Postdrome Migraine 6 weeks and counting...

Galway_guy_33

So as per the post title.... I had a migraine attack 6 weeks ago now with the typical symptoms, Aura with visual disturbance, tingling and numb feeling in my hand and mouth.... Direct sunlight was the trigger but ive been under alot of stress right up to the time it all started.

however this time there was one major difference. ...

Every day since (6 weeks now) I dont feel right at all.... I have a heavy brain fog feeling with tingling on the right side of my face. I feel like i'm not 100% present and I cant seem to shake this feeling. I'm really low in energy too and every three days or so im totally exhausted and have to return to bed a few times a day.... i'm having to work from home as i tried working in the office but had to go home due to exhausting.

I've returned to my GP numerous times and he sent me for a CT scan which came back clear.... I've been given no migraine meds just normal pain killers. I've been referred to a neurologist privately but the wait time is 6 - 9 months..... i honestly cant continue like this for the next six month.... im at my witts end with this feeling every hr im awake. I'm getting plently of rest and have no touble sleeping.


My GP is now telling me to go directly to Beaumount a&e as its the only way ill get treated..... I have private health cover costing over 2k a year.... but honestly i'd pay directly out of my own pocked at this stage yet this would require waiting for months.

Anyone ever had postdrome symptoms lasting this long? Or know someone I could attend privately?

Xenji

I have had it last anywhere from 2-6 weeks, even with taking the nasal prevention spray to prevent the full blown attack occuring, to be honest I do not think there is a quick remedy and as like with migraines, everyones postdrome symptoms will vary and it can have triggers as well to make it worse.

I have got used to it at this point and just ride it out, but it can be very tough, nearly inducing panic at times, I find strong ibuprofen the best with it though.

Gremlinertia

If your doc recommends a+e that's where i'd go, those symptoms are something worth looking at..


MOD note - no medical advice

Galway_guy_33

Xenji wrote: »

I have had it last anywhere from 2-6 weeks, even with taking the nasal prevention spray to prevent the full blown attack occuring, to be honest I do not think there is a quick remedy and as like with migraines, everyones postdrome symptoms will vary and it can have triggers as well to make it worse.

I have got used to it at this point and just ride it out, but it can be very tough, nearly inducing panic at times, I find strong ibuprofen the best with it though.

Thanks for the reply... to be honest anything i read online about postdrome was saying it should last 2 to 3 days so i was getting worried. Its a comfort to know im not alone now.

Im going to try a supplement called Dolovent as suggested by the migraine association of ireland.

Galway_guy_33

So i attended a&e during the week and saw a neurologist. Got a MRI brain scan done which was clear and bloods and eye examination.

Ive been put on an increasing dose of topamax for the next 6 weeks.

I was warned about some of the side effects of this drug which can be permanent... e.g. permanent memory loss.

So im reluctant to start this med now i think ill leave it a little longer to see if this brain fog feeling will clear over time with meds.

njs030

Galway_guy_33 wrote: »

So i attended a&e during the week and saw a neurologist. Got a MRI brain scan done which was clear and bloods and eye examination.

Ive been put on an increasing dose of topamax for the next 6 weeks.

I was warned about some of the side effects of this drug which can be permanent... e.g. permanent memory loss.

So im reluctant to start this med now i think ill leave it a little longer to see if this brain fog feeling will clear over time with meds.

I take a high dose of Topamax for migraine and have done for a while, I've never seen any official study stating a link to permanent memory loss and my neurologist says that its untrue.

Can you provide a link to this please?

Galway_guy_33

notjustsweet wrote: »

I take a high dose of Topamax for migraine and have done for a while, I've never seen any official study stating a link to permanent memory loss and my neurologist says that its untrue.

Can you provide a link to this please?

Im afraid i dont have a link but the side effects were mentioned to me by the neurologist. Honestly i didnt think much of it untill i went to pic up my prescription. The pharmacist kept stressing more than a few times that i needed to read the leaflet this was s bit odd.

For me i dont have migraines often i remember 3 in my entire life... including the one i had 7 weeks ago... i had a head ache for 20 mins that day but im suck with brain fog ever since.

From reading about topamax it can cause brain fog so i dont see how it can help me right now. So i think ill hold off a bit longer ... try to destress as i believe this was my in inital trigger for this attack

njs030

Try peppermint oil on your temples, careful not to get it in your eyes though!!!
There's a herbal supplement for brain fog, can't remember what it's called but drop into your health shop and ask - you mix it into juice each morning and it helps.

Galway_guy_33

So just a update on this thread i started....

Its two months to the day since my whole life went downhill with a major migraine attack i detailed above.

How ever i now think ive suffered a burn out due to extreme stress from multiple major events.

So when this all started 2 months ago i assumed it was a migraine attack and wld pass... ive had both ct & mri scans and all was ok. But i really worked myself into an awful state while in hospital for 3 days... no sleep at all... being in the same ward with young people wuth ms & strokes really set me back... i was terrified i was going to end up like them. But i was assured by the docs it was all stress related migraine.

Since i left hospital over a week ago i wake every morning with a sick stomach and really have to force myself to eat at certain times. But i have found im much better later at night time..
My appetite is much better say at 8pm... im.lacking in energy and still suffering from brain fog every min of the day.

Honestly my gp is not very understanding just gave me 8 xanax said go home take it easy. Right now im on holidays in the Indian ocean im here two days cant say i feel much different yet.

Sorry for the long post but id love to hear from anyone that may have experienced something similar...i.e. burn out/exterme stress with lost of appetite, brain fog , migraine attack and lacking in energy.

LegacyUser

Hi, i hope you are feeling better. I've been going through this for months now. I was first prescribed topomax but the side effects were worse than the symptoms. Id severe memory loss, lack of appetite, complete brain fog. I tried a beta blocker but unfortunately it didnt reduce the symptoms. Im on my 3rd lot of meds seblium, only on them 3 wks but no change. Maybe in nxt few wks. My neurologist is super. Very engaging. He said there r so many meds out there. Its just a matter of getting one that works, once it works it will break the migraine cycle and then i can come off the meds. If it happens again ill know exactly what works.