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The Boy Whose Skin Fell Off

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  • 14-08-2005 4:07pm
    #1
    Roar
    Registered Users Posts: 7,426 ✭✭✭


    Caught this on Discovery the other night at stupid o'clock, anyone else catch it?

    It was a documentary about a guy called Johnny who had a skin disease called EB from birth, which means that his skin would literally fall off with contact..

    He was given a year to live, and the documentary followed his last four months, from him organising his funeral to going to fundraisers etc..

    I thought it was unbelieveably moving, Johnny had a great outlook on life and was always humourous, laughing all the way..

    It was utterly compelling viewing and something that will stay with me for a very long time...

    there's more info on the disease here


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    #2
    Drag00n79
    Registered Users Posts: 2,746 ✭✭✭Drag00n79


    Roar wrote:
    Caught this on Discovery the other night at stupid o'clock, anyone else catch it?
    I saw it on RTÉ1 about five or six weeks ago. Tough to watch but but that lad, Jonny, would give anyone a lift the way he faced everything so positively. Sorry, I missed it on Discovery or I would have recorded it. Originally it was broadcast on Channel 4.


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    #3
    Drag00n79
    Registered Users Posts: 2,746 ✭✭✭Drag00n79


    Just see now that Discovery is showing it again on 22 September at 10pm. Well worth watching.


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    #4
    whiskeyman
    Registered Users Posts: 12,564 ✭✭✭✭whiskeyman


    Very moving story.
    Puts all our own problems and worries in context.
    His story really captured the hearts of so many.

    C4 has its own microsite for it:

    http://www.channel4.com/health/microsites/B/boy_whose_skin_fell_off/

    you can even buy a DVD of the programme there..


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    #5
    alleepally
    Closed Accounts Posts: 2,027 ✭✭✭alleepally


    Seems ages since I first saw it on S4C. What an amazing bloke he was.


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    #6
    melody
    Closed Accounts Posts: 20 ✭melody


    yeah i saw it a think about a year ago on ch4.
    he was an amazing person, it was so sad to watch.
    i keep an eye out for that charity debra now which is good.


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    #7
    SoupyNorman
    Registered Users Posts: 4,257 ✭✭✭SoupyNorman


    I seen it last year on C4 , was so sad but his outlook on life was inspiring... thought coming onto nell mc andrew was quite cheeky but fair fu*ks the fella for trying!


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    #8
    Dizzyblabla
    Registered Users Posts: 1,440 ✭✭✭Dizzyblabla


    I saw it the other night, I could have cried for him when his mom was changing his dressings, I found it quite hard to watch, and yet I couldn't change the channel. His positive attitude should be a lesson to us all.


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    #9
    Maynooth
    Closed Accounts Posts: 368 ✭✭Maynooth


    I saw it a while back too, amazing programme. I cried so many times and I rarely cry at the telly. RIP Johnny. A truly brave soul.


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    #10
    CrimE
    Closed Accounts Posts: 719 ✭✭✭CrimE


    Yeah a truely inspiring story/person. His resilience, charisma and enduring positive outlook on life are what made this one of the best documentaries I have ever seen.

    An example set worthy of the whole worlds respect.


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    #11
    MrJoeSoap
    Registered Users Posts: 15,117 ✭✭✭✭MrJoeSoap


    A brilliant piece of television, what a kid.


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