lenses working out pricey???????? ive heard mad prices quoted for some

Lenses aren't too bad, around €300 for the pair.

I reckon all the eye drops and Quattro will add up though, 12 euro a bottle and I always keep a backup of both

bootybouncer · 15-03-2013 09:06PM

MarcusFenix wrote: »

Lenses aren't too bad, around €300 for the pair.

I reckon all the eye drops and Quattro will add up though, 12 euro a bottle and I always keep a backup of both

Thanks champ.......suppose it depends on the lenses that are gonna be fitted ???.......ah next week will reveal all

MarcusFenix · 15-03-2013 09:14PM

bootybouncer wrote: »

Thanks champ.......suppose it depends on the lenses that are gonna be fitted ???.......ah next week will reveal all

I think so, Clare said that if these didn't fit that the next ones she had to try were like 3000!!! Dunno if that's the pair but its not happening !

bootybouncer · 15-03-2013 09:20PM

MarcusFenix wrote: »

I think so, Clare said that if these didn't fit that the next ones she had to try were like 3000!!! Dunno if that's the pair but its not happening !

Wow thats crazy, sure the surgerys is pricey enough..........................cracking looking isnt she

MarcusFenix · 16-03-2013 11:32PM

bootybouncer wrote: »

Wow thats crazy, sure the surgerys is pricey enough..........................cracking looking isnt she

One of the best I've seen! Even before my eyes went to ****

bootybouncer · 21-03-2013 10:42PM

bump bump

Moldol · 23-03-2013 03:29PM

i attend eyecatchers opticians in waterford with brian o sullivan and find him very good. i too have spent a small fortune on contacts as i constantly loose or mix them up! im now wearing soft contacts under the hard ones more exspense i wonder if we would be enttled to claim any of the money back as its an ongoing condition

murrayp4 · 24-03-2013 04:49PM

Am I the only one who thinks "Kerry Katona" every time I see this thread??

bootybouncer · 05-04-2013 01:47PM

bump chappers..................................any updates

Thelostcountry · 09-04-2013 02:54PM

Bump!

bootybouncer · 09-04-2013 05:11PM

Thelostcountry wrote: »

Bump!

bump............got cross linking a few days ago

Thelostcountry · 09-04-2013 10:03PM

bootybouncer wrote: »

bump............got cross linking a few days ago

Hi, how was it? How you feeling post op?

glineli · 09-04-2013 10:54PM

bootybouncer wrote: »

bump............got cross linking a few days ago

Where did you get it done? how you getting on?

I am getting CK next Monday and CXL next Tuesday on my right eye, again with Dr Cummings. Looking forward to the difference already

bootybouncer · 10-04-2013 09:39AM

glineli wrote: »

Where did you get it done? how you getting on?

I am getting CK next Monday and CXL next Tuesday on my right eye, again with Dr Cummings. Looking forward to the difference already

Dr Corkin did me, very nice man.......................... scleral lense in the left at the mo, month or six weeks before i can get the right measured, got cxl with bit of laser, simlc...........quite cloudy now and worse than before, but I was told to expect that

whats ck?

glineli · 10-04-2013 11:03AM

bootybouncer wrote: »

whats ck?

CK is Conductive Keratoplasty.

http://www.allaboutvision.com/visionsurgery/ck_ltk_eye_surgery.htm

I then have CXL 24 hours later. Dr Cummings believes the new shape from CK should be locked down as soon as possible using CXL

bootybouncer · 10-04-2013 04:03PM

glineli wrote: »

CK is Conductive Keratoplasty.

http://www.allaboutvision.com/visionsurgery/ck_ltk_eye_surgery.htm

I then have CXL 24 hours later. Dr Cummings believes the new shape from CK should be locked down as soon as possible using CXL

Great champ, hope it goes well

ClothesBeam! · 11-04-2013 01:32AM

Hello there, new here and only recently got diagnosed with Keratoconus about 3 weeks ago.

Went into Specsavers cause of the 15 euro eye test and got sent to Dr Condon afterwards. According to him I've about 10% vision left in my right eye but its only barely starting to take effect in my left eye. He also got in contact with the Mater for me and I'm just waiting to hear back from them to see where i go from here. Have to say, Condon is a pretty great guy, very glad he is here in Waterford.

So since this is all very new to me i have a few questions I'm hoping some of you fine people can help me with

I'm 22 so what i can expect in the years to come?

Like many in Waterford I'm unemployed and on a medical card, will i be covered on the card for treatments? and if not what expenses will come up?

Crosslinking seems to be what I'll need next so whats it like?

And how am i gonna manage getting all these things done to my eyes when i can barely put in the drops without squirming like a freak haha

Thanks for any help you can offer

tashiusclay · 13-04-2013 02:47PM

Well folks another quick update, following my Cxl in my right eye, and nothing being able to be done with my left eye as its far too thin, I collected my rgp's from Clare in the Wellington on Wednesday, they're only the first pair I've being given, as usually a few trial and error refits are required before a comfortable fit is usually achieved, and these pair aren't fitting as good as they could be, Clare has a slightly modified pair ordered for me which I should have out in the post next week.

But I have to say they are still pretty ok to wear, I'm only breaking them in day by day yet, but I'm quite happy with them, excellent vision from them, more or less 20/20. Strangely, the vision from my bad left eye is even better with the lens than the good right eye with a lens.

The Halo effect at night seems to have improved too, though I'll report better on that when I have them in again tomorrow night and I'll try and get out in the car for a spin.

The lenses I have are No.7 Laboratories SoClear 14mm rgps, well happy with them so far anyway, even on the steep left eye and not fitting as good as they should, they're still very managable. A better fit with the next lenses should make them better again all going well.

tashiusclay · 13-04-2013 02:53PM

ClothesBeam! wrote: »

Hello there, new here and only recently got diagnosed with Keratoconus about 3 weeks ago.

Went into Specsavers cause of the 15 euro eye test and got sent to Dr Condon afterwards. According to him I've about 10% vision left in my right eye but its only barely starting to take effect in my left eye. He also got in contact with the Mater for me and I'm just waiting to hear back from them to see where i go from here. Have to say, Condon is a pretty great guy, very glad he is here in Waterford.

So since this is all very new to me i have a few questions I'm hoping some of you fine people can help me with

I'm 22 so what i can expect in the years to come?

Like many in Waterford I'm unemployed and on a medical card, will i be covered on the card for treatments? and if not what expenses will come up?

Crosslinking seems to be what I'll need next so whats it like?

And how am i gonna manage getting all these things done to my eyes when i can barely put in the drops without squirming like a freak haha

Thanks for any help you can offer

Try and get the crosslinking done in the good left asap anyway, thats your main priority at the min, hopefully Dr Condon can get this pushed through quickly for you via the medical card through the Mater/Eye and Ear hospital. The crosslinking should be covered on the medical card, I had to go privately as my remaining good eye was already pretty advanced by the time I found out I had Kc, I was too afraid to wait any longer for the Hse to do it for me.

You'll get used to poking and pawing your eyeballs don't worry, I used to hate putting drops etc anywhere my eyes, now its starting to become second nature

Keratoconus

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