Neuralgia

ohsomuchbetter

Hi all

Just looking for anyone’s experiences of neuralgia.

I began suffering from intense pain in December which worsened and worsened as the month went on. Initially thought it was sinus related or teeth related. Both ruled out by dentist and doctor after X-rays and two CTs.

They have temporarily diagnosed neuralgia and I’m in awaiting an appointment with a neurologist next week. The only pain medication which gave me any relief was Oxynorm which I’ve been prescribed for a week as well as amitriptyline and difine.

Any experiences welcomed. The Oxynorm relieves the pain very well but not sure if it is sustainable as I get very drowsy afterwards but for now the pain in my jaw and head was so intense that I’m willing to take anything to help.

Skyfarm

Hi Op

pain relief is so fraught with pitfalls, addiction is a huge problem even if only taking them short term.

have you MRI taken?

http://www.chronicpain.ie/ have loads of tips on how to cope with pain, I know pain takes three months to be defined as chronic but prevention is better than a cure

ohsomuchbetter

I had an MRI this morning and my consultant is sending me for a specialised CT next week which is only done in one centre in the country I’m told.

Today has been a good day so far.

Yes, my biggest concern was when I was prescribed Oxynorm. I have it in its lowest dose but I know how addictive it is so I’m trying not to take it.

cassid

have Trigeminal neuralgia, was breasfeeding when diagnosed and it took ages passed between dentist. gp and pain specialist. Pain specialist diagnosed it. I used to walk the floors at night in pain as could take nothing with the breastfeeding. I spent so much money on healers, physio, all sorts nothing got rid of the pain. SSRI's are really good for nerve pain. I was on the same one for 8 years no problem, it started to wear off so just in the middle of finding another one. best of luck x

Graces7

Sympathy here. I have attacks of what they call atypical facial neuralgia. Utter agony. The only thing that helps is Tylex and it stops it in its tracks. SInce I moved I have had no GP etc and was left high and dry with no meds. Slid right back into severe attacks.
I know codeine is addictive but I have not increased the dose in 10 years and it works. At my advanced age not concerned re addiction but with some quality of pain free life

byhookorbycrook

Is it likely you have TMJ disorder? On top of MS, I do and a splint makes a huge difference. Amitriptyline makes me sleepy and it took a while for me to work out what time to take it in the evening, so that it helped me sleep and blunted the pain and that I wasn't zonked the morning after.