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Psoriasis
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Has anyone here used Dovonex? I bought it a couple of weeks ago to try. My P currently is contained to my scalp and face
Scalp doesn't bother me much, I've dealt with it for over 20 years there. Face is obviously not so easy to live with. I've had small patches on my face over the years but currently it's the worst. I have some on my forehead, a patch under one of my eyes, and around both temples moving down onto my cheeks. For the most part intensive moisturiser keeps it relatively at bay and it's not that noticeable when I have makeup on. I have been using Diprobase ointment and it's ok but really just softens the scales rather than lifting.
As I said I decided to give Dovonex a try. Stupidly just put it straight onto my face without doing any research
Overnight my skin was smooth (albeit still red) and I was delighted. Within a day or two my skin all over my face was badly peeling as if I'd been sunburnt. Read up on the ointment and discovered that it probably isn't the best for your face. I continued using it behind my ears and around the scalpline at my neck and found it effective there (although if I stop using it for a couple of days, dry flaky skin comes back very quickly). I was desperate to clear up my face so I tried it again, this time mixing it with Vaseline ratio 1:1. Same as before, worked well but skin started peeling. I'm currently using it about once or twice a week on my face, but diluting it to Vaseline by a ratio of 1:3 now, and I'm STILL suffering some peeling (although not as bad as previously).
I'm due to see my rheumy in a few weeks (I have psoriatic arthritis) and I'm hoping he can prescribe me something for the skin on my face. Does anyone have any recommendations?0 -
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Have you been out in the sun much?ibarelycare wrote: »As I said I decided to give Dovonex a try. Stupidly just put it straight onto my face without doing any research Overnight my skin was smooth (albeit still red) and I was delighted. Within a day or two my skin all over my face was badly peeling as if I'd been sunburnt.
I use donovex and it says it makes you more photosensitive. I put some very sparingly on my face last year and noticed it was red after being out in the sun in places I applied it. I also was using a UVB light and got much redder sunburn on spots I had used the cream on.
If I use a high dose of UVB I always make sure to put sudocrem on afterwards as it will be good for sunburn.
I also dilute donovex for my face like you, and often dilute with sudocrem. It is obviously quite visible so I just have it on later in the day at home. The white colouring is also great as you can see exactly where you applied and gauge how much.
also...Dovonex is not recommended for the face, and dovobet is dovonex along with a steroid so I guess would not be advised.
I did find mention of a prescription cream called Silkis which is meant to be suitable for the face, and not steroid based. So ask your doctor I suppose, it was the first I heard of it so it might not be commonly known.
http://www.dailymail.co.uk/health/article-173493/Cream-save-faces-psoriasis.html
I have been getting as much sun as I can and my face is totally clear now.0 -
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Without giving too much medical advice, the general path with me was creams and ointments (work for a little bit then useless), then light treatments (works brilliantly but only for a short period), then biologics.
Biologics, specifically Humira, worked wonders for me but I foolishly lapsed my treatments as I was saving to buy a house and 140€ per month was too much. The psoriasis came back and while I'm back on the Humira it's taking a while to clear.
A lot of people try cutting out sugar and carbs (amongst other things) which some people claim aggravate psoriasis. I know sugar does for me but Im finding it hard to quit. Probiotics are supposed to be good as well but this area and the diet area is...a complicated path.
In my opinion, this is an inside issue. No amount of creams will clear it. So it's either diet or injections. Or moving to a sunny climate
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charleville wrote: »For years I thought psoriasis was just a skin disease.. I’m 38 now and only recently I’ve been having issues with inflammation, foot swelled up couldn’t walk a couple months ago, that passed and now this last 2 weeks my back/shoulders/neck/foot is so sore that I can’t work or even move with it... I was so naive about this condition for years.
I urge everyone who has psoriasis to check in with their doctor from time to time for a blood test just to keep tabs - if it shows high levels of C reactive protein then this is a sign of inflammation in your body, which you should not ignore as it can be linked to the heart also.
Coincidently I decided to have my tonsils removed around 3 years ago as I believed this would help, however my psoriasis seems to have gotten worse since that (skin and inflammation etc) so not sure what’s going on.
Charleville, for years I had joint and general inflammation symptoms, fatigue... life was so hard for the past 10-12 years.
I had a fair amount of skin psoriasis, but since I'd had it since my youth I didn't fret about the skin thing, did a few treatments, and then gave up and just let it be. (I think I posted before on this thread, on how I didn't care about the skin thing, I should have taken it more seriously, not so much on its own grounds, but as part of a bigger picture !)
I was diagnosed with psoriatic arthritis a few months ago. I am now on Methotrexate.
I don't think treating the skin condition more would have made much difference to where I am now, but I do think there is a broad lack of awareness of psoriatic arthritis, and as a result GPs do not necessarily point it out to patients, who themselves do not suspect it until it really becomes overwhelming.
If only my GP had mentioned it years ago when I was calling yet again for lower back, neck, hand, foot/heel complaints, if only we had joined the dots then instead of now, I might not have had to go part time in my job, and go through years of misery, not being able to play with my kids as much as I wanted to, gradually ceasing lots of activities because every effort had its payback in aches and fatigue.
I might also not have Chronic Kidney disease now, I think Ps. Arthritis can effect kidneys, heart, etc... Well, not so much the arthritis as the constant inflammation.
I'm only CKD stage 3 so it's not too bad, but awareness of it all earlier could have spurred me on to change my diet etc...
I also have high blood pressure now, which might have been pushed back a bit (I'm 45) had I not lived in a quasi-constant state of inflammation for the last decade.
The diagnosis was easy after years of joint complaints to my GPs, they had a record of a lot of episodes, and then there was all the times I didn't go and took pain killers or went to the ostheopath. I was taking over the counter painkillers practically all the time. Winters were misery, and the flares were not regular, but sustained. One week it would be the shoulder, then on with that for 3 weeks or so, and it would go. Then the knee might go dodgy for 3 weeks or so, and after the flare was over, I couldn't tell you if it was the left or right one that was sore. And so on, with practically every joint in my body. The jaw even.
For years I have taken a bath every morning instead of a shower, to speed up how long it took me to be functional, to try and ease the pains before facing a day's work. (I'm not springing out of bed now, but a shower often is enough, yeay !)
Blood tests are not very indicative for psoriatic arthritis and they proceed by elimination (there is no specific marker), but like you said, with obvious inflammation, no rheumatoid arthritis and other easily identified ones, and heaps of symptoms, then psoriatic arthritis is evident. Nails are an easy to spot symptom.
My inflammation levels were serious and worrying, and at the time when I saw the rheumatologist, I wouldn't even have considered myself as in a flare.
Now I got my last blood test, I have been on Methotrexate about 4 months, it's not easy, there are tough enough side effects at the beginning, but I am reaching the happy level where these are contained and I'm getting more benefit of the medication.
The inflammation is nearly always gone ! I've still to up the Mtx dose with rheumy, so I still have a few pains and a few flares, and some fatigue, but they're not as prolonged, and I'm confident I will get to a stage where, as he said to me, it will be hard to remember all the hardship of psoriatic arthritis.
That's my journey so far, and yes, I would urge anyone who has psoriasis to consider psoriatic arthritis, to at least mention it to the GP and keep an aware eye for symptoms, rather than let it get to the stage I was at.
I wish you well on your journey, whether you get diagnosed with the above or not, and if you did happen to get diagnosed, it's all really worth it, even if the medication sounds daunting and the first few months of diagnosis and start of treatment (potentially) are heavy going (lots of blood tests ahead of you ).
Good call posting Charleville, and sorry my post is so long, good to highlight it every so often on this thread though.
https://psoriatic-arthritis.com/psa-basics/0 -
Mountainsandh wrote: »Charleville, for years I had joint and general inflammation symptoms, fatigue... life was so hard for the past 10-12 years.
I had a fair amount of skin psoriasis, but since I'd had it since my youth I didn't fret about the skin thing, did a few treatments, and then gave up and just let it be. (I think I posted before on this thread, on how I didn't care about the skin thing, I should have taken it more seriously, not so much on its own grounds, but as part of a bigger picture !)
I was diagnosed with psoriatic arthritis a few months ago. I am now on Methotrexate.
I don't think treating the skin condition more would have made much difference to where I am now, but I do think there is a broad lack of awareness of psoriatic arthritis, and as a result GPs do not necessarily point it out to patients, who themselves do not suspect it until it really becomes overwhelming.
If only my GP had mentioned it years ago when I was calling yet again for lower back, neck, hand, foot/heel complaints, if only we had joined the dots then instead of now, I might not have had to go part time in my job, and go through years of misery, not being able to play with my kids as much as I wanted to, gradually ceasing lots of activities because every effort had its payback in aches and fatigue.
I might also not have Chronic Kidney disease now, I think Ps. Arthritis can effect kidneys, heart, etc... Well, not so much the arthritis as the constant inflammation.
I'm only CKD stage 3 so it's not too bad, but awareness of it all earlier could have spurred me on to change my diet etc...
I also have high blood pressure now, which might have been pushed back a bit (I'm 45) had I not lived in a quasi-constant state of inflammation for the last decade.
The diagnosis was easy after years of joint complaints to my GPs, they had a record of a lot of episodes, and then there was all the times I didn't go and took pain killers or went to the ostheopath. I was taking over the counter painkillers practically all the time. Winters were misery, and the flares were not regular, but sustained. One week it would be the shoulder, then on with that for 3 weeks or so, and it would go. Then the knee might go dodgy for 3 weeks or so, and after the flare was over, I couldn't tell you if it was the left or right one that was sore. And so on, with practically every joint in my body. The jaw even.
For years I have taken a bath every morning instead of a shower, to speed up how long it took me to be functional, to try and ease the pains before facing a day's work. (I'm not springing out of bed now, but a shower often is enough, yeay !)
Blood tests are not very indicative for psoriatic arthritis and they proceed by elimination (there is no specific marker), but like you said, with obvious inflammation, no rheumatoid arthritis and other easily identified ones, and heaps of symptoms, then psoriatic arthritis is evident. Nails are an easy to spot symptom.
My inflammation levels were serious and worrying, and at the time when I saw the rheumatologist, I wouldn't even have considered myself as in a flare.
Now I got my last blood test, I have been on Methotrexate about 4 months, it's not easy, there are tough enough side effects at the beginning, but I am reaching the happy level where these are contained and I'm getting more benefit of the medication.
The inflammation is nearly always gone ! I've still to up the Mtx dose with rheumy, so I still have a few pains and a few flares, and some fatigue, but they're not as prolonged, and I'm confident I will get to a stage where, as he said to me, it will be hard to remember all the hardship of psoriatic arthritis.
That's my journey so far, and yes, I would urge anyone who has psoriasis to consider psoriatic arthritis, to at least mention it to the GP and keep an aware eye for symptoms, rather than let it get to the stage I was at.
I wish you well on your journey, whether you get diagnosed with the above or not, and if you did happen to get diagnosed, it's all really worth it, even if the medication sounds daunting and the first few months of diagnosis and start of treatment (potentially) are heavy going (lots of blood tests ahead of you ).
Good call posting Charleville, and sorry my post is so long, good to highlight it every so often on this thread though.
https://psoriatic-arthritis.com/psa-basics/
Hi Mountainsandh,
Glad your doing better.
Did you need to ask the GP for the tests/testing? I have been to the GPs numerous and often just given anti-inflammatory medication for joint pains and steroids/ointments for Psoriasis. I have had Psoriasis for 30 years, and after trying so many different products, nothing seem to work. For the last 8-10 years though, I have lots of aches and pains in knees and hips including radiating pain in legs but I also have sciatica so put it down to that. Now, I am starting to get more clued up about Psoriasis and how it is all related to inflammation in the body, it sounds like it is all related to my aches and pains. I too, struggle in the mornings just to get our of bed.
I have been advised to see a physiotherapist, so not sure which is the best course of action for me. Any advice on what to ask the GP for?
Thanks0 -
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